Age-related differences in the prevalence and correlates of anxiety in youth with autism spectrum disorders / Roma A. VASA in Research in Autism Spectrum Disorders, 7-11 (November 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1358-1369 Titre : Age-related differences in the prevalence and correlates of anxiety in youth with autism spectrum disorders Type de document : texte imprimé Auteurs : Roma A. VASA, Auteur ; Luther G. KALB, Auteur ; Micah O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; Brian FREEDMAN, Auteur ; Amy KEEFER, Auteur ; Traci E. CLEMONS, Auteur ; Donna S. MURRAY, Auteur Article en page(s) : p.1358-1369 Langues : Anglais (eng) Mots-clés : Autism  Anxiety  Prevalence  Correlate  Age group Index. décimale : PER Périodiques Résumé : Abstract Age-related differences in the prevalence and correlates of anxiety were cross-sectionally examined in 1316 children and adolescents with autism spectrum disorder (ASD) who presented for initial evaluation at 14 outpatient autism centers around the country and in Canada. The prevalence of clinical and subclinical anxiety as well as the correlates of anxiety were examined in three age groups of children: preschool, school age and adolescents. Findings showed that the prevalence of anxiety in each age group exceeded the prevalence of anxiety in the general population. Adolescents and school age children had the highest prevalence of clinical (40%) and subclinical anxiety (26%), respectively. Higher IQ and less ASD severity were each weakly correlated with more anxiety in preschool and school age children. Affective symptoms were strongly associated with anxiety in each age group. Age specific psychiatric comorbidities were also present. Anxiety was associated with attention deficit hyperactivity disorder (ADHD) and oppositional defiant disorder (ODD) symptoms in the preschool group, ODD and somatic symptoms in the school age children, and ADHD symptoms in adolescents. These data underscore the need for prevention and treatment of anxiety as well as research examining the characteristics of anxiety in children with ASD using a developmental framework. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215 [article] Age-related differences in the prevalence and correlates of anxiety in youth with autism spectrum disorders [texte imprimé] / Roma A. VASA, Auteur ; Luther G. KALB, Auteur ; Micah O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; Brian FREEDMAN, Auteur ; Amy KEEFER, Auteur ; Traci E. CLEMONS, Auteur ; Donna S. MURRAY, Auteur . - p.1358-1369. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1358-1369 Mots-clés : Autism  Anxiety  Prevalence  Correlate  Age group Index. décimale : PER Périodiques Résumé : Abstract Age-related differences in the prevalence and correlates of anxiety were cross-sectionally examined in 1316 children and adolescents with autism spectrum disorder (ASD) who presented for initial evaluation at 14 outpatient autism centers around the country and in Canada. The prevalence of clinical and subclinical anxiety as well as the correlates of anxiety were examined in three age groups of children: preschool, school age and adolescents. Findings showed that the prevalence of anxiety in each age group exceeded the prevalence of anxiety in the general population. Adolescents and school age children had the highest prevalence of clinical (40%) and subclinical anxiety (26%), respectively. Higher IQ and less ASD severity were each weakly correlated with more anxiety in preschool and school age children. Affective symptoms were strongly associated with anxiety in each age group. Age specific psychiatric comorbidities were also present. Anxiety was associated with attention deficit hyperactivity disorder (ADHD) and oppositional defiant disorder (ODD) symptoms in the preschool group, ODD and somatic symptoms in the school age children, and ADHD symptoms in adolescents. These data underscore the need for prevention and treatment of anxiety as well as research examining the characteristics of anxiety in children with ASD using a developmental framework. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215

From Waiting to Action: Why the Autism Field Must Embrace Efficient Service Delivery Models for Diagnostic Assessment / Ashley DE MARCHENA in Autism, 30-11 (November 2026)  

Public ISBD [article]  inAutism > 30-11 (November 2026) . - p.2955-2963 Titre : From Waiting to Action: Why the Autism Field Must Embrace Efficient Service Delivery Models for Diagnostic Assessment Type de document : texte imprimé Auteurs : Ashley DE MARCHENA, Auteur ; Andrea Trubanova WIECKOWSKI, Auteur ; Brian FREEDMAN, Auteur ; Lindsay SHEA, Auteur ; Jill LOCKE, Auteur ; Peter F. CRONHOLM, Auteur ; Stephen S. LEFF, Auteur ; Giacomo VIVANTI, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.2955-2963 Langues : Anglais (eng) Mots-clés : autism  diagnosis  early detection  assessment  service delivery Index. décimale : PER Périodiques Résumé : Waiting lists for an autism evaluation delay timely diagnosis and entry into autism-specific early intervention. To solve this crisis, our field must increase capacity by embracing efficient diagnostic processes. Traditional diagnostic pathways involve complex evaluations and rely on a highly trained but limited pool of specialists, which elongate wait times. Evidence suggests that emerging approaches, including telehealth assessments, primary care diagnosis, and tiered models, reduce barriers. We guide readers through five core issues critical to updating the standard of care for early autism assessment: (1) What are the consequences of maintaining the status quo? (2) What do families prioritize? (3) What evidence supports efficient diagnostic models? (4) What are the consequences of reducing accuracy? and (5) What level of assessment depth is needed to inform action? Our team contends that the critical advantages of adopting efficient service delivery models far outweigh the disadvantages. Collaboration across disciplines, and trust in families’ insights, will help build capacity. We conclude with actionable recommendations for clinicians and policymakers in support of adopting these models.Lay Abstract The growing demand for autism diagnostic services has outpaced available resources. This creates significant delays in first diagnosis and entry into early intervention services (early diagnosis and intervention improve outcomes). Expert diagnosticians in the field have debated – and tested – streamlined and flexible alternative diagnostic processes to speed up access to services; we believe that the advantages of such approaches outweigh the disadvantages, and that evidence supports updating our current standards. En ligne : https://dx.doi.org/10.1177/13623613261474938 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] From Waiting to Action: Why the Autism Field Must Embrace Efficient Service Delivery Models for Diagnostic Assessment [texte imprimé] / Ashley DE MARCHENA, Auteur ; Andrea Trubanova WIECKOWSKI, Auteur ; Brian FREEDMAN, Auteur ; Lindsay SHEA, Auteur ; Jill LOCKE, Auteur ; Peter F. CRONHOLM, Auteur ; Stephen S. LEFF, Auteur ; Giacomo VIVANTI, Auteur ; Diana L. ROBINS, Auteur . - p.2955-2963. Langues : Anglais (eng) in Autism > 30-11 (November 2026) . - p.2955-2963 Mots-clés : autism  diagnosis  early detection  assessment  service delivery Index. décimale : PER Périodiques Résumé : Waiting lists for an autism evaluation delay timely diagnosis and entry into autism-specific early intervention. To solve this crisis, our field must increase capacity by embracing efficient diagnostic processes. Traditional diagnostic pathways involve complex evaluations and rely on a highly trained but limited pool of specialists, which elongate wait times. Evidence suggests that emerging approaches, including telehealth assessments, primary care diagnosis, and tiered models, reduce barriers. We guide readers through five core issues critical to updating the standard of care for early autism assessment: (1) What are the consequences of maintaining the status quo? (2) What do families prioritize? (3) What evidence supports efficient diagnostic models? (4) What are the consequences of reducing accuracy? and (5) What level of assessment depth is needed to inform action? Our team contends that the critical advantages of adopting efficient service delivery models far outweigh the disadvantages. Collaboration across disciplines, and trust in families’ insights, will help build capacity. We conclude with actionable recommendations for clinicians and policymakers in support of adopting these models.Lay Abstract The growing demand for autism diagnostic services has outpaced available resources. This creates significant delays in first diagnosis and entry into early intervention services (early diagnosis and intervention improve outcomes). Expert diagnosticians in the field have debated – and tested – streamlined and flexible alternative diagnostic processes to speed up access to services; we believe that the advantages of such approaches outweigh the disadvantages, and that evidence supports updating our current standards. En ligne : https://dx.doi.org/10.1177/13623613261474938 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

Methodological considerations when assessing restricted and repetitive behaviors and aggression / A.J. KEEFER in Research in Autism Spectrum Disorders, 8-11 (November 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-11 (November 2014) . - p.1527-1534 Titre : Methodological considerations when assessing restricted and repetitive behaviors and aggression Type de document : texte imprimé Auteurs : A.J. KEEFER, Auteur ; Luther G. KALB, Auteur ; Micah O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; Brian FREEDMAN, Auteur ; Roma A. VASA, Auteur Article en page(s) : p.1527-1534 Langues : Anglais (eng) Mots-clés : Aggression  Repetitive behavior  Methodology Index. décimale : PER Périodiques Résumé : Methodological issues impacting the relationship between aggression and restricted, repetitive, and stereotyped behaviors and interests (RRSBI) were examined in 2648 children and adolescents with autism spectrum disorders (ASD) using a multi-method, multi-informant analysis model to assess the effects of informant, assessment method, and aggression phenotype. Overall, a significant, but small relationship was found between RRSBI and aggression (p lt; .05). There was significant heterogeneity of estimates with large effect sizes observed when utilizing teacher report and a broad phenotype of aggression. Variance in estimates was attributed to differences in informant and assessment method with two times greater effect attributed to informant. Results suggest strategies to optimize future investigations of the relationship between RRSBI and aggression. Findings also provide the opportunity for the development of targeted interventions for aggression in youth with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.019 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] Methodological considerations when assessing restricted and repetitive behaviors and aggression [texte imprimé] / A.J. KEEFER, Auteur ; Luther G. KALB, Auteur ; Micah O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; Brian FREEDMAN, Auteur ; Roma A. VASA, Auteur . - p.1527-1534. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-11 (November 2014) . - p.1527-1534 Mots-clés : Aggression  Repetitive behavior  Methodology Index. décimale : PER Périodiques Résumé : Methodological issues impacting the relationship between aggression and restricted, repetitive, and stereotyped behaviors and interests (RRSBI) were examined in 2648 children and adolescents with autism spectrum disorders (ASD) using a multi-method, multi-informant analysis model to assess the effects of informant, assessment method, and aggression phenotype. Overall, a significant, but small relationship was found between RRSBI and aggression (p lt; .05). There was significant heterogeneity of estimates with large effect sizes observed when utilizing teacher report and a broad phenotype of aggression. Variance in estimates was attributed to differences in informant and assessment method with two times greater effect attributed to informant. Results suggest strategies to optimize future investigations of the relationship between RRSBI and aggression. Findings also provide the opportunity for the development of targeted interventions for aggression in youth with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.019 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware / Shylaja SRINIVASAN in Autism Research, 14-8 (August 2021)  

Public ISBD [article]  inAutism Research > 14-8 (August 2021) . - p.1736-1758 Titre : Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware Type de document : texte imprimé Auteurs : Shylaja SRINIVASAN, Auteur ; Annalisa EKBLADH, Auteur ; Brian FREEDMAN, Auteur ; Anjana N. BHAT, Auteur Article en page(s) : p.1736-1758 Langues : Anglais (eng) Mots-clés : Activities of Daily Living  Adolescent  Autism Spectrum Disorder/therapy  Caregivers  Child  Counseling  Delaware  Health Services Accessibility  Health Services Needs and Demand  Humans  Needs Assessment  Autism Spectrum Disorder  caregivers  children and youth  family support  healthcare  needs assessment  unmet needs  declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24 years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware [texte imprimé] / Shylaja SRINIVASAN, Auteur ; Annalisa EKBLADH, Auteur ; Brian FREEDMAN, Auteur ; Anjana N. BHAT, Auteur . - p.1736-1758. Langues : Anglais (eng) in Autism Research > 14-8 (August 2021) . - p.1736-1758 Mots-clés : Activities of Daily Living  Adolescent  Autism Spectrum Disorder/therapy  Caregivers  Child  Counseling  Delaware  Health Services Accessibility  Health Services Needs and Demand  Humans  Needs Assessment  Autism Spectrum Disorder  caregivers  children and youth  family support  healthcare  needs assessment  unmet needs  declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24 years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Parental relationship status and age at autism spectrum disorder diagnosis of their child / Luke G. KALB in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2189-2198 Titre : Parental relationship status and age at autism spectrum disorder diagnosis of their child Type de document : texte imprimé Auteurs : Luke G. KALB, Auteur ; Calliope HOLINGUE, Auteur ; Danika PFEIFFER, Auteur ; Rachel REETZKE, Auteur ; Emily DILLON, Auteur ; Gazi F. AZAD, Auteur ; Brian FREEDMAN, Auteur ; Rebecca LANDA, Auteur Article en page(s) : p.2189-2198 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  United States  autism spectrum disorders  diagnosis  family functioning and support  of interest with respect to the research, authorship and/or publication of this  article. Conflict of interest: The authors have indicated they have no potential  conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) can be diagnosed as early as 18 months of age. However, the average age at diagnosis in the United States is over 2 years later. A lot has been written about the many barriers families face when seeking a diagnosis for their child. One area of research that has received no attention is whether separation between a child's biological parents affects the age at which a child is diagnosed with ASD. This study was conducted among 561 children who were receiving an ASD diagnosis for the first time. On average, these children were 5 years of age. The study took place in an urban, outpatient specialty autism clinic in the United States. Biological parents self-reported their relationship status during the evaluation. This was categorized as either "together" (married or living together but not married) or "not together" (separated, divorced, or never married). At the time of diagnosis, most children's biological parents were together (69%). We found children of parents who were together were diagnosed 1.4 years earlier than those who were not together. These findings have important implications for providing support to families that separate early in a child's life, with the goal of reducing the age at ASD evaluation among single parents and those who have been separated from their child's other biological parent. Providing support to these families is important since earlier age at diagnosis leads to earlier intervention, which can improve long-term outcomes for the child, family, and community as a whole. En ligne : http://dx.doi.org/10.1177/13623613211013683 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parental relationship status and age at autism spectrum disorder diagnosis of their child [texte imprimé] / Luke G. KALB, Auteur ; Calliope HOLINGUE, Auteur ; Danika PFEIFFER, Auteur ; Rachel REETZKE, Auteur ; Emily DILLON, Auteur ; Gazi F. AZAD, Auteur ; Brian FREEDMAN, Auteur ; Rebecca LANDA, Auteur . - p.2189-2198. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2189-2198 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  United States  autism spectrum disorders  diagnosis  family functioning and support  of interest with respect to the research, authorship and/or publication of this  article. Conflict of interest: The authors have indicated they have no potential  conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) can be diagnosed as early as 18 months of age. However, the average age at diagnosis in the United States is over 2 years later. A lot has been written about the many barriers families face when seeking a diagnosis for their child. One area of research that has received no attention is whether separation between a child's biological parents affects the age at which a child is diagnosed with ASD. This study was conducted among 561 children who were receiving an ASD diagnosis for the first time. On average, these children were 5 years of age. The study took place in an urban, outpatient specialty autism clinic in the United States. Biological parents self-reported their relationship status during the evaluation. This was categorized as either "together" (married or living together but not married) or "not together" (separated, divorced, or never married). At the time of diagnosis, most children's biological parents were together (69%). We found children of parents who were together were diagnosed 1.4 years earlier than those who were not together. These findings have important implications for providing support to families that separate early in a child's life, with the goal of reducing the age at ASD evaluation among single parents and those who have been separated from their child's other biological parent. Providing support to these families is important since earlier age at diagnosis leads to earlier intervention, which can improve long-term outcomes for the child, family, and community as a whole. En ligne : http://dx.doi.org/10.1177/13623613211013683 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Relationship Status Among Parents of Children with Autism Spectrum Disorders: A Population-Based Study / Brian FREEDMAN in Journal of Autism and Developmental Disorders, 42-4 (April 2012)  

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The Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement / Stephen M. KANNE in Journal of Autism and Developmental Disorders, 44-1 (January 2014)  

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