"For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women / Janina BREDE in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Titre : "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women Type de document : texte imprimé Auteurs : Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; William MANDY, Auteur Article en page(s) : p.4280-4296 Langues : Anglais (eng) Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women [texte imprimé] / Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; William MANDY, Auteur . - p.4280-4296. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : texte imprimé Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; William MANDY, Auteur ; John FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [texte imprimé] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; William MANDY, Auteur ; John FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : texte imprimé Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; William MANDY, Auteur ; John FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [texte imprimé] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R.G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; William MANDY, Auteur ; John FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

A meta-ethnography of autistic people?s experiences of social camouflaging and its relationship with mental health / Sarah L. FIELD in Autism, 28-6 (June 2024)  

Public ISBD [article]  inAutism > 28-6 (June 2024) . - p.1328-1343 Titre : A meta-ethnography of autistic people?s experiences of social camouflaging and its relationship with mental health Type de document : texte imprimé Auteurs : Sarah L. FIELD, Auteur ; Marc O. WILLIAMS, Auteur ; Catherine R.G. JONES, Auteur ; John FOX, Auteur Article en page(s) : p.1328-1343 Langues : Anglais (eng) Mots-clés : autism  mental health  meta-ethnography  social camouflaging  systematic review Index. décimale : PER Périodiques Résumé : Some autistic people use strategies to hide autistic behaviour and appear more neurotypical. Previous research has linked this 'social camouflaging' with mental health difficulties. This review synthesised qualitative research to explore the relationship between camouflaging and mental health. Thirteen studies were systematically identified, appraised and synthesised using meta-ethnography. Four third-order concepts were developed, describing camouflaging as an attempt to cope with stressful social contexts which impact mental health. Many autistic people experienced unintended negative consequences of their camouflaging that increased stress. Potential mechanisms for the relationship between camouflaging and mental health related to the qualities of the strategies that were used. Camouflaging strategies that were superficially 'successful' involved high levels of self-monitoring, were highly cognitively demanding or highly habitual and appeared more linked to poor mental health. This should be investigated in future research and has potential implications for how clinicians support autistic people with mental health difficulties. Lay Abstract Some autistic people describe trying to hide autistic behaviour and seem more neurotypical. Researchers called this 'social camouflaging' and have linked it with mental health difficulties. We used a step-by-step approach to identify research where autistic people talk about social camouflaging to explore the relationship between camouflaging and poor mental health. Thirteen studies were combined. The results describe how society negatively impacts autistic people?s mental health, and camouflaging is a way to try and cope with this. Many autistic people find their camouflaging strategies have accidental negative consequences which also affect their mental health. Strategies which seemed 'successful' involved a lot of self-monitoring, were very mentally demanding or were very habitual and seemed to have more of an effect on mental health. This might be important for clinicians who support autistic people with mental health difficulties. En ligne : https://dx.doi.org/10.1177/13623613231223036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] A meta-ethnography of autistic people?s experiences of social camouflaging and its relationship with mental health [texte imprimé] / Sarah L. FIELD, Auteur ; Marc O. WILLIAMS, Auteur ; Catherine R.G. JONES, Auteur ; John FOX, Auteur . - p.1328-1343. Langues : Anglais (eng) in Autism > 28-6 (June 2024) . - p.1328-1343 Mots-clés : autism  mental health  meta-ethnography  social camouflaging  systematic review Index. décimale : PER Périodiques Résumé : Some autistic people use strategies to hide autistic behaviour and appear more neurotypical. Previous research has linked this 'social camouflaging' with mental health difficulties. This review synthesised qualitative research to explore the relationship between camouflaging and mental health. Thirteen studies were systematically identified, appraised and synthesised using meta-ethnography. Four third-order concepts were developed, describing camouflaging as an attempt to cope with stressful social contexts which impact mental health. Many autistic people experienced unintended negative consequences of their camouflaging that increased stress. Potential mechanisms for the relationship between camouflaging and mental health related to the qualities of the strategies that were used. Camouflaging strategies that were superficially 'successful' involved high levels of self-monitoring, were highly cognitively demanding or highly habitual and appeared more linked to poor mental health. This should be investigated in future research and has potential implications for how clinicians support autistic people with mental health difficulties. Lay Abstract Some autistic people describe trying to hide autistic behaviour and seem more neurotypical. Researchers called this 'social camouflaging' and have linked it with mental health difficulties. We used a step-by-step approach to identify research where autistic people talk about social camouflaging to explore the relationship between camouflaging and poor mental health. Thirteen studies were combined. The results describe how society negatively impacts autistic people?s mental health, and camouflaging is a way to try and cope with this. Many autistic people find their camouflaging strategies have accidental negative consequences which also affect their mental health. Strategies which seemed 'successful' involved a lot of self-monitoring, were very mentally demanding or were very habitual and seemed to have more of an effect on mental health. This might be important for clinicians who support autistic people with mental health difficulties. En ligne : https://dx.doi.org/10.1177/13623613231223036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

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