Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians / Vicki GIBBS in Research in Autism Spectrum Disorders, 88 (October 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 88 (October 2021) . - 101859 Titre : Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians Type de document : texte imprimé Auteurs : Vicki GIBBS, Auteur ; Ru Ying CAI, Auteur ; Fiona J. ALDRIDGE, Auteur ; Michelle WONG, Auteur Article en page(s) : 101859 Langues : Anglais (eng) Mots-clés : Autism  Assessment  Diagnosis  Telehealth  Covid-19 Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. Methods Sixteen adult clients (Mage = 39.00, SDage = 14.39) and fifty-six parent/carers of children and adults (Mage = 44.09, SDage = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. Results In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. Conclusion Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments. En ligne : https://doi.org/10.1016/j.rasd.2021.101859 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians [texte imprimé] / Vicki GIBBS, Auteur ; Ru Ying CAI, Auteur ; Fiona J. ALDRIDGE, Auteur ; Michelle WONG, Auteur . - 101859. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101859 Mots-clés : Autism  Assessment  Diagnosis  Telehealth  Covid-19 Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. Methods Sixteen adult clients (Mage = 39.00, SDage = 14.39) and fifty-six parent/carers of children and adults (Mage = 44.09, SDage = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. Results In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. Conclusion Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments. En ligne : https://doi.org/10.1016/j.rasd.2021.101859 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Brief Report: An Exploratory Study Comparing Diagnostic Outcomes for Autism Spectrum Disorders Under DSM-IV-TR with the Proposed DSM-5 Revision / Vicki M. GIBBS in Journal of Autism and Developmental Disorders, 42-8 (August 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-8 (August 2012) . - p.1750-1756 Titre : Brief Report: An Exploratory Study Comparing Diagnostic Outcomes for Autism Spectrum Disorders Under DSM-IV-TR with the Proposed DSM-5 Revision Type de document : texte imprimé Auteurs : Vicki M. GIBBS, Auteur ; Fiona J. ALDRIDGE, Auteur ; Felicity CHANDLER, Auteur ; Ellen WITZLSPERGER, Auteur ; Karen S. SMITH, Auteur Année de publication : 2012 Article en page(s) : p.1750-1756 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Asperger’s Disorder  Autistic Disorder  PDD-NOS  Assessment  Diagnosis  DSM-IV-TR  DSM-5  Social Communication Disorder Index. décimale : PER Périodiques Résumé : The proposed revision for Autism spectrum disorders (ASDs) in the Diagnostic and Statistical Manual of Mental Disorders—Fifth Edition (DSM-5) represents a shift from the Diagnostic and Statistical Manual of Mental Disorders—Fourth Edition, Text Revision (DSM-IV-TR). As the proposed DSM-5 criteria require a higher minimum number of symptoms to be present compared to DSM-IV-TR, there have been some concerns about the impact that this will have on diagnostic outcomes. Therefore, the current study aimed to compare diagnostic outcomes using both DSM-IV-TR and DSM-5 criteria for 132 children. Of the 111 participants who received an ASD diagnosis under DSM-IV-TR, 26 did not meet DSM-5 criteria. The majority of these had received a DSM-IV-TR PDD-NOS diagnosis. Implications of the results and the proposed DSM-5 changes to the ASD criteria are discussed. En ligne : http://dx.doi.org/10.1007/s10803-012-1560-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=178 [article] Brief Report: An Exploratory Study Comparing Diagnostic Outcomes for Autism Spectrum Disorders Under DSM-IV-TR with the Proposed DSM-5 Revision [texte imprimé] / Vicki M. GIBBS, Auteur ; Fiona J. ALDRIDGE, Auteur ; Felicity CHANDLER, Auteur ; Ellen WITZLSPERGER, Auteur ; Karen S. SMITH, Auteur . - 2012 . - p.1750-1756. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-8 (August 2012) . - p.1750-1756 Mots-clés : Autism spectrum disorder  Asperger’s Disorder  Autistic Disorder  PDD-NOS  Assessment  Diagnosis  DSM-IV-TR  DSM-5  Social Communication Disorder Index. décimale : PER Périodiques Résumé : The proposed revision for Autism spectrum disorders (ASDs) in the Diagnostic and Statistical Manual of Mental Disorders—Fifth Edition (DSM-5) represents a shift from the Diagnostic and Statistical Manual of Mental Disorders—Fourth Edition, Text Revision (DSM-IV-TR). As the proposed DSM-5 criteria require a higher minimum number of symptoms to be present compared to DSM-IV-TR, there have been some concerns about the impact that this will have on diagnostic outcomes. Therefore, the current study aimed to compare diagnostic outcomes using both DSM-IV-TR and DSM-5 criteria for 132 children. Of the 111 participants who received an ASD diagnosis under DSM-IV-TR, 26 did not meet DSM-5 criteria. The majority of these had received a DSM-IV-TR PDD-NOS diagnosis. Implications of the results and the proposed DSM-5 changes to the ASD criteria are discussed. En ligne : http://dx.doi.org/10.1007/s10803-012-1560-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=178

"I?m not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack" / Chris EDWARDS in Autism, 29-8 (August 2025)  

Public ISBD [article]  inAutism > 29-8 (August 2025) . - p.2072-2083 Titre : "I?m not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack" Type de document : texte imprimé Auteurs : Chris EDWARDS, Auteur ; Abigail MA LOVE, Auteur ; Ru Ying CAI, Auteur ; Melanie HEYWORTH, Auteur ; Alexandra JOHNSTON, Auteur ; Fiona J. ALDRIDGE, Auteur ; Vicki GIBBS, Auteur Article en page(s) : p.2072-2083 Langues : Anglais (eng) Mots-clés : autistic adult  diagnosis  late-diagnosed  neurodiversity-affirming  post-diagnostic  self-guided Index. décimale : PER Périodiques Résumé : Receiving an autism diagnosis in adulthood can be profoundly transformative, yet many newly diagnosed autistic adults experience a lack of accessible, affirming post-diagnostic support. This study explores how a self-guided, neurodiversity-affirming resource-the "Welcome Pack"-supports newly diagnosed autistic adults in navigating their evolving identity. Using a qualitative approach, we recruited 11 autistic adults without intellectual disability in Australia who had received a diagnosis within the past 6 months. Participants engaged with the "Welcome Pack" over a 2-month period before taking part in semi-structured interviews. Reflexive thematic analysis generated four key themes: (1) a sense of belonging through community and representation, as participants found validation in shared narratives; (2) the "Welcome Pack" as one of many tools supporting their self-understanding; (3) emotional reflections, including both relief and grief over years of masking; and (4) challenges in self-advocacy and educating others. While participants described the "Welcome Pack" as an important and validating resource, they also highlighted the need for additional structured peer support and practical guidance. These findings underscore the value of integrating self-guided resources within broader post-diagnostic ecosystems, ensuring that newly diagnosed autistic adults receive timely, accessible, and neurodiversity-affirming support as they navigate their identity.Lay Abstract Many autistic people receive a diagnosis in adulthood, often after years of feeling different but not knowing why. While a diagnosis can bring relief, it can also be overwhelming, with few accessible and affirming post-diagnostic supports available. This study explores how a free, self-guided resource-the "Welcome Pack"-helps newly diagnosed autistic adults navigate this transition. The "Welcome Pack," developed by autistic people, includes personal stories, practical advice, and reflection activities to support self-understanding and identity development. We worked with 11 autistic adults in Australia who had been diagnosed within the past 6 months. After using the "Welcome Pack" for 2 months, they shared their experiences through interviews. Our analysis identified four key themes. First, participants felt validated and less alone when reading personal stories from other autistic people. Second, they found the "Welcome Pack" useful but emphasized the need for additional resources. Third, they reflected on the emotional impact of their diagnosis, describing both relief and grief over years of masking (hiding or suppressing their autistic traits to fit in or avoid judgment). Finally, they faced challenges in self-advocacy and explaining autism to others. Overall, participants valued the "Welcome Pack" as a helpful starting point, but they also highlighted the need for more structured peer support and workplace advocacy tools. These findings suggest that while self-guided resources can provide meaningful support, they should be integrated with broader community and professional services to better meet the needs of newly diagnosed autistic adults. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251335070 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564 [article] "I?m not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack" [texte imprimé] / Chris EDWARDS, Auteur ; Abigail MA LOVE, Auteur ; Ru Ying CAI, Auteur ; Melanie HEYWORTH, Auteur ; Alexandra JOHNSTON, Auteur ; Fiona J. ALDRIDGE, Auteur ; Vicki GIBBS, Auteur . - p.2072-2083. Langues : Anglais (eng) in Autism > 29-8 (August 2025) . - p.2072-2083 Mots-clés : autistic adult  diagnosis  late-diagnosed  neurodiversity-affirming  post-diagnostic  self-guided Index. décimale : PER Périodiques Résumé : Receiving an autism diagnosis in adulthood can be profoundly transformative, yet many newly diagnosed autistic adults experience a lack of accessible, affirming post-diagnostic support. This study explores how a self-guided, neurodiversity-affirming resource-the "Welcome Pack"-supports newly diagnosed autistic adults in navigating their evolving identity. Using a qualitative approach, we recruited 11 autistic adults without intellectual disability in Australia who had received a diagnosis within the past 6 months. Participants engaged with the "Welcome Pack" over a 2-month period before taking part in semi-structured interviews. Reflexive thematic analysis generated four key themes: (1) a sense of belonging through community and representation, as participants found validation in shared narratives; (2) the "Welcome Pack" as one of many tools supporting their self-understanding; (3) emotional reflections, including both relief and grief over years of masking; and (4) challenges in self-advocacy and educating others. While participants described the "Welcome Pack" as an important and validating resource, they also highlighted the need for additional structured peer support and practical guidance. These findings underscore the value of integrating self-guided resources within broader post-diagnostic ecosystems, ensuring that newly diagnosed autistic adults receive timely, accessible, and neurodiversity-affirming support as they navigate their identity.Lay Abstract Many autistic people receive a diagnosis in adulthood, often after years of feeling different but not knowing why. While a diagnosis can bring relief, it can also be overwhelming, with few accessible and affirming post-diagnostic supports available. This study explores how a free, self-guided resource-the "Welcome Pack"-helps newly diagnosed autistic adults navigate this transition. The "Welcome Pack," developed by autistic people, includes personal stories, practical advice, and reflection activities to support self-understanding and identity development. We worked with 11 autistic adults in Australia who had been diagnosed within the past 6 months. After using the "Welcome Pack" for 2 months, they shared their experiences through interviews. Our analysis identified four key themes. First, participants felt validated and less alone when reading personal stories from other autistic people. Second, they found the "Welcome Pack" useful but emphasized the need for additional resources. Third, they reflected on the emotional impact of their diagnosis, describing both relief and grief over years of masking (hiding or suppressing their autistic traits to fit in or avoid judgment). Finally, they faced challenges in self-advocacy and explaining autism to others. Overall, participants valued the "Welcome Pack" as a helpful starting point, but they also highlighted the need for more structured peer support and workplace advocacy tools. These findings suggest that while self-guided resources can provide meaningful support, they should be integrated with broader community and professional services to better meet the needs of newly diagnosed autistic adults. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251335070 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564

Investigating the Clinical Usefulness of the Social Responsiveness Scale (SRS) in a Tertiary Level, Autism Spectrum Disorder Specific Assessment Clinic / Fiona J. ALDRIDGE in Journal of Autism and Developmental Disorders, 42-2 (February 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-2 (February 2012) . - p.294-300 Titre : Investigating the Clinical Usefulness of the Social Responsiveness Scale (SRS) in a Tertiary Level, Autism Spectrum Disorder Specific Assessment Clinic Type de document : texte imprimé Auteurs : Fiona J. ALDRIDGE, Auteur ; Vicki M. GIBBS, Auteur ; Katherine SCHMIDHOFER, Auteur ; Megan WILLIAMS, Auteur Année de publication : 2012 Article en page(s) : p.294-300 Langues : Anglais (eng) Mots-clés : Social Responsiveness Scale (SRS)  Autism spectrum disorder  Screening tools  Assessment  Diagnosis Index. décimale : PER Périodiques Résumé : The Social Responsiveness Scale (SRS; Constantino and Gruber in Social Responsiveness Scale (SRS). Western Psychological Services, Los Angeles, 2005) is a commonly used screening tool for identifying children with possible autism spectrum disorder (ASD). This study investigated the relationship between SRS scores and eventual diagnostic outcome for children referred to a tertiary level, autism specific assessment service. Forty eight children (mean age = 8.10; 92% male) underwent a comprehensive ASD assessment. Parent and teacher SRS scores were subsequently compared with diagnostic outcome. Sensitivity was high (91% for parent report; 84% for teacher report), however specificity was much lower (8% for parent report; 41% for teacher report). Results demonstrate a need for caution when interpreting SRS results based on current cut-off scores, particularly in children with previously identified social developmental problems. En ligne : http://dx.doi.org/10.1007/s10803-011-1242-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=151 [article] Investigating the Clinical Usefulness of the Social Responsiveness Scale (SRS) in a Tertiary Level, Autism Spectrum Disorder Specific Assessment Clinic [texte imprimé] / Fiona J. ALDRIDGE, Auteur ; Vicki M. GIBBS, Auteur ; Katherine SCHMIDHOFER, Auteur ; Megan WILLIAMS, Auteur . - 2012 . - p.294-300. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-2 (February 2012) . - p.294-300 Mots-clés : Social Responsiveness Scale (SRS)  Autism spectrum disorder  Screening tools  Assessment  Diagnosis Index. décimale : PER Périodiques Résumé : The Social Responsiveness Scale (SRS; Constantino and Gruber in Social Responsiveness Scale (SRS). Western Psychological Services, Los Angeles, 2005) is a commonly used screening tool for identifying children with possible autism spectrum disorder (ASD). This study investigated the relationship between SRS scores and eventual diagnostic outcome for children referred to a tertiary level, autism specific assessment service. Forty eight children (mean age = 8.10; 92% male) underwent a comprehensive ASD assessment. Parent and teacher SRS scores were subsequently compared with diagnostic outcome. Sensitivity was high (91% for parent report; 84% for teacher report), however specificity was much lower (8% for parent report; 41% for teacher report). Results demonstrate a need for caution when interpreting SRS results based on current cut-off scores, particularly in children with previously identified social developmental problems. En ligne : http://dx.doi.org/10.1007/s10803-011-1242-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=151

Missed opportunities: An investigation of pathways to autism diagnosis in Australia / Vicki GIBBS in Research in Autism Spectrum Disorders, 57 (January 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 57 (January 2019) . - p.55-62 Titre : Missed opportunities: An investigation of pathways to autism diagnosis in Australia Type de document : texte imprimé Auteurs : Vicki GIBBS, Auteur ; Fiona J. ALDRIDGE, Auteur ; Elizabeth SBURLATI, Auteur ; Felicity CHANDLER, Auteur ; Karen SMITH, Auteur ; Lauren CHENG, Auteur Article en page(s) : p.55-62 Langues : Anglais (eng) Mots-clés : Autism  Delay  Diagnosis  Age of diagnosis  Diagnostic “gap” Index. décimale : PER Périodiques Résumé : Background Reliable diagnoses of autism can be made as early as two years of age. Many children in Australia are diagnosed with autism at a later age. Delayed diagnosis can lead to missed opportunities for early intervention. This study aims to investigate the factors associated with age of diagnosis in Australia and to examine where delays are occurring in the diagnostic pathway. Method Family and child characteristics, age of first concern, and outcomes of previous professional consultations were collected and analysed for 215 children undergoing assessment for autism in Sydney, Australia. Results The average age of diagnosis was 5 years. Children with more severe autism, and those with no co-morbid diagnosis were diagnosed at a younger age. Average age of first concern was 23 months, and parents consulted professionals, on average, just over 8 months later. Seventy percent of the children were not identified as having possible autism at this initial consultation. The average gap between first consultation and diagnosis of autism was 2 years, 4 months. Conclusions This study provided further evidence of delayed diagnosis of children in Australia. Those with level 2 or 3 autism, no co-morbid diagnosis and earlier parental first concerns were diagnosed earlier. In general, parents have concerns and take action in a timely manner. Delays in the diagnostic pathway were apparent from the first professional consultation where autism was often not identified. This could be addressed by training professionals about early indicators, milder forms of autism, and differential diagnosis. En ligne : https://doi.org/10.1016/j.rasd.2018.10.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Missed opportunities: An investigation of pathways to autism diagnosis in Australia [texte imprimé] / Vicki GIBBS, Auteur ; Fiona J. ALDRIDGE, Auteur ; Elizabeth SBURLATI, Auteur ; Felicity CHANDLER, Auteur ; Karen SMITH, Auteur ; Lauren CHENG, Auteur . - p.55-62. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 57 (January 2019) . - p.55-62 Mots-clés : Autism  Delay  Diagnosis  Age of diagnosis  Diagnostic “gap” Index. décimale : PER Périodiques Résumé : Background Reliable diagnoses of autism can be made as early as two years of age. Many children in Australia are diagnosed with autism at a later age. Delayed diagnosis can lead to missed opportunities for early intervention. This study aims to investigate the factors associated with age of diagnosis in Australia and to examine where delays are occurring in the diagnostic pathway. Method Family and child characteristics, age of first concern, and outcomes of previous professional consultations were collected and analysed for 215 children undergoing assessment for autism in Sydney, Australia. Results The average age of diagnosis was 5 years. Children with more severe autism, and those with no co-morbid diagnosis were diagnosed at a younger age. Average age of first concern was 23 months, and parents consulted professionals, on average, just over 8 months later. Seventy percent of the children were not identified as having possible autism at this initial consultation. The average gap between first consultation and diagnosis of autism was 2 years, 4 months. Conclusions This study provided further evidence of delayed diagnosis of children in Australia. Those with level 2 or 3 autism, no co-morbid diagnosis and earlier parental first concerns were diagnosed earlier. In general, parents have concerns and take action in a timely manner. Delays in the diagnostic pathway were apparent from the first professional consultation where autism was often not identified. This could be addressed by training professionals about early indicators, milder forms of autism, and differential diagnosis. En ligne : https://doi.org/10.1016/j.rasd.2018.10.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

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