Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Titre : Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : texte imprimé Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.3777-3791 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [texte imprimé] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.3777-3791. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Titre : Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : texte imprimé Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.1231-1231 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [texte imprimé] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.1231-1231. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202576 Titre : Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children Type de document : texte imprimé Auteurs : Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur Article en page(s) : 202576 Langues : Anglais (eng) Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children [texte imprimé] / Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur . - 202576. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202576 Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

The use of Language ENvironment Analysis in autism research: A systematic review / Orla C. PUTNAM in Autism, 29-5 (May 2025)  

Public ISBD [article]  inAutism > 29-5 (May 2025) . - p.1095-1117 Titre : The use of Language ENvironment Analysis in autism research: A systematic review Type de document : texte imprimé Auteurs : Orla C. PUTNAM, Auteur ; Jennifer E MARKFELD, Auteur ; Sarah Towner WRIGHT, Auteur ; Jacob I. FELDMAN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Maia KARPINSKY, Auteur ; Amanda J NEAL, Auteur ; Meghan R. SWANSON, Auteur ; Clare HARROP, Auteur Article en page(s) : p.1095-1117 Langues : Anglais (eng) Mots-clés : autism  communication and language  technology Index. décimale : PER Périodiques Résumé : The Language ENvironment Analysis (LENA) system has been used increasingly in research to record and evaluate the everyday speech of autistic children and their families. However, it is unclear how researchers are using LENA and whether the system is well-suited for work with autistic individuals. The purpose of this systematic review is to summarize the use of LENA in autism research, to highlight the strengths and limitations of the system as identified by researchers, and to provide recommendations for future research and clinical use. Forty-two studies that used LENA with samples of autistic children were identified through a systematic database search. Researchers using LENA in autism did so across a variety of ages, settings, and analytical approaches. Most studies used LENA within recommended guidelines. The most common purpose of using LENA was for exploratory research. Noted strengths of the LENA system included ecological validity, cost-effectiveness, and timely clinical feedback. Limitations included lower rates of speaker identification compared to human coders and limited information regarding speech context and language development. This systematic review provides key insights into the methods surrounding LENA use in autism research and serves to inform researchers and clinicians on best practices for future use with this technology.Lay abstract In research, language ability has historically been measured using structured tasks in laboratory settings. In recent years, there has been a growing emphasis on the need to instead capture language ability in an individual?s natural setting (i.e. through social interaction or in their home). Considering natural language may be particularly important for the autistic population, as an autistic child?s language ability can be very different depending on the setting. One common tool for capturing natural language is the LENA recording system, which takes audio recordings over long periods of time and provides estimates of children s and caregivers' speech. The purpose of this systematic review is to summarize the use of LENA in autism research, to highlight the strengths and limitations of the system as identified by researchers, and to provide recommendations for future research and clinical use. We identified 42 autism studies that used LENA in a variety of ways and settings. Most studies used LENA within the guidelines put forth by its creators, and it was most commonly used to understand speech or speech development for autistic children. LENA is a useful tool for clinicians and caregivers to gain some insights into child speech, but those considering using it should be aware of concerns about its accuracy and limitations about the information it provides. In this review, we supplement the official LENA guidelines with specific suggestions for use with the autistic population. En ligne : https://dx.doi.org/10.1177/13623613241290072 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554 [article] The use of Language ENvironment Analysis in autism research: A systematic review [texte imprimé] / Orla C. PUTNAM, Auteur ; Jennifer E MARKFELD, Auteur ; Sarah Towner WRIGHT, Auteur ; Jacob I. FELDMAN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Maia KARPINSKY, Auteur ; Amanda J NEAL, Auteur ; Meghan R. SWANSON, Auteur ; Clare HARROP, Auteur . - p.1095-1117. Langues : Anglais (eng) in Autism > 29-5 (May 2025) . - p.1095-1117 Mots-clés : autism  communication and language  technology Index. décimale : PER Périodiques Résumé : The Language ENvironment Analysis (LENA) system has been used increasingly in research to record and evaluate the everyday speech of autistic children and their families. However, it is unclear how researchers are using LENA and whether the system is well-suited for work with autistic individuals. The purpose of this systematic review is to summarize the use of LENA in autism research, to highlight the strengths and limitations of the system as identified by researchers, and to provide recommendations for future research and clinical use. Forty-two studies that used LENA with samples of autistic children were identified through a systematic database search. Researchers using LENA in autism did so across a variety of ages, settings, and analytical approaches. Most studies used LENA within recommended guidelines. The most common purpose of using LENA was for exploratory research. Noted strengths of the LENA system included ecological validity, cost-effectiveness, and timely clinical feedback. Limitations included lower rates of speaker identification compared to human coders and limited information regarding speech context and language development. This systematic review provides key insights into the methods surrounding LENA use in autism research and serves to inform researchers and clinicians on best practices for future use with this technology.Lay abstract In research, language ability has historically been measured using structured tasks in laboratory settings. In recent years, there has been a growing emphasis on the need to instead capture language ability in an individual?s natural setting (i.e. through social interaction or in their home). Considering natural language may be particularly important for the autistic population, as an autistic child?s language ability can be very different depending on the setting. One common tool for capturing natural language is the LENA recording system, which takes audio recordings over long periods of time and provides estimates of children s and caregivers' speech. The purpose of this systematic review is to summarize the use of LENA in autism research, to highlight the strengths and limitations of the system as identified by researchers, and to provide recommendations for future research and clinical use. We identified 42 autism studies that used LENA in a variety of ways and settings. Most studies used LENA within the guidelines put forth by its creators, and it was most commonly used to understand speech or speech development for autistic children. LENA is a useful tool for clinicians and caregivers to gain some insights into child speech, but those considering using it should be aware of concerns about its accuracy and limitations about the information it provides. In this review, we supplement the official LENA guidelines with specific suggestions for use with the autistic population. En ligne : https://dx.doi.org/10.1177/13623613241290072 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554

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