Mental health issues in parents of children with autism spectrum disorder: A multi-time-point study related to COVID-19 pandemic / Luxi WANG in Autism Research, 15-12 (December 2022)  

Public ISBD [article]  inAutism Research > 15-12 (December 2022) . - p.2346-2358 Titre : Mental health issues in parents of children with autism spectrum disorder: A multi-time-point study related to COVID-19 pandemic Type de document : texte imprimé Auteurs : Luxi WANG, Auteur ; Huiying ZHANG, Auteur ; Chuang SHANG, Auteur ; Huirong LIANG, Auteur ; Wenlong LIU, Auteur ; Bing HAN, Auteur ; Wei XIA, Auteur ; Mingyang ZOU, Auteur Article en page(s) : p.2346-2358 Langues : Anglais (eng) Mots-clés : Child  Humans  covid-19  Pandemics  Autism Spectrum Disorder/complications/epidemiology/psychology  Mental Health  Cross-Sectional Studies  Parents/psychology  Anxiety/epidemiology  Covid-19  autism spectrum disorder  multi-time-point study  parents Index. décimale : PER Périodiques Résumé : Given the unpredictability and challenges brought about by the 2019 novel coronavirus (COVID-19) pandemic, this study aimed to investigate the impact trend of the prolonged pandemic on the mental health of parents of children with autism spectrum disorder (ASD). The 8112 participants included parents of children with ASD and parents of typically developing (TD) children at two sites (Heilongjiang and Fujian province, China). The parents completed a set of self-report questionnaires covering demographic characteristics, influences related to COVID-19, COVID-19 concerns and perceived behaviors, as well as the Connor-Davidson resilience scale (CD-RISC), self-rating anxiety scale (SAS), and self-rating depression scale (SDS) by means of an online survey platform. Data were collected by three cross-sectional surveys carried out in April 2020 (Time 1), October 2020 (Time 2), and October 2021 (Time 3). The results of quantitative and qualitative comparisons showed that: (i) parents of children with ASD had lower levels of resilience, and more symptoms of anxiety and depression than parents of TD children at each time point (all P < 0.05); and (ii) there were significant time-cumulative changes in resilience, anxiety, and depression among all participants (all P < 0.05). The logistic regression analyzes after adjusting for demographic characteristics revealed that the following factors were significantly associated with poor resilience and a higher rate of anxiety and depression in parents of children with ASD: time-point, the effect of COVID-19 on children's emotions and parents' emotions, changes in relationships, changes in physical exercise, changes in daily diet during the COVID-19 pandemic, and COVID-19-related psychological distress. In conclusions, the parents did not report improvements in resilience, anxiety, or depression symptoms from Time 1 to Time 2 or 3, indicating that cumulative mental health issues increased when, surprisingly, the COVID-19 restrictions were eased. The psychological harm resulting from the COVID-19 pandemic is far-reaching, especially among parents of children with ASD. En ligne : http://dx.doi.org/10.1002/aur.2836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Mental health issues in parents of children with autism spectrum disorder: A multi-time-point study related to COVID-19 pandemic [texte imprimé] / Luxi WANG, Auteur ; Huiying ZHANG, Auteur ; Chuang SHANG, Auteur ; Huirong LIANG, Auteur ; Wenlong LIU, Auteur ; Bing HAN, Auteur ; Wei XIA, Auteur ; Mingyang ZOU, Auteur . - p.2346-2358. Langues : Anglais (eng) in Autism Research > 15-12 (December 2022) . - p.2346-2358 Mots-clés : Child  Humans  covid-19  Pandemics  Autism Spectrum Disorder/complications/epidemiology/psychology  Mental Health  Cross-Sectional Studies  Parents/psychology  Anxiety/epidemiology  Covid-19  autism spectrum disorder  multi-time-point study  parents Index. décimale : PER Périodiques Résumé : Given the unpredictability and challenges brought about by the 2019 novel coronavirus (COVID-19) pandemic, this study aimed to investigate the impact trend of the prolonged pandemic on the mental health of parents of children with autism spectrum disorder (ASD). The 8112 participants included parents of children with ASD and parents of typically developing (TD) children at two sites (Heilongjiang and Fujian province, China). The parents completed a set of self-report questionnaires covering demographic characteristics, influences related to COVID-19, COVID-19 concerns and perceived behaviors, as well as the Connor-Davidson resilience scale (CD-RISC), self-rating anxiety scale (SAS), and self-rating depression scale (SDS) by means of an online survey platform. Data were collected by three cross-sectional surveys carried out in April 2020 (Time 1), October 2020 (Time 2), and October 2021 (Time 3). The results of quantitative and qualitative comparisons showed that: (i) parents of children with ASD had lower levels of resilience, and more symptoms of anxiety and depression than parents of TD children at each time point (all P < 0.05); and (ii) there were significant time-cumulative changes in resilience, anxiety, and depression among all participants (all P < 0.05). The logistic regression analyzes after adjusting for demographic characteristics revealed that the following factors were significantly associated with poor resilience and a higher rate of anxiety and depression in parents of children with ASD: time-point, the effect of COVID-19 on children's emotions and parents' emotions, changes in relationships, changes in physical exercise, changes in daily diet during the COVID-19 pandemic, and COVID-19-related psychological distress. In conclusions, the parents did not report improvements in resilience, anxiety, or depression symptoms from Time 1 to Time 2 or 3, indicating that cumulative mental health issues increased when, surprisingly, the COVID-19 restrictions were eased. The psychological harm resulting from the COVID-19 pandemic is far-reaching, especially among parents of children with ASD. En ligne : http://dx.doi.org/10.1002/aur.2836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China / Yujiao HAN ; Meiyu JIN ; Wei XIE ; Chuang SHANG ; Tiantian LI ; Liwen FENG ; Caihong SUN ; Saisai ZHANG ; Lijie WU in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1646-1660 Titre : Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China Type de document : texte imprimé Auteurs : Yujiao HAN, Auteur ; Meiyu JIN, Auteur ; Wei XIE, Auteur ; Chuang SHANG, Auteur ; Tiantian LI, Auteur ; Liwen FENG, Auteur ; Caihong SUN, Auteur ; Saisai ZHANG, Auteur ; Lijie WU, Auteur Article en page(s) : p.1646-1660 Langues : Anglais (eng) Mots-clés : autism-associated policies  China  scoping review Index. décimale : PER Périodiques Résumé : The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstract Policies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism. En ligne : https://dx.doi.org/10.1177/13623613241311736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China [texte imprimé] / Yujiao HAN, Auteur ; Meiyu JIN, Auteur ; Wei XIE, Auteur ; Chuang SHANG, Auteur ; Tiantian LI, Auteur ; Liwen FENG, Auteur ; Caihong SUN, Auteur ; Saisai ZHANG, Auteur ; Lijie WU, Auteur . - p.1646-1660. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1646-1660 Mots-clés : autism-associated policies  China  scoping review Index. décimale : PER Périodiques Résumé : The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstract Policies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism. En ligne : https://dx.doi.org/10.1177/13623613241311736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

---

1 (1 - 2 / 2) Par page : 25 50 100 200