Family Impact During the Time Between Autism Screening and Definitive Diagnosis / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920 Titre : Family Impact During the Time Between Autism Screening and Definitive Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.4908-4920 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Autistic Disorder  Child  Child Behavior  Family  Humans  Parents  Autism Spectrum Disorder  Autism risk  Child functioning  Developmental disability  Difficult child behavior  Family impact Index. décimale : PER Périodiques Résumé : Over the past 10 years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=- 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Family Impact During the Time Between Autism Screening and Definitive Diagnosis [Texte imprimé et/ou numérique] / Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.4908-4920. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920 Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Autistic Disorder  Child  Child Behavior  Family  Humans  Parents  Autism Spectrum Disorder  Autism risk  Child functioning  Developmental disability  Difficult child behavior  Family impact Index. décimale : PER Périodiques Résumé : Over the past 10 years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=- 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 26-6 (August 2022)  

Public ISBD [article]  inAutism > 26-6 (August 2022) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 26-6 (August 2022) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Parental Depression Symptoms and Internalizing Mental Health Problems in Autistic Children / Brianna PIRO-GAMBETTI ; Jessica Greenlee ; Emily J. HICKEY ; Jennifer M. Putney ; Emily LORANG ; Sigan L. HARTLEY in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2373-2383 Titre : Parental Depression Symptoms and Internalizing Mental Health Problems in Autistic Children : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Brianna PIRO-GAMBETTI, Auteur ; Jessica Greenlee, Auteur ; Emily J. HICKEY, Auteur ; Jennifer M. Putney, Auteur ; Emily LORANG, Auteur ; Sigan L. HARTLEY, Auteur Article en page(s) : p.2373-2383 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic youth are at risk for internalizing mental health problems such as depression and anxiety. Similarly, parents of autistic youth report higher levels of depression than parents of typically developing children. The goal of this study was to examine bidirectional associations between parent depression symptoms and the internalizing problems of autistic youth in 188 families across four time points (T1-T4; spaced 12 months apart). A cross-lagged panel model revealed that mother (T1 and T2) and father (T1) depression symptoms positively predicted the youth?s internalizing problems 12 months later. The youth?s internalizing problems at T3 positively predicted maternal depression symptoms at T4. Future research should explore genetic and environmental pathways that link parent depression and internalizing problems in autistic youth. En ligne : https://doi.org/10.1007/s10803-022-05518-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506 [article] Parental Depression Symptoms and Internalizing Mental Health Problems in Autistic Children : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Brianna PIRO-GAMBETTI, Auteur ; Jessica Greenlee, Auteur ; Emily J. HICKEY, Auteur ; Jennifer M. Putney, Auteur ; Emily LORANG, Auteur ; Sigan L. HARTLEY, Auteur . - p.2373-2383. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2373-2383 Index. décimale : PER Périodiques Résumé : Autistic youth are at risk for internalizing mental health problems such as depression and anxiety. Similarly, parents of autistic youth report higher levels of depression than parents of typically developing children. The goal of this study was to examine bidirectional associations between parent depression symptoms and the internalizing problems of autistic youth in 188 families across four time points (T1-T4; spaced 12 months apart). A cross-lagged panel model revealed that mother (T1 and T2) and father (T1) depression symptoms positively predicted the youth?s internalizing problems 12 months later. The youth?s internalizing problems at T3 positively predicted maternal depression symptoms at T4. Future research should explore genetic and environmental pathways that link parent depression and internalizing problems in autistic youth. En ligne : https://doi.org/10.1007/s10803-022-05518-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506

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