Comparing Intellectual and Memory Abilities of Older Autistic Adults with Typically Developing Older Adults Using WAIS-IV and WMS-IV / Venus W.S. TSE in Journal of Autism and Developmental Disorders, 49-10 (October 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4123-4133 Titre : Comparing Intellectual and Memory Abilities of Older Autistic Adults with Typically Developing Older Adults Using WAIS-IV and WMS-IV Type de document : texte imprimé Auteurs : Venus W.S. TSE, Auteur ; Jason CRABTREE, Auteur ; Shamsun ISLAM, Auteur ; Joshua STOTT, Auteur Article en page(s) : p.4123-4133 Langues : Anglais (eng) Mots-clés : Autism  Cognitive  Memory  Older adults  Processing speed Index. décimale : PER Périodiques Résumé : This study aimed to compare cognitive and memory abilities between older adults with and without autism over the age of 50. Twenty-eight individuals with autism and 29 typically developing (TD) older adults took part in the current study. Participants' cognitive and memory abilities were assessed by WAIS-IV and WMS-IV. Older autistic adults were found to have poorer performance in processing speed and visual working memory, but they performed at a similar level as TD controls in all other domains. Poorer processing speed and visual working memory are also often found to be associated with age-related decline in neurotypical adults. Longitudinal studies are warranted to explore how the combination of ageing and autism affects cognitive functioning in older adults. En ligne : http://dx.doi.org/10.1007/s10803-019-04122-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Comparing Intellectual and Memory Abilities of Older Autistic Adults with Typically Developing Older Adults Using WAIS-IV and WMS-IV [texte imprimé] / Venus W.S. TSE, Auteur ; Jason CRABTREE, Auteur ; Shamsun ISLAM, Auteur ; Joshua STOTT, Auteur . - p.4123-4133. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4123-4133 Mots-clés : Autism  Cognitive  Memory  Older adults  Processing speed Index. décimale : PER Périodiques Résumé : This study aimed to compare cognitive and memory abilities between older adults with and without autism over the age of 50. Twenty-eight individuals with autism and 29 typically developing (TD) older adults took part in the current study. Participants' cognitive and memory abilities were assessed by WAIS-IV and WMS-IV. Older autistic adults were found to have poorer performance in processing speed and visual working memory, but they performed at a similar level as TD controls in all other domains. Poorer processing speed and visual working memory are also often found to be associated with age-related decline in neurotypical adults. Longitudinal studies are warranted to explore how the combination of ageing and autism affects cognitive functioning in older adults. En ligne : http://dx.doi.org/10.1007/s10803-019-04122-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over / Hassan MANSOUR in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.754-765 Titre : 'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over Type de document : texte imprimé Auteurs : Hassan MANSOUR, Auteur ; Amy GILLIONS, Auteur ; Jude BROWN, Auteur ; Anoushka PATTENDEN, Auteur ; Susan HARTLEY, Auteur ; Sarifa PATEL, Auteur ; Stephanie JAMES, Auteur ; Martin STYLES, Auteur ; William MANDY, Auteur ; Joshua STOTT, Auteur ; Elizabeth O’NIONS, Auteur Article en page(s) : p.754-765 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences ... En ligne : https://dx.doi.org/10.1177/13623613241291081 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] 'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over [texte imprimé] / Hassan MANSOUR, Auteur ; Amy GILLIONS, Auteur ; Jude BROWN, Auteur ; Anoushka PATTENDEN, Auteur ; Susan HARTLEY, Auteur ; Sarifa PATEL, Auteur ; Stephanie JAMES, Auteur ; Martin STYLES, Auteur ; William MANDY, Auteur ; Joshua STOTT, Auteur ; Elizabeth O’NIONS, Auteur . - p.754-765. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.754-765 Index. décimale : PER Périodiques Résumé : Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences ... En ligne : https://dx.doi.org/10.1177/13623613241291081 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

'Suddenly the first fifty years of my life made sense': Experiences of older people with autism / Aoife HICKEY in Autism, 22-3 (April 2018)  

Public ISBD [article]  inAutism > 22-3 (April 2018) . - p.357-367 Titre : 'Suddenly the first fifty years of my life made sense': Experiences of older people with autism Type de document : texte imprimé Auteurs : Aoife HICKEY, Auteur ; Jason CRABTREE, Auteur ; Joshua STOTT, Auteur Article en page(s) : p.357-367 Langues : Anglais (eng) Mots-clés : adults  ageing  autism spectrum disorders  diagnosis  qualitative research Index. décimale : PER Périodiques Résumé : Research on the experience of growing older with autism is very limited. In this study, 13 people with autism aged over 50 years participated in semi-structured interviews about their experiences of diagnosis, social support and getting older. Interviews were analysed using thematic analysis. Three overarching themes were generated: difference, life review and longing for connection. Prior to diagnosis, individuals had awareness of their difficulties, attributed these to intrinsic difference and engaged in a deliberate process of reducing the visibility of this difference. Diagnosis prompted a process of life review and externalisation, whereby past negative experiences were reattributed to autism as opposed to the self. Loneliness, isolation and yearning for interpersonal connection were ubiquitous and longstanding. Autism support and social groups were highly valued, offering opportunities for belonging, acceptance and social comparison. Results highlight the similarity to younger age groups in terms of lived experience and need for greater support, particularly with respect to reducing isolation and improving access to diagnosis. En ligne : http://dx.doi.org/10.1177/1362361316680914 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358 [article] 'Suddenly the first fifty years of my life made sense': Experiences of older people with autism [texte imprimé] / Aoife HICKEY, Auteur ; Jason CRABTREE, Auteur ; Joshua STOTT, Auteur . - p.357-367. Langues : Anglais (eng) in Autism > 22-3 (April 2018) . - p.357-367 Mots-clés : adults  ageing  autism spectrum disorders  diagnosis  qualitative research Index. décimale : PER Périodiques Résumé : Research on the experience of growing older with autism is very limited. In this study, 13 people with autism aged over 50 years participated in semi-structured interviews about their experiences of diagnosis, social support and getting older. Interviews were analysed using thematic analysis. Three overarching themes were generated: difference, life review and longing for connection. Prior to diagnosis, individuals had awareness of their difficulties, attributed these to intrinsic difference and engaged in a deliberate process of reducing the visibility of this difference. Diagnosis prompted a process of life review and externalisation, whereby past negative experiences were reattributed to autism as opposed to the self. Loneliness, isolation and yearning for interpersonal connection were ubiquitous and longstanding. Autism support and social groups were highly valued, offering opportunities for belonging, acceptance and social comparison. Results highlight the similarity to younger age groups in terms of lived experience and need for greater support, particularly with respect to reducing isolation and improving access to diagnosis. En ligne : http://dx.doi.org/10.1177/1362361316680914 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358

The healthcare experiences of middle and older age autistic women in the United Kingdom / Amy GILLIONS in Autism, 30-1 (January 2026)  

Public ISBD [article]  inAutism > 30-1 (January 2026) . - p.49-60 Titre : The healthcare experiences of middle and older age autistic women in the United Kingdom Type de document : texte imprimé Auteurs : Amy GILLIONS, Auteur ; Elizabeth O’NIONS, Auteur ; Hassan MANSOUR, Auteur ; Sarah HOARE, Auteur ; Will MANDY, Auteur ; Joshua STOTT, Auteur Article en page(s) : p.49-60 Langues : Anglais (eng) Mots-clés : autism  autistic women  healthcare experience  older adults Index. décimale : PER Périodiques Résumé : Autistic women experience a higher prevalence of physical and mental health conditions compared with autistic men and non-autistic women, plus greater premature mortality and a higher suicide risk. However, little is known about autistic women’s experiences of healthcare, particularly in middle and later life. We aimed to explore autistic women’s perspectives on accessing healthcare services in the United Kingdom. Fifteen autistic women aged between 51 and 73 years participated in semi-structured interviews, which were analysed using reflexive thematic analysis. Four main themes were generated: (1) Stigma and stereotypes in professionals’ understanding of autism leading to poor-quality care, (2) Accumulation of negative healthcare experiences reducing participants’ confidence in services, (3) Efforts required to navigate healthcare systems and (4) The future: age-related concerns and hopes for change. The autistic women in this study reported multiple barriers to accessing healthcare and they felt stigmatised by repeated negative interactions with healthcare providers. Intersections between age and gender affected how participants felt they were perceived in healthcare settings; specifically, participants felt that being an older woman contributed to their autism-related needs being overlooked or misunderstood. Implications for services and directions for future research are discussed.Lay abstract Why was the study done and what did the researchers do?Autistic women face distinctive healthcare challenges compared with autistic men and non-autistic women. However, there is not much information about their experiences with healthcare in the UK, especially as they age. To better understand the lived experiences of this population, the research team in this study interviewed 15 autistic women in middle to later life about their healthcare experiences. Information from the interviews was analysed by creating themes based on what the participants had reported.What did the researchers find?Four main themes came out of the analysis.1. Participants expressed concerns that stigma and stereotypes associated with autism led to poor healthcare experiences.2. Participants’ confidence in seeking help was affected by having many negative experiences across their lives. Difficult interactions with healthcare providers also made them less confident in seeking help.3. Navigating the healthcare system was a challenge for participants.4. Participants thought a lot about the future. They had worries about ageing and what consequences this might have on their health and support needs. They also shared hopes for better healthcare in the future.What do the findings mean?The findings highlight that autistic women in middle to later life face many barriers in accessing healthcare. The study emphasises the need for better understanding and support for autistic women in healthcare settings. En ligne : https://dx.doi.org/10.1177/13623613251362265 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578 [article] The healthcare experiences of middle and older age autistic women in the United Kingdom [texte imprimé] / Amy GILLIONS, Auteur ; Elizabeth O’NIONS, Auteur ; Hassan MANSOUR, Auteur ; Sarah HOARE, Auteur ; Will MANDY, Auteur ; Joshua STOTT, Auteur . - p.49-60. Langues : Anglais (eng) in Autism > 30-1 (January 2026) . - p.49-60 Mots-clés : autism  autistic women  healthcare experience  older adults Index. décimale : PER Périodiques Résumé : Autistic women experience a higher prevalence of physical and mental health conditions compared with autistic men and non-autistic women, plus greater premature mortality and a higher suicide risk. However, little is known about autistic women’s experiences of healthcare, particularly in middle and later life. We aimed to explore autistic women’s perspectives on accessing healthcare services in the United Kingdom. Fifteen autistic women aged between 51 and 73 years participated in semi-structured interviews, which were analysed using reflexive thematic analysis. Four main themes were generated: (1) Stigma and stereotypes in professionals’ understanding of autism leading to poor-quality care, (2) Accumulation of negative healthcare experiences reducing participants’ confidence in services, (3) Efforts required to navigate healthcare systems and (4) The future: age-related concerns and hopes for change. The autistic women in this study reported multiple barriers to accessing healthcare and they felt stigmatised by repeated negative interactions with healthcare providers. Intersections between age and gender affected how participants felt they were perceived in healthcare settings; specifically, participants felt that being an older woman contributed to their autism-related needs being overlooked or misunderstood. Implications for services and directions for future research are discussed.Lay abstract Why was the study done and what did the researchers do?Autistic women face distinctive healthcare challenges compared with autistic men and non-autistic women. However, there is not much information about their experiences with healthcare in the UK, especially as they age. To better understand the lived experiences of this population, the research team in this study interviewed 15 autistic women in middle to later life about their healthcare experiences. Information from the interviews was analysed by creating themes based on what the participants had reported.What did the researchers find?Four main themes came out of the analysis.1. Participants expressed concerns that stigma and stereotypes associated with autism led to poor healthcare experiences.2. Participants’ confidence in seeking help was affected by having many negative experiences across their lives. Difficult interactions with healthcare providers also made them less confident in seeking help.3. Navigating the healthcare system was a challenge for participants.4. Participants thought a lot about the future. They had worries about ageing and what consequences this might have on their health and support needs. They also shared hopes for better healthcare in the future.What do the findings mean?The findings highlight that autistic women in middle to later life face many barriers in accessing healthcare. The study emphasises the need for better understanding and support for autistic women in healthcare settings. En ligne : https://dx.doi.org/10.1177/13623613251362265 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578

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