3 recherche sur le mot-clé 'cultural diversity'

Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers / R. CHOUEIRI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945 Titre : Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers Type de document : texte imprimé Auteurs : R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur Article en page(s) : p.3937-3945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Checklist  Child, Preschool  Humans  Infant  Mass Screening  Access  Autism  Community  Cultural diversity  Early intervention  Interactive  RITA-T (Rapid Interactive Screening Test of Autism in Toddlers)  Screening  Toddlers  Underserved  screening Test for Autism in Toddlers (RITA-T) with a collaboration with Early  Intervention (EI) to improve early identification and access of toddlers to  diagnosis and thus to treatment. We have since then replicated this work to other EI  Programs and further developed the model. This work was presented as a poster at the  International Meeting for Autism Research in Montreal (2019), and in RITA-T training  workshops locally, in the US or internationally. All authors have reviewed the  manuscript and agree to its contents. All authors, except Dr.Choueiri, do not report  any conflict of interest with respect to the material. Index. décimale : PER Périodiques Résumé : The objective of this study was to test a screening model that employs the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T), in an underserved community to improve ASD detection. We collaborated with a large Early Intervention (EI) program and trained 4 providers reliably on the RITA-T. Toddlers received the Modified Checklist for Autism in Toddlers (MCHAT-R/F), the RITA-T, developmental and autism testing, and a best-estimate clinical diagnosis. Eighty-One toddlers were enrolled: 57 with ASD and 24 with Developmental Delay (DD) non-ASD. Wait-time for diagnosis was on average 6 weeks. The RITA-T correlated highly with autism measures and EI staff integrated this model easily. The RITA-T significantly improved the identification and wait time for ASD in this underserved community. En ligne : http://dx.doi.org/10.1007/s10803-020-04851-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers [texte imprimé] / R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur . - p.3937-3945. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Checklist  Child, Preschool  Humans  Infant  Mass Screening  Access  Autism  Community  Cultural diversity  Early intervention  Interactive  RITA-T (Rapid Interactive Screening Test of Autism in Toddlers)  Screening  Toddlers  Underserved  screening Test for Autism in Toddlers (RITA-T) with a collaboration with Early  Intervention (EI) to improve early identification and access of toddlers to  diagnosis and thus to treatment. We have since then replicated this work to other EI  Programs and further developed the model. This work was presented as a poster at the  International Meeting for Autism Research in Montreal (2019), and in RITA-T training  workshops locally, in the US or internationally. All authors have reviewed the  manuscript and agree to its contents. All authors, except Dr.Choueiri, do not report  any conflict of interest with respect to the material. Index. décimale : PER Périodiques Résumé : The objective of this study was to test a screening model that employs the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T), in an underserved community to improve ASD detection. We collaborated with a large Early Intervention (EI) program and trained 4 providers reliably on the RITA-T. Toddlers received the Modified Checklist for Autism in Toddlers (MCHAT-R/F), the RITA-T, developmental and autism testing, and a best-estimate clinical diagnosis. Eighty-One toddlers were enrolled: 57 with ASD and 24 with Developmental Delay (DD) non-ASD. Wait-time for diagnosis was on average 6 weeks. The RITA-T correlated highly with autism measures and EI staff integrated this model easily. The RITA-T significantly improved the identification and wait time for ASD in this underserved community. En ligne : http://dx.doi.org/10.1007/s10803-020-04851-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

"Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia / Kristelle HUDRY ; Alexandra AULICH ; Catherine A. BENT ; Christos CONSTANTINE ; Kathleen FRANKS ; Nilushi GOONETILLEKE ; Cherie C. GREEN ; Rabia IJAZ ; Emily MA ; Kanisha PATEL ; Helen SAID ; Rena WANG ; Sarah WOOD ; Jodie SMITH in Research in Autism, 126 (August 2025)  

Public ISBD [article]  inResearch in Autism > 126 (August 2025) . - p.202655 Titre : "Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia Type de document : texte imprimé Auteurs : Kristelle HUDRY, Auteur ; Alexandra AULICH, Auteur ; Catherine A. BENT, Auteur ; Christos CONSTANTINE, Auteur ; Kathleen FRANKS, Auteur ; Nilushi GOONETILLEKE, Auteur ; Cherie C. GREEN, Auteur ; Rabia IJAZ, Auteur ; Emily MA, Auteur ; Kanisha PATEL, Auteur ; Helen SAID, Auteur ; Rena WANG, Auteur ; Sarah WOOD, Auteur ; Jodie SMITH, Auteur Article en page(s) : p.202655 Langues : Anglais (eng) Mots-clés : Autism  Early Intervention  Participatory Research  Cultural Diversity  Linguistic Diversity Index. décimale : PER Périodiques Résumé : Introduction Early intervention (EI) professionals play an important role in supporting autistic children and their families. When families come from minority ethnic communities, the early autism journey is often more complex than for native-born families for caregivers and professionals alike. Whilst there is growing awareness about parents' experiences, we have little data from EI professionals on what can be done to improve the experiences, engagement and outcomes for these families. Here, we sought professional insights on their efforts to provide early autism supports for minority ethnic families, namely those from Chinese and South Asian backgrounds. Methods Through a community-partnered participatory approach, we conducted semi-structured interviews with EI professionals who had experience working with autistic children and their families from Chinese and South Asian backgrounds in Australia (n = 18). Data were analysed using inductive reflexive thematic analysis. Results Participating EI professionals described the challenge of developing a common language to talk about autism and supports with families, and often had different intervention priorities when compared to parents. They described observing parents' own unmet mental health and wellbeing needs, which they felt were compounded by shame and stigma associated with autism within their specific communities. Moreover, professionals relayed their powerlessness in effectively supporting parents' wellbeing due to a funding model focused solely on child goals. Participating professionals felt that the best way to work with families was to start by truly understanding the child, the parent and the family dynamics in order to tailor supports, as well as to encourage community connection and belonging. Discussion and implications The insights offered by EI professionals into how early supports can be adapted to better meet the needs of minority ethnic parents and autistic children can inform more equitable policy-level decision-making for service provision. En ligne : https://doi.org/10.1016/j.reia.2025.202655 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565 [article] "Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia [texte imprimé] / Kristelle HUDRY, Auteur ; Alexandra AULICH, Auteur ; Catherine A. BENT, Auteur ; Christos CONSTANTINE, Auteur ; Kathleen FRANKS, Auteur ; Nilushi GOONETILLEKE, Auteur ; Cherie C. GREEN, Auteur ; Rabia IJAZ, Auteur ; Emily MA, Auteur ; Kanisha PATEL, Auteur ; Helen SAID, Auteur ; Rena WANG, Auteur ; Sarah WOOD, Auteur ; Jodie SMITH, Auteur . - p.202655. Langues : Anglais (eng) in Research in Autism > 126 (August 2025) . - p.202655 Mots-clés : Autism  Early Intervention  Participatory Research  Cultural Diversity  Linguistic Diversity Index. décimale : PER Périodiques Résumé : Introduction Early intervention (EI) professionals play an important role in supporting autistic children and their families. When families come from minority ethnic communities, the early autism journey is often more complex than for native-born families for caregivers and professionals alike. Whilst there is growing awareness about parents' experiences, we have little data from EI professionals on what can be done to improve the experiences, engagement and outcomes for these families. Here, we sought professional insights on their efforts to provide early autism supports for minority ethnic families, namely those from Chinese and South Asian backgrounds. Methods Through a community-partnered participatory approach, we conducted semi-structured interviews with EI professionals who had experience working with autistic children and their families from Chinese and South Asian backgrounds in Australia (n = 18). Data were analysed using inductive reflexive thematic analysis. Results Participating EI professionals described the challenge of developing a common language to talk about autism and supports with families, and often had different intervention priorities when compared to parents. They described observing parents' own unmet mental health and wellbeing needs, which they felt were compounded by shame and stigma associated with autism within their specific communities. Moreover, professionals relayed their powerlessness in effectively supporting parents' wellbeing due to a funding model focused solely on child goals. Participating professionals felt that the best way to work with families was to start by truly understanding the child, the parent and the family dynamics in order to tailor supports, as well as to encourage community connection and belonging. Discussion and implications The insights offered by EI professionals into how early supports can be adapted to better meet the needs of minority ethnic parents and autistic children can inform more equitable policy-level decision-making for service provision. En ligne : https://doi.org/10.1016/j.reia.2025.202655 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565

Vaccine Hesitancy and Attributions for Autism among Racially and Ethnically Diverse Groups of Parents of Children with Autism Spectrum Disorder: A Pilot Study / Jennifer CHANG in Autism Research, 13-10 (October 2020)  

Public ISBD [article]  inAutism Research > 13-10 (October 2020) . - p.1790-1796 Titre : Vaccine Hesitancy and Attributions for Autism among Racially and Ethnically Diverse Groups of Parents of Children with Autism Spectrum Disorder: A Pilot Study Type de document : texte imprimé Auteurs : Jennifer CHANG, Auteur ; Robin P. GOIN-KOCHEL, Auteur Article en page(s) : p.1790-1796 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  cultural diversity  ethnic groups  parent perception  race  vaccines Index. décimale : PER Périodiques Résumé : Little is known about how racial/ethnic differences may influence attributions for autism spectrum disorder (ASD) and subsequent vaccine hesitancy, the latter of which refers to a continuum of concerns about vaccine safety that may lead to vaccine delays and/or refusals. Two hundred and twenty-five parents of children with ASD who were enrolled in the SPARK cohort (Simons Foundation Powering Autism Research for Knowledge) completed the Parent Attitudes about Childhood Vaccines survey and the Revised Illness Perception Questionnaire. 28.9% of respondents (n = 65) were vaccine hesitant (PACV score ≥ 50). Significant differences were observed between proportions of vaccine-hesitant parents (VHP) in the White sample and combined samples of color (Asian, Black, Latinx, Multiracial, and Other): 22.8% of the White sample (n = 39) versus 48.1% of the samples of color (n = 26). White, non-hesitant parents more often agreed with the child's brain structure as a cause of their child's ASD, while White, VHP more often agreed with the deterioration of the child's immunity as a cause. All VHP (regardless of race) agreed more often with diet, their own decisions, and vaccines as causes. VHP of color more often agreed with accident or injury, environmental pollution, their own general stress, and their own emotional state as causes. Future work should examine this phenomenon in larger, diverse samples to further understand differences across specific racial/ethnic groups. LAY SUMMARY: Some parents of children with autism spectrum disorder (ASD) are vaccine hesitant, meaning they have concerns about vaccine safety and may delay/refuse vaccines. We examined possible racial/ethnic differences related to how common vaccine hesitancy is and which causes of ASD were typically endorsed among a sample of caregivers in the SPARK cohort (Simons Foundation Powering Autism Research for Knowledge). Higher proportions of parents of color were vaccine hesitant, and all vaccine-hesitant parents agreed that "toxins in vaccines" were a cause of their child's ASD. Autism Res 2020, 13: 1790-1796. © 2020 International Society for Autism Research and Wiley Periodicals LLC. En ligne : http://dx.doi.org/10.1002/aur.2339 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Vaccine Hesitancy and Attributions for Autism among Racially and Ethnically Diverse Groups of Parents of Children with Autism Spectrum Disorder: A Pilot Study [texte imprimé] / Jennifer CHANG, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - p.1790-1796. Langues : Anglais (eng) in Autism Research > 13-10 (October 2020) . - p.1790-1796 Mots-clés : autism spectrum disorder  cultural diversity  ethnic groups  parent perception  race  vaccines Index. décimale : PER Périodiques Résumé : Little is known about how racial/ethnic differences may influence attributions for autism spectrum disorder (ASD) and subsequent vaccine hesitancy, the latter of which refers to a continuum of concerns about vaccine safety that may lead to vaccine delays and/or refusals. Two hundred and twenty-five parents of children with ASD who were enrolled in the SPARK cohort (Simons Foundation Powering Autism Research for Knowledge) completed the Parent Attitudes about Childhood Vaccines survey and the Revised Illness Perception Questionnaire. 28.9% of respondents (n = 65) were vaccine hesitant (PACV score ≥ 50). Significant differences were observed between proportions of vaccine-hesitant parents (VHP) in the White sample and combined samples of color (Asian, Black, Latinx, Multiracial, and Other): 22.8% of the White sample (n = 39) versus 48.1% of the samples of color (n = 26). White, non-hesitant parents more often agreed with the child's brain structure as a cause of their child's ASD, while White, VHP more often agreed with the deterioration of the child's immunity as a cause. All VHP (regardless of race) agreed more often with diet, their own decisions, and vaccines as causes. VHP of color more often agreed with accident or injury, environmental pollution, their own general stress, and their own emotional state as causes. Future work should examine this phenomenon in larger, diverse samples to further understand differences across specific racial/ethnic groups. LAY SUMMARY: Some parents of children with autism spectrum disorder (ASD) are vaccine hesitant, meaning they have concerns about vaccine safety and may delay/refuse vaccines. We examined possible racial/ethnic differences related to how common vaccine hesitancy is and which causes of ASD were typically endorsed among a sample of caregivers in the SPARK cohort (Simons Foundation Powering Autism Research for Knowledge). Higher proportions of parents of color were vaccine hesitant, and all vaccine-hesitant parents agreed that "toxins in vaccines" were a cause of their child's ASD. Autism Res 2020, 13: 1790-1796. © 2020 International Society for Autism Research and Wiley Periodicals LLC. En ligne : http://dx.doi.org/10.1002/aur.2339 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431