Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder / Chimei M. LEE in Autism Research, 16-6 (June 2023)  

Public ISBD [article]  inAutism Research > 16-6 (June 2023) . - p.1210-1224 Titre : Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder Type de document : texte imprimé Auteurs : Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen M. KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy N. ESLER, Auteur ; THE SPARK CONSORTIUM, Auteur Article en page(s) : p.1210-1224 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18 months 18 years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 [article] Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder [texte imprimé] / Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen M. KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy N. ESLER, Auteur ; THE SPARK CONSORTIUM, Auteur . - p.1210-1224. Langues : Anglais (eng) in Autism Research > 16-6 (June 2023) . - p.1210-1224 Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18 months 18 years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507

Comparative Analysis of Autistic Women Across the Lifespan: Childhood vs. Adulthood Diagnosis / Maire Claire DIEMER in Autism Research, 18-8 (August 2025)  

Public ISBD [article]  inAutism Research > 18-8 (August 2025) . - p.1651-1663 Titre : Comparative Analysis of Autistic Women Across the Lifespan: Childhood vs. Adulthood Diagnosis Type de document : texte imprimé Auteurs : Maire Claire DIEMER, Auteur ; Rosmary ROS-DEMARIZE, Auteur ; Catherine BRADLEY, Auteur ; Stephen M. KANNE, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Ericka WODKA, Auteur ; THE SPARK CONSORTIUM, Auteur ; Laura A. CARPENTER, Auteur Article en page(s) : p.1651-1663 Langues : Anglais (eng) Mots-clés : adults  autism  co-occurring conditions  LGBT  lifespan  SPARK  women Index. décimale : PER Périodiques Résumé : ABSTRACT This study investigates the experiences of autistic adult women, a group understudied in autism research due to a predominant focus on early identification/intervention, restrictive research participation criteria, and differing rates of diagnosis by sex. This study characterizes a cohort of autistic adult women (n 1424) across various dimensions including demographics, relationships, education, employment, income, well-being, and co-occurring psychiatric conditions. It also explores differences among those diagnosed with autism as children versus those diagnosed as adults. The sample was limited to women able to read and provide independent consent to participate. Results indicated that the average age of diagnosis for those diagnosed before age 18 was 9.6 years old, whereas for those diagnosed in adulthood it was 31.8. Over 80% of the sample had completed some college or post-secondary education, with more than a third of those diagnosed as adults having attained a 4-year college degree or higher. More than half were employed, with those diagnosed as adults more likely to be employed full time (31.74%). Additionally, more than half were married or identified a romantic partner. Significant rates of psychiatric comorbidity were reported, with those diagnosed with autism as adults more likely to have co-occurring anxiety (69.87%), depression (61.79%), eating disorders (17.28%), and substance use diagnoses (8.85%) than those diagnosed as children. High rates of suicidal ideation (34%) and self-harm (21%) were endorsed in the full sample. Regression analyses indicated that being diagnosed with autism at a later age was associated with higher internalizing, externalizing, and substance use as well as a lower report of personal strengths, even when accounting for demographic factors. Despite these challenges, our findings highlight that many autistic women have positive outcomes and meet common adult developmental milestones. The authors advocate for the development of more tailored treatment options that address the specific needs of autistic women. En ligne : https://doi.org/10.1002/aur.70073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Comparative Analysis of Autistic Women Across the Lifespan: Childhood vs. Adulthood Diagnosis [texte imprimé] / Maire Claire DIEMER, Auteur ; Rosmary ROS-DEMARIZE, Auteur ; Catherine BRADLEY, Auteur ; Stephen M. KANNE, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Ericka WODKA, Auteur ; THE SPARK CONSORTIUM, Auteur ; Laura A. CARPENTER, Auteur . - p.1651-1663. Langues : Anglais (eng) in Autism Research > 18-8 (August 2025) . - p.1651-1663 Mots-clés : adults  autism  co-occurring conditions  LGBT  lifespan  SPARK  women Index. décimale : PER Périodiques Résumé : ABSTRACT This study investigates the experiences of autistic adult women, a group understudied in autism research due to a predominant focus on early identification/intervention, restrictive research participation criteria, and differing rates of diagnosis by sex. This study characterizes a cohort of autistic adult women (n 1424) across various dimensions including demographics, relationships, education, employment, income, well-being, and co-occurring psychiatric conditions. It also explores differences among those diagnosed with autism as children versus those diagnosed as adults. The sample was limited to women able to read and provide independent consent to participate. Results indicated that the average age of diagnosis for those diagnosed before age 18 was 9.6 years old, whereas for those diagnosed in adulthood it was 31.8. Over 80% of the sample had completed some college or post-secondary education, with more than a third of those diagnosed as adults having attained a 4-year college degree or higher. More than half were employed, with those diagnosed as adults more likely to be employed full time (31.74%). Additionally, more than half were married or identified a romantic partner. Significant rates of psychiatric comorbidity were reported, with those diagnosed with autism as adults more likely to have co-occurring anxiety (69.87%), depression (61.79%), eating disorders (17.28%), and substance use diagnoses (8.85%) than those diagnosed as children. High rates of suicidal ideation (34%) and self-harm (21%) were endorsed in the full sample. Regression analyses indicated that being diagnosed with autism at a later age was associated with higher internalizing, externalizing, and substance use as well as a lower report of personal strengths, even when accounting for demographic factors. Despite these challenges, our findings highlight that many autistic women have positive outcomes and meet common adult developmental milestones. The authors advocate for the development of more tailored treatment options that address the specific needs of autistic women. En ligne : https://doi.org/10.1002/aur.70073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort / Emily DILLON in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1305-1318 Titre : Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort Type de document : texte imprimé Auteurs : Emily DILLON, Auteur ; Stephen M. KANNE, Auteur ; Rebecca LANDA, Auteur ; Robert ANNETT, Auteur ; Raphael A. BERNIER, Auteur ; Catherine BRADLEY, Auteur ; Laura A. CARPENTER, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; Robert T. SCHULTZ, Auteur ; Ericka L. WODKA, Auteur ; Ericka L. WODKA, Auteur ; THE SPARK CONSORTIUM, Auteur Article en page(s) : p.1305-1318 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Discernment of possible sex-based variations in presentations of autism spectrum disorder (ASD) symptoms is limited by smaller female samples with ASD and confounds with ASD ascertainment. A large national cohort of individuals with autism, SPARK, allowed parent report data to be leveraged to examine whether intrinsic child characteristics and extrinsic factors differentially impact males and females with ASD. Small but consistent sex differences in individuals with ASD emerged related to both intrinsic and extrinsic factors, with different markers for males and females. Language concerns in males may make discernment of ASD more straightforward, while early motor concerns in females may hamper diagnosis as such delays are not identified within traditional ASD diagnostic criteria. En ligne : https://doi.org/10.1007/s10803-021-05385-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort [texte imprimé] / Emily DILLON, Auteur ; Stephen M. KANNE, Auteur ; Rebecca LANDA, Auteur ; Robert ANNETT, Auteur ; Raphael A. BERNIER, Auteur ; Catherine BRADLEY, Auteur ; Laura A. CARPENTER, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; Robert T. SCHULTZ, Auteur ; Ericka L. WODKA, Auteur ; Ericka L. WODKA, Auteur ; THE SPARK CONSORTIUM, Auteur . - p.1305-1318. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1305-1318 Index. décimale : PER Périodiques Résumé : Discernment of possible sex-based variations in presentations of autism spectrum disorder (ASD) symptoms is limited by smaller female samples with ASD and confounds with ASD ascertainment. A large national cohort of individuals with autism, SPARK, allowed parent report data to be leveraged to examine whether intrinsic child characteristics and extrinsic factors differentially impact males and females with ASD. Small but consistent sex differences in individuals with ASD emerged related to both intrinsic and extrinsic factors, with different markers for males and females. Language concerns in males may make discernment of ASD more straightforward, while early motor concerns in females may hamper diagnosis as such delays are not identified within traditional ASD diagnostic criteria. En ligne : https://doi.org/10.1007/s10803-021-05385-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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