Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Titre : Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.3777-3791 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [Texte imprimé et/ou numérique] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.3777-3791. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3777-3791 Index. décimale : PER Périodiques Résumé : An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned sex, race, and ethnicity interact with each other in predicting the prevalence and age of autism diagnosis. En ligne : https://doi.org/10.1007/s10803-023-06104-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis / Jessica E. GOLDBLUM in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Titre : Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur Article en page(s) : p.1231-1231 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis [Texte imprimé et/ou numérique] / Jessica E. GOLDBLUM, Auteur ; Tyler C. MCFAYDEN, Auteur ; Stephanie BRISTOL, Auteur ; Orla C. PUTNAM, Auteur ; Amanda WYLIE, Auteur ; Clare HARROP, Auteur . - p.1231-1231. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1231-1231 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-023-06210-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

Echolalia from a transdiagnostic perspective / Tyler C. MCFAYDEN in Autism & Developmental Language Impairments, 7 (January-December 2022)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 7 (January-December 2022) Titre : Echolalia from a transdiagnostic perspective Type de document : Texte imprimé et/ou numérique Auteurs : Tyler C. MCFAYDEN, Auteur ; Shelia M. KENNISON, Auteur ; J. Michael BOWERS, Auteur Langues : Anglais (eng) Mots-clés : Echolalia  aphasia  autism  repetitive speech  transdiagnostic Index. décimale : PER Périodiques Résumé : Background & aims Echolalia, the repetition of one’s or others’ utterances, is a behavior present in typical development, autism spectrum disorder, aphasias, Tourette’s, and other clinical groups. Despite the broad range of conditions in which echolalia can occur, it is considered primarily through a disorder-specific lens, which limits a full understanding of the behavior. Method Empirical and review papers on echolalia across disciplines and etiologies were considered for this narrative review. Literatures were condensed into three primary sections, including echolalia presentations, neural mechanisms, and treatment approaches. Main contribution Echolalia, commonly observed in autism and other developmental conditions, is assessed, observed, and treated in a siloed fashion, which reduces our collective knowledge of this communication difference. Echolalia should be considered as a developmental, transdiagnostic, and communicative phenomenon. Echolalia is commonly considered as a communicative behavior, but little is known about its neural etiologies or efficacious treatments. Conclusions This review is the first to synthesize echolalia from a transdiagnostic perspective, which allows for the direct comparisons across and within clinical groups to inform assessment, treatment, conceptualization, and research recommendations. Implications Considering echolalia transdiagnostically highlights the lack of consensus on operationalization and measurement across and within disorders. Clinical and research future directions need to prioritize consistent definitions of echolalia, which can be used to derive accurate prevalence estimates. Echolalia should be considered as a communication strategy, used similarly across developmental and clinical groups, with recommended strategies of shaping to increase its effectiveness. En ligne : http://dx.doi.org/10.1177/23969415221140464 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] Echolalia from a transdiagnostic perspective [Texte imprimé et/ou numérique] / Tyler C. MCFAYDEN, Auteur ; Shelia M. KENNISON, Auteur ; J. Michael BOWERS, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 7 (January-December 2022) Mots-clés : Echolalia  aphasia  autism  repetitive speech  transdiagnostic Index. décimale : PER Périodiques Résumé : Background & aims Echolalia, the repetition of one’s or others’ utterances, is a behavior present in typical development, autism spectrum disorder, aphasias, Tourette’s, and other clinical groups. Despite the broad range of conditions in which echolalia can occur, it is considered primarily through a disorder-specific lens, which limits a full understanding of the behavior. Method Empirical and review papers on echolalia across disciplines and etiologies were considered for this narrative review. Literatures were condensed into three primary sections, including echolalia presentations, neural mechanisms, and treatment approaches. Main contribution Echolalia, commonly observed in autism and other developmental conditions, is assessed, observed, and treated in a siloed fashion, which reduces our collective knowledge of this communication difference. Echolalia should be considered as a developmental, transdiagnostic, and communicative phenomenon. Echolalia is commonly considered as a communicative behavior, but little is known about its neural etiologies or efficacious treatments. Conclusions This review is the first to synthesize echolalia from a transdiagnostic perspective, which allows for the direct comparisons across and within clinical groups to inform assessment, treatment, conceptualization, and research recommendations. Implications Considering echolalia transdiagnostically highlights the lack of consensus on operationalization and measurement across and within disorders. Clinical and research future directions need to prioritize consistent definitions of echolalia, which can be used to derive accurate prevalence estimates. Echolalia should be considered as a communication strategy, used similarly across developmental and clinical groups, with recommended strategies of shaping to increase its effectiveness. En ligne : http://dx.doi.org/10.1177/23969415221140464 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

Frequency and correlates of augmentative and alternative communication use in an autistic inpatient sample / Elizabeth A. DELUCIA in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.2060-2068 Titre : Frequency and correlates of augmentative and alternative communication use in an autistic inpatient sample Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth A. DELUCIA, Auteur ; Tyler C. MCFAYDEN, Auteur ; Megan FOK, Auteur ; Theresa M. ANDRZEJEWSKI, Auteur ; Angela SCARPA, Auteur ; Christina G. MCDONNELL, Auteur Article en page(s) : p.2060-2068 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Although augmentative and alternative communication (AAC) strategies are often used by autistic youth, little is known about the use of AAC in inpatient psychiatric settings. This study evaluated how demographic and clinical factors (e.g., language level, IQ) related to AAC use in a well-characterized sample of 527 autistic youth (78.7% male, mean age 12.94) who participated in the Autism Inpatient Collection. AAC use was common, with 42.5% of caregivers reporting at least one form of AAC. White children were more likely to use AAC than non-white children at the bivariate level. In regression analyses, young children were more likely to use AAC than older children. These results suggest the importance of provider training and improved equitable access to AAC. En ligne : https://doi.org/10.1007/s10803-022-05650-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Frequency and correlates of augmentative and alternative communication use in an autistic inpatient sample [Texte imprimé et/ou numérique] / Elizabeth A. DELUCIA, Auteur ; Tyler C. MCFAYDEN, Auteur ; Megan FOK, Auteur ; Theresa M. ANDRZEJEWSKI, Auteur ; Angela SCARPA, Auteur ; Christina G. MCDONNELL, Auteur . - p.2060-2068. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.2060-2068 Index. décimale : PER Périodiques Résumé : Although augmentative and alternative communication (AAC) strategies are often used by autistic youth, little is known about the use of AAC in inpatient psychiatric settings. This study evaluated how demographic and clinical factors (e.g., language level, IQ) related to AAC use in a well-characterized sample of 527 autistic youth (78.7% male, mean age 12.94) who participated in the Autism Inpatient Collection. AAC use was common, with 42.5% of caregivers reporting at least one form of AAC. White children were more likely to use AAC than non-white children at the bivariate level. In regression analyses, young children were more likely to use AAC than older children. These results suggest the importance of provider training and improved equitable access to AAC. En ligne : https://doi.org/10.1007/s10803-022-05650-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202576 Titre : Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur Article en page(s) : 202576 Langues : Anglais (eng) Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children [Texte imprimé et/ou numérique] / Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur . - 202576. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202576 Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

The Impact of Birth Order on Language Development in Autistic Children from Simplex Families / Tyler C. MCFAYDEN in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

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Who, when, where, and why: A systematic review of "late diagnosis" in autism / Alison S. Russell ; Tyler C. MCFAYDEN ; Margaret McAllister ; Kimberly Liles ; Sophie Bittner ; John F. STRANG ; Clare HARROP in Autism Research, 18-1 (January 2025)  

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