Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians / Vicki GIBBS in Research in Autism Spectrum Disorders, 88 (October 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 88 (October 2021) . - 101859 Titre : Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians Type de document : Texte imprimé et/ou numérique Auteurs : Vicki GIBBS, Auteur ; Ru Ying CAI, Auteur ; Fiona J. ALDRIDGE, Auteur ; Michelle WONG, Auteur Article en page(s) : 101859 Langues : Anglais (eng) Mots-clés : Autism  Assessment  Diagnosis  Telehealth  Covid-19 Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. Methods Sixteen adult clients (Mage = 39.00, SDage = 14.39) and fifty-six parent/carers of children and adults (Mage = 44.09, SDage = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. Results In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. Conclusion Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments. En ligne : https://doi.org/10.1016/j.rasd.2021.101859 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians [Texte imprimé et/ou numérique] / Vicki GIBBS, Auteur ; Ru Ying CAI, Auteur ; Fiona J. ALDRIDGE, Auteur ; Michelle WONG, Auteur . - 101859. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101859 Mots-clés : Autism  Assessment  Diagnosis  Telehealth  Covid-19 Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. Methods Sixteen adult clients (Mage = 39.00, SDage = 14.39) and fifty-six parent/carers of children and adults (Mage = 44.09, SDage = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. Results In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. Conclusion Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments. En ligne : https://doi.org/10.1016/j.rasd.2021.101859 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals / Abigail M. A. LOVE in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1425-1437 Titre : Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals Type de document : Texte imprimé et/ou numérique Auteurs : Abigail M. A. LOVE, Auteur ; Vicki GIBBS, Auteur ; Dylan COOPER, Auteur ; Teal W. BENEVIDES, Auteur ; Melanie C. MOGAVERO, Auteur ; Icylee L. BASKETBILL, Auteur ; Lindsey L. SHEA, Auteur Article en page(s) : p.1425-1437 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic people?s perceptions of their interactions with criminal justice professionals are predominantly negative; however, little is known about the state of interactions on a global scale. To further understanding, a comprehensive stakeholder questionnaire was created. Aspects of reliability and validity including evidence for test content and internal structure were gathered using expert reviews, cognitive interviewing, pilot data collection, and a larger data collection effort (N = 1618). Data was gathered from the autism community through perspectives of parents/caregivers as well as from self-reported autistic adults. Criminal justice professionals included law enforcement officers, corrections professionals, probation and parole officers, forensic psychologists and legal professionals. The scale development process was detailed in order to sufficiently document the initial psychometric evidence and share the steps taken to gain diverse stakeholder input. This study is a critical first step in generating further information to facilitate policy and program development with wide applicability. En ligne : https://doi.org/10.1007/s10803-022-05835-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 [article] Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals [Texte imprimé et/ou numérique] / Abigail M. A. LOVE, Auteur ; Vicki GIBBS, Auteur ; Dylan COOPER, Auteur ; Teal W. BENEVIDES, Auteur ; Melanie C. MOGAVERO, Auteur ; Icylee L. BASKETBILL, Auteur ; Lindsey L. SHEA, Auteur . - p.1425-1437. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1425-1437 Index. décimale : PER Périodiques Résumé : Autistic people?s perceptions of their interactions with criminal justice professionals are predominantly negative; however, little is known about the state of interactions on a global scale. To further understanding, a comprehensive stakeholder questionnaire was created. Aspects of reliability and validity including evidence for test content and internal structure were gathered using expert reviews, cognitive interviewing, pilot data collection, and a larger data collection effort (N = 1618). Data was gathered from the autism community through perspectives of parents/caregivers as well as from self-reported autistic adults. Criminal justice professionals included law enforcement officers, corrections professionals, probation and parole officers, forensic psychologists and legal professionals. The scale development process was detailed in order to sufficiently document the initial psychometric evidence and share the steps taken to gain diverse stakeholder input. This study is a critical first step in generating further information to facilitate policy and program development with wide applicability. En ligne : https://doi.org/10.1007/s10803-022-05835-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526

Does a Person's Autism Play a Role in Their Interactions with Police: The Perceptions of Autistic Adults and Parent/Carers / Kaaren HAAS in Journal of Autism and Developmental Disorders, 51-5 (May 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1628-1640 Titre : Does a Person's Autism Play a Role in Their Interactions with Police: The Perceptions of Autistic Adults and Parent/Carers Type de document : Texte imprimé et/ou numérique Auteurs : Kaaren HAAS, Auteur ; Vicki GIBBS, Auteur Article en page(s) : p.1628-1640 Langues : Anglais (eng) Mots-clés : Autism  Autistic characteristics  Communication  Emotion regulation  Mental health  Police  Repetitive behaviours  Social skills Index. décimale : PER Périodiques Résumé : This study aimed to describe the impact that autistic characteristics (core features of autism and co-occurring conditions) have on interactions with police. Twelve autistic adults and 19 parent/carers were interviewed about interactions with police in the past 5 years. Using content analysis, it was found that in most (92.3%) interactions, autistic characteristics were described as having a role in the police interaction, either as a causal factor or more commonly by affecting the conduct of the interaction. In the latter case, the impact was associated with negative perceptions of the interaction. By sampling a more representative group across age, gender, functional abilities and context, this study provides insight into factors that underlie many autistic individual's reported dissatisfaction with police interactions. En ligne : http://dx.doi.org/10.1007/s10803-020-04663-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Does a Person's Autism Play a Role in Their Interactions with Police: The Perceptions of Autistic Adults and Parent/Carers [Texte imprimé et/ou numérique] / Kaaren HAAS, Auteur ; Vicki GIBBS, Auteur . - p.1628-1640. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-5 (May 2021) . - p.1628-1640 Mots-clés : Autism  Autistic characteristics  Communication  Emotion regulation  Mental health  Police  Repetitive behaviours  Social skills Index. décimale : PER Périodiques Résumé : This study aimed to describe the impact that autistic characteristics (core features of autism and co-occurring conditions) have on interactions with police. Twelve autistic adults and 19 parent/carers were interviewed about interactions with police in the past 5 years. Using content analysis, it was found that in most (92.3%) interactions, autistic characteristics were described as having a role in the police interaction, either as a causal factor or more commonly by affecting the conduct of the interaction. In the latter case, the impact was associated with negative perceptions of the interaction. By sampling a more representative group across age, gender, functional abilities and context, this study provides insight into factors that underlie many autistic individual's reported dissatisfaction with police interactions. En ligne : http://dx.doi.org/10.1007/s10803-020-04663-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 / Ye In HWANG in Research in Autism Spectrum Disorders, 78 (October 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 78 (October 2020) . - 101634 Titre : Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 Type de document : Texte imprimé et/ou numérique Auteurs : Ye In HWANG, Auteur ; Lidan ZHENG, Auteur ; George KARYSTIANIS, Auteur ; Vicki GIBBS, Auteur ; Kym SHARP, Auteur ; Tony BUTLER, Auteur Article en page(s) : 101634 Langues : Anglais (eng) Mots-clés : Domestic violence  family violence  victimisation  caregivers  relationships  text mining Index. décimale : PER Périodiques Résumé : Background Recent research and high-profile media cases have suggested an association between autism spectrum disorder and violent behaviour. Whilst certain characteristics of autism may make individuals vulnerable to increased involvement with the police, either as a victim or person of interest, evidence regarding this is scant. The present study used a population-based dataset to describe the characteristics of domestic violence events involving autistic and non-autistic adults. Methods Text mining and descriptive statistics were applied to police-recorded data for 1,601 domestic violence events involving autism and 414,840 events not involving autism in the state of New South Wales, Australia from January 2005 to December 2016. Results The relationship between autistic victims and perpetrators was predominantly familial or carer whereas events not involving autism were predominantly involved intimate partners. Abuse types and injuries sustained were similar for both autistic and non-autistic events. The most common mental conditions present in autistic perpetrators were developmental conditions and intellectual disability, whilst non-autistic perpetrators most commonly reported psychoactive substance use or schizophrenia. Conclusions These results highlight the need to further understand the risk factors for strain and violence in relationships between autistic adults and their family members or carers, especially for those with comorbid behavioural developmental conditions. Given the uniqueness of domestic violence involving autism found in this study and the potentially unique nature of the circumstances surrounding these events, appropriate police awareness and training in relation to autism is needed. En ligne : https://doi.org/10.1016/j.rasd.2020.101634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 [Texte imprimé et/ou numérique] / Ye In HWANG, Auteur ; Lidan ZHENG, Auteur ; George KARYSTIANIS, Auteur ; Vicki GIBBS, Auteur ; Kym SHARP, Auteur ; Tony BUTLER, Auteur . - 101634. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101634 Mots-clés : Domestic violence  family violence  victimisation  caregivers  relationships  text mining Index. décimale : PER Périodiques Résumé : Background Recent research and high-profile media cases have suggested an association between autism spectrum disorder and violent behaviour. Whilst certain characteristics of autism may make individuals vulnerable to increased involvement with the police, either as a victim or person of interest, evidence regarding this is scant. The present study used a population-based dataset to describe the characteristics of domestic violence events involving autistic and non-autistic adults. Methods Text mining and descriptive statistics were applied to police-recorded data for 1,601 domestic violence events involving autism and 414,840 events not involving autism in the state of New South Wales, Australia from January 2005 to December 2016. Results The relationship between autistic victims and perpetrators was predominantly familial or carer whereas events not involving autism were predominantly involved intimate partners. Abuse types and injuries sustained were similar for both autistic and non-autistic events. The most common mental conditions present in autistic perpetrators were developmental conditions and intellectual disability, whilst non-autistic perpetrators most commonly reported psychoactive substance use or schizophrenia. Conclusions These results highlight the need to further understand the risk factors for strain and violence in relationships between autistic adults and their family members or carers, especially for those with comorbid behavioural developmental conditions. Given the uniqueness of domestic violence involving autism found in this study and the potentially unique nature of the circumstances surrounding these events, appropriate police awareness and training in relation to autism is needed. En ligne : https://doi.org/10.1016/j.rasd.2020.101634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates / Vicki GIBBS in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Titre : Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates Type de document : Texte imprimé et/ou numérique Auteurs : Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : 101866 Langues : Anglais (eng) Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates [Texte imprimé et/ou numérique] / Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur . - 101866. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Interactions Between the Police and the Autistic Community in Australia: Experiences and Perspectives of Autistic Adults and Parents/Carers / Vicki GIBBS in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

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'Just knowing it?s there gives me comfort': Exploring the benefits and challenges of autism alert cards / Chris EDWARDS in Autism, 29-3 (March 2025)  

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'Maybe we just seem like easy targets': A qualitative analysis of autistic adults' experiences of interpersonal violence / Vicki GIBBS in Autism, 27-7 (October 2023)  

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Missed opportunities: An investigation of pathways to autism diagnosis in Australia / Vicki GIBBS in Research in Autism Spectrum Disorders, 57 (January 2019)  

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'Most people have no idea what autism is': Unpacking autism disclosure using social media analysis / Chris EDWARDS in Autism, 28-5 (May 2024)  

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Perceptions of social and work functioning are related to social anxiety and executive function in autistic adults / Alix WOOLARD in Autism, 26-7 (October 2022)  

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A qualitative exploration of an autism-specific self-compassion program: The ASPAA / Chris EDWARDS in Autism, 28-6 (June 2024)  

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''Self-compassion changed my life'': The self-compassion experiences of autistic and non-autistic adults and its relationship with mental health and psychological wellbeing / Ru Ying CAI in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

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Self-compassion improves emotion regulation and mental health outcomes: A pilot study of an online self-compassion program for autistic adults / Ru Ying CAI in Autism, 28-10 (October 2024)  

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The Extent and Nature of Autistic People?s Violence Experiences During Adulthood: A Cross-sectional Study of Victimisation / Vicki GIBBS in Journal of Autism and Developmental Disorders, 53-9 (September 2023)  

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