Brief Report: Healthcare Providers' Discussions Regarding Transportation and Driving with Autistic and Non-autistic Patients / Emma B. SARTIN ; Rachel K. MYERS ; Christina LABOWS ; Kristina B. METZGER ; Meghan E. CAREY ; Benjamin E. YERYS ; Catherine C. McDonald ; Cynthia J. MOLLEN ; Allison E. CURRY in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2535-2539 Titre : Brief Report: Healthcare Providers' Discussions Regarding Transportation and Driving with Autistic and Non-autistic Patients : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Emma B. SARTIN, Auteur ; Rachel K. MYERS, Auteur ; Christina LABOWS, Auteur ; Kristina B. METZGER, Auteur ; Meghan E. CAREY, Auteur ; Benjamin E. YERYS, Auteur ; Catherine C. McDonald, Auteur ; Cynthia J. MOLLEN, Auteur ; Allison E. CURRY, Auteur Article en page(s) : p.2535-2539 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To characterize healthcare and behavioral service providers' transportation-related discussions with their autistic and non-autistic patients. En ligne : https://doi.org/10.1007/s10803-021-05372-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506 [article] Brief Report: Healthcare Providers' Discussions Regarding Transportation and Driving with Autistic and Non-autistic Patients : Journal of Autism and Developmental Disorders [texte imprimé] / Emma B. SARTIN, Auteur ; Rachel K. MYERS, Auteur ; Christina LABOWS, Auteur ; Kristina B. METZGER, Auteur ; Meghan E. CAREY, Auteur ; Benjamin E. YERYS, Auteur ; Catherine C. McDonald, Auteur ; Cynthia J. MOLLEN, Auteur ; Allison E. CURRY, Auteur . - p.2535-2539. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2535-2539 Index. décimale : PER Périodiques Résumé : To characterize healthcare and behavioral service providers' transportation-related discussions with their autistic and non-autistic patients. En ligne : https://doi.org/10.1007/s10803-021-05372-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506

Brief Report: Under-Identification of Symptomatic Menopause in Publicly-Insured Autistic People / Teal W. BENEVIDES in Journal of Autism and Developmental Disorders, 56-12 (December 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4983-4990 Titre : Brief Report: Under-Identification of Symptomatic Menopause in Publicly-Insured Autistic People Type de document : texte imprimé Auteurs : Teal W. BENEVIDES, Auteur ; Barb COOK, Auteur ; Laura G. KLINGER, Auteur ; Kiley J. MCLEAN, Auteur ; Gregory L. WALLACE, Auteur ; Meghan E. CAREY, Auteur ; Wei-Lin LEE, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lauren D. SCHIFF, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.4983-4990 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Menopause is a normal part of aging and in the general population is associated with chronic conditions that impact health, mortality, and well-being. Menopause is experienced differently by autistic individuals, although no studies have investigated this topic in a large sample. The purpose of this study was to investigate rates of, and factors associated with symptomatic menopause among autistic individuals and to identify the prevalence of co-occurring conditions in symptomatic individuals. We included autistic females aged 35–70 years enrolled for 10 + months in 2014–2016 Medicare and/or Medicaid (n = 26,904), excluding those with gender dysphoria. Those with symptomatic menopause were compared to a non-symptomatic reference group on demographic, enrollment characteristics, and co-occurring conditions through logistic regression. Approximately 4% of publicly-insured autistic females aged 46–70 years had symptomatic menopause in their medical records. Intellectual disability was associated with a lower likelihood of symptomatic menopause, and being Medicare-enrolled or dual-enrolled was associated with higher likelihood of having symptomatic menopause recorded. In adjusted models, rates of ADHD, anxiety and depressive disorders, headache/migraine, altered sensory experiences, altered sexual function, and sleep disturbance were significantly higher in the symptomatic menopause sample compared to the reference group. More work to better support autistic women in discussing menopausal symptoms and co-occurring conditions with primary care providers is needed, particularly among those for whom self-report of symptoms are more challenging to ascertain. Factors associated with specific types of health care coverage warrant greater investigation to support better identification. En ligne : https://doi.org/10.1007/s10803-024-06516-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] Brief Report: Under-Identification of Symptomatic Menopause in Publicly-Insured Autistic People [texte imprimé] / Teal W. BENEVIDES, Auteur ; Barb COOK, Auteur ; Laura G. KLINGER, Auteur ; Kiley J. MCLEAN, Auteur ; Gregory L. WALLACE, Auteur ; Meghan E. CAREY, Auteur ; Wei-Lin LEE, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lauren D. SCHIFF, Auteur ; Lindsay SHEA, Auteur . - p.4983-4990. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-12 (December 2026) . - p.4983-4990 Index. décimale : PER Périodiques Résumé : Menopause is a normal part of aging and in the general population is associated with chronic conditions that impact health, mortality, and well-being. Menopause is experienced differently by autistic individuals, although no studies have investigated this topic in a large sample. The purpose of this study was to investigate rates of, and factors associated with symptomatic menopause among autistic individuals and to identify the prevalence of co-occurring conditions in symptomatic individuals. We included autistic females aged 35–70 years enrolled for 10 + months in 2014–2016 Medicare and/or Medicaid (n = 26,904), excluding those with gender dysphoria. Those with symptomatic menopause were compared to a non-symptomatic reference group on demographic, enrollment characteristics, and co-occurring conditions through logistic regression. Approximately 4% of publicly-insured autistic females aged 46–70 years had symptomatic menopause in their medical records. Intellectual disability was associated with a lower likelihood of symptomatic menopause, and being Medicare-enrolled or dual-enrolled was associated with higher likelihood of having symptomatic menopause recorded. In adjusted models, rates of ADHD, anxiety and depressive disorders, headache/migraine, altered sensory experiences, altered sexual function, and sleep disturbance were significantly higher in the symptomatic menopause sample compared to the reference group. More work to better support autistic women in discussing menopausal symptoms and co-occurring conditions with primary care providers is needed, particularly among those for whom self-report of symptoms are more challenging to ascertain. Factors associated with specific types of health care coverage warrant greater investigation to support better identification. En ligne : https://doi.org/10.1007/s10803-024-06516-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

Examining associations between prenatal biomarkers of oxidative stress and ASD-related outcomes using quantile regression / Meghan E. CAREY in Journal of Autism and Developmental Disorders, 53-8 (August 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.2975-2985 Titre : Examining associations between prenatal biomarkers of oxidative stress and ASD-related outcomes using quantile regression Type de document : texte imprimé Auteurs : Meghan E. CAREY, Auteur ; Juliette RANDO, Auteur ; Stepan MELNYK, Auteur ; S. Jill JAMES, Auteur ; Nathaniel SNYDER, Auteur ; Carolyn SALAFIA, Auteur ; Lisa A. CROEN, Auteur ; M. Daniele FALLIN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Heather VOLK, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Kristen LYALL, Auteur Article en page(s) : p.2975-2985 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : We examined associations between prenatal oxidative stress (OS) and child autism-related outcomes. Women with an autistic child were followed through a subsequent pregnancy and that younger sibling?s childhood. Associations between glutathione (GSH), glutathione disulfide (GSSG), 8-oxo-deoxyguanine (8-OHdG), and nitrotyrosine and younger sibling Social Responsiveness Scale (SRS) scores were examined using quantile regression. Increasing GSH:GSSG (suggesting decreasing OS) was associated with minor increases in SRS scores (50th percentile ?: 1.78, 95% CI: 0.67, 3.06); no other associations were observed. Results from this cohort with increased risk for autism do not support a strong relationship between OS in late pregnancy and autism-related outcomes. Results may be specific to those with enriched autism risk; future work should consider other timepoints and biomarkers. En ligne : https://doi.org/10.1007/s10803-022-05625-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508 [article] Examining associations between prenatal biomarkers of oxidative stress and ASD-related outcomes using quantile regression [texte imprimé] / Meghan E. CAREY, Auteur ; Juliette RANDO, Auteur ; Stepan MELNYK, Auteur ; S. Jill JAMES, Auteur ; Nathaniel SNYDER, Auteur ; Carolyn SALAFIA, Auteur ; Lisa A. CROEN, Auteur ; M. Daniele FALLIN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Heather VOLK, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Kristen LYALL, Auteur . - p.2975-2985. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.2975-2985 Index. décimale : PER Périodiques Résumé : We examined associations between prenatal oxidative stress (OS) and child autism-related outcomes. Women with an autistic child were followed through a subsequent pregnancy and that younger sibling?s childhood. Associations between glutathione (GSH), glutathione disulfide (GSSG), 8-oxo-deoxyguanine (8-OHdG), and nitrotyrosine and younger sibling Social Responsiveness Scale (SRS) scores were examined using quantile regression. Increasing GSH:GSSG (suggesting decreasing OS) was associated with minor increases in SRS scores (50th percentile ?: 1.78, 95% CI: 0.67, 3.06); no other associations were observed. Results from this cohort with increased risk for autism do not support a strong relationship between OS in late pregnancy and autism-related outcomes. Results may be specific to those with enriched autism risk; future work should consider other timepoints and biomarkers. En ligne : https://doi.org/10.1007/s10803-022-05625-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508

Healthcare Providers’ Perspectives on Autistic Adolescents Transitioning to Independent Driving / Catherine C. McDonald in Journal of Autism and Developmental Disorders, 56-4 (April 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1362-1369 Titre : Healthcare Providers’ Perspectives on Autistic Adolescents Transitioning to Independent Driving Type de document : texte imprimé Auteurs : Catherine C. McDonald, Auteur ; Christina LABOWS, Auteur ; Rachel K. MYERS, Auteur ; Emma SARTIN, Auteur ; Benjamin E. YERYS, Auteur ; Meghan E. CAREY, Auteur ; Cynthia J. MOLLEN, Auteur ; Allison E. CURRY, Auteur Article en page(s) : p.1362-1369 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Licensure is an option for some autistic adolescents and families that increases mobility by enabling independent travel to employment, school, and social activities. The objective of this study was to identify current strategies used by healthcare providers (HCPs) in their guidance to autistic adolescents and families on the transition to independent driving. Semi-structured interviews were conducted with 15 HCPs. The team’s previous research, literature review and expert feedback informed the development of the interview guide. A content analysis approach was used in the coding of transcripts, nine of which were double coded. Study team members reviewed coded transcripts, provided and discussed narrative summaries, and identified themes. Interviews were conducted with physicians, social workers, psychologists, therapist and a nurse practitioner. HCP identified their perceptions of autistic adolescents’ strengths and weaknesses to be addressed in their individualized approaches. They described using clinical interactions as time to address licensure and driving, but also referred to specialists as needed. HCPs described using existing resources, but also provided a wish list of future resources. HCPs use an individualized approach for guidance in the transition to independent driving, considering the unique needs of autistic adolescent patients and families. These HCPs identified a clear need for tailored resources and guidance they can use in support of independent driving when appropriate for their patients and families. En ligne : https://doi.org/10.1007/s10803-024-06626-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582 [article] Healthcare Providers’ Perspectives on Autistic Adolescents Transitioning to Independent Driving [texte imprimé] / Catherine C. McDonald, Auteur ; Christina LABOWS, Auteur ; Rachel K. MYERS, Auteur ; Emma SARTIN, Auteur ; Benjamin E. YERYS, Auteur ; Meghan E. CAREY, Auteur ; Cynthia J. MOLLEN, Auteur ; Allison E. CURRY, Auteur . - p.1362-1369. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1362-1369 Index. décimale : PER Périodiques Résumé : Licensure is an option for some autistic adolescents and families that increases mobility by enabling independent travel to employment, school, and social activities. The objective of this study was to identify current strategies used by healthcare providers (HCPs) in their guidance to autistic adolescents and families on the transition to independent driving. Semi-structured interviews were conducted with 15 HCPs. The team’s previous research, literature review and expert feedback informed the development of the interview guide. A content analysis approach was used in the coding of transcripts, nine of which were double coded. Study team members reviewed coded transcripts, provided and discussed narrative summaries, and identified themes. Interviews were conducted with physicians, social workers, psychologists, therapist and a nurse practitioner. HCP identified their perceptions of autistic adolescents’ strengths and weaknesses to be addressed in their individualized approaches. They described using clinical interactions as time to address licensure and driving, but also referred to specialists as needed. HCPs described using existing resources, but also provided a wish list of future resources. HCPs use an individualized approach for guidance in the transition to independent driving, considering the unique needs of autistic adolescent patients and families. These HCPs identified a clear need for tailored resources and guidance they can use in support of independent driving when appropriate for their patients and families. En ligne : https://doi.org/10.1007/s10803-024-06626-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582

Methods to reduce fraudulent participation and highlight autistic voices in research / Meghan E. CAREY in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.859-867 Titre : Methods to reduce fraudulent participation and highlight autistic voices in research Type de document : texte imprimé Auteurs : Meghan E. CAREY, Auteur ; Kiley J. MCLEAN, Auteur ; Kyle CHVASTA, Auteur ; Ashley B. DE MARCHENA, Auteur ; Anne M. ROUX, Auteur Article en page(s) : p.859-867 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  bot  fraud  methods  online research  qualitative research  research participation  scam Index. décimale : PER Périodiques Résumé : Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or "scammer" participation in our focus group study, and increase data validity and expenditure efficiency, we implemented strategies suggested in the literature and tested additional strategies. This research adds to the growing conversation around best practices for reducing scammers in autism research using online methods by (1) providing data evaluating the utility of existing strategies; (2) testing emerging strategies; and (3) discussing ethical dilemmas involved in addressing scammers in studies. We received over 200 expressions of interest and the established strategies suggested in the literature plus emerging strategies proved critical for mitigating the enrollment of scammers in focus groups. Protecting the integrity of data about human subjects from fraud is essential for rigorous autism research; trustworthy conclusions cannot be otherwise drawn from analysis. However, the strategies inherently require subjective decision-making that could systematically exclude participants with more limited or atypical communication and result in unfair subject selection. Procedures we recommend incur resources and are time consuming but are beneficial to ensure data integrity and inclusivity.Lay abstract Over the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It?s important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they?re worth it to make sure our data are reliable, and include only autistic voices. En ligne : https://dx.doi.org/10.1177/13623613241298037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Methods to reduce fraudulent participation and highlight autistic voices in research [texte imprimé] / Meghan E. CAREY, Auteur ; Kiley J. MCLEAN, Auteur ; Kyle CHVASTA, Auteur ; Ashley B. DE MARCHENA, Auteur ; Anne M. ROUX, Auteur . - p.859-867. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.859-867 Mots-clés : autism spectrum disorders  bot  fraud  methods  online research  qualitative research  research participation  scam Index. décimale : PER Périodiques Résumé : Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or "scammer" participation in our focus group study, and increase data validity and expenditure efficiency, we implemented strategies suggested in the literature and tested additional strategies. This research adds to the growing conversation around best practices for reducing scammers in autism research using online methods by (1) providing data evaluating the utility of existing strategies; (2) testing emerging strategies; and (3) discussing ethical dilemmas involved in addressing scammers in studies. We received over 200 expressions of interest and the established strategies suggested in the literature plus emerging strategies proved critical for mitigating the enrollment of scammers in focus groups. Protecting the integrity of data about human subjects from fraud is essential for rigorous autism research; trustworthy conclusions cannot be otherwise drawn from analysis. However, the strategies inherently require subjective decision-making that could systematically exclude participants with more limited or atypical communication and result in unfair subject selection. Procedures we recommend incur resources and are time consuming but are beneficial to ensure data integrity and inclusivity.Lay abstract Over the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It?s important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they?re worth it to make sure our data are reliable, and include only autistic voices. En ligne : https://dx.doi.org/10.1177/13623613241298037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Preparing to "Live a Life of Possibilities": Experiences of Healthcare Providers Readying Autistic Adolescents and Their Families for Independent Driving / Christina LABOWS ; Catherine C. McDonald ; Benjamin E. YERYS ; Emma B. SARTIN ; Meghan E. CAREY ; Cynthia J. MOLLEN ; Allison E. CURRY in Journal of Autism and Developmental Disorders, 55-6 (June 2025)  

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Short report on navigating access to care for Medicaid-enrolled autistic youth and young adults: Examining accrual of intellectual disability diagnoses in adolescence / Meghan E. CAREY in Autism, 28-3 (March 2024)  

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Therapy and Antidepressant Use in 8- to 29-Year-Old Autistic Medicaid Enrollees With Depression / Meghan E. CAREY in Autism, 30-8 (August 2026)  

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