150 recherche sur le mot-clé 'Qualitative Research'

Commentary: Expanding the vision of Registered Reports for qualitative mental health research: A response and extension to 'Misaligned incentives in mental health research - the case for Registered Reports', Baldwin (2023) / Ola DEMKOWICZ in Journal of Child Psychology and Psychiatry, 65-11 (November 2024)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 65-11 (November 2024) . - p.1538-1542 Titre : Commentary: Expanding the vision of Registered Reports for qualitative mental health research: A response and extension to 'Misaligned incentives in mental health research - the case for Registered Reports', Baldwin (2023) Type de document : texte imprimé Auteurs : Ola DEMKOWICZ, Auteur ; Jo HICKMAN DUNNE, Auteur Article en page(s) : p.1538-1542 Langues : Anglais (eng) Mots-clés : qualitative research  Registered Reports  open research Index. décimale : PER Périodiques Résumé : There is a growing exploration of how Registered Reports can benefit individual researchers and wider research fields as part of a wider shift towards open research principles and practices. In ?Misaligned incentives in mental health research ? the case for Registered Reports?, Baldwin examines this in the context of mental health research, arguing that Registered Reports (RRs) can be a valuable solution to misaligned incentive structures in the field. However, this original piece was generally inclined towards how such incentives and the use of RRs can play out in the context of quantitative research. Such reflection is valuable, but to examine the case for RRs in mental health research as a field, we must also explore such practices within the context of qualitative research. In this commentary, we therefore expand and reframe this discussion to make the case for RRs in qualitative mental health research. We explore the place for qualitative research in the mental health research field and examine possibilities for how RRs fit within principles and practices in such methods. We discuss the various benefits and challenges of RRs in qualitative research, reflecting on our experiences as authors and reviewers of qualitative RRs and exploring how research infrastructure can facilitate engagement with this publishing approach. En ligne : https://doi.org/10.1111/jcpp.14039 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537 [article] Commentary: Expanding the vision of Registered Reports for qualitative mental health research: A response and extension to 'Misaligned incentives in mental health research - the case for Registered Reports', Baldwin (2023) [texte imprimé] / Ola DEMKOWICZ, Auteur ; Jo HICKMAN DUNNE, Auteur . - p.1538-1542. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 65-11 (November 2024) . - p.1538-1542 Mots-clés : qualitative research  Registered Reports  open research Index. décimale : PER Périodiques Résumé : There is a growing exploration of how Registered Reports can benefit individual researchers and wider research fields as part of a wider shift towards open research principles and practices. In ?Misaligned incentives in mental health research ? the case for Registered Reports?, Baldwin examines this in the context of mental health research, arguing that Registered Reports (RRs) can be a valuable solution to misaligned incentive structures in the field. However, this original piece was generally inclined towards how such incentives and the use of RRs can play out in the context of quantitative research. Such reflection is valuable, but to examine the case for RRs in mental health research as a field, we must also explore such practices within the context of qualitative research. In this commentary, we therefore expand and reframe this discussion to make the case for RRs in qualitative mental health research. We explore the place for qualitative research in the mental health research field and examine possibilities for how RRs fit within principles and practices in such methods. We discuss the various benefits and challenges of RRs in qualitative research, reflecting on our experiences as authors and reviewers of qualitative RRs and exploring how research infrastructure can facilitate engagement with this publishing approach. En ligne : https://doi.org/10.1111/jcpp.14039 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537

Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results / Linda PETERSSON-BLOOM in Autism & Developmental Language Impairments, 7 (January-December 2022)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 7 (January-December 2022) Titre : Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results Type de document : texte imprimé Auteurs : Linda PETERSSON-BLOOM, Auteur ; Mona HOLMQVIST, Auteur Langues : Anglais (eng) Mots-clés : Autism  inclusive education  strategies in the learning environment  qualitative research Index. décimale : PER Périodiques Résumé : Background and Aim Strategies to modify and adjust the educational setting in mainstream education for autistic students are under-researched. Hence, this review aims to identify qualitative research results of adaptation and modification strategies to support inclusive education for autistic students at school and classroom levels. Method In this systematic review, four databases were searched. Following the preferred PRISMA approach, 108 studies met the inclusion criteria, and study characteristics were reported. Synthesis of key findings from included studies was conducted to provide a more comprehensive and holistic understanding. Main Contribution This article provides insights into a complex area via aggregating findings from qualitative research a comprehensive understanding of the phenomena is presented. The results of the qualitative analysis indicate a focus on teachers’ attitudes and students’ social skills in research. Only 16 studies were at the classroom level, 89 were at the school level, and three studies were not categorized at either classroom or school level. A research gap was identified regarding studies focusing on the perspectives of autistic students, environmental adaptations to meet the students’ sensitivity difficulties, and how to enhance the students’ inclusion regarding content taught and knowledge development from a didactic perspective. Conclusions and Implications Professional development that includes autism-specific understanding and strategies for adjusting and modifying to accommodate autistic students is essential. This conclusion may direct school leaders when implementing professional development programs. A special didactical perspective is needed to support teachers’ understanding of challenges in instruction that autistic students may encounter. En ligne : http://dx.doi.org/10.1177/23969415221123429 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] Strategies in supporting inclusive education for autistic students ”A systematic review of qualitative research results [texte imprimé] / Linda PETERSSON-BLOOM, Auteur ; Mona HOLMQVIST, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 7 (January-December 2022) Mots-clés : Autism  inclusive education  strategies in the learning environment  qualitative research Index. décimale : PER Périodiques Résumé : Background and Aim Strategies to modify and adjust the educational setting in mainstream education for autistic students are under-researched. Hence, this review aims to identify qualitative research results of adaptation and modification strategies to support inclusive education for autistic students at school and classroom levels. Method In this systematic review, four databases were searched. Following the preferred PRISMA approach, 108 studies met the inclusion criteria, and study characteristics were reported. Synthesis of key findings from included studies was conducted to provide a more comprehensive and holistic understanding. Main Contribution This article provides insights into a complex area via aggregating findings from qualitative research a comprehensive understanding of the phenomena is presented. The results of the qualitative analysis indicate a focus on teachers’ attitudes and students’ social skills in research. Only 16 studies were at the classroom level, 89 were at the school level, and three studies were not categorized at either classroom or school level. A research gap was identified regarding studies focusing on the perspectives of autistic students, environmental adaptations to meet the students’ sensitivity difficulties, and how to enhance the students’ inclusion regarding content taught and knowledge development from a didactic perspective. Conclusions and Implications Professional development that includes autism-specific understanding and strategies for adjusting and modifying to accommodate autistic students is essential. This conclusion may direct school leaders when implementing professional development programs. A special didactical perspective is needed to support teachers’ understanding of challenges in instruction that autistic students may encounter. En ligne : http://dx.doi.org/10.1177/23969415221123429 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers / Enna HAN in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2279-2290 Titre : A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers Type de document : texte imprimé Auteurs : Enna HAN, Auteur ; Melisa Mei Jin TAN, Auteur ; Laura CRANE, Auteur ; Helena LEGIDO-QUIGLEY, Auteur Article en page(s) : p.2279-2290 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/therapy  Autistic Disorder  Caregivers  Humans  Qualitative Research  Singapore  autism services and supports  autistic adults  caregivers  qualitative research  service providers Index. décimale : PER Périodiques Résumé : Because autism is a lifelong and complex condition, autistic people may need a range of supports cutting across different sectors (e.g. health, education and social care) at different stages of their lives. Studies in some countries have shown that autistic people and their families face difficulties accessing the services they need, but no research has been done on this topic in Singapore. To start addressing this gap, we interviewed 21 service providers, autistic adults and caregivers/parents of autistic children to find out their perceptions and experiences of autism services and supports in Singapore. Our participants told us that beyond improving access to autism-specific services, they also hoped to see more flexible supports in an inclusive environment and a broader change in societal attitudes. This study highlights that autism service provision should be informed by autistic voices and not only focus on impairment but also recognise the strengths of autistic people alongside their very real needs. The whole of society - including policymakers, professionals, employers, educators, families and autistic people themselves - needs to work together to fight autism stigma and discrimination. En ligne : http://dx.doi.org/10.1177/13623613211016112 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers [texte imprimé] / Enna HAN, Auteur ; Melisa Mei Jin TAN, Auteur ; Laura CRANE, Auteur ; Helena LEGIDO-QUIGLEY, Auteur . - p.2279-2290. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2279-2290 Mots-clés : Adult  Autism Spectrum Disorder/therapy  Autistic Disorder  Caregivers  Humans  Qualitative Research  Singapore  autism services and supports  autistic adults  caregivers  qualitative research  service providers Index. décimale : PER Périodiques Résumé : Because autism is a lifelong and complex condition, autistic people may need a range of supports cutting across different sectors (e.g. health, education and social care) at different stages of their lives. Studies in some countries have shown that autistic people and their families face difficulties accessing the services they need, but no research has been done on this topic in Singapore. To start addressing this gap, we interviewed 21 service providers, autistic adults and caregivers/parents of autistic children to find out their perceptions and experiences of autism services and supports in Singapore. Our participants told us that beyond improving access to autism-specific services, they also hoped to see more flexible supports in an inclusive environment and a broader change in societal attitudes. This study highlights that autism service provision should be informed by autistic voices and not only focus on impairment but also recognise the strengths of autistic people alongside their very real needs. The whole of society - including policymakers, professionals, employers, educators, families and autistic people themselves - needs to work together to fight autism stigma and discrimination. En ligne : http://dx.doi.org/10.1177/13623613211016112 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

‘Adolescence kicked in . . . and you need help again’: A qualitative study of the experiences of parents of autistic teenagers with mental health difficulties or behaviours that challenge / Suzanne MUKHERJEE in Autism, 29-11 (November 2025)  

Public ISBD [article]  inAutism > 29-11 (November 2025) . - p.2691-2702 Titre : ‘Adolescence kicked in . . . and you need help again’: A qualitative study of the experiences of parents of autistic teenagers with mental health difficulties or behaviours that challenge Type de document : texte imprimé Auteurs : Suzanne MUKHERJEE, Auteur ; Bryony BERESFORD, Auteur Article en page(s) : p.2691-2702 Langues : Anglais (eng) Mots-clés : adolescents  family functioning and support  lived experience  mental health  parents  qualitative research Index. décimale : PER Périodiques Résumé : Relatively little is known about the experiences of parents of autistic teenagers, with the existing research on this life stage principally about transition. This study sought to address this gap. It focused specifically on parents of autistic teenagers with mental health difficulties and/or behaviours that challenge (MHD/BC). The study design was qualitative and used in-depth interviews to collect data. Thirty-three parents of 31 teenagers (15–19 years) living in the United Kingdom were purposively sampled and recruited from an existing research cohort. A thematic analysis was undertaken, adopting the framework method. Parents typically reported the emergence of new MHD/BC, or existing difficulties becoming more severe, during the teenage years. At the same time, they described feeling de-skilled and uncertain about how best to support their child. Many parents also referred to deteriorations in their own physical and emotional health. Very few had accessed beneficial professional support during this period. Findings add weight to the case for increasing support to parents of autistic teenagers, and the need to work preventatively to reduce the risks of MHD/BC emerging or increasing in severity during the teenage years.Lay abstract Being a teenager can be challenging for any young person, and it is during this stage of life that most mental health difficulties (MHDs) emerge. The teenage years can be even more demanding for autistic young people who are known to experience more emotional distress and MHDs than their neurotypical peers. Parents are an important source of support for most children and young people, including those who are autistic. It therefore surprising that there is very little research on the experiences of parents of autistic teenagers. Most of the research that has been carried out is specifically about leaving school or moving from children’s to adult services. The purpose of this research was to understand the experiences of parents of an autistic teenager with mental health difficulties or behaviours that challenge (MHD/BC). We interviewed 33 parents of 31 teenagers aged between 15 and 19 years. Most parents said their child experienced new or more severe MHD/BC during their teenage years. This was upsetting to witness and caused them a lot of worry. Many described not knowing how best to respond. Others said that their efforts to support their child were unsuccessful. The difficulties parents experienced had an impact on their day-to-day lives and many said their own physical and emotional health had worsened as a result. Very few parents had received help from mental health or social services. The findings highlight the importance of supporting parents of autistic teenagers, including intervening to support autistic teenagers. En ligne : https://dx.doi.org/10.1177/13623613251351040 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 [article] ‘Adolescence kicked in . . . and you need help again’: A qualitative study of the experiences of parents of autistic teenagers with mental health difficulties or behaviours that challenge [texte imprimé] / Suzanne MUKHERJEE, Auteur ; Bryony BERESFORD, Auteur . - p.2691-2702. Langues : Anglais (eng) in Autism > 29-11 (November 2025) . - p.2691-2702 Mots-clés : adolescents  family functioning and support  lived experience  mental health  parents  qualitative research Index. décimale : PER Périodiques Résumé : Relatively little is known about the experiences of parents of autistic teenagers, with the existing research on this life stage principally about transition. This study sought to address this gap. It focused specifically on parents of autistic teenagers with mental health difficulties and/or behaviours that challenge (MHD/BC). The study design was qualitative and used in-depth interviews to collect data. Thirty-three parents of 31 teenagers (15–19 years) living in the United Kingdom were purposively sampled and recruited from an existing research cohort. A thematic analysis was undertaken, adopting the framework method. Parents typically reported the emergence of new MHD/BC, or existing difficulties becoming more severe, during the teenage years. At the same time, they described feeling de-skilled and uncertain about how best to support their child. Many parents also referred to deteriorations in their own physical and emotional health. Very few had accessed beneficial professional support during this period. Findings add weight to the case for increasing support to parents of autistic teenagers, and the need to work preventatively to reduce the risks of MHD/BC emerging or increasing in severity during the teenage years.Lay abstract Being a teenager can be challenging for any young person, and it is during this stage of life that most mental health difficulties (MHDs) emerge. The teenage years can be even more demanding for autistic young people who are known to experience more emotional distress and MHDs than their neurotypical peers. Parents are an important source of support for most children and young people, including those who are autistic. It therefore surprising that there is very little research on the experiences of parents of autistic teenagers. Most of the research that has been carried out is specifically about leaving school or moving from children’s to adult services. The purpose of this research was to understand the experiences of parents of an autistic teenager with mental health difficulties or behaviours that challenge (MHD/BC). We interviewed 33 parents of 31 teenagers aged between 15 and 19 years. Most parents said their child experienced new or more severe MHD/BC during their teenage years. This was upsetting to witness and caused them a lot of worry. Many described not knowing how best to respond. Others said that their efforts to support their child were unsuccessful. The difficulties parents experienced had an impact on their day-to-day lives and many said their own physical and emotional health had worsened as a result. Very few parents had received help from mental health or social services. The findings highlight the importance of supporting parents of autistic teenagers, including intervening to support autistic teenagers. En ligne : https://dx.doi.org/10.1177/13623613251351040 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570

Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management / Joanne TARVER in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.429-439 Titre : Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management Type de document : texte imprimé Auteurs : Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur Article en page(s) : p.429-439 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management [texte imprimé] / Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur . - p.429-439. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.429-439 Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis / Gregory HOLLIN in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

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Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study / Laura CARRAVALLAH ; Mona JOHNSON ; Jane O'SULLIVAN ; Nicholas CHOWN ; Stuart NEILSON ; Mary DOHERTY in Autism, 28-7 (July 2024)  

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'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production / Gemma L. WILLIAMS in Autism, 29-9 (September 2025)  

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Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study / Naomi DOWNES in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

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Healthcare providers' practices in identifying and managing constipation in autistic adults: A qualitative study of facilities across France / Wynn SMITH in Autism, 29-8 (August 2025)  

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