Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Détail de l'auteur
Auteur Kiely LAW |
Documents disponibles écrits par cet auteur (4)
Faire une suggestion Affiner la recherche
Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S / Mariabeth SILKEY in Journal of Autism and Developmental Disorders, 53-3 (March 2023)
[article]
Titre : Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S Type de document : Texte imprimé et/ou numérique Auteurs : Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur Article en page(s) : p.1298-1298 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-022-05700-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500
in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1298-1298[article] Correction: The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S [Texte imprimé et/ou numérique] / Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur . - p.1298-1298.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1298-1298
Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-022-05700-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 Effect of Children?s Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S / Gonzalo DURÁN-PACHECO in Journal of Autism and Developmental Disorders, 53-5 (May 2023)
[article]
Titre : Effect of Children?s Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S Type de document : Texte imprimé et/ou numérique Auteurs : Gonzalo DURÁN-PACHECO, Auteur ; Mariabeth SILKEY, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur Article en page(s) : p.1795-1808 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To better understand the impact of children?s autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort. Participants were caregivers of dependents with ASD aged 3-17 years (N=3150). We found that increased severity strongly affects caregiver strain and child sleep quality. Child sleep quality was a minor mediator of increasing caregiver strain. Caregiver sleep quality depended on ASD severity only through child sleep quality and caregiver strain. Interventions aimed at improving child sleep quality or reducing caregiver strain could positively impact families of children with ASD. En ligne : https://doi.org/10.1007/s10803-022-05457-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500
in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1795-1808[article] Effect of Children?s Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S [Texte imprimé et/ou numérique] / Gonzalo DURÁN-PACHECO, Auteur ; Mariabeth SILKEY, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur . - p.1795-1808.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1795-1808
Index. décimale : PER Périodiques Résumé : To better understand the impact of children?s autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort. Participants were caregivers of dependents with ASD aged 3-17 years (N=3150). We found that increased severity strongly affects caregiver strain and child sleep quality. Child sleep quality was a minor mediator of increasing caregiver strain. Caregiver sleep quality depended on ASD severity only through child sleep quality and caregiver strain. Interventions aimed at improving child sleep quality or reducing caregiver strain could positively impact families of children with ASD. En ligne : https://doi.org/10.1007/s10803-022-05457-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S / Mariabeth SILKEY in Journal of Autism and Developmental Disorders, 53-9 (September 2023)
[article]
Titre : The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S Type de document : Texte imprimé et/ou numérique Auteurs : Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur Article en page(s) : p.3422-3434 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Validated outcome measures with the capacity to reflect meaningful change are key to assessing potential interventions for autism spectrum disorder (ASD). We derive clinically meaningful change thresholds (MCTs) of the Autism Impact Measure (AIM) and identify factors associated with meaningful change. Baseline and 12-months follow-up survey of caregivers of 2,761 children with ASD aged 3-17 years from the U.S. Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort were analyzed. Using caregiver-reported anchors for change, the 12-month change in estimated AIM MCT (95% confidence interval) for symptom improvement was -4.5 (-7.61, -1.37) points and 9.9 (5.12, 14.59) points for symptom deterioration. These anchor-based MCTs will facilitate future assessments of caregiver-reported change in AIM scores. En ligne : https://doi.org/10.1007/s10803-022-05635-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511
in Journal of Autism and Developmental Disorders > 53-9 (September 2023) . - p.3422-3434[article] The Autism Impact Measure (AIM): Meaningful Change Thresholds and Core Symptom Changes Over One Year from an Online Survey in the U.S [Texte imprimé et/ou numérique] / Mariabeth SILKEY, Auteur ; Gonzalo DURÁN-PACHECO, Auteur ; Michelle JOHNSON, Auteur ; Chuang LIU, Auteur ; Susanne CLINCH, Auteur ; Kiely LAW, Auteur ; Georg LOSS, Auteur . - p.3422-3434.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 53-9 (September 2023) . - p.3422-3434
Index. décimale : PER Périodiques Résumé : Validated outcome measures with the capacity to reflect meaningful change are key to assessing potential interventions for autism spectrum disorder (ASD). We derive clinically meaningful change thresholds (MCTs) of the Autism Impact Measure (AIM) and identify factors associated with meaningful change. Baseline and 12-months follow-up survey of caregivers of 2,761 children with ASD aged 3-17 years from the U.S. Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort were analyzed. Using caregiver-reported anchors for change, the 12-month change in estimated AIM MCT (95% confidence interval) for symptom improvement was -4.5 (-7.61, -1.37) points and 9.9 (5.12, 14.59) points for symptom deterioration. These anchor-based MCTs will facilitate future assessments of caregiver-reported change in AIM scores. En ligne : https://doi.org/10.1007/s10803-022-05635-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 Using percentiles in the interpretation of Patient-Reported Outcomes Measurement Information System scores: Guidelines for autism / Julia SCHUCHARD in Autism Research, 15-12 (December 2022)
[article]
Titre : Using percentiles in the interpretation of Patient-Reported Outcomes Measurement Information System scores: Guidelines for autism Type de document : Texte imprimé et/ou numérique Auteurs : Julia SCHUCHARD, Auteur ; Elizabeth A. KAPLAN-KAHN, Auteur ; Adam C CARLE, Auteur ; Laura GRAHAM HOLMES, Auteur ; Kiely LAW, Auteur ; Judith S MILLER, Auteur ; Julia PARISH-MORRIS, Auteur ; Christopher B. FORREST, Auteur Article en page(s) : p.2336-2345 Langues : Anglais (eng) Mots-clés : Child Adolescent Humans United States Child, Preschool Autistic Disorder/complications/diagnosis Surveys and Questionnaires Quality of Life Autism Spectrum Disorder Patient Reported Outcome Measures Sleep Wake Disorders/diagnosis/epidemiology Information Systems Promis autism material hardship parent-report patient-reported outcomes Index. décimale : PER Périodiques Résumé : The objectives of this study were to (1) demonstrate the application of percentiles to advance the interpretation of patient-reported outcomes and (2) establish autism-specific percentiles for four Patient-Reported Outcomes Measurement Information System (PROMIS) measures. PROMIS measures were completed by parents of autistic children and adolescents ages 5-17 years as part of two studies (n = 939 parents in the first study and n = 406 parents in the second study). Data from the first study were used to develop autism-specific percentiles for PROMIS parent-proxy sleep disturbance, sleep-related impairment, fatigue, and anxiety. Previously established United States general population percentiles were applied to interpret PROMIS scores in both studies. Results of logistic regression models showed that parent-reported material hardship was associated with scoring in the moderate-severe range (defined as â¥75th percentile in the general population) on all four PROMIS measures (odds ratios 1.7-2.2). In the second study, the percentage of children with severe scores (defined as â¥95th percentile in the general population) was 30% for anxiety, 25% for sleep disturbance, and 17% for sleep-related impairment, indicating a high burden of these problems among autistic children. Few children had scores at or above the autism-specific 95th percentile on these measures (3%-4%), indicating that their scores were similar to other autistic children. The general population and condition-specific percentiles provide two complementary reference points to aid interpretation of PROMIS scores, including corresponding severity categories that are comparable across different PROMIS measures. En ligne : http://dx.doi.org/10.1002/aur.2833 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism Research > 15-12 (December 2022) . - p.2336-2345[article] Using percentiles in the interpretation of Patient-Reported Outcomes Measurement Information System scores: Guidelines for autism [Texte imprimé et/ou numérique] / Julia SCHUCHARD, Auteur ; Elizabeth A. KAPLAN-KAHN, Auteur ; Adam C CARLE, Auteur ; Laura GRAHAM HOLMES, Auteur ; Kiely LAW, Auteur ; Judith S MILLER, Auteur ; Julia PARISH-MORRIS, Auteur ; Christopher B. FORREST, Auteur . - p.2336-2345.
Langues : Anglais (eng)
in Autism Research > 15-12 (December 2022) . - p.2336-2345
Mots-clés : Child Adolescent Humans United States Child, Preschool Autistic Disorder/complications/diagnosis Surveys and Questionnaires Quality of Life Autism Spectrum Disorder Patient Reported Outcome Measures Sleep Wake Disorders/diagnosis/epidemiology Information Systems Promis autism material hardship parent-report patient-reported outcomes Index. décimale : PER Périodiques Résumé : The objectives of this study were to (1) demonstrate the application of percentiles to advance the interpretation of patient-reported outcomes and (2) establish autism-specific percentiles for four Patient-Reported Outcomes Measurement Information System (PROMIS) measures. PROMIS measures were completed by parents of autistic children and adolescents ages 5-17 years as part of two studies (n = 939 parents in the first study and n = 406 parents in the second study). Data from the first study were used to develop autism-specific percentiles for PROMIS parent-proxy sleep disturbance, sleep-related impairment, fatigue, and anxiety. Previously established United States general population percentiles were applied to interpret PROMIS scores in both studies. Results of logistic regression models showed that parent-reported material hardship was associated with scoring in the moderate-severe range (defined as â¥75th percentile in the general population) on all four PROMIS measures (odds ratios 1.7-2.2). In the second study, the percentage of children with severe scores (defined as â¥95th percentile in the general population) was 30% for anxiety, 25% for sleep disturbance, and 17% for sleep-related impairment, indicating a high burden of these problems among autistic children. Few children had scores at or above the autism-specific 95th percentile on these measures (3%-4%), indicating that their scores were similar to other autistic children. The general population and condition-specific percentiles provide two complementary reference points to aid interpretation of PROMIS scores, including corresponding severity categories that are comparable across different PROMIS measures. En ligne : http://dx.doi.org/10.1002/aur.2833 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488