Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand / Nicholas J. BOWDEN in Autism, 24-8 (November 2020)  

Public ISBD [article]  inAutism > 24-8 (November 2020) . - p.2213-2227 Titre : Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand Type de document : texte imprimé Auteurs : Nicholas J. BOWDEN, Auteur ; Hiran THABREW, Auteur ; Jesse KOKAUA, Auteur ; Richard AUDAS, Auteur ; Barry MILNE, Auteur ; Kirsten SMILER, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Sheree GIBB, Auteur Article en page(s) : p.2213-2227 Langues : Anglais (eng) Mots-clés : *Integrated Data Infrastructure  *autism spectrum disorder  *big data  *case identification  *mental health Index. décimale : PER Périodiques Résumé : New Zealand has few estimates of the prevalence autism spectrum disorder and no national registry or data set to identify and track cases. This hinders the ability to make informed, evidence-based decisions relating to autism spectrum disorder. In this study, we utilised linked health and non-health data to develop a method for identifying cases of autism spectrum disorder among children and young people in New Zealand. In addition, we examined rates of co-occurring mental health, neurodevelopmental and related conditions among this cohort and compared these to the general population. The method identified almost 10,000 children and young people with autism spectrum disorder in New Zealand. Co-occurring mental health or related problems were found in over 68% of this group (nearly seven times higher than the general population), and around half were identified with multiple co-occurring conditions. The most frequently identified conditions were intellectual disability, disruptive behaviours and emotional problems. We have developed a useful method for monitoring service and treatment-related trends, number and types of co-occurring conditions and examining social outcomes among individuals with autism spectrum disorder. While the method may underestimate the prevalence of autism spectrum disorder in New Zealand, it provides a significant step towards establishing a more comprehensive evidence base to inform autism spectrum disorder-related policy. En ligne : http://dx.doi.org/10.1177/1362361320939329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand [texte imprimé] / Nicholas J. BOWDEN, Auteur ; Hiran THABREW, Auteur ; Jesse KOKAUA, Auteur ; Richard AUDAS, Auteur ; Barry MILNE, Auteur ; Kirsten SMILER, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Sheree GIBB, Auteur . - p.2213-2227. Langues : Anglais (eng) in Autism > 24-8 (November 2020) . - p.2213-2227 Mots-clés : *Integrated Data Infrastructure  *autism spectrum disorder  *big data  *case identification  *mental health Index. décimale : PER Périodiques Résumé : New Zealand has few estimates of the prevalence autism spectrum disorder and no national registry or data set to identify and track cases. This hinders the ability to make informed, evidence-based decisions relating to autism spectrum disorder. In this study, we utilised linked health and non-health data to develop a method for identifying cases of autism spectrum disorder among children and young people in New Zealand. In addition, we examined rates of co-occurring mental health, neurodevelopmental and related conditions among this cohort and compared these to the general population. The method identified almost 10,000 children and young people with autism spectrum disorder in New Zealand. Co-occurring mental health or related problems were found in over 68% of this group (nearly seven times higher than the general population), and around half were identified with multiple co-occurring conditions. The most frequently identified conditions were intellectual disability, disruptive behaviours and emotional problems. We have developed a useful method for monitoring service and treatment-related trends, number and types of co-occurring conditions and examining social outcomes among individuals with autism spectrum disorder. While the method may underestimate the prevalence of autism spectrum disorder in New Zealand, it provides a significant step towards establishing a more comprehensive evidence base to inform autism spectrum disorder-related policy. En ligne : http://dx.doi.org/10.1177/1362361320939329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431

Intersections of Autism and Sexual and Gender Diversity Among Young People in New Zealand / Brodie FRASER in Autism, 30-8 (August 2026)  

Public ISBD [article]  inAutism > 30-8 (August 2026) . - p.2151-2159 Titre : Intersections of Autism and Sexual and Gender Diversity Among Young People in New Zealand Type de document : texte imprimé Auteurs : Brodie FRASER, Auteur ; Sujata SAHA, Auteur ; Mary BUCHANAN, Auteur ; Sheree GIBB, Auteur ; Ruth MONK, Auteur ; Laurie K. MCLAY, Auteur ; Phoebe Jean CAMPBELL, Auteur ; Jordan ROGERS, Auteur ; Nicholas James BOWDEN, Auteur Article en page(s) : p.2151-2159 Langues : Anglais (eng) Mots-clés : Autism  sexual and gender diversity  children  youth  New Zealand  big data Index. décimale : PER Périodiques Résumé : International research suggests there is a common intersection between Autism and sexual and gender diversity. However, there is limited data estimating the whole-of-population prevalence of this association, both abroad and in Aotearoa New Zealand (NZ). Utilising NZ’s Integrated Data Infrastructure, a research database containing linked administrative and survey data, we conducted a nationwide cohort study of those in the age range 5–24 years for whom Census 2023 records existed. From a study population of 1,266,453 young people, 1.5% were identified as Autistic. After adjustment for demographic measures, we found significantly higher rates of Autism among sexually- and gender-diverse young people than among their heterosexual and cisgender peers. This included for those identifying with a gender outside of the male/female binary (3.9%) compared to both males (2.3%; 1.7 times as high) and females (0.7%; 5.8 times as high), transgender people (4.0%) compared to cisgender people (1.5%; 2.9 times as high), and non-heterosexuals (2.2%) compared to heterosexuals (1.4%; 1.8 times as high).Lay Abstract International research suggests there is a common overlap between Autism and sexual and gender diversity (such as people who are gay, lesbian, transgender, etc). However, there is little data about this association on a whole-of-population scale. We conducted a nationwide study of young people aged 5–24 years to explore this crossover. From a study population of 1,266,453 young people, 1.5% were identified as Autistic. Looking at sexual- and gender-diversity data, we found there were significantly higher proportion of people who were Autistic among sexually and gender-diverse young people compared to their heterosexual and cisgender peers. En ligne : https://dx.doi.org/10.1177/13623613261460933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] Intersections of Autism and Sexual and Gender Diversity Among Young People in New Zealand [texte imprimé] / Brodie FRASER, Auteur ; Sujata SAHA, Auteur ; Mary BUCHANAN, Auteur ; Sheree GIBB, Auteur ; Ruth MONK, Auteur ; Laurie K. MCLAY, Auteur ; Phoebe Jean CAMPBELL, Auteur ; Jordan ROGERS, Auteur ; Nicholas James BOWDEN, Auteur . - p.2151-2159. Langues : Anglais (eng) in Autism > 30-8 (August 2026) . - p.2151-2159 Mots-clés : Autism  sexual and gender diversity  children  youth  New Zealand  big data Index. décimale : PER Périodiques Résumé : International research suggests there is a common intersection between Autism and sexual and gender diversity. However, there is limited data estimating the whole-of-population prevalence of this association, both abroad and in Aotearoa New Zealand (NZ). Utilising NZ’s Integrated Data Infrastructure, a research database containing linked administrative and survey data, we conducted a nationwide cohort study of those in the age range 5–24 years for whom Census 2023 records existed. From a study population of 1,266,453 young people, 1.5% were identified as Autistic. After adjustment for demographic measures, we found significantly higher rates of Autism among sexually- and gender-diverse young people than among their heterosexual and cisgender peers. This included for those identifying with a gender outside of the male/female binary (3.9%) compared to both males (2.3%; 1.7 times as high) and females (0.7%; 5.8 times as high), transgender people (4.0%) compared to cisgender people (1.5%; 2.9 times as high), and non-heterosexuals (2.2%) compared to heterosexuals (1.4%; 1.8 times as high).Lay Abstract International research suggests there is a common overlap between Autism and sexual and gender diversity (such as people who are gay, lesbian, transgender, etc). However, there is little data about this association on a whole-of-population scale. We conducted a nationwide study of young people aged 5–24 years to explore this crossover. From a study population of 1,266,453 young people, 1.5% were identified as Autistic. Looking at sexual- and gender-diversity data, we found there were significantly higher proportion of people who were Autistic among sexually and gender-diverse young people compared to their heterosexual and cisgender peers. En ligne : https://dx.doi.org/10.1177/13623613261460933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas J. BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie K MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2244-2253 Titre : Mortality risk among Autistic children and young people: A nationwide birth cohort study Type de document : texte imprimé Auteurs : Nicholas J. BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie K MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur Article en page(s) : p.2244-2253 Langues : (en) Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24 years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24 years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Mortality risk among Autistic children and young people: A nationwide birth cohort study [texte imprimé] / Nicholas J. BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie K MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur . - p.2244-2253. Langues : (en) in Autism > 28-9 (September 2024) . - p.2244-2253 Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24 years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24 years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

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