Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction / Lauren SHELLEY in Journal of Autism and Developmental Disorders, 54-11 (November)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-11 (November) . - p.4179-4194 Titre : Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction Type de document : texte imprimé Auteurs : Lauren SHELLEY, Auteur ; Jane WAITE, Auteur ; Joanne TARVER, Auteur ; Chris OLIVER, Auteur ; Hayley CRAWFORD, Auteur ; Caroline RICHARDS, Auteur ; Stacey BISSELL, Auteur Article en page(s) : p.4179-4194 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : SATB2-associated syndrome (SAS) is a genetic syndrome characterised by intellectual disability, severe speech delay, and palatal and dental problems. Behaviours that challenge (BtC) are reported frequently; however, there is limited research on specific forms of BtC and the correlates of these behaviours. The current study explores correlates of well-defined BtC, self-injury, aggression, and property destruction, in SAS. Eighty-one parents/caregivers of individuals with SAS (53.1% male, Mage 10.12 years) completed questionnaire measures of health, behavioural, emotional, and autism characteristics. Individuals with SAS were grouped based on caregiver responses to the presence or absence of self-injury, aggression, and property destruction on the Challenging Behaviour Questionnaire. Rates of self-injury, aggression and property destruction were 42%, 77% and 49%, respectively. Between-group comparisons were conducted to compare characteristics between behaviour groups. Significantly differing characteristics were entered into separate hierarchical logistic regressions for each form of BtC. Behavioural comparisons indicated variation in the characteristics associated with each behaviour. All hierarchical logistic regression models were significant (p < .001): self-injury ( 2(5) = 38.46, R2 = 0.571), aggression ( 2(4) = 25.12, R2 = 0.414), property destruction ( 2(4) = 23.70, R2 = 0.346), explaining between 34.6% and 57.1% of the variance in behaviour presence. This is the first study to identify correlates of self-injury, aggression, and property destruction in SAS. Variability in the characteristics associated with each behaviour highlights the importance of specificity when examining BtC. Understanding correlates of specific forms of BtC has important implications for informing SAS-associated pathways to behavioural outcomes and the implementation of tailored behavioural interventions. En ligne : https://doi.org/10.1007/s10803-023-06123-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537 [article] Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction [texte imprimé] / Lauren SHELLEY, Auteur ; Jane WAITE, Auteur ; Joanne TARVER, Auteur ; Chris OLIVER, Auteur ; Hayley CRAWFORD, Auteur ; Caroline RICHARDS, Auteur ; Stacey BISSELL, Auteur . - p.4179-4194. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-11 (November) . - p.4179-4194 Index. décimale : PER Périodiques Résumé : SATB2-associated syndrome (SAS) is a genetic syndrome characterised by intellectual disability, severe speech delay, and palatal and dental problems. Behaviours that challenge (BtC) are reported frequently; however, there is limited research on specific forms of BtC and the correlates of these behaviours. The current study explores correlates of well-defined BtC, self-injury, aggression, and property destruction, in SAS. Eighty-one parents/caregivers of individuals with SAS (53.1% male, Mage 10.12 years) completed questionnaire measures of health, behavioural, emotional, and autism characteristics. Individuals with SAS were grouped based on caregiver responses to the presence or absence of self-injury, aggression, and property destruction on the Challenging Behaviour Questionnaire. Rates of self-injury, aggression and property destruction were 42%, 77% and 49%, respectively. Between-group comparisons were conducted to compare characteristics between behaviour groups. Significantly differing characteristics were entered into separate hierarchical logistic regressions for each form of BtC. Behavioural comparisons indicated variation in the characteristics associated with each behaviour. All hierarchical logistic regression models were significant (p < .001): self-injury ( 2(5) = 38.46, R2 = 0.571), aggression ( 2(4) = 25.12, R2 = 0.414), property destruction ( 2(4) = 23.70, R2 = 0.346), explaining between 34.6% and 57.1% of the variance in behaviour presence. This is the first study to identify correlates of self-injury, aggression, and property destruction in SAS. Variability in the characteristics associated with each behaviour highlights the importance of specificity when examining BtC. Understanding correlates of specific forms of BtC has important implications for informing SAS-associated pathways to behavioural outcomes and the implementation of tailored behavioural interventions. En ligne : https://doi.org/10.1007/s10803-023-06123-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537

Development and psychometric properties of the Clinical Anxiety Scale for People with Intellectual Disabilities (ClASP-ID) / Jessica Eliza MINGINS in Journal of Neurodevelopmental Disorders, 16 (2024)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 16 (2024) Titre : Development and psychometric properties of the Clinical Anxiety Scale for People with Intellectual Disabilities (ClASP-ID) Type de document : texte imprimé Auteurs : Jessica Eliza MINGINS, Auteur ; Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Megan BIRD, Auteur ; Hayley CRAWFORD, Auteur ; Chris OLIVER, Auteur ; Lauren SHELLEY, Auteur ; Jane WAITE, Auteur Langues : Anglais (eng) Mots-clés : Humans  Psychometrics  Intellectual Disability/complications  Male  Female  Adult  Anxiety/diagnosis  Adolescent  Young Adult  Child  Reproducibility of Results  Middle Aged  Child, Preschool  Psychiatric Status Rating Scales/standards  Surveys and Questionnaires  Autistic Disorder/complications/diagnosis/psychology  Anxiety  Assessment  Autism  Intellectual disability  Measure development  Mental Health  Pain  Questionnaire Index. décimale : PER Périodiques Résumé : BACKGROUND: There is a critical need for the development of dependable and valid anxiety assessment tools suitable for people with moderate to severe intellectual disabilities, particularly those who speak few or no words. Distinguishing anxiety from distress caused by physical discomfort (pain) or characteristics associated with autism, prevalent in this population, necessitates specialised assessment tools. This study (a) developed a parent-report anxiety questionnaire tailored for individuals with severe to moderate intellectual disabilities, potentially with a co-diagnosis of autism, and (b) evaluated the psychometric attributes of this novel measure. METHODS: A comprehensive approach involving literature reviews, inspection of existing tools, and interviews with clinicians and parents guided the creation of the Clinical Anxiety Scale for People with Intellectual Disabilities. The tool was completed by parents or caregivers (N = 311) reporting on individuals aged 4 or older with intellectual disabilities. RESULTS: Exploratory factor analysis indicated a four-factor structure encompassing anxiety, pain, low energy/withdrawal, and consolability. The anxiety factor explained the most variance in scores (26.3%). The anxiety, pain, low energy/withdrawal subscales demonstrated robust internal consistency (α = 0.81-0.92), and convergent, divergent, and discriminant validity. Robustness of these subscales was further evidenced by test-retest reliability (ICC = 0.79-0.88) and inter-rater reliability (ICC = 0.64-0.71). Subgroup analyses consistently demonstrated strong psychometric properties among individuals diagnosed with non-syndromic autism (N = 98), children (N = 135), adults (N = 175), and across diverse communication abilities within the sample. Moreover, individuals diagnosed with both autism and anxiety exhibited significantly higher scores on the anxiety subscale compared to those without an anxiety diagnosis, while showing no difference in autism characteristic scores. CONCLUSIONS: The findings indicate that the Clinical Anxiety Scale for People with Intellectual Disabilities is a promising measure for use across diverse diagnostic groups, varying communication abilities, and with people with moderate to severe intellectual disabilities. En ligne : https://dx.doi.org/10.1186/s11689-024-09554-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=575 [article] Development and psychometric properties of the Clinical Anxiety Scale for People with Intellectual Disabilities (ClASP-ID) [texte imprimé] / Jessica Eliza MINGINS, Auteur ; Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Megan BIRD, Auteur ; Hayley CRAWFORD, Auteur ; Chris OLIVER, Auteur ; Lauren SHELLEY, Auteur ; Jane WAITE, Auteur. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 16 (2024) Mots-clés : Humans  Psychometrics  Intellectual Disability/complications  Male  Female  Adult  Anxiety/diagnosis  Adolescent  Young Adult  Child  Reproducibility of Results  Middle Aged  Child, Preschool  Psychiatric Status Rating Scales/standards  Surveys and Questionnaires  Autistic Disorder/complications/diagnosis/psychology  Anxiety  Assessment  Autism  Intellectual disability  Measure development  Mental Health  Pain  Questionnaire Index. décimale : PER Périodiques Résumé : BACKGROUND: There is a critical need for the development of dependable and valid anxiety assessment tools suitable for people with moderate to severe intellectual disabilities, particularly those who speak few or no words. Distinguishing anxiety from distress caused by physical discomfort (pain) or characteristics associated with autism, prevalent in this population, necessitates specialised assessment tools. This study (a) developed a parent-report anxiety questionnaire tailored for individuals with severe to moderate intellectual disabilities, potentially with a co-diagnosis of autism, and (b) evaluated the psychometric attributes of this novel measure. METHODS: A comprehensive approach involving literature reviews, inspection of existing tools, and interviews with clinicians and parents guided the creation of the Clinical Anxiety Scale for People with Intellectual Disabilities. The tool was completed by parents or caregivers (N = 311) reporting on individuals aged 4 or older with intellectual disabilities. RESULTS: Exploratory factor analysis indicated a four-factor structure encompassing anxiety, pain, low energy/withdrawal, and consolability. The anxiety factor explained the most variance in scores (26.3%). The anxiety, pain, low energy/withdrawal subscales demonstrated robust internal consistency (α = 0.81-0.92), and convergent, divergent, and discriminant validity. Robustness of these subscales was further evidenced by test-retest reliability (ICC = 0.79-0.88) and inter-rater reliability (ICC = 0.64-0.71). Subgroup analyses consistently demonstrated strong psychometric properties among individuals diagnosed with non-syndromic autism (N = 98), children (N = 135), adults (N = 175), and across diverse communication abilities within the sample. Moreover, individuals diagnosed with both autism and anxiety exhibited significantly higher scores on the anxiety subscale compared to those without an anxiety diagnosis, while showing no difference in autism characteristic scores. CONCLUSIONS: The findings indicate that the Clinical Anxiety Scale for People with Intellectual Disabilities is a promising measure for use across diverse diagnostic groups, varying communication abilities, and with people with moderate to severe intellectual disabilities. En ligne : https://dx.doi.org/10.1186/s11689-024-09554-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=575

Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words / Georgina EDWARDS ; Joanne TARVER ; Lauren SHELLEY ; Megan BIRD ; Jessica HUGHES ; Hayley CRAWFORD ; Jane WAITE in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2328-2348 Titre : Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Georgina EDWARDS, Auteur ; Joanne TARVER, Auteur ; Lauren SHELLEY, Auteur ; Megan BIRD, Auteur ; Jessica HUGHES, Auteur ; Hayley CRAWFORD, Auteur ; Jane WAITE, Auteur Article en page(s) : p.2328-2348 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic individuals with intellectual disability who speak few or no words are at high risk of anxiety but are underrepresented in research. This study aimed to describe the presentation of anxiety in this population and discuss implications for the development of assessments. Interviews were conducted with 21 parents/carers of autistic individuals and nine clinicians. Data were analysed using content analysis and interpretative phenomenological analysis. Anxiety behaviours described by parents/carers included increased vocalisation, avoidance and behaviours that challenge. Changes to routine were highlighted as triggering anxiety. Clinicians discussed the importance of identifying an individual?s baseline of behaviour, knowing an individual well and ruling out other forms of distress. This study raises considerations for early identification of anxiety and for subsequent support. En ligne : https://doi.org/10.1007/s10803-022-05509-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506 [article] Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words : Journal of Autism and Developmental Disorders [texte imprimé] / Georgina EDWARDS, Auteur ; Joanne TARVER, Auteur ; Lauren SHELLEY, Auteur ; Megan BIRD, Auteur ; Jessica HUGHES, Auteur ; Hayley CRAWFORD, Auteur ; Jane WAITE, Auteur . - p.2328-2348. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2328-2348 Index. décimale : PER Périodiques Résumé : Autistic individuals with intellectual disability who speak few or no words are at high risk of anxiety but are underrepresented in research. This study aimed to describe the presentation of anxiety in this population and discuss implications for the development of assessments. Interviews were conducted with 21 parents/carers of autistic individuals and nine clinicians. Data were analysed using content analysis and interpretative phenomenological analysis. Anxiety behaviours described by parents/carers included increased vocalisation, avoidance and behaviours that challenge. Changes to routine were highlighted as triggering anxiety. Clinicians discussed the importance of identifying an individual?s baseline of behaviour, knowing an individual well and ruling out other forms of distress. This study raises considerations for early identification of anxiety and for subsequent support. En ligne : https://doi.org/10.1007/s10803-022-05509-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506

---

1 (1 - 3 / 3) Par page : 25 50 100 200