Development and validation of the suicidal behaviours questionnaire - autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic adults / Sarah A. CASSIDY in Molecular Autism, 12 (2021)  

Public ISBD [article]  inMolecular Autism > 12 (2021) . - 46 p. Titre : Development and validation of the suicidal behaviours questionnaire - autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; J. RODGERS, Auteur Article en page(s) : 46 p. Langues : Anglais (eng) Mots-clés : Autism spectrum conditions  Autistic traits  Measurement invariance  Measurement properties  Suicidal behaviours questionnaire  Suicidality Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic people and those with high autistic traits are at high risk of experiencing suicidality. Yet, there are no suicidality assessment tools developed or validated for these groups. METHODS: A widely used and validated suicidality assessment tool developed for the general population (SBQ-R), was adapted using feedback from autistic adults, to create the Suicidal Behaviours Questionnaire-Autism Spectrum Conditions (SBQ-ASC). The adapted tool was refined through nine interviews, and an online survey with 251 autistic adults, to establish clarity and relevance of the items. Subsequently, 308 autistic, 113 possibly autistic, and 268 non-autistic adults completed the adapted tool online, alongside self-report measures of autistic traits (AQ), camouflaging autistic traits (CAT-Q), depression (PHQ-9), anxiety (ASA-A), thwarted belongingness and perceived burdensomeness (INQ-15), lifetime non-suicidal self-injury, and the original version of the suicidality assessment tool (SBQ-R). Analyses explored the appropriateness and measurement properties of the adapted tool between the groups. RESULTS: There was evidence in support of content validity, structural validity, internal consistency, convergent and divergent validity, test-retest validity, sensitivity and specificity (for distinguishing those with or without lifetime experience of suicide attempt), and hypothesis testing of the adapted tool (SBQ-ASC) in each group. The structure of the SBQ-ASC was equivalent between autistic and possibly autistic adults, regardless of gender, or use of visual aids to help quantify abstract rating scales. LIMITATIONS: The samples involved in the development and validation of the adapted tool were largely female, and largely diagnosed as autistic in adulthood, which limits the generalisability of results to the wider autistic population. The SBQ-ASC has been developed for use in research and is not recommended to assess risk of future suicide attempts and/or self-harm. The SBQ-ASC has been designed with and for autistic and possibly autistic adults, and is not appropriate to compare to non-autistic adults given measurement differences between these groups. CONCLUSIONS: The SBQ-ASC is a brief self-report suicidality assessment tool, developed and validated with and for autistic adults, without co-occurring intellectual disability. The SBQ-ASC is appropriate for use in research to identify suicidal thoughts and behaviours in autistic and possibly autistic people, and model associations with risk and protective factors. En ligne : http://dx.doi.org/10.1186/s13229-021-00449-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459 [article] Development and validation of the suicidal behaviours questionnaire - autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic adults [Texte imprimé et/ou numérique] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; J. RODGERS, Auteur . - 46 p. Langues : Anglais (eng) in Molecular Autism > 12 (2021) . - 46 p. Mots-clés : Autism spectrum conditions  Autistic traits  Measurement invariance  Measurement properties  Suicidal behaviours questionnaire  Suicidality Index. décimale : PER Périodiques Résumé : BACKGROUND: Autistic people and those with high autistic traits are at high risk of experiencing suicidality. Yet, there are no suicidality assessment tools developed or validated for these groups. METHODS: A widely used and validated suicidality assessment tool developed for the general population (SBQ-R), was adapted using feedback from autistic adults, to create the Suicidal Behaviours Questionnaire-Autism Spectrum Conditions (SBQ-ASC). The adapted tool was refined through nine interviews, and an online survey with 251 autistic adults, to establish clarity and relevance of the items. Subsequently, 308 autistic, 113 possibly autistic, and 268 non-autistic adults completed the adapted tool online, alongside self-report measures of autistic traits (AQ), camouflaging autistic traits (CAT-Q), depression (PHQ-9), anxiety (ASA-A), thwarted belongingness and perceived burdensomeness (INQ-15), lifetime non-suicidal self-injury, and the original version of the suicidality assessment tool (SBQ-R). Analyses explored the appropriateness and measurement properties of the adapted tool between the groups. RESULTS: There was evidence in support of content validity, structural validity, internal consistency, convergent and divergent validity, test-retest validity, sensitivity and specificity (for distinguishing those with or without lifetime experience of suicide attempt), and hypothesis testing of the adapted tool (SBQ-ASC) in each group. The structure of the SBQ-ASC was equivalent between autistic and possibly autistic adults, regardless of gender, or use of visual aids to help quantify abstract rating scales. LIMITATIONS: The samples involved in the development and validation of the adapted tool were largely female, and largely diagnosed as autistic in adulthood, which limits the generalisability of results to the wider autistic population. The SBQ-ASC has been developed for use in research and is not recommended to assess risk of future suicide attempts and/or self-harm. The SBQ-ASC has been designed with and for autistic and possibly autistic adults, and is not appropriate to compare to non-autistic adults given measurement differences between these groups. CONCLUSIONS: The SBQ-ASC is a brief self-report suicidality assessment tool, developed and validated with and for autistic adults, without co-occurring intellectual disability. The SBQ-ASC is appropriate for use in research to identify suicidal thoughts and behaviours in autistic and possibly autistic people, and model associations with risk and protective factors. En ligne : http://dx.doi.org/10.1186/s13229-021-00449-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459

Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults / S. K. AU-YEUNG in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1508-1518 Titre : Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : S. K. AU-YEUNG, Auteur ; Louise BRADLEY, Auteur ; A. E. ROBERTSON, Auteur ; R. SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur Article en page(s) : p.1508-1518 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  diagnosis  mixed methods  prevalence  psychiatric comorbidity  qualitative research Index. décimale : PER Périodiques Résumé : Previous research shows that autistic people have high levels of co-occurring mental health conditions. Yet, a number of case reports have revealed that mental health conditions are often misdiagnosed in autistic individuals. A total of 420 adults who identified as autistic, possibly autistic or non-autistic completed an online survey consisting of questions regarding mental health diagnoses they received, whether they agreed with those diagnoses and if not why. Autistic and possibly autistic participants were more likely to report receiving mental health diagnoses compared to non-autistic participants, but were less likely to agree with those diagnoses. Thematic analysis revealed the participants' main reasons for disagreement were that (1) they felt their autism characteristics were being confused with mental health conditions by healthcare professionals and (2) they perceived their own mental health difficulties to be resultant of ASC. Participants attributed these to the clinical barriers they experienced, including healthcare professionals' lack of autism awareness and lack of communication, which in turn prevented them from receiving appropriate support. This study highlights the need for autism awareness training for healthcare professionals and the need to develop tools and interventions to accurately diagnose and effectively treat mental health conditions in autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361318818167 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults [Texte imprimé et/ou numérique] / S. K. AU-YEUNG, Auteur ; Louise BRADLEY, Auteur ; A. E. ROBERTSON, Auteur ; R. SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur . - p.1508-1518. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1508-1518 Mots-clés : adults  autism spectrum disorders  diagnosis  mixed methods  prevalence  psychiatric comorbidity  qualitative research Index. décimale : PER Périodiques Résumé : Previous research shows that autistic people have high levels of co-occurring mental health conditions. Yet, a number of case reports have revealed that mental health conditions are often misdiagnosed in autistic individuals. A total of 420 adults who identified as autistic, possibly autistic or non-autistic completed an online survey consisting of questions regarding mental health diagnoses they received, whether they agreed with those diagnoses and if not why. Autistic and possibly autistic participants were more likely to report receiving mental health diagnoses compared to non-autistic participants, but were less likely to agree with those diagnoses. Thematic analysis revealed the participants' main reasons for disagreement were that (1) they felt their autism characteristics were being confused with mental health conditions by healthcare professionals and (2) they perceived their own mental health difficulties to be resultant of ASC. Participants attributed these to the clinical barriers they experienced, including healthcare professionals' lack of autism awareness and lack of communication, which in turn prevented them from receiving appropriate support. This study highlights the need for autism awareness training for healthcare professionals and the need to develop tools and interventions to accurately diagnose and effectively treat mental health conditions in autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361318818167 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults / Sarah A. CASSIDY in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Titre : Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.3477-3488 Langues : Anglais (eng) Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n?=?15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults [Texte imprimé et/ou numérique] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur . - p.3477-3488. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n?=?15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review / Sarah A. CASSIDY in Autism Research, 11-5 (May 2018)  

Public ISBD [article]  inAutism Research > 11-5 (May 2018) . - p.738-754 Titre : Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; E. BOWEN, Auteur ; S. WIGHAM, Auteur ; J. RODGERS, Auteur Article en page(s) : p.738-754 Langues : Anglais (eng) Mots-clés : autism spectrum condition  general population  Asperger syndrome  depression  measurement properties  assessment  systematic review  COSMIN Index. décimale : PER Périodiques Résumé : Depression is the most commonly experienced mental health condition in adults with autism spectrum conditions (ASC). However, it is unclear what tools are currently being used to assess depression in ASC, or whether tools need to be adapted for this group. This systematic review therefore aimed to identify tools used to assess depression in adults with and without ASC, and then evaluate these tools for their appropriateness and measurement properties. Medline, PsychINFO and Web of Knowledge were searched for studies of depression in: (a) adults with ASC, without co?morbid intellectual disability; and (b) adults from the general population without co?morbid conditions. Articles examining the measurement properties of these tools were then searched for using a methodological filter in PubMed, and the quality of the evidence was evaluated using the COSMIN checklist. Twelve articles were identified which utilized three tools to assess depression in adults with ASC, but only one article which assessed the measurement properties of one of these tools was identified and thus evaluated. Sixty?four articles were identified which utilized five tools to assess depression in general population adults, and fourteen articles had assessed the measurement properties of these tools. Overall, two tools were found to be robust in their measurement properties in the general population?the Beck Depression Inventory (BDI?II), and the patient health questionnaire (PHQ?9). Crucially only one study was identified from the COSMIN search, which showed weak evidence in support of the measurement properties of the BDI?II in an ASC sample. Implications for effective measurement of depression in ASC are discussed. Autism Res 2018, 11: 738?754. ? 2018 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay Summary Depression is the most common mental health problem experienced by adults with autism. However, the current study found very limited evidence regarding how useful tools developed for the general population are for adults with autism. We therefore suggest how these tools could be adapted to more effectively assess depression in adults with autism, and improve these individuals access to mental health assessment and support. En ligne : https://doi.org/10.1002/aur.1922 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363 [article] Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review [Texte imprimé et/ou numérique] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; E. BOWEN, Auteur ; S. WIGHAM, Auteur ; J. RODGERS, Auteur . - p.738-754. Langues : Anglais (eng) in Autism Research > 11-5 (May 2018) . - p.738-754 Mots-clés : autism spectrum condition  general population  Asperger syndrome  depression  measurement properties  assessment  systematic review  COSMIN Index. décimale : PER Périodiques Résumé : Depression is the most commonly experienced mental health condition in adults with autism spectrum conditions (ASC). However, it is unclear what tools are currently being used to assess depression in ASC, or whether tools need to be adapted for this group. This systematic review therefore aimed to identify tools used to assess depression in adults with and without ASC, and then evaluate these tools for their appropriateness and measurement properties. Medline, PsychINFO and Web of Knowledge were searched for studies of depression in: (a) adults with ASC, without co?morbid intellectual disability; and (b) adults from the general population without co?morbid conditions. Articles examining the measurement properties of these tools were then searched for using a methodological filter in PubMed, and the quality of the evidence was evaluated using the COSMIN checklist. Twelve articles were identified which utilized three tools to assess depression in adults with ASC, but only one article which assessed the measurement properties of one of these tools was identified and thus evaluated. Sixty?four articles were identified which utilized five tools to assess depression in general population adults, and fourteen articles had assessed the measurement properties of these tools. Overall, two tools were found to be robust in their measurement properties in the general population?the Beck Depression Inventory (BDI?II), and the patient health questionnaire (PHQ?9). Crucially only one study was identified from the COSMIN search, which showed weak evidence in support of the measurement properties of the BDI?II in an ASC sample. Implications for effective measurement of depression in ASC are discussed. Autism Res 2018, 11: 738?754. ? 2018 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay Summary Depression is the most common mental health problem experienced by adults with autism. However, the current study found very limited evidence regarding how useful tools developed for the general population are for adults with autism. We therefore suggest how these tools could be adapted to more effectively assess depression in adults with autism, and improve these individuals access to mental health assessment and support. En ligne : https://doi.org/10.1002/aur.1922 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363

'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality / L. CAMM-CROSBIE in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1431-1441 Titre : 'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality Type de document : Texte imprimé et/ou numérique Auteurs : L. CAMM-CROSBIE, Auteur ; Louise BRADLEY, Auteur ; R. SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur Article en page(s) : p.1431-1441 Langues : Anglais (eng) Mots-clés : Autism spectrum condition  mental health  self-injury  suicide  support  treatment Index. décimale : PER Périodiques Résumé : Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services. En ligne : http://dx.doi.org/10.1177/1362361318816053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] 'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality [Texte imprimé et/ou numérique] / L. CAMM-CROSBIE, Auteur ; Louise BRADLEY, Auteur ; R. SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur . - p.1431-1441. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1431-1441 Mots-clés : Autism spectrum condition  mental health  self-injury  suicide  support  treatment Index. décimale : PER Périodiques Résumé : Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services. En ligne : http://dx.doi.org/10.1177/1362361318816053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Risk markers for suicidality in autistic adults / Sarah A. CASSIDY in Molecular Autism, 9 (2018)  

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