Depression in young autistic people: A scoping review / Soo Youn KIM in Research in Autism Spectrum Disorders, 88 (October 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 88 (October 2021) . - 101841 Titre : Depression in young autistic people: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Soo Youn KIM, Auteur ; Luc LECAVALIER, Auteur Article en page(s) : 101841 Langues : Anglais (eng) Mots-clés : Autism  Children  Adolescents  Depression  Review  Scoping review Index. décimale : PER Périodiques Résumé : Background Depressive symptoms are prevalent in autistic individuals. However, there is a limited understanding of what is known about depression in autistic children and adolescents. The aim of this scoping review is to examine the themes and the quality of studies on depressive symptoms in young autistic people. Method A search was conducted on the electronic databases PubMed and PsycINFO examining the themes and quality of the studies. Participant demographics and instruments used were also reviewed. Results Fifty-five studies met inclusion criteria. Four major themes emerged across the reviewed studies: 1) Prevalence and clinical presentation, 2) Associated features, 3) Intervention, 4) Psychometric properties. Thirty-one of the 55 studies (56%) were rated as Strong, 11 studies (20%) rated as Adequate, and 13 studies (24%) as Weak. Most studies were conducted on adolescents with IQ > 70. A variety of instruments were used to assess depressive symptoms. Conclusions Most studies have been conducted in the past decade. Clinical presentation and the associated features were the most studied themes. Very little is known on intervention targeting depression or studies examining psychometric properties of instruments in young autistic people. Further studies are needed to address the gap in research in the following area: 1) Validation of instruments used, 2) Symptoms in those with intellectual disability, 3) Longitudinal studies exploring the course of depression over time, 4) Correlates of depressive symptoms, and 5) Intervention specifically targeting depressive symptoms in ASD. En ligne : https://doi.org/10.1016/j.rasd.2021.101841 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Depression in young autistic people: A scoping review [Texte imprimé et/ou numérique] / Soo Youn KIM, Auteur ; Luc LECAVALIER, Auteur . - 101841. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101841 Mots-clés : Autism  Children  Adolescents  Depression  Review  Scoping review Index. décimale : PER Périodiques Résumé : Background Depressive symptoms are prevalent in autistic individuals. However, there is a limited understanding of what is known about depression in autistic children and adolescents. The aim of this scoping review is to examine the themes and the quality of studies on depressive symptoms in young autistic people. Method A search was conducted on the electronic databases PubMed and PsycINFO examining the themes and quality of the studies. Participant demographics and instruments used were also reviewed. Results Fifty-five studies met inclusion criteria. Four major themes emerged across the reviewed studies: 1) Prevalence and clinical presentation, 2) Associated features, 3) Intervention, 4) Psychometric properties. Thirty-one of the 55 studies (56%) were rated as Strong, 11 studies (20%) rated as Adequate, and 13 studies (24%) as Weak. Most studies were conducted on adolescents with IQ > 70. A variety of instruments were used to assess depressive symptoms. Conclusions Most studies have been conducted in the past decade. Clinical presentation and the associated features were the most studied themes. Very little is known on intervention targeting depression or studies examining psychometric properties of instruments in young autistic people. Further studies are needed to address the gap in research in the following area: 1) Validation of instruments used, 2) Symptoms in those with intellectual disability, 3) Longitudinal studies exploring the course of depression over time, 4) Correlates of depressive symptoms, and 5) Intervention specifically targeting depressive symptoms in ASD. En ligne : https://doi.org/10.1016/j.rasd.2021.101841 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Effects of repeated food exposure on increasing vegetable consumption in preschool children with autism spectrum disorder / Soo Youn KIM in Research in Autism Spectrum Disorders, 47 (March 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 47 (March 2018) . - p.26-35 Titre : Effects of repeated food exposure on increasing vegetable consumption in preschool children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Soo Youn KIM, Auteur ; Kyong-Mee CHUNG, Auteur ; Sungsim JUNG, Auteur Article en page(s) : p.26-35 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Food selectivity  Exposure  Children  Feeding problems Index. décimale : PER Périodiques Résumé : Food selectivity is common among children with autism spectrum disorder (ASD), and repeated exposure to food is considered a key component of treating this problem. This study investigated the effects of a preventive program using repeated exposure of vegetables on vegetable consumption, both in an experimental setting and during mealtime among preschoolers with ASD showing no severe food selectivity. A total of 27 preschoolers with ASD were assigned to either a 6-month-long exposure program (n?=?13, mean age?=?4.42?years) or a control group (n?=?14, mean age?=?4.04?years). The training program was developed to facilitate visual and tactile contact with various vegetables and consisted of 24 activities, which were repeated four times using different vegetables. The training was conducted four times a week at the children’s early intervention agency by their therapists. Changes in vegetable consumption in the experimental setting as well as nutritional intake during regular mealtime were compared between the exposure and control groups, before and after the exposure program. Significant group differences were found in vegetable consumption, but not in nutritional intake during regular mealtime. The limitations and direction for future research are further discussed. En ligne : https://doi.org/10.1016/j.rasd.2018.01.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=340 [article] Effects of repeated food exposure on increasing vegetable consumption in preschool children with autism spectrum disorder [Texte imprimé et/ou numérique] / Soo Youn KIM, Auteur ; Kyong-Mee CHUNG, Auteur ; Sungsim JUNG, Auteur . - p.26-35. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 47 (March 2018) . - p.26-35 Mots-clés : Autism spectrum disorders  Food selectivity  Exposure  Children  Feeding problems Index. décimale : PER Périodiques Résumé : Food selectivity is common among children with autism spectrum disorder (ASD), and repeated exposure to food is considered a key component of treating this problem. This study investigated the effects of a preventive program using repeated exposure of vegetables on vegetable consumption, both in an experimental setting and during mealtime among preschoolers with ASD showing no severe food selectivity. A total of 27 preschoolers with ASD were assigned to either a 6-month-long exposure program (n?=?13, mean age?=?4.42?years) or a control group (n?=?14, mean age?=?4.04?years). The training program was developed to facilitate visual and tactile contact with various vegetables and consisted of 24 activities, which were repeated four times using different vegetables. The training was conducted four times a week at the children’s early intervention agency by their therapists. Changes in vegetable consumption in the experimental setting as well as nutritional intake during regular mealtime were compared between the exposure and control groups, before and after the exposure program. Significant group differences were found in vegetable consumption, but not in nutritional intake during regular mealtime. The limitations and direction for future research are further discussed. En ligne : https://doi.org/10.1016/j.rasd.2018.01.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=340

Evaluating the Use of Self-reported Measures in Autistic Individuals in the Context of Psychiatric Assessment: A Systematic Review / Soo Youn KIM in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4355-4374 Titre : Evaluating the Use of Self-reported Measures in Autistic Individuals in the Context of Psychiatric Assessment: A Systematic Review Type de document : Texte imprimé et/ou numérique Auteurs : Soo Youn KIM, Auteur ; Luc LECAVALIER, Auteur Article en page(s) : p.4355-4374 Langues : Anglais (eng) Mots-clés : Asd  Autism  Instrument  Measure  Psychometric properties  Review  Self-report Index. décimale : PER Périodiques Résumé : The current review examined the use of self-report measures in autistic individuals in the context of psychiatric assessments. It focused on inter-rater agreement, internal consistency, test-retest reliability, and criterion validity with clinical diagnoses. It also gathered information on constructs measured, the nature of the samples, and the quality of the studies. Thirty-six out of 10,557 studies met inclusion criteria. We found that the majority of studies (1) targeted young people with average or above average cognitive abilities, (2) measured anxiety symptoms, and (3) evaluated parent-child agreement. More studies are needed on individuals with lower cognitive abilities, adults, and other constructs. Studies assessing criterion validity and test-retest reliability are also needed. En ligne : http://dx.doi.org/10.1007/s10803-021-05323-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Evaluating the Use of Self-reported Measures in Autistic Individuals in the Context of Psychiatric Assessment: A Systematic Review [Texte imprimé et/ou numérique] / Soo Youn KIM, Auteur ; Luc LECAVALIER, Auteur . - p.4355-4374. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4355-4374 Mots-clés : Asd  Autism  Instrument  Measure  Psychometric properties  Review  Self-report Index. décimale : PER Périodiques Résumé : The current review examined the use of self-report measures in autistic individuals in the context of psychiatric assessments. It focused on inter-rater agreement, internal consistency, test-retest reliability, and criterion validity with clinical diagnoses. It also gathered information on constructs measured, the nature of the samples, and the quality of the studies. Thirty-six out of 10,557 studies met inclusion criteria. We found that the majority of studies (1) targeted young people with average or above average cognitive abilities, (2) measured anxiety symptoms, and (3) evaluated parent-child agreement. More studies are needed on individuals with lower cognitive abilities, adults, and other constructs. Studies assessing criterion validity and test-retest reliability are also needed. En ligne : http://dx.doi.org/10.1007/s10803-021-05323-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

Toward better outcome measurement for insomnia in children with autism spectrum disorder / Luc LECAVALIER ; Michael C. EDWARDS ; Megan L. WENZELL ; Leah M. BARTO ; Arielle MULLIGAN ; Auscia T. WILLIAMS ; Opal OUSLEY ; Cynthia B. SINHA ; Christopher A. TAYLOR ; Soo Youn KIM ; Laura M. JOHNSON ; Scott E. GILLESPIE ; Cynthia R. JOHNSON in Autism, 28-12 (December 2024)  

Public ISBD [article]  inAutism > 28-12 (December 2024) . - p.3131-3142 Titre : Toward better outcome measurement for insomnia in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Luc LECAVALIER, Auteur ; Michael C. EDWARDS, Auteur ; Megan L. WENZELL, Auteur ; Leah M. BARTO, Auteur ; Arielle MULLIGAN, Auteur ; Auscia T. WILLIAMS, Auteur ; Opal OUSLEY, Auteur ; Cynthia B. SINHA, Auteur ; Christopher A. TAYLOR, Auteur ; Soo Youn KIM, Auteur ; Laura M. JOHNSON, Auteur ; Scott E. GILLESPIE, Auteur ; Cynthia R. JOHNSON, Auteur Article en page(s) : p.3131-3142 Langues : Anglais (eng) Mots-clés : autism  children  insomnia  outcome measure Index. décimale : PER Périodiques Résumé : This report presents a new parent-rated outcome measure of insomnia for children with autism spectrum disorder. Parents of 1185 children with autism spectrum disorder (aged 3-12; 80.3% male) completed the first draft of the measure online. Factor and item response theory analyses reduced the set of 40 items to the final 21-item Pediatric Insomnia Autism Rating Scale. In this online sample, Pediatric Insomnia Autism Rating Scale mean was 21.8?+?15.0 (range 0-63; coefficient alpha = 0.94). Item response theory results indicated excellent reliability across a range of scores. Next, we conducted a telehealth assessment of 134 children with autism spectrum disorder (aged 3-12; 73% male). In this clinical sample, Pediatric Insomnia Autism Rating Scale mean was 28.9?+?14.62 (range 0-61; coefficient alpha = 0.93). Pearson correlations of Pediatric Insomnia Autism Rating Scale with the PROMIS Sleep Disturbance and the modified Children?s Sleep Habits Questionnaire was 0.74 for each. This was significantly higher than correlations of parent-rated disruptive behavior, hyperactivity, repetitive behavior, and anxiety measures (range 0.29-0.59)-supporting convergent and divergent validity. Parents of 63 children completed the Pediatric Insomnia Autism Rating Scale three times over 4?weeks. Intraclass correlation was excellent (0.88) over three time points. Pediatric Insomnia Autism Rating Scale is a valid dimensional measure of insomnia in autistic children that produces reliable scores. Lay Abstract Insomnia, trouble falling asleep or staying asleep, is common in autistic children. In a previous report, we described the results of focus groups with parents of autistic children toward the development of the Pediatric Autism Insomnia Rating Scale. In this article, we report on the steps taken to complete the Pediatric Autism Insomnia Rating Scale. With help from the Simons Foundation registry, we collected information from parents on 1185 children with autism spectrum disorder to test the new measure. These results were evaluated using standard statistical methods such as factor analysis. To confirm the validity of the new measure, we enrolled a separate sample of 134 autistic children for a detailed assessment by video conference. This step showed that the Pediatric Autism Insomnia Rating Scale is clearly measuring symptoms of insomnia in children with autism spectrum disorder and not related problems such as hyperactivity, repetitive behavior, or anxiety. We also showed that the total score on the Pediatric Autism Insomnia Rating Scale is stable when repeated over a brief period of time. This is important because a measure that is not stable over a brief period of time would not be suitable as an outcome measure. In summary, the Pediatric Autism Insomnia Rating Scale is a brief and valid measure of insomnia in children with autism spectrum disorder that provides reliable scores. En ligne : https://dx.doi.org/10.1177/13623613241255814 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=543 [article] Toward better outcome measurement for insomnia in children with autism spectrum disorder [Texte imprimé et/ou numérique] / Luc LECAVALIER, Auteur ; Michael C. EDWARDS, Auteur ; Megan L. WENZELL, Auteur ; Leah M. BARTO, Auteur ; Arielle MULLIGAN, Auteur ; Auscia T. WILLIAMS, Auteur ; Opal OUSLEY, Auteur ; Cynthia B. SINHA, Auteur ; Christopher A. TAYLOR, Auteur ; Soo Youn KIM, Auteur ; Laura M. JOHNSON, Auteur ; Scott E. GILLESPIE, Auteur ; Cynthia R. JOHNSON, Auteur . - p.3131-3142. Langues : Anglais (eng) in Autism > 28-12 (December 2024) . - p.3131-3142 Mots-clés : autism  children  insomnia  outcome measure Index. décimale : PER Périodiques Résumé : This report presents a new parent-rated outcome measure of insomnia for children with autism spectrum disorder. Parents of 1185 children with autism spectrum disorder (aged 3-12; 80.3% male) completed the first draft of the measure online. Factor and item response theory analyses reduced the set of 40 items to the final 21-item Pediatric Insomnia Autism Rating Scale. In this online sample, Pediatric Insomnia Autism Rating Scale mean was 21.8?+?15.0 (range 0-63; coefficient alpha = 0.94). Item response theory results indicated excellent reliability across a range of scores. Next, we conducted a telehealth assessment of 134 children with autism spectrum disorder (aged 3-12; 73% male). In this clinical sample, Pediatric Insomnia Autism Rating Scale mean was 28.9?+?14.62 (range 0-61; coefficient alpha = 0.93). Pearson correlations of Pediatric Insomnia Autism Rating Scale with the PROMIS Sleep Disturbance and the modified Children?s Sleep Habits Questionnaire was 0.74 for each. This was significantly higher than correlations of parent-rated disruptive behavior, hyperactivity, repetitive behavior, and anxiety measures (range 0.29-0.59)-supporting convergent and divergent validity. Parents of 63 children completed the Pediatric Insomnia Autism Rating Scale three times over 4?weeks. Intraclass correlation was excellent (0.88) over three time points. Pediatric Insomnia Autism Rating Scale is a valid dimensional measure of insomnia in autistic children that produces reliable scores. Lay Abstract Insomnia, trouble falling asleep or staying asleep, is common in autistic children. In a previous report, we described the results of focus groups with parents of autistic children toward the development of the Pediatric Autism Insomnia Rating Scale. In this article, we report on the steps taken to complete the Pediatric Autism Insomnia Rating Scale. With help from the Simons Foundation registry, we collected information from parents on 1185 children with autism spectrum disorder to test the new measure. These results were evaluated using standard statistical methods such as factor analysis. To confirm the validity of the new measure, we enrolled a separate sample of 134 autistic children for a detailed assessment by video conference. This step showed that the Pediatric Autism Insomnia Rating Scale is clearly measuring symptoms of insomnia in children with autism spectrum disorder and not related problems such as hyperactivity, repetitive behavior, or anxiety. We also showed that the total score on the Pediatric Autism Insomnia Rating Scale is stable when repeated over a brief period of time. This is important because a measure that is not stable over a brief period of time would not be suitable as an outcome measure. In summary, the Pediatric Autism Insomnia Rating Scale is a brief and valid measure of insomnia in children with autism spectrum disorder that provides reliable scores. En ligne : https://dx.doi.org/10.1177/13623613241255814 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=543

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