Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder / Rachel M. FENNING in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3739-3747 Titre : Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric BUTTER, Auteur ; James CHAN, Auteur ; Kelly MCKINNON-BERMINGHAM, Auteur ; Kimberly J. HAMMERSMITH, Auteur ; Jacquelyn MOFFITT, Auteur ; Amy M. SHUI, Auteur ; Robert A. PARKER, Auteur ; Daniel L. COURY, Auteur ; Paul P. WANG, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3739-3747 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Dental care  Intellectual functioning  Preventive care Index. décimale : PER Périodiques Résumé : Dental care received by children in the Autism Speaks Autism Treatment Network (ATN) was compared to National Survey of Children's Health (NSCH) data for children without special healthcare needs and children with parent-reported ASD. Correlates of obtained preventive dental services were examined within the ATN sample. Participants included 375 families of children ages 4 to 17 enrolled in the ATN. ATN families reported levels of preventive dental care that were similar to, or exceeded, NSCH-reported care. However, disparities in obtained preventive dental services emerged within the ATN sample. Lower intellectual functioning was the most consistent correlate of reduced access to and completion of preventive dental care. Implications for developing system-wide supports and targeted interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04420-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder [texte imprimé] / Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric BUTTER, Auteur ; James CHAN, Auteur ; Kelly MCKINNON-BERMINGHAM, Auteur ; Kimberly J. HAMMERSMITH, Auteur ; Jacquelyn MOFFITT, Auteur ; Amy M. SHUI, Auteur ; Robert A. PARKER, Auteur ; Daniel L. COURY, Auteur ; Paul P. WANG, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3739-3747. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3739-3747 Mots-clés : Autism spectrum disorder (ASD)  Dental care  Intellectual functioning  Preventive care Index. décimale : PER Périodiques Résumé : Dental care received by children in the Autism Speaks Autism Treatment Network (ATN) was compared to National Survey of Children's Health (NSCH) data for children without special healthcare needs and children with parent-reported ASD. Correlates of obtained preventive dental services were examined within the ATN sample. Participants included 375 families of children ages 4 to 17 enrolled in the ATN. ATN families reported levels of preventive dental care that were similar to, or exceeded, NSCH-reported care. However, disparities in obtained preventive dental services emerged within the ATN sample. Lower intellectual functioning was the most consistent correlate of reduced access to and completion of preventive dental care. Implications for developing system-wide supports and targeted interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04420-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Associations of quality of life with health-related characteristics among children with autism / Karen A. KUHLTHAU in Autism, 22-7 (October 2018)  

Public ISBD [article]  inAutism > 22-7 (October 2018) . - p.804-813 Titre : Associations of quality of life with health-related characteristics among children with autism Type de document : texte imprimé Auteurs : Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; Daniel L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur Article en page(s) : p.804-813 Langues : Anglais (eng) Mots-clés : Pediatric Quality of Life Inventory 4.0  autism  health  health-related quality of life  longitudinal  pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Associations of quality of life with health-related characteristics among children with autism [texte imprimé] / Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; Daniel L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur . - p.804-813. Langues : Anglais (eng) in Autism > 22-7 (October 2018) . - p.804-813 Mots-clés : Pediatric Quality of Life Inventory 4.0  autism  health  health-related quality of life  longitudinal  pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder / Alison R. MARVIN in Research in Autism Spectrum Disorders, 80 (February 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 80 (February 2021) . - p.101699 Titre : Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder Type de document : texte imprimé Auteurs : Alison R. MARVIN, Auteur ; Daniel L. COURY, Auteur ; Beth A. MALOW, Auteur ; J. Kiely LAW, Auteur ; Amanda E. BENNETT, Auteur Article en page(s) : p.101699 Langues : Anglais (eng) Mots-clés : Autism  Sleep  Composite Sleep Disturbance Index  Screening  Primary care  Psychometrics Index. décimale : PER Périodiques Résumé : Background Although screening for sleep problems in children with ASD is recommended, primary care providers generally ask parents a single, high-level screening question about their child’s sleep. Can this capture whether a child has severe sleep problems? Method Parents of children with ASD ages 3–17 years recruited from a validated and verified US-based autism research registry completed an online survey on co-occurring conditions, including “degree of sleep problems”. The Composite Sleep Disturbance Index (CSDI) and its question on “parent satisfaction with current sleep pattern” were also incorporated. Results 610 parent/child dyads were analyzed. 377 (62%) children had severe sleep problems per CSDI; 215 (57%) were parent-rated with Moderate/Severe sleep problems. 219 (93%) of 233 children without a severe sleep problem on CSDI were parent-rated as having None/Mild sleep problems. 94% with Moderate/Severe sleep problems per parents had severe sleep problems per CSDI. However, 15% of those whose parents rated as None had a severe sleep problem. 200 (33%) children had a Mild sleep problem rating; of these, 134 (67%) had CSDI severe sleep problem and 66 (33%) did not. Conclusions A single question about sleep was good at classifying severe vs. non-severe sleep problems in children with ASD, especially with extreme responses. However, a single question was poor at classifying intermediate/non-extreme responses, and a significant number of children with severe sleep problems were missed. Screening with a short, validated questionnaire or asking more probing questions would assist in diagnosing most children with sleep problems. Parents may benefit from sleep education. En ligne : https://doi.org/10.1016/j.rasd.2020.101699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 [article] Brief report: Measures of effectiveness for single-question sleep problem screeners in children with autism spectrum disorder [texte imprimé] / Alison R. MARVIN, Auteur ; Daniel L. COURY, Auteur ; Beth A. MALOW, Auteur ; J. Kiely LAW, Auteur ; Amanda E. BENNETT, Auteur . - p.101699. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 80 (February 2021) . - p.101699 Mots-clés : Autism  Sleep  Composite Sleep Disturbance Index  Screening  Primary care  Psychometrics Index. décimale : PER Périodiques Résumé : Background Although screening for sleep problems in children with ASD is recommended, primary care providers generally ask parents a single, high-level screening question about their child’s sleep. Can this capture whether a child has severe sleep problems? Method Parents of children with ASD ages 3–17 years recruited from a validated and verified US-based autism research registry completed an online survey on co-occurring conditions, including “degree of sleep problems”. The Composite Sleep Disturbance Index (CSDI) and its question on “parent satisfaction with current sleep pattern” were also incorporated. Results 610 parent/child dyads were analyzed. 377 (62%) children had severe sleep problems per CSDI; 215 (57%) were parent-rated with Moderate/Severe sleep problems. 219 (93%) of 233 children without a severe sleep problem on CSDI were parent-rated as having None/Mild sleep problems. 94% with Moderate/Severe sleep problems per parents had severe sleep problems per CSDI. However, 15% of those whose parents rated as None had a severe sleep problem. 200 (33%) children had a Mild sleep problem rating; of these, 134 (67%) had CSDI severe sleep problem and 66 (33%) did not. Conclusions A single question about sleep was good at classifying severe vs. non-severe sleep problems in children with ASD, especially with extreme responses. However, a single question was poor at classifying intermediate/non-extreme responses, and a significant number of children with severe sleep problems were missed. Screening with a short, validated questionnaire or asking more probing questions would assist in diagnosing most children with sleep problems. Parents may benefit from sleep education. En ligne : https://doi.org/10.1016/j.rasd.2020.101699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438

Characteristics associated with healthcare independence among autistic adults / Anne LONGO in Research in Autism Spectrum Disorders, 95 (July 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 95 (July 2022) . - 101972 Titre : Characteristics associated with healthcare independence among autistic adults Type de document : texte imprimé Auteurs : Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel L. COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur Article en page(s) : 101972 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adults  Healthcare independence  Healthcare transition  Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Characteristics associated with healthcare independence among autistic adults [texte imprimé] / Anne LONGO, Auteur ; Dan GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel L. COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur . - 101972. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 95 (July 2022) . - 101972 Mots-clés : Autism spectrum disorder  Adults  Healthcare independence  Healthcare transition  Autism Index. décimale : PER Périodiques Résumé : Background Healthcare independence refers to someone?s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. En ligne : https://doi.org/10.1016/j.rasd.2022.101972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Diagnosis and Assessment of Autism Spectrum Disorders: A Medical Perspective / Daniel L. COURY

Public ISBD in Autism Spectrum Disorders / David G. AMARAL Titre : Diagnosis and Assessment of Autism Spectrum Disorders: A Medical Perspective Type de document : texte imprimé Auteurs : Daniel L. COURY, Auteur Année de publication : 2011 Importance : p.1283-1294 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=140 in Autism Spectrum Disorders / David G. AMARAL Diagnosis and Assessment of Autism Spectrum Disorders: A Medical Perspective [texte imprimé] / Daniel L. COURY, Auteur . - 2011 . - p.1283-1294. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=140

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Evidence-based use of scalable biomarkers to increase diagnostic efficiency and decrease the lifetime costs of autism / T. W. FRAZIER in Autism Research, 14-6 (June 2021)  

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''Giving the patients less work'': A thematic analysis of telehealth use and recommendations to improve usability for autistic adults / Daniel GILMORE in Autism, 27-4 (May 2023)  

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A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder / Justin G. FARMER ; Heidi V. CONNOLLY ; Virginia D. ALLHUSEN ; Amanda E. BENNETT ; Daniel L. COURY ; Janet LAM ; Ann M. NEUMEYER ; Kristin SOHL ; Manisha WITMANS ; Beth A. MALOW ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP in Journal of Autism and Developmental Disorders, 54-8 (August 2024)  

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Randomized Controlled Trial of Omega-3 and -6 Fatty Acid Supplementation to Reduce Inflammatory Markers in Children with Autism Spectrum Disorder / Sarah A. KEIM in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

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Specialized primary care medical home: A positive impact on continuity of care among autistic adults / Brittany N. HAND in Autism, 25-1 (January 2021)  

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