- <Centre d'Information et de documentation du CRA Rhône-Alpes
- CRA
- Informations pratiques
-
Adresse
Centre d'information et de documentation
Horaires
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexLundi au Vendredi
Contact
9h00-12h00 13h30-16h00Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Adresse
Détail de l'auteur
Auteur Amy PEARSON |
Documents disponibles écrits par cet auteur (7)
Faire une suggestion Affiner la rechercheAnti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023) / Heini M. NATRI in Autism Research, 16-4 (April 2023)
Titre : Cognitive Mechanisms underlying visual perspective taking in typical and ASC children Type de document : Texte imprimé et/ou numérique Auteurs : Amy PEARSON, Auteur ; Lauren MARSH, Auteur ; Danielle ROPAR, Auteur ; Antonia HAMILTON, Auteur Article en page(s) : p.121-130 Langues : Anglais (eng) Mots-clés : autism spectrum conditions visual perspective taking mental rotation embodied cognitive mechanisms Index. décimale : PER Périodiques Résumé : Previous research has suggested that people with Autism Spectrum Conditions (ASC) may have difficulty with visual perspective taking (VPT) but it is not clear how this relates to different strategies that can be used in perspective taking tasks. The current study examined VPT in 30 children with autism and 30 verbal mental age matched typical children, in comparison to mental rotation (MR) abilities and body representation abilities. Using a similar paradigm to Hamilton, Brindley, and Frith [2009] all children completed three tasks: a VPT task in which children decided what a toy on a table would look like from a different points of view; a MR task in which the child decided what a toy would look like after it had been rotated; and a body posture matching task, in which children matched pictures of a body shown from different viewpoints. Results showed that children with ASC performed better than the typically developing children on the MR task, and at a similar level on the VPT task and body matching task. Importantly, in the typical children VPT performance was predicted by performance on the body matching task, whereas in the ASC children VPT performance was predicted by MR ability. These findings suggest that differences in VPT in ASC may be explained by the use of a spatial rotation strategy rather than the embodied egocentric transformation strategy used by typical children. En ligne : http://dx.doi.org/10.1002/aur.1501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282
in Autism Research > 9-1 (January 2016) . - p.121-130[article] Cognitive Mechanisms underlying visual perspective taking in typical and ASC children [Texte imprimé et/ou numérique] / Amy PEARSON, Auteur ; Lauren MARSH, Auteur ; Danielle ROPAR, Auteur ; Antonia HAMILTON, Auteur . - p.121-130.
Langues : Anglais (eng)
in Autism Research > 9-1 (January 2016) . - p.121-130
Mots-clés : autism spectrum conditions visual perspective taking mental rotation embodied cognitive mechanisms Index. décimale : PER Périodiques Résumé : Previous research has suggested that people with Autism Spectrum Conditions (ASC) may have difficulty with visual perspective taking (VPT) but it is not clear how this relates to different strategies that can be used in perspective taking tasks. The current study examined VPT in 30 children with autism and 30 verbal mental age matched typical children, in comparison to mental rotation (MR) abilities and body representation abilities. Using a similar paradigm to Hamilton, Brindley, and Frith [2009] all children completed three tasks: a VPT task in which children decided what a toy on a table would look like from a different points of view; a MR task in which the child decided what a toy would look like after it had been rotated; and a body posture matching task, in which children matched pictures of a body shown from different viewpoints. Results showed that children with ASC performed better than the typically developing children on the MR task, and at a similar level on the VPT task and body matching task. Importantly, in the typical children VPT performance was predicted by performance on the body matching task, whereas in the ASC children VPT performance was predicted by MR ability. These findings suggest that differences in VPT in ASC may be explained by the use of a spatial rotation strategy rather than the embodied egocentric transformation strategy used by typical children. En ligne : http://dx.doi.org/10.1002/aur.1501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282
Titre : Cutting our own keys: New possibilities of neurodivergent storying in research Type de document : Texte imprimé et/ou numérique Auteurs : Hanna BERTILSDOTTER ROSQVIST, Auteur ; Monique BOTHA, Auteur ; Kristien HENS, Auteur ; Sarinah O?DONOGHUE, Auteur ; Amy PEARSON, Auteur ; Anna STENNING, Auteur Article en page(s) : p.1235-1244 Langues : Anglais (eng) Mots-clés : autoethnography;cross-neurotype communication;neurodivergent storying;neuromixed academia;non-autistic-storying Index. décimale : PER Périodiques Résumé : Increasingly, neurodivergent people are sharing their own narratives and conducting their own research. Prominent individuals have integrated the "nothing about us without us" slogan, used by neurodivergent and other disabled social activists, into academia. This article imagines a neuromixed academia. We consider how to work through challenges present in neuromixed encounters; to support cross-neurotype communication and pave the way for an ethos of community and collaboration. We explore how we might create a space in which neurodivergent experiences are seen as just one part of our complex and multifaceted identities. We do this through the process of "cutting our own keys", to try out new possibilities of neurodivergent storying aimed at finding ourselves in our own stories about neurodivergence. This involves borrowing and developing methodological approaches formulated outside of research on different forms of neurodivergence, and to invent our own concepts based on our own embodied experiences and the social worlds we inhabit. Throughout, we mingle our own autoethnographic accounts in relation to research accounts and theories, as a way of illustrating the work with the text as a thinking about neurodivergence with each other in itself. Lay abstract A lot of people who do research are also neurodivergent (such as being autistic or attention deficit hyperactivity disorder), but neurodivergent people do not always feel welcome in research spaces which are often shaped around neurotypical people. Some neurotypical researchers lack confidence in talking to neurodivergent people, and others feel like neurodivergent people might not be able to do good research about other people who are like them without being biased. We think it is important that all researchers are able to work well together, regardless of whether they are neurotypical, autistic, or attention deficit hyperactivity disorder (or any other neurotype) - in truly "neurodiverse" teams. In this article we talk about how to create better spaces for all researchers, where we feel valued for who we are and take each others' needs into account. We do this using some approaches from other areas of research and talking about how they relate to our personal experiences of being neurodivergent researchers with our own personal stories. This article adds to a growing work on how we can work with people who are different from us, in more respectful and kind ways. En ligne : http://dx.doi.org/10.1177/13623613221132107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507
in Autism > 27-5 (July 2023) . - p.1235-1244[article] Cutting our own keys: New possibilities of neurodivergent storying in research [Texte imprimé et/ou numérique] / Hanna BERTILSDOTTER ROSQVIST, Auteur ; Monique BOTHA, Auteur ; Kristien HENS, Auteur ; Sarinah O?DONOGHUE, Auteur ; Amy PEARSON, Auteur ; Anna STENNING, Auteur . - p.1235-1244.
Langues : Anglais (eng)
in Autism > 27-5 (July 2023) . - p.1235-1244
Mots-clés : autoethnography;cross-neurotype communication;neurodivergent storying;neuromixed academia;non-autistic-storying Index. décimale : PER Périodiques Résumé : Increasingly, neurodivergent people are sharing their own narratives and conducting their own research. Prominent individuals have integrated the "nothing about us without us" slogan, used by neurodivergent and other disabled social activists, into academia. This article imagines a neuromixed academia. We consider how to work through challenges present in neuromixed encounters; to support cross-neurotype communication and pave the way for an ethos of community and collaboration. We explore how we might create a space in which neurodivergent experiences are seen as just one part of our complex and multifaceted identities. We do this through the process of "cutting our own keys", to try out new possibilities of neurodivergent storying aimed at finding ourselves in our own stories about neurodivergence. This involves borrowing and developing methodological approaches formulated outside of research on different forms of neurodivergence, and to invent our own concepts based on our own embodied experiences and the social worlds we inhabit. Throughout, we mingle our own autoethnographic accounts in relation to research accounts and theories, as a way of illustrating the work with the text as a thinking about neurodivergence with each other in itself. Lay abstract A lot of people who do research are also neurodivergent (such as being autistic or attention deficit hyperactivity disorder), but neurodivergent people do not always feel welcome in research spaces which are often shaped around neurotypical people. Some neurotypical researchers lack confidence in talking to neurodivergent people, and others feel like neurodivergent people might not be able to do good research about other people who are like them without being biased. We think it is important that all researchers are able to work well together, regardless of whether they are neurotypical, autistic, or attention deficit hyperactivity disorder (or any other neurotype) - in truly "neurodiverse" teams. In this article we talk about how to create better spaces for all researchers, where we feel valued for who we are and take each others' needs into account. We do this using some approaches from other areas of research and talking about how they relate to our personal experiences of being neurodivergent researchers with our own personal stories. This article adds to a growing work on how we can work with people who are different from us, in more respectful and kind ways. En ligne : http://dx.doi.org/10.1177/13623613221132107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507
Titre : Diagnosis as a new beginning not an end: A participatory photovoice study on navigating an autism diagnosis in adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Monique BOTHA, Auteur ; Lynsey MCDEVITT, Auteur ; Karis N. KING, Auteur ; Liz BISCOE, Auteur ; Kirsty TUCKER, Auteur ; Amy PEARSON, Auteur Article en page(s) : p.2014-2027 Langues : Anglais (eng) Mots-clés : adults diagnosis qualitative research Index. décimale : PER Périodiques Résumé : Autistic people diagnosed in adulthood often report that the experience can be life-changing, but there are issues with the diagnostic pathway. Few studies consider the views of people currently seeking diagnosis or contextualise the experience of diagnosis around developing an autistic identity. In this qualitative participatory study, we explored experiences of navigating an autism diagnosis in adulthood in the UK. We recruited six women (aged 21-46 years) who were seeking diagnosis, who worked with the academic researchers across four sessions to develop the study, share their experiences and analyse the themes. In one session, they completed a semi-structured interview alongside photovoice, a community-based action method, to explain and reflect on their experiences. We used reflexive thematic analysis to identify patterns, with four key themes identified: (1) 'everything shattered', (2) 'being seen', (3) 'understanding not judgement, please'and (4) 'here?s a leaflet, off you go'. The themes reflected a desire for change and improved support for both diagnosis and developing autistic identity. Following photovoice methodology, together we identified actions to improve adult diagnosis, including involving autistic people in making improvements to the diagnostic criteria, for key professional and community groups to listen more to autistic people and for diagnostic support services to be flexible and appreciative of wider neurodivergence and intersectionality. Lay abstract Lots of people seek an autism diagnosis as an adult, and they often say that being diagnosed can be positively life-changing, but the experience of getting a diagnosis can be difficult. We often do not hear the views of people currently looking for a diagnosis, or talk to them about how diagnosis relates to their identity. In our study, we looked at experiences of people currently seeking an autism diagnosis in the UK. We used participatory methods, where six people seeking diagnosis were included as collaborators in the research. They took part in four different sessions, where they helped to shape the research, took part in interviews about their experiences and helped to analyse the patterns in all the interviews. We also used something called photovoice during the interviews, where they could use photos to show how they felt about navigating a diagnosis. We identified four common themes: (1) everyone had experienced some form of crisis before seeking diagnosis; (2) when they realised they were autistic, they felt seen; (3) the diagnostic process and criteria were not working, and they felt judged by clinicians and (4) there was limited support available after diagnosis. In another session, we identified actions that need to be taken which have implications for policy and practice, including improving the diagnostic process and criteria with autistic people, autistic people being listened to more by people like general practitioners and clinicians and diagnosis services needing to be more flexible and appreciate different aspects of someone?s identity and neurodivergence. En ligne : https://dx.doi.org/10.1177/13623613231220418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533
in Autism > 28-8 (August 2024) . - p.2014-2027[article] Diagnosis as a new beginning not an end: A participatory photovoice study on navigating an autism diagnosis in adulthood [Texte imprimé et/ou numérique] / Monique BOTHA, Auteur ; Lynsey MCDEVITT, Auteur ; Karis N. KING, Auteur ; Liz BISCOE, Auteur ; Kirsty TUCKER, Auteur ; Amy PEARSON, Auteur . - p.2014-2027.
Langues : Anglais (eng)
in Autism > 28-8 (August 2024) . - p.2014-2027
Mots-clés : adults diagnosis qualitative research Index. décimale : PER Périodiques Résumé : Autistic people diagnosed in adulthood often report that the experience can be life-changing, but there are issues with the diagnostic pathway. Few studies consider the views of people currently seeking diagnosis or contextualise the experience of diagnosis around developing an autistic identity. In this qualitative participatory study, we explored experiences of navigating an autism diagnosis in adulthood in the UK. We recruited six women (aged 21-46 years) who were seeking diagnosis, who worked with the academic researchers across four sessions to develop the study, share their experiences and analyse the themes. In one session, they completed a semi-structured interview alongside photovoice, a community-based action method, to explain and reflect on their experiences. We used reflexive thematic analysis to identify patterns, with four key themes identified: (1) 'everything shattered', (2) 'being seen', (3) 'understanding not judgement, please'and (4) 'here?s a leaflet, off you go'. The themes reflected a desire for change and improved support for both diagnosis and developing autistic identity. Following photovoice methodology, together we identified actions to improve adult diagnosis, including involving autistic people in making improvements to the diagnostic criteria, for key professional and community groups to listen more to autistic people and for diagnostic support services to be flexible and appreciative of wider neurodivergence and intersectionality. Lay abstract Lots of people seek an autism diagnosis as an adult, and they often say that being diagnosed can be positively life-changing, but the experience of getting a diagnosis can be difficult. We often do not hear the views of people currently looking for a diagnosis, or talk to them about how diagnosis relates to their identity. In our study, we looked at experiences of people currently seeking an autism diagnosis in the UK. We used participatory methods, where six people seeking diagnosis were included as collaborators in the research. They took part in four different sessions, where they helped to shape the research, took part in interviews about their experiences and helped to analyse the patterns in all the interviews. We also used something called photovoice during the interviews, where they could use photos to show how they felt about navigating a diagnosis. We identified four common themes: (1) everyone had experienced some form of crisis before seeking diagnosis; (2) when they realised they were autistic, they felt seen; (3) the diagnostic process and criteria were not working, and they felt judged by clinicians and (4) there was limited support available after diagnosis. In another session, we identified actions that need to be taken which have implications for policy and practice, including improving the diagnostic process and criteria with autistic people, autistic people being listened to more by people like general practitioners and clinicians and diagnosis services needing to be more flexible and appreciate different aspects of someone?s identity and neurodivergence. En ligne : https://dx.doi.org/10.1177/13623613231220418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533
Titre : "I felt like I deserved it because I was autistic": Understanding the impact of interpersonal victimisation in the lives of autistic people Type de document : Texte imprimé et/ou numérique Auteurs : Amy PEARSON, Auteur ; Kieran ROSE, Auteur ; Jon REES, Auteur Année de publication : 2023 Article en page(s) : p.500-511 Langues : Anglais (eng) Mots-clés : autism masking relationships stigma victimisation Index. décimale : PER Périodiques Résumé : Research suggests that there is a high prevalence of interpersonal violence and victimisation within the autistic population, and that this accounts for poor mental health outcomes. This study aimed to examine the impact of interpersonal violence and victimisation on autistic adults from their own perspective and explore what helps or hinders their recovery. In total, 102 autistic adults completed either an online survey or a spoken interview about their experiences of interpersonal violence and victimisation. We analysed the data using a thematic analysis, and found four themes: (1) The usual for autism (expectations of victimisation, experiences of othering), (2) Personhood revoked: The cost of living (being part of a neurominority, trauma, masking and burnout), (3) Unpacking the baggage (impact of hermeneutical injustice) and (4) ˜If you want to make an apple pie from scratch, you have to invent the universe first’ (structural inequality/power dynamics, support and community). Findings highlight the importance of considering the relationship between stigma and victimisation, and the relationship between trauma, masking, and burnout in autistic people. Reducing barriers to support and recovery are contingent on reducing structural inequality and providing better training about autistic people to frontline professionals. En ligne : http://dx.doi.org/10.1177/13623613221104546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493
in Autism > 27-2 (February 2023) . - p.500-511[article] "I felt like I deserved it because I was autistic": Understanding the impact of interpersonal victimisation in the lives of autistic people [Texte imprimé et/ou numérique] / Amy PEARSON, Auteur ; Kieran ROSE, Auteur ; Jon REES, Auteur . - 2023 . - p.500-511.
Langues : Anglais (eng)
in Autism > 27-2 (February 2023) . - p.500-511
Mots-clés : autism masking relationships stigma victimisation Index. décimale : PER Périodiques Résumé : Research suggests that there is a high prevalence of interpersonal violence and victimisation within the autistic population, and that this accounts for poor mental health outcomes. This study aimed to examine the impact of interpersonal violence and victimisation on autistic adults from their own perspective and explore what helps or hinders their recovery. In total, 102 autistic adults completed either an online survey or a spoken interview about their experiences of interpersonal violence and victimisation. We analysed the data using a thematic analysis, and found four themes: (1) The usual for autism (expectations of victimisation, experiences of othering), (2) Personhood revoked: The cost of living (being part of a neurominority, trauma, masking and burnout), (3) Unpacking the baggage (impact of hermeneutical injustice) and (4) ˜If you want to make an apple pie from scratch, you have to invent the universe first’ (structural inequality/power dynamics, support and community). Findings highlight the importance of considering the relationship between stigma and victimisation, and the relationship between trauma, masking, and burnout in autistic people. Reducing barriers to support and recovery are contingent on reducing structural inequality and providing better training about autistic people to frontline professionals. En ligne : http://dx.doi.org/10.1177/13623613221104546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493
Permalink
Permalink
