20 recherche sur le mot-clé 'conflicts of interest with respect to the research, authorship, and/or'

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1335-1348 Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1335-1348 Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1335-1348 Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1335-1348 Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [Texte imprimé et/ou numérique] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [Texte imprimé et/ou numérique] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

'No idea of time': Parents report differences in autistic children's behaviour relating to time in a mixed-methods study / Daniel POOLE in Autism, 26-6 (August 2022)  

Public ISBD [article]  inAutism > 26-6 (August 2022) . - p.1797-1808 Titre : 'No idea of time': Parents report differences in autistic children's behaviour relating to time in a mixed-methods study Type de document : Texte imprimé et/ou numérique Auteurs : Daniel POOLE, Auteur ; Emma GOWEN, Auteur ; Ellen POLIAKOFF, Auteur ; Luke A. JONES, Auteur Article en page(s) : p.1797-1808 Langues : Anglais (eng) Mots-clés : Anxiety  Autism Spectrum Disorder  Autistic Disorder  Child  Humans  Parents  Surveys and Questionnaires  autism  questionnaire  temporal cognition  thematic analysis  time perception  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Many everyday activities require us to organise our behaviours with respect to time. There is some evidence that autistic children have problems with how they perceive and understand time. However, little is currently known about this, or the ways in which behaviours related to time are impacted in daily life. In this study, 113 parents of autistic children and 201 parents of neurotypical children completed a questionnaire and open-ended questions about their child's behaviour relating to time. Questionnaire scores were lower in the autistic group compared with neurotypicals, which suggests that behaviours relating to time are affected in autistic children. The open-ended responses further confirmed that the autistic children struggled with time and that this impacted on them and their family. Three key themes were identified. Theme 1: autistic children have problems with learning about concepts relating to time such as telling the time from a clock and using words to describe time (hours, minutes, etc.) appropriately. Theme 2: autistic children think about the future differently. Planning and working under time pressure were described as a problem. Theme 3: autistic children have strong interests which take up a lot of their attention and worrying about having sufficient time to pursue these interests causes anxiety. This research indicates that behaviours related to time can have a considerable impact on the lives of autistic children and that targeted support may be required. En ligne : http://dx.doi.org/10.1177/13623613211010014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] 'No idea of time': Parents report differences in autistic children's behaviour relating to time in a mixed-methods study [Texte imprimé et/ou numérique] / Daniel POOLE, Auteur ; Emma GOWEN, Auteur ; Ellen POLIAKOFF, Auteur ; Luke A. JONES, Auteur . - p.1797-1808. Langues : Anglais (eng) in Autism > 26-6 (August 2022) . - p.1797-1808 Mots-clés : Anxiety  Autism Spectrum Disorder  Autistic Disorder  Child  Humans  Parents  Surveys and Questionnaires  autism  questionnaire  temporal cognition  thematic analysis  time perception  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Many everyday activities require us to organise our behaviours with respect to time. There is some evidence that autistic children have problems with how they perceive and understand time. However, little is currently known about this, or the ways in which behaviours related to time are impacted in daily life. In this study, 113 parents of autistic children and 201 parents of neurotypical children completed a questionnaire and open-ended questions about their child's behaviour relating to time. Questionnaire scores were lower in the autistic group compared with neurotypicals, which suggests that behaviours relating to time are affected in autistic children. The open-ended responses further confirmed that the autistic children struggled with time and that this impacted on them and their family. Three key themes were identified. Theme 1: autistic children have problems with learning about concepts relating to time such as telling the time from a clock and using words to describe time (hours, minutes, etc.) appropriately. Theme 2: autistic children think about the future differently. Planning and working under time pressure were described as a problem. Theme 3: autistic children have strong interests which take up a lot of their attention and worrying about having sufficient time to pursue these interests causes anxiety. This research indicates that behaviours related to time can have a considerable impact on the lives of autistic children and that targeted support may be required. En ligne : http://dx.doi.org/10.1177/13623613211010014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Peer preferences and characteristics of same-group and cross-group social interactions among autistic and non-autistic adolescents / Yu-Lun CHEN in Autism, 26-7 (October 2022)  

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A balancing act: An interpretive description of healthcare providers' and families' perspective on the surgical experiences of children with autism spectrum disorder / Stephanie L. SNOW in Autism, 26-4 (May 2022)  

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A systematic review of person-centred adjustments to facilitate magnetic resonance imaging for autistic patients without the use of sedation or anaesthesia / Nikolaos STOGIANNOS in Autism, 26-4 (May 2022)  

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Demographic and psychological predictors of alcohol use and misuse in autistic adults / Maya BOWRI in Autism, 25-5 (July 2021)  

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Demographic and psychological predictors of alcohol use and misuse in autistic adults / Maya BOWRI in Autism, 26-5 (July 2022)  

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