Comparing Fathers' and Mothers' Perspectives About Their Child's Autism Spectrum Disorder / Stacey C. GREBE in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1841-1854 Titre : Comparing Fathers' and Mothers' Perspectives About Their Child's Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Stacey C. GREBE, Auteur ; Sarah S. MIRE, Auteur ; Hanjoe KIM, Auteur ; Milena A. KELLER-MARGULIS, Auteur Article en page(s) : p.1841-1854 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Fathers  Female  Humans  Male  Mothers  Parents  Autism  Coping style  Parental stress  Perception of disability  Support style Index. décimale : PER Périodiques Résumé : Mothers are often the primary parent participants in autism spectrum disorder (ASD) research. As a result, little is known about fathers' perceptions regarding their children's ASD and whether these perceptions differ from mothers'. Given the limited information available regarding fathers' perceptions about their children's ASD, this study aimed to investigate father variables (stress, coping, support, and perception of disability) and how they compare to mothers'. Participants were 361 biological parents (294 mothers and 67 fathers) of children on the autism spectrum who participated in a larger study. Results revealed significant differences between mothers' and fathers' self-reported stress and coping. Understanding differences between parents' perspectives has both research and clinical implications for working with families raising children on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05077-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Comparing Fathers' and Mothers' Perspectives About Their Child's Autism Spectrum Disorder [texte imprimé] / Stacey C. GREBE, Auteur ; Sarah S. MIRE, Auteur ; Hanjoe KIM, Auteur ; Milena A. KELLER-MARGULIS, Auteur . - p.1841-1854. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1841-1854 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Fathers  Female  Humans  Male  Mothers  Parents  Autism  Coping style  Parental stress  Perception of disability  Support style Index. décimale : PER Périodiques Résumé : Mothers are often the primary parent participants in autism spectrum disorder (ASD) research. As a result, little is known about fathers' perceptions regarding their children's ASD and whether these perceptions differ from mothers'. Given the limited information available regarding fathers' perceptions about their children's ASD, this study aimed to investigate father variables (stress, coping, support, and perception of disability) and how they compare to mothers'. Participants were 361 biological parents (294 mothers and 67 fathers) of children on the autism spectrum who participated in a larger study. Results revealed significant differences between mothers' and fathers' self-reported stress and coping. Understanding differences between parents' perspectives has both research and clinical implications for working with families raising children on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05077-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam / Dieu M. TRUONG in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.997-1010 Titre : A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam Type de document : texte imprimé Auteurs : Dieu M. TRUONG, Auteur ; Sarah S. MIRE, Auteur ; Susan X. DAY, Auteur ; Lan NI, Auteur ; Milena A. KELLER-MARGULIS, Auteur Article en page(s) : p.997-1010 Langues : Anglais (eng) Mots-clés : autism,cross-cultural comparison,parent perceptions,Vietnam Index. décimale : PER Périodiques Résumé : Most current autism research focuses on Western countries, where service availability and cultural experiences differ from those of individuals living in Asian countries, where collectivistic cultural values prevail and understanding of autism is emerging. By gathering data from Vietnamese parents of autistic children (N=339), the current measurement study examined measure variance and invariance between the English version of the Illness Perception Questionnaire- Revised for Autism Spectrum Disorder (IPQ-R-ASD) and a Vietnamese translation of it, at the item, scalar, and factor levels. Results indicated measurement variance for only three of 37 items and highlighted different perceptions of autism between Vietnamese and North American parents, based on responses to the IPQ-R-ASD. Responses indicated that Vietnamese parents may have a different interpretation of the questions. Seven factors emerged on both the Vietnamese and English instruments, but items loaded differently, and a distinct factor emerged on the Vietnamese version. In sum, the current findings suggest that the IPQ-R-ASD can be useful for better understanding Vietnamese parents' perceptions of their children s autism, but the interpretation is somewhat different than on the English version, highlighting the importance of cross-cultural considerations in the study of autism in Western versus Eastern cultures.Lay abstractRaising an autistic child can affect many aspects of families' lives. Parents are responsible for many decisions, from initiating evaluation to selecting and implementing treatments. How parents conceptualize the course and nature of their child?s diagnosis influences these processes and parents' own well-being. Parents' perceptions about their children s autism are also affected by cultural contexts and understanding of autism. The Illness Perception Questionnaire-Revised (IPQ-R) is widely used to study cognitions in chronic health research and has been adapted and validated to measure parents' perceptions and beliefs about their children s ASD (IPQ-R-ASD). However, such studies are mostly conducted in high-income countries (HICs) with western, individualistic cultural values (e.g. United States, Canada). Therefore, it is unclear whether the IPQ-R-ASD is a useful instrument in understanding parents' perceptions of autism in Vietnam, a lower- and middle-income country (LMIC) with collectivistic Asian cultural values. These differences suggest that parents in Vietnam may have cognitive representations of their children s autism that differ from those of parents living in HIC, western countries. The purpose of this study was to examine the usability of the translated Vietnamese IPQ-R-ASD that may, ultimately, help explore Vietnamese parents' autism perceptions. While the study?s result indicated the usability of the translated measure in Vietnam, when interpreted with Vietnamese norms, results also highlighted notable differences between Vietnamese and North American parents' perceptions of autism that warrant further research. En ligne : https://doi.org/10.1177/13623613221141262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam [texte imprimé] / Dieu M. TRUONG, Auteur ; Sarah S. MIRE, Auteur ; Susan X. DAY, Auteur ; Lan NI, Auteur ; Milena A. KELLER-MARGULIS, Auteur . - p.997-1010. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.997-1010 Mots-clés : autism,cross-cultural comparison,parent perceptions,Vietnam Index. décimale : PER Périodiques Résumé : Most current autism research focuses on Western countries, where service availability and cultural experiences differ from those of individuals living in Asian countries, where collectivistic cultural values prevail and understanding of autism is emerging. By gathering data from Vietnamese parents of autistic children (N=339), the current measurement study examined measure variance and invariance between the English version of the Illness Perception Questionnaire- Revised for Autism Spectrum Disorder (IPQ-R-ASD) and a Vietnamese translation of it, at the item, scalar, and factor levels. Results indicated measurement variance for only three of 37 items and highlighted different perceptions of autism between Vietnamese and North American parents, based on responses to the IPQ-R-ASD. Responses indicated that Vietnamese parents may have a different interpretation of the questions. Seven factors emerged on both the Vietnamese and English instruments, but items loaded differently, and a distinct factor emerged on the Vietnamese version. In sum, the current findings suggest that the IPQ-R-ASD can be useful for better understanding Vietnamese parents' perceptions of their children s autism, but the interpretation is somewhat different than on the English version, highlighting the importance of cross-cultural considerations in the study of autism in Western versus Eastern cultures.Lay abstractRaising an autistic child can affect many aspects of families' lives. Parents are responsible for many decisions, from initiating evaluation to selecting and implementing treatments. How parents conceptualize the course and nature of their child?s diagnosis influences these processes and parents' own well-being. Parents' perceptions about their children s autism are also affected by cultural contexts and understanding of autism. The Illness Perception Questionnaire-Revised (IPQ-R) is widely used to study cognitions in chronic health research and has been adapted and validated to measure parents' perceptions and beliefs about their children s ASD (IPQ-R-ASD). However, such studies are mostly conducted in high-income countries (HICs) with western, individualistic cultural values (e.g. United States, Canada). Therefore, it is unclear whether the IPQ-R-ASD is a useful instrument in understanding parents' perceptions of autism in Vietnam, a lower- and middle-income country (LMIC) with collectivistic Asian cultural values. These differences suggest that parents in Vietnam may have cognitive representations of their children s autism that differ from those of parents living in HIC, western countries. The purpose of this study was to examine the usability of the translated Vietnamese IPQ-R-ASD that may, ultimately, help explore Vietnamese parents' autism perceptions. While the study?s result indicated the usability of the translated measure in Vietnam, when interpreted with Vietnamese norms, results also highlighted notable differences between Vietnamese and North American parents' perceptions of autism that warrant further research. En ligne : https://doi.org/10.1177/13623613221141262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis / Christie M. BREWTON in Research in Autism Spectrum Disorders, 87 (September 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 87 (September 2021) . - 101825 Titre : Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis Type de document : texte imprimé Auteurs : Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur Article en page(s) : 101825 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parental perceptions  Etiology  IPQ-R-ASD  Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis [texte imprimé] / Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur . - 101825. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 87 (September 2021) . - 101825 Mots-clés : Autism spectrum disorder  Parental perceptions  Etiology  IPQ-R-ASD  Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

School Readiness for Children With Autism Spectrum Disorder: Critical Gaps and Call for Research / Amy K. IZUNO-GARCIA in Focus on Autism and Other Developmental Disabilities, 37-1 (March 2022)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 37-1 (March 2022) . - 46-55 Titre : School Readiness for Children With Autism Spectrum Disorder: Critical Gaps and Call for Research Type de document : texte imprimé Auteurs : Amy K. IZUNO-GARCIA, Auteur ; Emily R. JELLINEK, Auteur ; Georgina ROSENBROCK, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Sarah S. MIRE, Auteur Article en page(s) : 46-55 Langues : Anglais (eng) Mots-clés : school readiness  autism spectrum disorder  Office of Head Start Index. décimale : PER Périodiques Résumé : Students who enter kindergarten without school readiness skills are more likely to demonstrate academic, behavioral, and social struggles during school. Children with autism spectrum disorder (ASD) are particularly at risk for underdeveloped school readiness skills, which can undermine academic achievement and result in poor long-term outcomes. The purpose of this article is to synthesize literature that aligns with a widely used Office of Head Start’s model of school readiness, applied to children with ASD, and to present critical gaps in research and opportunities for practice that may improve school readiness in this population. Research in this area may ultimately help to enhance service delivery that improves preparation for school and, therefore, later academic and long-term life outcomes for students with ASD. En ligne : http://dx.doi.org/10.1177/10883576211028206 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460 [article] School Readiness for Children With Autism Spectrum Disorder: Critical Gaps and Call for Research [texte imprimé] / Amy K. IZUNO-GARCIA, Auteur ; Emily R. JELLINEK, Auteur ; Georgina ROSENBROCK, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Sarah S. MIRE, Auteur . - 46-55. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 37-1 (March 2022) . - 46-55 Mots-clés : school readiness  autism spectrum disorder  Office of Head Start Index. décimale : PER Périodiques Résumé : Students who enter kindergarten without school readiness skills are more likely to demonstrate academic, behavioral, and social struggles during school. Children with autism spectrum disorder (ASD) are particularly at risk for underdeveloped school readiness skills, which can undermine academic achievement and result in poor long-term outcomes. The purpose of this article is to synthesize literature that aligns with a widely used Office of Head Start’s model of school readiness, applied to children with ASD, and to present critical gaps in research and opportunities for practice that may improve school readiness in this population. Research in this area may ultimately help to enhance service delivery that improves preparation for school and, therefore, later academic and long-term life outcomes for students with ASD. En ligne : http://dx.doi.org/10.1177/10883576211028206 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460

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