Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature / A. STEDMAN in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Titre : Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Type de document : Texte imprimé et/ou numérique Auteurs : A. STEDMAN, Auteur ; B. TAYLOR, Auteur ; M. ERARD, Auteur ; C. PEURA, Auteur ; M. SIEGEL, Auteur Article en page(s) : p.1378-1390 Langues : Anglais (eng) Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature [Texte imprimé et/ou numérique] / A. STEDMAN, Auteur ; B. TAYLOR, Auteur ; M. ERARD, Auteur ; C. PEURA, Auteur ; M. SIEGEL, Auteur . - p.1378-1390. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison / K. A. PEDERSEN in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3658-3667 Titre : Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison Type de document : Texte imprimé et/ou numérique Auteurs : K. A. PEDERSEN, Auteur ; Susan L. SANTANGELO, Auteur ; R. L. GABRIELS, Auteur ; G. RIGHI, Auteur ; M. ERARD, Auteur ; M. SIEGEL, Auteur Article en page(s) : p.3658-3667 Langues : Anglais (eng) Mots-clés : Autism inpatient collection (AIC)  Autism spectrum disorder (ASD)  Crisis  Externalizing problem behaviors  Psychiatric inpatients  Self-injurious behavior  Tantrum-like behavior Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is relatively common and occurs at a higher rate than in non-ASD youth. This study compared changes in the severity of serious problem behaviors in 350 youth with ASD enrolled in the autism inpatient collection during and after hospitalization in six specialized child psychiatry units. There was a significant reduction in serious problem behaviors from admission (aberrant behavior checklist-irritability subscale M = 29.7, SD 9.6) to discharge (M = 15.0, SD 10.3) and 2-month follow-up (M = 19.3, SD 10.3). Between discharge and 2-month follow-up, tantrum-like behaviors but not self-injurious behaviors increased slightly. Improvement in the severity of problem behaviors was not uniform across sites, even after controlling for measured site differences. En ligne : http://dx.doi.org/10.1007/s10803-017-3366-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison [Texte imprimé et/ou numérique] / K. A. PEDERSEN, Auteur ; Susan L. SANTANGELO, Auteur ; R. L. GABRIELS, Auteur ; G. RIGHI, Auteur ; M. ERARD, Auteur ; M. SIEGEL, Auteur . - p.3658-3667. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3658-3667 Mots-clés : Autism inpatient collection (AIC)  Autism spectrum disorder (ASD)  Crisis  Externalizing problem behaviors  Psychiatric inpatients  Self-injurious behavior  Tantrum-like behavior Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is relatively common and occurs at a higher rate than in non-ASD youth. This study compared changes in the severity of serious problem behaviors in 350 youth with ASD enrolled in the autism inpatient collection during and after hospitalization in six specialized child psychiatry units. There was a significant reduction in serious problem behaviors from admission (aberrant behavior checklist-irritability subscale M = 29.7, SD 9.6) to discharge (M = 15.0, SD 10.3) and 2-month follow-up (M = 19.3, SD 10.3). Between discharge and 2-month follow-up, tantrum-like behaviors but not self-injurious behaviors increased slightly. Improvement in the severity of problem behaviors was not uniform across sites, even after controlling for measured site differences. En ligne : http://dx.doi.org/10.1007/s10803-017-3366-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder / L. K. WINK in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3711-3719 Titre : Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : L. K. WINK, Auteur ; Ernest V. PEDAPATI, Auteur ; R. ADAMS, Auteur ; C. A. ERICKSON, Auteur ; K. A. PEDERSEN, Auteur ; E. M. MORROW, Auteur ; Desmond KAPLAN, Auteur ; M. SIEGEL, Auteur Article en page(s) : p.3711-3719 Langues : Anglais (eng) Mots-clés : Antipsychotics  Autism  Autism Spectrum Disorder  Medication  Psychiatric hospitalization Index. décimale : PER Périodiques Résumé : Nearly 11% of youth with Autism Spectrum Disorder (ASD) undergo psychiatric hospitalization, and 65% are treated with psychotropic medication. Here we characterize psychotropic medication usage in subjects enrolled in the Autism Inpatient Collection. Participant psychotropic medication usage rates topped 90% at admission and discharge, though there was a decline at 2-month follow-up. Antipsychotics, ADHD medications, and sleep aids were the most commonly reported classes of medications. The impact of age, gender, and non-verbal IQ on medication usage rates was minimal, though age and IQ may play a role in prescribing practices. Future work is indicated to explore medication usage trends, the impact of clinical factors on medication use rates, and the safety of psychotropic medications in youth with ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3153-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / L. K. WINK, Auteur ; Ernest V. PEDAPATI, Auteur ; R. ADAMS, Auteur ; C. A. ERICKSON, Auteur ; K. A. PEDERSEN, Auteur ; E. M. MORROW, Auteur ; Desmond KAPLAN, Auteur ; M. SIEGEL, Auteur . - p.3711-3719. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3711-3719 Mots-clés : Antipsychotics  Autism  Autism Spectrum Disorder  Medication  Psychiatric hospitalization Index. décimale : PER Périodiques Résumé : Nearly 11% of youth with Autism Spectrum Disorder (ASD) undergo psychiatric hospitalization, and 65% are treated with psychotropic medication. Here we characterize psychotropic medication usage in subjects enrolled in the Autism Inpatient Collection. Participant psychotropic medication usage rates topped 90% at admission and discharge, though there was a decline at 2-month follow-up. Antipsychotics, ADHD medications, and sleep aids were the most commonly reported classes of medications. The impact of age, gender, and non-verbal IQ on medication usage rates was minimal, though age and IQ may play a role in prescribing practices. Future work is indicated to explore medication usage trends, the impact of clinical factors on medication use rates, and the safety of psychotropic medications in youth with ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3153-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder / C. A. MAZEFSKY in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Titre : Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : C. A. MAZEFSKY, Auteur ; T. N. DAY, Auteur ; M. SIEGEL, Auteur ; Susan W. WHITE, Auteur ; L. YU, Auteur ; P. A. PILKONIS, Auteur Article en page(s) : p.3736-3746 Langues : Anglais (eng) Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder [Texte imprimé et/ou numérique] / C. A. MAZEFSKY, Auteur ; T. N. DAY, Auteur ; M. SIEGEL, Auteur ; Susan W. WHITE, Auteur ; L. YU, Auteur ; P. A. PILKONIS, Auteur . - p.3736-3746. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Does an Autism Spectrum Disorder Care Pathway Improve Care for Children and Adolescents with ASD in Inpatient Psychiatric Units? / S. KURIAKOSE in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4082-4089 Titre : Does an Autism Spectrum Disorder Care Pathway Improve Care for Children and Adolescents with ASD in Inpatient Psychiatric Units? Type de document : Texte imprimé et/ou numérique Auteurs : S. KURIAKOSE, Auteur ; B. FILTON, Auteur ; M. MARR, Auteur ; E. OKPARAEKE, Auteur ; Paige E. CERVANTES, Auteur ; M. SIEGEL, Auteur ; S. HORWITZ, Auteur ; J. HAVENS, Auteur Article en page(s) : p.4082-4089 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Care pathway  Inpatient hospitalization  Psychiatric Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder (ASD) are psychiatrically hospitalized at high rates. Though specialized psychiatric units are effective, few specialized units exist. The ASD Care Pathway (ASD-CP) was developed as a scalable approach to improving care in general psychiatric units through staff training and a package of autism-specific intervention strategies. An evaluation of the effectiveness of the ASD-CP in a public hospital child psychiatric service compared 18 months (n = 17) versus 18 months (n = 20) post implementation. Average length of hospital stay decreased 40% (22.4-13.4 days) and use of crisis interventions decreased 77% (holds/restraints; 0.65/day to 0.15/day), though each result only approached statistical significance (p = 0.07; 0.057). This study provides preliminary evidence for improved outcomes after implementation of an ASD-CP. En ligne : http://dx.doi.org/10.1007/s10803-018-3666-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Does an Autism Spectrum Disorder Care Pathway Improve Care for Children and Adolescents with ASD in Inpatient Psychiatric Units? [Texte imprimé et/ou numérique] / S. KURIAKOSE, Auteur ; B. FILTON, Auteur ; M. MARR, Auteur ; E. OKPARAEKE, Auteur ; Paige E. CERVANTES, Auteur ; M. SIEGEL, Auteur ; S. HORWITZ, Auteur ; J. HAVENS, Auteur . - p.4082-4089. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4082-4089 Mots-clés : Autism spectrum disorder  Care pathway  Inpatient hospitalization  Psychiatric Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder (ASD) are psychiatrically hospitalized at high rates. Though specialized psychiatric units are effective, few specialized units exist. The ASD Care Pathway (ASD-CP) was developed as a scalable approach to improving care in general psychiatric units through staff training and a package of autism-specific intervention strategies. An evaluation of the effectiveness of the ASD-CP in a public hospital child psychiatric service compared 18 months (n = 17) versus 18 months (n = 20) post implementation. Average length of hospital stay decreased 40% (22.4-13.4 days) and use of crisis interventions decreased 77% (holds/restraints; 0.65/day to 0.15/day), though each result only approached statistical significance (p = 0.07; 0.057). This study provides preliminary evidence for improved outcomes after implementation of an ASD-CP. En ligne : http://dx.doi.org/10.1007/s10803-018-3666-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Inpatient Psychiatric Treatment of Serious Behavioral Problems in Children with Autism Spectrum Disorder (ASD): Specialized Versus General Inpatient Units / B. J. TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

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Predicting aggression to others in youth with autism using a wearable biosensor / M. S. GOODWIN in Autism Research, 12-8 (August 2019)  

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Predictors of Inpatient Psychiatric Hospitalization for Children and Adolescents with Autism Spectrum Disorder / G. RIGHI in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Problem Behaviors in Autism Spectrum Disorder: Association with Verbal Ability and Adapting/Coping Skills / D. L. WILLIAMS in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Risk Factors for Self-injurious Behavior in an Inpatient Psychiatric Sample of Children with Autism Spectrum Disorder: A Naturalistic Observation Study / B. L. HANDEN in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Sleep Problems and Their Relationship to Maladaptive Behavior Severity in Psychiatrically Hospitalized Children with Autism Spectrum Disorder (ASD) / E. M. SANNAR in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Talking About Death or Suicide: Prevalence and Clinical Correlates in Youth with Autism Spectrum Disorder in the Psychiatric Inpatient Setting / L. M. HOROWITZ in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample / C. A. MAZEFSKY in Autism Research, 11-6 (June 2018)  

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The Severe End of the Spectrum: Insights and Opportunities from the Autism Inpatient Collection (AIC) / M. SIEGEL in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Verbal Ability and Psychiatric Symptoms in Clinically Referred Inpatient and Outpatient Youth with ASD / M. D. LERNER in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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