Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability / Jenny FAIRTHORNE in Journal of Autism and Developmental Disorders, 46-3 (March 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1103-1109 Titre : Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability Type de document : texte imprimé Auteurs : Jenny FAIRTHORNE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur Article en page(s) : p.1103-1109 Langues : Anglais (eng) Mots-clés : Intellectual  Autism  Psychiatric  Maternal  Mothers  Down  Hospitalisation Index. décimale : PER Périodiques Résumé : Compared to other mothers, mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have higher rates of treatment episodes for psychiatric disorders. We aimed to estimate the maternal burden of care by comparing the length of hospitalisations for psychiatric disorders and the treatment rates for psychiatric disorders after the birth in mothers of children with ASD/ID and no psychiatric history to that of other mothers with no psychiatric history. Mothers of children with ID of known cause (not Down syndrome) and mothers of children ASD without ID emerged as particularly vulnerable. Mothers of children with Down syndrome were resilient. The development of specialised organisations to provide support to mothers of children with ID of known cause (not Down syndrome) and mothers of children with ASD without ID could assist them to maintain their mental health. En ligne : http://dx.doi.org/10.1007/s10803-015-2629-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282 [article] Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability [texte imprimé] / Jenny FAIRTHORNE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur . - p.1103-1109. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1103-1109 Mots-clés : Intellectual  Autism  Psychiatric  Maternal  Mothers  Down  Hospitalisation Index. décimale : PER Périodiques Résumé : Compared to other mothers, mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have higher rates of treatment episodes for psychiatric disorders. We aimed to estimate the maternal burden of care by comparing the length of hospitalisations for psychiatric disorders and the treatment rates for psychiatric disorders after the birth in mothers of children with ASD/ID and no psychiatric history to that of other mothers with no psychiatric history. Mothers of children with ID of known cause (not Down syndrome) and mothers of children ASD without ID emerged as particularly vulnerable. Mothers of children with Down syndrome were resilient. The development of specialised organisations to provide support to mothers of children with ID of known cause (not Down syndrome) and mothers of children with ASD without ID could assist them to maintain their mental health. En ligne : http://dx.doi.org/10.1007/s10803-015-2629-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282

Diagnosis of Autism Spectrum Disorder According to Maternal-Race Ethnicity and Country of Birth: A Register-Based Study / Ifrah ABDULLAHI in Journal of Autism and Developmental Disorders, 49-9 (September 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3611-3624 Titre : Diagnosis of Autism Spectrum Disorder According to Maternal-Race Ethnicity and Country of Birth: A Register-Based Study Type de document : texte imprimé Auteurs : Ifrah ABDULLAHI, Auteur ; K. WONG, Auteur ; Keely BEBBINGTON, Auteur ; R. MUTCH, Auteur ; Nick DE KLERK, Auteur ; S. CHERIAN, Auteur ; J. DOWNS, Auteur ; H. LEONARD, Auteur ; E. J. GLASSON, Auteur Article en page(s) : p.3611-3624 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Immigrant  Intellectual disability  Severity  Symptomatology Index. décimale : PER Périodiques Résumé : An increased prevalence of autism spectrum disorder (ASD) among children of immigrant backgrounds has been observed but clinical profiles are rarely compared. Diagnostic data from children with ASD notified to the Western Australian Register for Autism Spectrum Disorders were analysed according to maternal-race ethnicity and country of birth. A total of 4776 children aged between 0 and 18 years diagnosed with ASD from 1999 to 2017 were included. Those born to immigrant mothers from lower income countries were younger at the time of diagnosis, had an increased risk of intellectual disability and poorer presentations in the social and communication domains. Further work is required to understand environmental influences that may affect children born to immigrant mothers and to improve monitoring and assessments. En ligne : http://dx.doi.org/10.1007/s10803-019-04068-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405 [article] Diagnosis of Autism Spectrum Disorder According to Maternal-Race Ethnicity and Country of Birth: A Register-Based Study [texte imprimé] / Ifrah ABDULLAHI, Auteur ; K. WONG, Auteur ; Keely BEBBINGTON, Auteur ; R. MUTCH, Auteur ; Nick DE KLERK, Auteur ; S. CHERIAN, Auteur ; J. DOWNS, Auteur ; H. LEONARD, Auteur ; E. J. GLASSON, Auteur . - p.3611-3624. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3611-3624 Mots-clés : Autism spectrum disorder  Immigrant  Intellectual disability  Severity  Symptomatology Index. décimale : PER Périodiques Résumé : An increased prevalence of autism spectrum disorder (ASD) among children of immigrant backgrounds has been observed but clinical profiles are rarely compared. Diagnostic data from children with ASD notified to the Western Australian Register for Autism Spectrum Disorders were analysed according to maternal-race ethnicity and country of birth. A total of 4776 children aged between 0 and 18 years diagnosed with ASD from 1999 to 2017 were included. Those born to immigrant mothers from lower income countries were younger at the time of diagnosis, had an increased risk of intellectual disability and poorer presentations in the social and communication domains. Further work is required to understand environmental influences that may affect children born to immigrant mothers and to improve monitoring and assessments. En ligne : http://dx.doi.org/10.1007/s10803-019-04068-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405

Maternal Psychiatric Disorder and the Risk of Autism Spectrum Disorder or Intellectual Disability in Subsequent Offspring / Jenny FAIRTHORNE in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.523-533 Titre : Maternal Psychiatric Disorder and the Risk of Autism Spectrum Disorder or Intellectual Disability in Subsequent Offspring Type de document : texte imprimé Auteurs : Jenny FAIRTHORNE, Auteur ; Geoff HAMMOND, Auteur ; Jenny BOURKE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur Année de publication : 2016 Article en page(s) : p.523-533 Langues : Anglais (eng) Mots-clés : Autism  Intellectual  Psychiatric  Mothers  Pre-existing  Prenatal medication Index. décimale : PER Périodiques Résumé : Psychiatric disorders are more common in the mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) after the birth of their child. We aimed to assess the relationship between women’s psychiatric contacts and subsequent offspring with ASD/ID. We linked three Western Australian registers to investigate pre-existing maternal outpatient psychiatric contacts and the odds of ASD/ID in a subsequent child. Women with a previous outpatient psychiatric contact were more than twice as likely to have a child with ASD [OR 2.07 (95 % CI 1.7, 2.6)] or ID [OR 2.31 (2.1, 2.6)]. Further research exploring the effect on pregnancy outcomes of medications prescribed to women with psychiatric disorders is implicated. En ligne : http://dx.doi.org/10.1007/s10803-015-2594-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Maternal Psychiatric Disorder and the Risk of Autism Spectrum Disorder or Intellectual Disability in Subsequent Offspring [texte imprimé] / Jenny FAIRTHORNE, Auteur ; Geoff HAMMOND, Auteur ; Jenny BOURKE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur . - 2016 . - p.523-533. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.523-533 Mots-clés : Autism  Intellectual  Psychiatric  Mothers  Pre-existing  Prenatal medication Index. décimale : PER Périodiques Résumé : Psychiatric disorders are more common in the mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) after the birth of their child. We aimed to assess the relationship between women’s psychiatric contacts and subsequent offspring with ASD/ID. We linked three Western Australian registers to investigate pre-existing maternal outpatient psychiatric contacts and the odds of ASD/ID in a subsequent child. Women with a previous outpatient psychiatric contact were more than twice as likely to have a child with ASD [OR 2.07 (95 % CI 1.7, 2.6)] or ID [OR 2.31 (2.1, 2.6)]. Further research exploring the effect on pregnancy outcomes of medications prescribed to women with psychiatric disorders is implicated. En ligne : http://dx.doi.org/10.1007/s10803-015-2594-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: A retrospective cohort study / Jenny FAIRTHORNE in Autism, 20-1 (January 2016)  

Public ISBD [article]  inAutism > 20-1 (January 2016) . - p.37-44 Titre : Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: A retrospective cohort study Type de document : texte imprimé Auteurs : Jenny FAIRTHORNE, Auteur ; Peter JACOBY, Auteur ; Jenny BOURKE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur Article en page(s) : p.37-44 Langues : Anglais (eng) Mots-clés : autism  care-giver  health  intellectual disability  linked data  mental population  psychiatric study Index. décimale : PER Périodiques Résumé : Background: Mothers of a child with autism spectrum disorder have more psychiatric disorders after the birth of their child. This might be because they have more psychiatric disorders before the birth, or the increase could be related to the burden of caring for their child.Aims: We aimed to calculate the incidence of a psychiatric diagnosis in women with no psychiatric history after the birth of their eldest child with autism spectrum disorder compared to women with no child with autism spectrum disorder or intellectual disability and no psychiatric history.Methods: By linking datasets from Western Australian population-based registries, we calculated the incidence of a psychiatric disorder in mothers of children with autism spectrum disorder and compared to mothers of children with no autism spectrum disorder or intellectual disability. Negative binomial regression using STATA 13 was used for all analyses.Results: Apart from alcohol and substance abuse, mothers of children with autism spectrum disorder had higher incidences of all categories of psychiatric disorders than other mothers.Conclusion and implications: The increase of psychiatric disorders in mothers of children with autism spectrum disorder and no psychiatric history compared to similar mothers with no child with autism spectrum disorder or intellectual disability might be due to a pre-existing genetic disposition coupled with an environmental trigger provided by the challenges of raising their children with autism spectrum disorder. In addition, the increased burden borne by the mothers of children with autism spectrum disorder might result in a higher incidence of psychiatric disorders in mothers who are not genetically disposed. En ligne : http://dx.doi.org/10.1177/1362361314566048 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277 [article] Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: A retrospective cohort study [texte imprimé] / Jenny FAIRTHORNE, Auteur ; Peter JACOBY, Auteur ; Jenny BOURKE, Auteur ; Nick DE KLERK, Auteur ; Helen LEONARD, Auteur . - p.37-44. Langues : Anglais (eng) in Autism > 20-1 (January 2016) . - p.37-44 Mots-clés : autism  care-giver  health  intellectual disability  linked data  mental population  psychiatric study Index. décimale : PER Périodiques Résumé : Background: Mothers of a child with autism spectrum disorder have more psychiatric disorders after the birth of their child. This might be because they have more psychiatric disorders before the birth, or the increase could be related to the burden of caring for their child.Aims: We aimed to calculate the incidence of a psychiatric diagnosis in women with no psychiatric history after the birth of their eldest child with autism spectrum disorder compared to women with no child with autism spectrum disorder or intellectual disability and no psychiatric history.Methods: By linking datasets from Western Australian population-based registries, we calculated the incidence of a psychiatric disorder in mothers of children with autism spectrum disorder and compared to mothers of children with no autism spectrum disorder or intellectual disability. Negative binomial regression using STATA 13 was used for all analyses.Results: Apart from alcohol and substance abuse, mothers of children with autism spectrum disorder had higher incidences of all categories of psychiatric disorders than other mothers.Conclusion and implications: The increase of psychiatric disorders in mothers of children with autism spectrum disorder and no psychiatric history compared to similar mothers with no child with autism spectrum disorder or intellectual disability might be due to a pre-existing genetic disposition coupled with an environmental trigger provided by the challenges of raising their children with autism spectrum disorder. In addition, the increased burden borne by the mothers of children with autism spectrum disorder might result in a higher incidence of psychiatric disorders in mothers who are not genetically disposed. En ligne : http://dx.doi.org/10.1177/1362361314566048 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277

The relationship between MECP2 mutation type and health status and service use trajectories over time in a Rett syndrome population / Deidra YOUNG in Research in Autism Spectrum Disorders, 5-1 (January-March 2011)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.442-449 Titre : The relationship between MECP2 mutation type and health status and service use trajectories over time in a Rett syndrome population Type de document : texte imprimé Auteurs : Deidra YOUNG, Auteur ; Helen LEONARD, Auteur ; Carol BOWER, Auteur ; Ami BEBBINGTON, Auteur ; Nick DE KLERK, Auteur ; Lakshmi NAGARAJAN, Auteur Année de publication : 2011 Article en page(s) : p.442-449 Langues : Anglais (eng) Mots-clés : Rett-syndrome Health-status Health-service-use Trajectory Longitudinal MECP2-mutation Multilevel-regression Index. décimale : PER Périodiques Résumé : This study aimed to investigate the trajectories over time of health status and health service use in Rett syndrome by mutation type. Data were obtained from questionnaires administered over 6 years to 256 participants from the Australian Rett Syndrome Database. Health status (episodes of illness and medication load) and health service use (general practitioner and specialist visits and hospital stays) were summarized into composite scores with principal component analysis. Linear and mixed regression models examined effects of mutation type and other variables on these scores over time. For some mutations (such as p.R255X and p.R168X) health status was poorer at a younger age and improved over time, while for p.R133C it was better at a younger age and deteriorated with time. For those with p.R133C health service use was lowest at a younger age and highest at 25 years. With other mutations, such as p.R255X, p.R270X, p.R294X, C terminal and p.R306C, health service use was higher at a younger age, but dropped off considerably by 25 years of age. Health service use generally declined in parallel with deterioration in health status, although this pattern differed by mutation type, demonstrating important variability in the course of Rett syndrome. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.06.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111 [article] The relationship between MECP2 mutation type and health status and service use trajectories over time in a Rett syndrome population [texte imprimé] / Deidra YOUNG, Auteur ; Helen LEONARD, Auteur ; Carol BOWER, Auteur ; Ami BEBBINGTON, Auteur ; Nick DE KLERK, Auteur ; Lakshmi NAGARAJAN, Auteur . - 2011 . - p.442-449. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.442-449 Mots-clés : Rett-syndrome Health-status Health-service-use Trajectory Longitudinal MECP2-mutation Multilevel-regression Index. décimale : PER Périodiques Résumé : This study aimed to investigate the trajectories over time of health status and health service use in Rett syndrome by mutation type. Data were obtained from questionnaires administered over 6 years to 256 participants from the Australian Rett Syndrome Database. Health status (episodes of illness and medication load) and health service use (general practitioner and specialist visits and hospital stays) were summarized into composite scores with principal component analysis. Linear and mixed regression models examined effects of mutation type and other variables on these scores over time. For some mutations (such as p.R255X and p.R168X) health status was poorer at a younger age and improved over time, while for p.R133C it was better at a younger age and deteriorated with time. For those with p.R133C health service use was lowest at a younger age and highest at 25 years. With other mutations, such as p.R255X, p.R270X, p.R294X, C terminal and p.R306C, health service use was higher at a younger age, but dropped off considerably by 25 years of age. Health service use generally declined in parallel with deterioration in health status, although this pattern differed by mutation type, demonstrating important variability in the course of Rett syndrome. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.06.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111

There is variability in the attainment of developmental milestones in the CDKL5 disorder / S. FEHR in Journal of Neurodevelopmental Disorders, 7-1 (December 2015)  

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