An exploratory study of resilience to stressful life events in autistic children / Jennifer M. PUTNEY ; Emily J. HICKEY ; Marcia A. WINTER ; Sigan L. HARTLEY in Research in Autism Spectrum Disorders, 114 (June 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 114 (June 2024) . - p.102371 Titre : An exploratory study of resilience to stressful life events in autistic children Type de document : texte imprimé Auteurs : Jennifer M. PUTNEY, Auteur ; Emily J. HICKEY, Auteur ; Marcia A. WINTER, Auteur ; Sigan L. HARTLEY, Auteur Année de publication : 2024 Article en page(s) : p.102371 Langues : Anglais (eng) Mots-clés : Autism  Resilience  Mental health  Stressful life events  Stress Index. décimale : PER Périodiques Résumé : Background Autistic children experience more stressful life events (SLEs) than their neurotypical peers, which are related to poor mental health outcomes in both neurotypical and autistic individuals. However, there is a lack of longitudinal research assessing the perceived impact of stressful life events on autistic children s mental health. Method Utilizing a novel statistical technique (Ratcliff et al., 2019), called 'area of resilience to stress events' or ARSE in R, we aimed to quantify aspects of resilience, growth, and non-resilience for 67 autistic children (6-13 years old) enrolled in a larger longitudinal study who experienced a SLE. Parents reported demographic information (e.g., child age, biological sex, household income) as well as the child?s internalizing and externalizing symptoms and autism characteristics across multiple time points spaced one year apart (baseline, T2, T3, T4). Results There was substantial variability in the resilience process within the sample. Older children exhibited a less adaptive resilience process (i.e., higher total scaled scores or arsets). Perceived stress of the disruptive event was not correlated with resilience; however, there was a significant child age x stress severity interaction, suggesting that younger children in households that perceived the disruptive event as highly stressful exhibited more efficient resilience, or lower arsets scores, compared to other children. Conclusions This study introduces an innovative methodological approach to understanding the effects of stressful life events on the mental health of autistic children. Results have implications for family-based policy and practice and highlight for whom services may be most beneficial. En ligne : https://doi.org/10.1016/j.rasd.2024.102371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] An exploratory study of resilience to stressful life events in autistic children [texte imprimé] / Jennifer M. PUTNEY, Auteur ; Emily J. HICKEY, Auteur ; Marcia A. WINTER, Auteur ; Sigan L. HARTLEY, Auteur . - 2024 . - p.102371. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 114 (June 2024) . - p.102371 Mots-clés : Autism  Resilience  Mental health  Stressful life events  Stress Index. décimale : PER Périodiques Résumé : Background Autistic children experience more stressful life events (SLEs) than their neurotypical peers, which are related to poor mental health outcomes in both neurotypical and autistic individuals. However, there is a lack of longitudinal research assessing the perceived impact of stressful life events on autistic children s mental health. Method Utilizing a novel statistical technique (Ratcliff et al., 2019), called 'area of resilience to stress events' or ARSE in R, we aimed to quantify aspects of resilience, growth, and non-resilience for 67 autistic children (6-13 years old) enrolled in a larger longitudinal study who experienced a SLE. Parents reported demographic information (e.g., child age, biological sex, household income) as well as the child?s internalizing and externalizing symptoms and autism characteristics across multiple time points spaced one year apart (baseline, T2, T3, T4). Results There was substantial variability in the resilience process within the sample. Older children exhibited a less adaptive resilience process (i.e., higher total scaled scores or arsets). Perceived stress of the disruptive event was not correlated with resilience; however, there was a significant child age x stress severity interaction, suggesting that younger children in households that perceived the disruptive event as highly stressful exhibited more efficient resilience, or lower arsets scores, compared to other children. Conclusions This study introduces an innovative methodological approach to understanding the effects of stressful life events on the mental health of autistic children. Results have implications for family-based policy and practice and highlight for whom services may be most beneficial. En ligne : https://doi.org/10.1016/j.rasd.2024.102371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

Broader autism phenotype and couple interactions in parents of children with autism / Sigan L. HARTLEY in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2068-2079 Titre : Broader autism phenotype and couple interactions in parents of children with autism Type de document : texte imprimé Auteurs : Sigan L. HARTLEY, Auteur ; Emily J. HICKEY, Auteur ; Leann S. DAWALT, Auteur ; Geovanna RODRIGUEZ, Auteur Article en page(s) : p.2068-2079 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  broader autism phenotype  couple  family functioning and support  marital Index. décimale : PER Périodiques Résumé : The broader autism phenotype refers to sub-clinical autism spectrum disorder characteristics involving socially and emotionally aloof and rigid personality traits and social communication difficulties. Relatives of individuals with autism spectrum disorder, including parents, evidence an increased rate of broader autism phenotype. The goal of this study was to evaluate the association between actor (one's own) and partner (their partner's) broader autism phenotype and the self-reported, observed, and physiological (i.e. electrodermal reactivity) markers of the quality of videotaped couple problem-solving interactions in 158 couples, who had a child with autism spectrum disorder (aged 5-12 years). The mean age of mothers was 39.79 (standard deviation = 5.06) years and the mean age of fathers was 41.77 (standard deviation = 6.02) years for fathers, and 36.6% of parents did not have a college degree. Actor-partner interdependence models, using structural equation modeling in analysis of moment structures, were conducted. Results indicated that parent broader autism phenotype was positively related to adverse couple problem-solving interactions across all measurement methods (observed codes, self-reported affect, and electrodermal reactivity). These effects were independent of child-related challenges. The effect of parent broader autism phenotype occurred through both actor and partner pathways and was strongest for father broader autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361319841312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Broader autism phenotype and couple interactions in parents of children with autism [texte imprimé] / Sigan L. HARTLEY, Auteur ; Emily J. HICKEY, Auteur ; Leann S. DAWALT, Auteur ; Geovanna RODRIGUEZ, Auteur . - p.2068-2079. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2068-2079 Mots-clés : autism spectrum disorders  broader autism phenotype  couple  family functioning and support  marital Index. décimale : PER Périodiques Résumé : The broader autism phenotype refers to sub-clinical autism spectrum disorder characteristics involving socially and emotionally aloof and rigid personality traits and social communication difficulties. Relatives of individuals with autism spectrum disorder, including parents, evidence an increased rate of broader autism phenotype. The goal of this study was to evaluate the association between actor (one's own) and partner (their partner's) broader autism phenotype and the self-reported, observed, and physiological (i.e. electrodermal reactivity) markers of the quality of videotaped couple problem-solving interactions in 158 couples, who had a child with autism spectrum disorder (aged 5-12 years). The mean age of mothers was 39.79 (standard deviation = 5.06) years and the mean age of fathers was 41.77 (standard deviation = 6.02) years for fathers, and 36.6% of parents did not have a college degree. Actor-partner interdependence models, using structural equation modeling in analysis of moment structures, were conducted. Results indicated that parent broader autism phenotype was positively related to adverse couple problem-solving interactions across all measurement methods (observed codes, self-reported affect, and electrodermal reactivity). These effects were independent of child-related challenges. The effect of parent broader autism phenotype occurred through both actor and partner pathways and was strongest for father broader autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361319841312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

A commentary on interpreting the United States preventive services task force autism screening recommendation statement / Emily J. HICKEY in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.588-592 Titre : A commentary on interpreting the United States preventive services task force autism screening recommendation statement Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; R. Christopher SHELDRICK, Auteur ; Jocelyn KUHN, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.588-592 Langues : Anglais (eng) Mots-clés : Uspstf  autism spectrum disorders  diagnosis  prevention  screening Index. décimale : PER Périodiques Résumé : In 2016, the US Preventive Services Task Force concluded that there was "insufficient" ("I" statement) evidence to support universal primary care screening for autism spectrum disorder. The statement led to controversy among research and clinical communities. Although a number of papers have since been published arguing for the potential benefit of autism spectrum disorder screening, none adequately address the potential harms of autism spectrum disorder screening. This evidence gap may relate to confusion regarding how the US Preventive Services Task Force conceptualizes and evaluates potential harm. In this commentary, we explore how the US Preventive Services Task Force operationalizes harm and discuss how the potential for harm was described in the "I" statement on autism spectrum disorder screening. This information can serve as a guide for investigators working to study the benefits and harms of autism spectrum disorder screening in order to fill the research gaps cited by the US Preventive Services Task Force report. Finally, we recommend future research directions for exploring harms of autism spectrum disorder screening, filling cited research gaps, and ultimately ensuring that the benefits of autism spectrum disorder screening truly outweigh the harms for all children and their families. En ligne : http://dx.doi.org/10.1177/1362361320957463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] A commentary on interpreting the United States preventive services task force autism screening recommendation statement [texte imprimé] / Emily J. HICKEY, Auteur ; R. Christopher SHELDRICK, Auteur ; Jocelyn KUHN, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.588-592. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.588-592 Mots-clés : Uspstf  autism spectrum disorders  diagnosis  prevention  screening Index. décimale : PER Périodiques Résumé : In 2016, the US Preventive Services Task Force concluded that there was "insufficient" ("I" statement) evidence to support universal primary care screening for autism spectrum disorder. The statement led to controversy among research and clinical communities. Although a number of papers have since been published arguing for the potential benefit of autism spectrum disorder screening, none adequately address the potential harms of autism spectrum disorder screening. This evidence gap may relate to confusion regarding how the US Preventive Services Task Force conceptualizes and evaluates potential harm. In this commentary, we explore how the US Preventive Services Task Force operationalizes harm and discuss how the potential for harm was described in the "I" statement on autism spectrum disorder screening. This information can serve as a guide for investigators working to study the benefits and harms of autism spectrum disorder screening in order to fill the research gaps cited by the US Preventive Services Task Force report. Finally, we recommend future research directions for exploring harms of autism spectrum disorder screening, filling cited research gaps, and ultimately ensuring that the benefits of autism spectrum disorder screening truly outweigh the harms for all children and their families. En ligne : http://dx.doi.org/10.1177/1362361320957463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Defining the core components of Family Navigation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 24-2 (February 2020)  

Public ISBD [article]  inAutism > 24-2 (February 2020) . - p.526-530 Titre : Defining the core components of Family Navigation for autism spectrum disorder Type de document : texte imprimé Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily J. HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.526-530 Langues : Anglais (eng) Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 [article] Defining the core components of Family Navigation for autism spectrum disorder [texte imprimé] / Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily J. HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur . - p.526-530. Langues : Anglais (eng) in Autism > 24-2 (February 2020) . - p.526-530 Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

Family Emotional Climate and Children with Autism Spectrum Disorder / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 49-8 (August 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3244-3256 Titre : Family Emotional Climate and Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; Robert L. NIX, Auteur ; Sigan L. HARTLEY, Auteur Article en page(s) : p.3244-3256 Langues : Anglais (eng) Mots-clés : Autism  Couple  Criticism  Expressed emotion  Family  Five minute speech sample  Marital  Parent  Parent-child  Warmth Index. décimale : PER Périodiques Résumé : Little research has examined family emotional climate in the context of having a child with autism spectrum disorder (ASD). The goal of the current study was to determine how the emotional quality of family subsystems (parent-child and parent couple relationships, for both mothers and fathers) combine to create various classes of family emotional climate and to identify predictors of class membership in 148 families of children with ASD. The emotional quality of family subsystems was assessed using Five Minute Speech Samples from mothers and fathers. In total, 148 families of children with ASD (86% male) aged 6-13 years were included in analyses. About one-third of parents did not have a college degree and more than two-thirds were of non-Hispanic White origin. Latent class analysis revealed that 43% of the sample was characterized by high levels of warmth and low levels of criticism in both the parent-child and parent couple relationships; 12% of the sample was characterized by low warmth and high criticism in both sets of relationships; and the rest of the sample was divided among three additional classes of emotional climate characterized by different configurations of warmth and criticism across both sets of relationships. Parent level of broader autism phenotype and child emotional and behavioral problems were associated with emotional climate class membership. Implications for interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-019-04037-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Family Emotional Climate and Children with Autism Spectrum Disorder [texte imprimé] / Emily J. HICKEY, Auteur ; Robert L. NIX, Auteur ; Sigan L. HARTLEY, Auteur . - p.3244-3256. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3244-3256 Mots-clés : Autism  Couple  Criticism  Expressed emotion  Family  Five minute speech sample  Marital  Parent  Parent-child  Warmth Index. décimale : PER Périodiques Résumé : Little research has examined family emotional climate in the context of having a child with autism spectrum disorder (ASD). The goal of the current study was to determine how the emotional quality of family subsystems (parent-child and parent couple relationships, for both mothers and fathers) combine to create various classes of family emotional climate and to identify predictors of class membership in 148 families of children with ASD. The emotional quality of family subsystems was assessed using Five Minute Speech Samples from mothers and fathers. In total, 148 families of children with ASD (86% male) aged 6-13 years were included in analyses. About one-third of parents did not have a college degree and more than two-thirds were of non-Hispanic White origin. Latent class analysis revealed that 43% of the sample was characterized by high levels of warmth and low levels of criticism in both the parent-child and parent couple relationships; 12% of the sample was characterized by low warmth and high criticism in both sets of relationships; and the rest of the sample was divided among three additional classes of emotional climate characterized by different configurations of warmth and criticism across both sets of relationships. Parent level of broader autism phenotype and child emotional and behavioral problems were associated with emotional climate class membership. Implications for interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-019-04037-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Family Impact During the Time Between Autism Screening and Definitive Diagnosis / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

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Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 25-6 (August 2021)  

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Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 26-6 (August 2022)  

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Parental Depression Symptoms and Internalizing Mental Health Problems in Autistic Children / Brianna PIRO-GAMBETTI ; Jessica L. GREENLEE ; Emily J. HICKEY ; Jennifer M. PUTNEY ; Emily LORANG ; Sigan L. HARTLEY in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

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Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation / Yair VOLIOVITCH in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

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Positive and negative social exchanges experienced by fathers and mothers of children with autism / Emily J. HICKEY in Autism, 22-4 (May 2018)  

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Profiles of the parenting experience in families of autistic children / Jessica L. GREENLEE in Autism, 27-7 (October 2023)  

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Using the Three-Minute Speech Sample to Examine the Parent-Adolescent Relationship in Autistic Youth: A Qualitative Analysis / Jessica L. GREENLEE in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

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