Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort / L. C. WHITE in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Titre : Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort Type de document : Texte imprimé et/ou numérique Auteurs : L. C. WHITE, Auteur ; J. K. LAW, Auteur ; Amy M. DANIELS, Auteur ; J. TORONEY, Auteur ; B. VERNOIA, Auteur ; S. XIAO, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur Article en page(s) : p.3766-3773 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort [Texte imprimé et/ou numérique] / L. C. WHITE, Auteur ; J. K. LAW, Auteur ; Amy M. DANIELS, Auteur ; J. TORONEY, Auteur ; B. VERNOIA, Auteur ; S. XIAO, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur . - p.3766-3773. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

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