Parents training parents: Lessons learned from a study of reciprocal imitation training in young children with autism spectrum disorder / Trevor A. HALL in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1601-1606 Titre : Parents training parents: Lessons learned from a study of reciprocal imitation training in young children with autism spectrum disorder Type de document : texte imprimé Auteurs : Trevor A. HALL, Auteur ; Sarah MASTEL, Auteur ; Robert NICKEL, Auteur ; Allison L. WAINER, Auteur Article en page(s) : p.1601-1606 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  parent-mediated interventions  reciprocal imitation training  rural service delivery Index. décimale : PER Périodiques Résumé : Parent-mediated interventions are cost-effective ways to increase access to appropriate treatment services to children with autism spectrum disorder. We aimed to engage parents working as partners within rural autism identification teams to facilitate prompt initiation of autism-specific treatment services and expand the amount of treatment available to young children with autism spectrum disorder. To do this, we sought to employ a two-phase training approach: (Phase 1) train parents to fidelity in an evidence-based parent-mediated intervention (reciprocal imitation training), and (Phase 2) evaluate the extent to which parents could effectively coach other parents of newly diagnosed children to implement reciprocal imitation training with their child. We experienced several unexpected barriers to completing all aspects of the Phase 1 training workflow. This led us to pivot toward a process evaluation. We used qualitative interviewing with our partner parents to systematically identify barriers and enhance the likelihood for successful future efforts at such an approach. The lessons we learned and recommendations for others attempting this type of research are presented. En ligne : http://dx.doi.org/10.1177/1362361318815643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Parents training parents: Lessons learned from a study of reciprocal imitation training in young children with autism spectrum disorder [texte imprimé] / Trevor A. HALL, Auteur ; Sarah MASTEL, Auteur ; Robert NICKEL, Auteur ; Allison L. WAINER, Auteur . - p.1601-1606. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1601-1606 Mots-clés : autism spectrum disorder  parent-mediated interventions  reciprocal imitation training  rural service delivery Index. décimale : PER Périodiques Résumé : Parent-mediated interventions are cost-effective ways to increase access to appropriate treatment services to children with autism spectrum disorder. We aimed to engage parents working as partners within rural autism identification teams to facilitate prompt initiation of autism-specific treatment services and expand the amount of treatment available to young children with autism spectrum disorder. To do this, we sought to employ a two-phase training approach: (Phase 1) train parents to fidelity in an evidence-based parent-mediated intervention (reciprocal imitation training), and (Phase 2) evaluate the extent to which parents could effectively coach other parents of newly diagnosed children to implement reciprocal imitation training with their child. We experienced several unexpected barriers to completing all aspects of the Phase 1 training workflow. This led us to pivot toward a process evaluation. We used qualitative interviewing with our partner parents to systematically identify barriers and enhance the likelihood for successful future efforts at such an approach. The lessons we learned and recommendations for others attempting this type of research are presented. En ligne : http://dx.doi.org/10.1177/1362361318815643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort / Eric FOMBONNE in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3383-3398 Titre : Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort Type de document : texte imprimé Auteurs : Eric FOMBONNE, Auteur ; Leigh COPPOLA, Auteur ; Sarah MASTEL, Auteur ; Brian J. O'ROAK, Auteur Article en page(s) : p.3383-3398 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Caregivers  Child  Cohort Studies  Databases, Factual  Female  Humans  Male  Adults  Autism  Birth weight  Electronic medical records  Intellectual disability  Language delay  Parental report  Regression  SPARK cohort  Sex differences  Validity Index. décimale : PER Périodiques Résumé : The SPARK cohort was established to facilitate recruitment in studies of large numbers of participants with autism spectrum disorder (ASD). Online registration requires participants to have received a lifetime professional diagnosis by health or school providers although diagnoses are not independently verified. This study was set to examine the validity of self- and caregiver-reported autism diagnoses. Electronic medical records (EMR) of 254 SPARK participants (77.6% male, age 10.7 years) were abstracted. Using two different methods, confirmation of ASD diagnosis in EMRs was obtained in 98.8% of cases. Core clinical features recorded in EMRs were typical of autism samples and showed very good agreement with SPARK cohort data, providing further evidence of the validity of clinical information in the SPARK database. En ligne : http://dx.doi.org/10.1007/s10803-021-05218-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort [texte imprimé] / Eric FOMBONNE, Auteur ; Leigh COPPOLA, Auteur ; Sarah MASTEL, Auteur ; Brian J. O'ROAK, Auteur . - p.3383-3398. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3383-3398 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Caregivers  Child  Cohort Studies  Databases, Factual  Female  Humans  Male  Adults  Autism  Birth weight  Electronic medical records  Intellectual disability  Language delay  Parental report  Regression  SPARK cohort  Sex differences  Validity Index. décimale : PER Périodiques Résumé : The SPARK cohort was established to facilitate recruitment in studies of large numbers of participants with autism spectrum disorder (ASD). Online registration requires participants to have received a lifetime professional diagnosis by health or school providers although diagnoses are not independently verified. This study was set to examine the validity of self- and caregiver-reported autism diagnoses. Electronic medical records (EMR) of 254 SPARK participants (77.6% male, age 10.7 years) were abstracted. Using two different methods, confirmation of ASD diagnosis in EMRs was obtained in 98.8% of cases. Core clinical features recorded in EMRs were typical of autism samples and showed very good agreement with SPARK cohort data, providing further evidence of the validity of clinical information in the SPARK database. En ligne : http://dx.doi.org/10.1007/s10803-021-05218-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

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