Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Titre : Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.3777-3791 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [Texte imprimé et/ou numérique] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.3777-3791. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Titre : Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.1231-1231 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [Texte imprimé et/ou numérique] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.1231-1231. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202576 Titre : Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur Article en page(s) : 202576 Langues : Anglais (eng) Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children [Texte imprimé et/ou numérique] / Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur . - 202576. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202576 Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

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