Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability / W. CHAN in Autism, 22-7 (October 2018)  

Public ISBD [article]  inAutism > 22-7 (October 2018) . - p.794-803 Titre : Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability Type de document : Texte imprimé et/ou numérique Auteurs : W. CHAN, Auteur ; L. E. SMITH, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; Julie LOUNDS TAYLOR, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.794-803 Langues : Anglais (eng) Mots-clés : adaptive living skills  adult  autism spectrum disorders  employment  intellectual disability  personal care Index. décimale : PER Périodiques Résumé : Sustaining community employment is a challenge for adults with autism spectrum disorders, especially for those who have co-occurring intellectual disability, but factors contributing to this employment outcome have not been fully evaluated. This study utilized longitudinal data to explore the impact of contextual influences, family factors, and individual characteristics on sustained employment over approximately 18 months ( N = 105). Very few adults with autism spectrum disorder and intellectual disability achieved sustained employment (14.3%). The results indicated that more independent daily living skills, a higher family income, a larger maternal social network, an inclusive school environment in early childhood, and currently living in an area with a larger population size were associated with significantly greater odds of sustaining employment. Follow-up analyses suggested that managing personal care is particularly important for employment. En ligne : http://dx.doi.org/10.1177/1362361317703760 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability [Texte imprimé et/ou numérique] / W. CHAN, Auteur ; L. E. SMITH, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; Julie LOUNDS TAYLOR, Auteur ; M. R. MAILICK, Auteur . - p.794-803. Langues : Anglais (eng) in Autism > 22-7 (October 2018) . - p.794-803 Mots-clés : adaptive living skills  adult  autism spectrum disorders  employment  intellectual disability  personal care Index. décimale : PER Périodiques Résumé : Sustaining community employment is a challenge for adults with autism spectrum disorders, especially for those who have co-occurring intellectual disability, but factors contributing to this employment outcome have not been fully evaluated. This study utilized longitudinal data to explore the impact of contextual influences, family factors, and individual characteristics on sustained employment over approximately 18 months ( N = 105). Very few adults with autism spectrum disorder and intellectual disability achieved sustained employment (14.3%). The results indicated that more independent daily living skills, a higher family income, a larger maternal social network, an inclusive school environment in early childhood, and currently living in an area with a larger population size were associated with significantly greater odds of sustaining employment. Follow-up analyses suggested that managing personal care is particularly important for employment. En ligne : http://dx.doi.org/10.1177/1362361317703760 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism / Leann S. DAWALT in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.383-393 Titre : Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; L. V. USHER, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.383-393 Langues : Anglais (eng) Mots-clés : adulthood  autism  fragile X syndrome  friendships  quality of life  social participation Index. décimale : PER Périodiques Résumé : Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults. En ligne : http://dx.doi.org/10.1177/1362361317709202 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; L. V. USHER, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - p.383-393. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.383-393 Mots-clés : adulthood  autism  fragile X syndrome  friendships  quality of life  social participation Index. décimale : PER Périodiques Résumé : Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults. En ligne : http://dx.doi.org/10.1177/1362361317709202 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study / D. J. LAXMAN in Autism Research, 12-6 (June 2019)  

Public ISBD [article]  inAutism Research > 12-6 (June 2019) . - p.911-921 Titre : Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Année de publication : 2019 Article en page(s) : p.911-921 Langues : Anglais (eng) Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study [Texte imprimé et/ou numérique] / D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - 2019 . - p.911-921. Langues : Anglais (eng) in Autism Research > 12-6 (June 2019) . - p.911-921 Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period / Leann S. DAWALT in Autism, 23-7 (October 2019)  

Public ISBD [article]  inAutism > 23-7 (October 2019) . - p.1732-1739 Titre : Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.1732-1739 Langues : Anglais (eng) Mots-clés : adulthood  autism spectrum disorders  health  mortality Index. décimale : PER Périodiques Résumé : Research has shown that individuals with autism spectrum disorder have higher rates of health problems throughout childhood, adolescence, and adulthood, and that this may result in elevated risk of early mortality. This study reported the rate, timing, and causes of death in a large community-based cohort of adolescents and adults with autism spectrum disorder (n = 406) over a 20-year period (1998-2018) and identified predictors of mortality. Over this period, 6.4% of individuals died at an average age of 39 years. Causes of death included chronic conditions (such as cancer and heart disease), accidents (such as choking on food and accidental poisoning), and health complications due to medication side effects. Even after controlling for age and health status, significant predictors of mortality were early childhood levels of impairments in social reciprocity and high levels of functional impairments at the start of the study period. The results suggest the importance of social engagement and functional self-sufficiency across the life course, as well as adequate access to health care for individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319827412 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 [article] Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - p.1732-1739. Langues : Anglais (eng) in Autism > 23-7 (October 2019) . - p.1732-1739 Mots-clés : adulthood  autism spectrum disorders  health  mortality Index. décimale : PER Périodiques Résumé : Research has shown that individuals with autism spectrum disorder have higher rates of health problems throughout childhood, adolescence, and adulthood, and that this may result in elevated risk of early mortality. This study reported the rate, timing, and causes of death in a large community-based cohort of adolescents and adults with autism spectrum disorder (n = 406) over a 20-year period (1998-2018) and identified predictors of mortality. Over this period, 6.4% of individuals died at an average age of 39 years. Causes of death included chronic conditions (such as cancer and heart disease), accidents (such as choking on food and accidental poisoning), and health complications due to medication side effects. Even after controlling for age and health status, significant predictors of mortality were early childhood levels of impairments in social reciprocity and high levels of functional impairments at the start of the study period. The results suggest the importance of social engagement and functional self-sufficiency across the life course, as well as adequate access to health care for individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319827412 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406

Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents / Leann S. DAWALT in Journal of Autism and Developmental Disorders, 48-1 (January 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.251-263 Titre : Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.251-263 Langues : Anglais (eng) Mots-clés : Adolescence  Autism spectrum disorder  Multi-family group psychoeducation  Transition Index. décimale : PER Périodiques Résumé : Currently there are few evidence-based programs available for families of individuals with ASD during the transition to adulthood. The present study provided a preliminary evaluation of a multi-family group psychoeducation intervention using a randomized waitlist control design (n = 41). Families in the intervention condition participated in Transitioning Together, an 8-week program designed to reduce family distress and improve social functioning for adolescents. Findings indicated significant improvements in parental depressive symptoms and problem solving from pre- to post-intervention for parents in the intervention condition but not for parents in the control condition. Social interactions also improved for youth in the intervention condition relative to controls. Parents reported satisfaction with the program and particularly valued the opportunity to interact with other families. En ligne : https://doi.org/10.1007/s10803-017-3307-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 [article] Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - p.251-263. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.251-263 Mots-clés : Adolescence  Autism spectrum disorder  Multi-family group psychoeducation  Transition Index. décimale : PER Périodiques Résumé : Currently there are few evidence-based programs available for families of individuals with ASD during the transition to adulthood. The present study provided a preliminary evaluation of a multi-family group psychoeducation intervention using a randomized waitlist control design (n = 41). Families in the intervention condition participated in Transitioning Together, an 8-week program designed to reduce family distress and improve social functioning for adolescents. Findings indicated significant improvements in parental depressive symptoms and problem solving from pre- to post-intervention for parents in the intervention condition but not for parents in the control condition. Social interactions also improved for youth in the intervention condition relative to controls. Parents reported satisfaction with the program and particularly valued the opportunity to interact with other families. En ligne : https://doi.org/10.1007/s10803-017-3307-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337

Using machine learning to identify patterns of lifetime health problems in decedents with autism spectrum disorder / Lauren BISHOP-FITZPATRICK in Autism Research, 11-8 (August 2018)  

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