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Faire une suggestionHealth profiles of adults with autism spectrum disorder: Differences between women and men / Leann S. DAWALT in Autism Research, 14-9 (September 2021)
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Titre : Health profiles of adults with autism spectrum disorder: Differences between women and men Type de document : texte imprimé Auteurs : Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Arezoo MOVAGHAR, Auteur ; Jinkuk HONG, Auteur ; Bryan KIM, Auteur ; Murray H. BRILLIANT, Auteur ; Marsha R. MAILICK, Auteur Année de publication : 2021 Article en page(s) : p.1896-1904 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-9 (September 2021) . - p.1896-1904[article] Health profiles of adults with autism spectrum disorder: Differences between women and men [texte imprimé] / Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Arezoo MOVAGHAR, Auteur ; Jinkuk HONG, Auteur ; Bryan KIM, Auteur ; Murray H. BRILLIANT, Auteur ; Marsha R. MAILICK, Auteur . - 2021 . - p.1896-1904.
Langues : Anglais (eng)
in Autism Research > 14-9 (September 2021) . - p.1896-1904
Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study / Laurie K MCLAY in Autism, 29-5 (May 2025)
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Titre : Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study Type de document : texte imprimé Auteurs : Laurie K MCLAY, Auteur ; Philip J. SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor SCOTT, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas J. BOWDEN, Auteur Article en page(s) : p.1143-1156 Langues : Anglais (eng) Mots-clés : autism co-occurring conditions health health service use mental health pharmaceutical dispensing youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24 years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555
in Autism > 29-5 (May 2025) . - p.1143-1156[article] Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study [texte imprimé] / Laurie K MCLAY, Auteur ; Philip J. SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor SCOTT, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas J. BOWDEN, Auteur . - p.1143-1156.
Langues : Anglais (eng)
in Autism > 29-5 (May 2025) . - p.1143-1156
Mots-clés : autism co-occurring conditions health health service use mental health pharmaceutical dispensing youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24 years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder / Jonathan A. WEISS in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
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Titre : Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Jonathan A. WEISS, Auteur ; Barry ISAACS, Auteur ; Heidi DIEPSTRA, Auteur ; Andrew S. WILTON, Auteur ; Hilary K. BROWN, Auteur ; Caitlin MCGARRY, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.36-44 Langues : Anglais (eng) Mots-clés : Autism Comorbidity Developmental disability Epidemiology Health Psychiatry Services Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) have many health needs that place demands on the health service sector. This study used administrative data to compare health profiles in young adults 18-24 years of age with ASD to peers with and without other developmental disability. Young adults with ASD were more likely to have almost all the examined clinical health issues and health service use indicators compared to peers without developmental disability. They were more likely to have at least one psychiatric diagnosis, and visit the family physician, pediatrician, psychiatrist, and emergency department for psychiatric reasons, compared to peers with other developmental disability. Planning for the mental health care of transition age adults with ASD is an important priority for health policy. En ligne : https://doi.org/10.1007/s10803-017-3292-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.36-44[article] Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder [texte imprimé] / Jonathan A. WEISS, Auteur ; Barry ISAACS, Auteur ; Heidi DIEPSTRA, Auteur ; Andrew S. WILTON, Auteur ; Hilary K. BROWN, Auteur ; Caitlin MCGARRY, Auteur ; Yona LUNSKY, Auteur . - p.36-44.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.36-44
Mots-clés : Autism Comorbidity Developmental disability Epidemiology Health Psychiatry Services Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) have many health needs that place demands on the health service sector. This study used administrative data to compare health profiles in young adults 18-24 years of age with ASD to peers with and without other developmental disability. Young adults with ASD were more likely to have almost all the examined clinical health issues and health service use indicators compared to peers without developmental disability. They were more likely to have at least one psychiatric diagnosis, and visit the family physician, pediatrician, psychiatrist, and emergency department for psychiatric reasons, compared to peers with other developmental disability. Planning for the mental health care of transition age adults with ASD is an important priority for health policy. En ligne : https://doi.org/10.1007/s10803-017-3292-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336 Health Needs and College Readiness in Autistic Students: The Freshman Survey Results / Priyanka FERNANDES in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
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Titre : Health Needs and College Readiness in Autistic Students: The Freshman Survey Results Type de document : texte imprimé Auteurs : Priyanka FERNANDES, Auteur ; Madeline HALEY, Auteur ; Kevin EAGAN, Auteur ; Paul T. SHATTUCK, Auteur ; Alice KUO, Auteur Article en page(s) : p.3506-3513 Langues : Anglais (eng) Mots-clés : Achievement Adult Autism Spectrum Disorder Autistic Disorder Humans Students United States Universities Young Adult Autism College Health Index. décimale : PER Périodiques Résumé : With an increase in the diagnosis of autism spectrum disorder in the United States, many of whom have higher intellectual ability, there is a predicted increase in the number of college-bound students. Affected young adults face a "Services Cliff" as they transition into adulthood. Our study examined a nationally represented sample of freshman students and found that academic achievements in autistic students are comparable to their peers when they first enter college. The students however have more mental health and physical health problems compared to their non-autistic peers. Poor health maybe a major contributing factor to the lower graduation rates among autistic students. College-bound autistic students may continue to require services through college for them to be successful and graduate. En ligne : http://dx.doi.org/10.1007/s10803-020-04814-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3506-3513[article] Health Needs and College Readiness in Autistic Students: The Freshman Survey Results [texte imprimé] / Priyanka FERNANDES, Auteur ; Madeline HALEY, Auteur ; Kevin EAGAN, Auteur ; Paul T. SHATTUCK, Auteur ; Alice KUO, Auteur . - p.3506-3513.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3506-3513
Mots-clés : Achievement Adult Autism Spectrum Disorder Autistic Disorder Humans Students United States Universities Young Adult Autism College Health Index. décimale : PER Périodiques Résumé : With an increase in the diagnosis of autism spectrum disorder in the United States, many of whom have higher intellectual ability, there is a predicted increase in the number of college-bound students. Affected young adults face a "Services Cliff" as they transition into adulthood. Our study examined a nationally represented sample of freshman students and found that academic achievements in autistic students are comparable to their peers when they first enter college. The students however have more mental health and physical health problems compared to their non-autistic peers. Poor health maybe a major contributing factor to the lower graduation rates among autistic students. College-bound autistic students may continue to require services through college for them to be successful and graduate. En ligne : http://dx.doi.org/10.1007/s10803-020-04814-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Associations of quality of life with health-related characteristics among children with autism / Karen A. KUHLTHAU in Autism, 22-7 (October 2018)
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Titre : Associations of quality of life with health-related characteristics among children with autism Type de document : texte imprimé Auteurs : Karen A. KUHLTHAU, Auteur ; Erin MCDONNELL, Auteur ; Daniel L. COURY, Auteur ; Nalin PAYAKACHAT, Auteur ; Eric A. MACKLIN, Auteur Article en page(s) : p.804-813 Langues : Anglais (eng) Mots-clés : Pediatric Quality of Life Inventory 4.0 autism health health-related quality of life longitudinal pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Autism > 22-7 (October 2018) . - p.804-813[article] Associations of quality of life with health-related characteristics among children with autism [texte imprimé] / Karen A. KUHLTHAU, Auteur ; Erin MCDONNELL, Auteur ; Daniel L. COURY, Auteur ; Nalin PAYAKACHAT, Auteur ; Eric A. MACKLIN, Auteur . - p.804-813.
Langues : Anglais (eng)
in Autism > 22-7 (October 2018) . - p.804-813
Mots-clés : Pediatric Quality of Life Inventory 4.0 autism health health-related quality of life longitudinal pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum / Catherine WALSH in Research in Autism Spectrum Disorders, 79 (November 2020)
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PermalinkAdaptive Behavior Moderates Health-Related Pathways in Children with Autism Spectrum Disorder / Emily BREMER in Journal of Autism and Developmental Disorders, 50-2 (February 2020)
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PermalinkCaregiver perspectives, experiences and service satisfaction, and health service utilization among families of children with developmental disorders at a tertiary center in a low-resource setting / Kirsten A. DONALD in Research in Autism Spectrum Disorders, 110 (February 2024)
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PermalinkChildhood behavior problems and health at midlife: 35-year follow-up of a Scottish birth cohort / Sophie VON STUMM in Journal of Child Psychology and Psychiatry, 52-9 (September 2011)
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PermalinkEmotional intelligence modulates cortisol awakening response and self-reported health in caregivers of people with autism spectrum disorders / Nicolás RUIZ-ROBLEDILLO in Research in Autism Spectrum Disorders, 8-11 (November 2014)
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