Autism Spectrum Disorder Reclassified: A Second Look at the 1980s Utah/UCLA Autism Epidemiologic Study / Judith S. MILLER in Journal of Autism and Developmental Disorders, 43-1 (January 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.200-210 Titre : Autism Spectrum Disorder Reclassified: A Second Look at the 1980s Utah/UCLA Autism Epidemiologic Study Type de document : texte imprimé Auteurs : Judith S. MILLER, Auteur ; Deborah A. BILDER, Auteur ; Megan A. FARLEY, Auteur ; Hilary H. COON, Auteur ; Judith PINBOROUGH-ZIMMERMAN, Auteur ; William R. JENSON, Auteur ; Catherine E. RICE, Auteur ; Eric FOMBONNE, Auteur ; Carmen B. PINGREE, Auteur ; Edward R. RITVO, Auteur ; Ariella R. RITVO, Auteur ; William M. MCMAHON, Auteur Année de publication : 2013 Article en page(s) : p.200-210 Langues : Anglais (eng) Mots-clés : Autism  Epidemiology  Prevalence  Diagnostic criteria  Intellectual disability Index. décimale : PER Périodiques Résumé : The purpose of the present study was to re-examine diagnostic data from a state-wide autism prevalence study (n = 489) conducted in the 1980s to investigate the impact of broader diagnostic criteria on autism spectrum disorder (ASD) case status. Sixty-four (59 %) of the 108 originally 'Diagnosed Not Autistic' met the current ASD case definition. The average IQ estimate in the newly identified group (IQ = 35.58; SD = 23.01) was significantly lower than in the original group (IQ = 56.19 SD = 21.21; t = 5.75; p .0001). Today's diagnostic criteria applied to participants ascertained in the 1980s identified more cases of autism with intellectual disability. The current analysis puts this historic work into context and highlights differences in ascertainment between epidemiological studies performed decades ago and those of today. En ligne : http://dx.doi.org/10.1007/s10803-012-1566-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187 [article] Autism Spectrum Disorder Reclassified: A Second Look at the 1980s Utah/UCLA Autism Epidemiologic Study [texte imprimé] / Judith S. MILLER, Auteur ; Deborah A. BILDER, Auteur ; Megan A. FARLEY, Auteur ; Hilary H. COON, Auteur ; Judith PINBOROUGH-ZIMMERMAN, Auteur ; William R. JENSON, Auteur ; Catherine E. RICE, Auteur ; Eric FOMBONNE, Auteur ; Carmen B. PINGREE, Auteur ; Edward R. RITVO, Auteur ; Ariella R. RITVO, Auteur ; William M. MCMAHON, Auteur . - 2013 . - p.200-210. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.200-210 Mots-clés : Autism  Epidemiology  Prevalence  Diagnostic criteria  Intellectual disability Index. décimale : PER Périodiques Résumé : The purpose of the present study was to re-examine diagnostic data from a state-wide autism prevalence study (n = 489) conducted in the 1980s to investigate the impact of broader diagnostic criteria on autism spectrum disorder (ASD) case status. Sixty-four (59 %) of the 108 originally 'Diagnosed Not Autistic' met the current ASD case definition. The average IQ estimate in the newly identified group (IQ = 35.58; SD = 23.01) was significantly lower than in the original group (IQ = 56.19 SD = 21.21; t = 5.75; p .0001). Today's diagnostic criteria applied to participants ascertained in the 1980s identified more cases of autism with intellectual disability. The current analysis puts this historic work into context and highlights differences in ascertainment between epidemiological studies performed decades ago and those of today. En ligne : http://dx.doi.org/10.1007/s10803-012-1566-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187

Can People With ASC Live Independently as Adults? / William M. MCMAHON

Public ISBD in Autism Spectrum Conditions / Sven BÖLTE Titre : Can People With ASC Live Independently as Adults? Type de document : texte imprimé Auteurs : William M. MCMAHON, Auteur ; Megan A. FARLEY, Auteur Année de publication : 2011 Importance : p.84-86 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=138 in Autism Spectrum Conditions / Sven BÖLTE Can People With ASC Live Independently as Adults? [texte imprimé] / William M. MCMAHON, Auteur ; Megan A. FARLEY, Auteur . - 2011 . - p.84-86. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=138

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A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study / Kyle B. JONES in Autism, 20-5 (July 2016)  

Public ISBD [article]  inAutism > 20-5 (July 2016) . - p.551-561 Titre : A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study Type de document : texte imprimé Auteurs : Kyle B. JONES, Auteur ; Kristina J. COTTLE, Auteur ; Amanda V. BAKIAN, Auteur ; Megan A. FARLEY, Auteur ; Deborah A. BILDER, Auteur ; Hilary H. COON, Auteur ; William M. MCMAHON, Auteur Article en page(s) : p.551-561 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  medical comorbidity Index. décimale : PER Périodiques Résumé : This study describes medical conditions experienced by a population-based cohort of adults with autism spectrum disorder whose significant developmental concerns were apparent during childhood. As part of a 25-year outcome study of autism spectrum disorder in adulthood, medical histories were collected on 92 participants (N = 69 males) who were first ascertained as children in the mid-1980s, 11 of whom were deceased at the time of follow-up. Questionnaires queried medical symptoms, disorders, hospitalizations, surgeries, and medication use. Median age at follow-up was 36 years (range: 23.5–50.5 years), and intellectual disability co-occurred in 62%. The most common medical conditions were seizures, obesity, insomnia, and constipation. The median number of medical conditions per person was 11. Increased medical comorbidity was associated with female gender (p = 0.01) and obesity (p = 0.03), but not intellectual disability (p = 0.79). Adults in this cohort of autism spectrum disorder first ascertained in the 1980s experience a high number of chronic medical conditions, regardless of intellectual ability. Understanding of these conditions commonly experienced should direct community-based and medical primary care for this population. En ligne : http://dx.doi.org/10.1177/1362361315594798 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study [texte imprimé] / Kyle B. JONES, Auteur ; Kristina J. COTTLE, Auteur ; Amanda V. BAKIAN, Auteur ; Megan A. FARLEY, Auteur ; Deborah A. BILDER, Auteur ; Hilary H. COON, Auteur ; William M. MCMAHON, Auteur . - p.551-561. Langues : Anglais (eng) in Autism > 20-5 (July 2016) . - p.551-561 Mots-clés : autism spectrum disorder  medical comorbidity Index. décimale : PER Périodiques Résumé : This study describes medical conditions experienced by a population-based cohort of adults with autism spectrum disorder whose significant developmental concerns were apparent during childhood. As part of a 25-year outcome study of autism spectrum disorder in adulthood, medical histories were collected on 92 participants (N = 69 males) who were first ascertained as children in the mid-1980s, 11 of whom were deceased at the time of follow-up. Questionnaires queried medical symptoms, disorders, hospitalizations, surgeries, and medication use. Median age at follow-up was 36 years (range: 23.5–50.5 years), and intellectual disability co-occurred in 62%. The most common medical conditions were seizures, obesity, insomnia, and constipation. The median number of medical conditions per person was 11. Increased medical comorbidity was associated with female gender (p = 0.01) and obesity (p = 0.03), but not intellectual disability (p = 0.79). Adults in this cohort of autism spectrum disorder first ascertained in the 1980s experience a high number of chronic medical conditions, regardless of intellectual ability. Understanding of these conditions commonly experienced should direct community-based and medical primary care for this population. En ligne : http://dx.doi.org/10.1177/1362361315594798 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Excess Mortality and Causes of Death in Autism Spectrum Disorders: A Follow up of the 1980s Utah/UCLA Autism Epidemiologic Study / Deborah A. BILDER in Journal of Autism and Developmental Disorders, 43-5 (May 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-5 (May 2013) . - p.1196-1204 Titre : Excess Mortality and Causes of Death in Autism Spectrum Disorders: A Follow up of the 1980s Utah/UCLA Autism Epidemiologic Study Type de document : texte imprimé Auteurs : Deborah A. BILDER, Auteur ; Elizabeth L. BOTTS, Auteur ; Ken R. SMITH, Auteur ; Richard PIMENTEL, Auteur ; Megan A. FARLEY, Auteur ; Joseph VISKOCHIL, Auteur ; William M. MCMAHON, Auteur ; Heidi BLOCK, Auteur ; Edward R. RITVO, Auteur ; Ariella R. RITVO, Auteur ; Hilary H. COON, Auteur Article en page(s) : p.1196-1204 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Mortality  Causes of death  Epilepsy  Intellectual disability Index. décimale : PER Périodiques Résumé : This study’s purpose was to investigate mortality among individuals with autism spectrum disorders (ASD) ascertained during a 1980s statewide autism prevalence study (n = 305) in relation to controls. Twenty-nine of these individuals (9.5 %) died by the time of follow up, representing a hazard rate ratio of 9.9 (95 % CI 5.7–17.2) in relation to population controls. Death certificates identified respiratory, cardiac, and epileptic events as the most common causes of death. The elevated mortality risk associated with ASD in the study cohort appeared related to the presence of comorbid medical conditions and intellectual disability rather than ASD itself suggesting the importance of coordinated medical care for this high risk sub-population of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1664-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=195 [article] Excess Mortality and Causes of Death in Autism Spectrum Disorders: A Follow up of the 1980s Utah/UCLA Autism Epidemiologic Study [texte imprimé] / Deborah A. BILDER, Auteur ; Elizabeth L. BOTTS, Auteur ; Ken R. SMITH, Auteur ; Richard PIMENTEL, Auteur ; Megan A. FARLEY, Auteur ; Joseph VISKOCHIL, Auteur ; William M. MCMAHON, Auteur ; Heidi BLOCK, Auteur ; Edward R. RITVO, Auteur ; Ariella R. RITVO, Auteur ; Hilary H. COON, Auteur . - p.1196-1204. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-5 (May 2013) . - p.1196-1204 Mots-clés : Autism spectrum disorders  Mortality  Causes of death  Epilepsy  Intellectual disability Index. décimale : PER Périodiques Résumé : This study’s purpose was to investigate mortality among individuals with autism spectrum disorders (ASD) ascertained during a 1980s statewide autism prevalence study (n = 305) in relation to controls. Twenty-nine of these individuals (9.5 %) died by the time of follow up, representing a hazard rate ratio of 9.9 (95 % CI 5.7–17.2) in relation to population controls. Death certificates identified respiratory, cardiac, and epileptic events as the most common causes of death. The elevated mortality risk associated with ASD in the study cohort appeared related to the presence of comorbid medical conditions and intellectual disability rather than ASD itself suggesting the importance of coordinated medical care for this high risk sub-population of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1664-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=195

Mid‐life social outcomes for a population‐based sample of adults with ASD / Megan A. FARLEY in Autism Research, 11-1 (January 2018)  

Public ISBD [article]  inAutism Research > 11-1 (January 2018) . - p.142-152 Titre : Mid‐life social outcomes for a population‐based sample of adults with ASD Type de document : texte imprimé Auteurs : Megan A. FARLEY, Auteur ; Kristina J. COTTLE, Auteur ; Deborah A. BILDER, Auteur ; Joseph VISKOCHIL, Auteur ; Hilary H. COON, Auteur ; William M. MCMAHON, Auteur Article en page(s) : p.142-152 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorders (ASD) fall short of social outcomes of non‐ASD peers in mid‐life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population‐based sample of adults with ASD (mean age = 35.5 years, range = 22.2–51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three‐fourths of the sample had cognitive abilities in the intellectually disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified. Autism Res 2018, 11: 142–152. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary This paper describes the social functioning outcomes for 169 adults with autism spectrum disorders in mid‐life. Adult participants spanned the full range of functional and cognitive ability levels, with over 75% functioning in the cognitively impaired range. While summary descriptions of outcomes for this sample were similar to those reported for other groups of adults, this report provides detailed information regarding employment outcomes, social relationships, leisure activities, participation in the community, residential situations, public service use, and involvement with law enforcement. En ligne : https://doi.org/10.1002/aur.1897 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334 [article] Mid‐life social outcomes for a population‐based sample of adults with ASD [texte imprimé] / Megan A. FARLEY, Auteur ; Kristina J. COTTLE, Auteur ; Deborah A. BILDER, Auteur ; Joseph VISKOCHIL, Auteur ; Hilary H. COON, Auteur ; William M. MCMAHON, Auteur . - p.142-152. Langues : Anglais (eng) in Autism Research > 11-1 (January 2018) . - p.142-152 Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorders (ASD) fall short of social outcomes of non‐ASD peers in mid‐life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population‐based sample of adults with ASD (mean age = 35.5 years, range = 22.2–51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three‐fourths of the sample had cognitive abilities in the intellectually disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified. Autism Res 2018, 11: 142–152. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary This paper describes the social functioning outcomes for 169 adults with autism spectrum disorders in mid‐life. Adult participants spanned the full range of functional and cognitive ability levels, with over 75% functioning in the cognitively impaired range. While summary descriptions of outcomes for this sample were similar to those reported for other groups of adults, this report provides detailed information regarding employment outcomes, social relationships, leisure activities, participation in the community, residential situations, public service use, and involvement with law enforcement. En ligne : https://doi.org/10.1002/aur.1897 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334

Psychiatric Comorbidity and Medication Use in Adults with Autism Spectrum Disorder / Tara R. BUCK in Journal of Autism and Developmental Disorders, 44-12 (December 2014)  

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Twenty-year outcome for individuals with autism and average or near-average cognitive abilities / Megan A. FARLEY in Autism Research, 2-2 (April 2009)  

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