Centre d'Information et de documentation du CRA Rhône-Alpes
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“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community / Fiona FOX in Journal of Autism and Developmental Disorders, 47-2 (February 2017)
[article]
Titre : “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community Type de document : Texte imprimé et/ou numérique Auteurs : Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur Article en page(s) : p.305-315 Langues : Anglais (eng) Mots-clés : Autism Somali Migrant Qualitative Attitudes Childhood Disability Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315[article] “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community [Texte imprimé et/ou numérique] / Fiona FOX, Auteur ; Nura AABE, Auteur ; Katrina TURNER, Auteur ; Sabi REDWOOD, Auteur ; Dheeraj RAI, Auteur . - p.305-315.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.305-315
Mots-clés : Autism Somali Migrant Qualitative Attitudes Childhood Disability Help-seeking Index. décimale : PER Périodiques Résumé : Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children. En ligne : http://dx.doi.org/10.1007/s10803-016-2952-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 Race influences parent report of concerns about symptoms of autism spectrum disorder / M. R. DONOHUE in Autism, 23-1 (January 2019)
[article]
Titre : Race influences parent report of concerns about symptoms of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : M. R. DONOHUE, Auteur ; A. W. CHILDS, Auteur ; M. RICHARDS, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.100-111 Langues : Anglais (eng) Mots-clés : autism autism spectrum disorder child development diagnostic disparities parent concerns race and ethnicity intensive behavioral intervention african-american families modified checklist young-children united-states help-seeking 1st concern m-chat diagnosis toddlers Psychology Index. décimale : PER Périodiques Résumé : Racial differences in parent report of concerns about their child's development to healthcare providers may contribute to delayed autism spectrum disorder diagnoses in Black children. We tested the hypotheses that compared to White parents, Black parents of children with autism spectrum disorder would report fewer concerns about autism symptoms and would be more likely to report concerns about disruptive behaviors. A sample of 18- to 40-month-old toddlers (N = 174) with autism spectrum disorder and their parent participated. After screening positive for autism spectrum disorder risk, but prior to a diagnostic evaluation, parents completed free-response questions soliciting concerns about their child's development. Parent responses were coded for the presence or the absence of 10 possible concerns, which were grouped into autism concerns (e.g. social and restricted and repetitive behavior concerns) or non-autism concerns (e.g. general developmental and disruptive behavior concerns). Compared to White parents, Black parents reported significantly fewer autism concerns and fewer social and restricted and repetitive behavior concerns. However, Black parents did not report significantly fewer non-autism concerns. Race did not influence parent report of disruptive behavior concerns. Lower reporting of autism concerns by Black parents may impact providers' abilities to identify children who need further screening or evaluation. En ligne : http://dx.doi.org/10.1177/1362361317722030 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379
in Autism > 23-1 (January 2019) . - p.100-111[article] Race influences parent report of concerns about symptoms of autism spectrum disorder [Texte imprimé et/ou numérique] / M. R. DONOHUE, Auteur ; A. W. CHILDS, Auteur ; M. RICHARDS, Auteur ; Diana L. ROBINS, Auteur . - p.100-111.
Langues : Anglais (eng)
in Autism > 23-1 (January 2019) . - p.100-111
Mots-clés : autism autism spectrum disorder child development diagnostic disparities parent concerns race and ethnicity intensive behavioral intervention african-american families modified checklist young-children united-states help-seeking 1st concern m-chat diagnosis toddlers Psychology Index. décimale : PER Périodiques Résumé : Racial differences in parent report of concerns about their child's development to healthcare providers may contribute to delayed autism spectrum disorder diagnoses in Black children. We tested the hypotheses that compared to White parents, Black parents of children with autism spectrum disorder would report fewer concerns about autism symptoms and would be more likely to report concerns about disruptive behaviors. A sample of 18- to 40-month-old toddlers (N = 174) with autism spectrum disorder and their parent participated. After screening positive for autism spectrum disorder risk, but prior to a diagnostic evaluation, parents completed free-response questions soliciting concerns about their child's development. Parent responses were coded for the presence or the absence of 10 possible concerns, which were grouped into autism concerns (e.g. social and restricted and repetitive behavior concerns) or non-autism concerns (e.g. general developmental and disruptive behavior concerns). Compared to White parents, Black parents reported significantly fewer autism concerns and fewer social and restricted and repetitive behavior concerns. However, Black parents did not report significantly fewer non-autism concerns. Race did not influence parent report of disruptive behavior concerns. Lower reporting of autism concerns by Black parents may impact providers' abilities to identify children who need further screening or evaluation. En ligne : http://dx.doi.org/10.1177/1362361317722030 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379