Expanding Research on Contextual Factors in Autism Research: What Took Us So Long? / Teresa BENNETT ; Leann S. DAWALT ; Maureen S. DURKIN ; Gordon FORBES ; Patricia HOWLIN ; Catherine LORD ; Anat ZAIDMAN-ZAIT ; Lonnie ZWAIGENBAUM ; Vanessa H. BAL ; Somer L. BISHOP ; Chung-Hsin CHIANG ; Adriana DIMARTINO ; Christine M. FREITAG ; Stelios GEORGIADES ; Matthew HOLLOCKS ; Meng-Chuan LAI ; Matthew J. MAENNER ; Patrick S. POWELL ; Julie Lounds TAYLOR ; Alycia HALLADAY in Autism Research, 18-4 (April 2025)  

Public ISBD [article]  inAutism Research > 18-4 (April 2025) . - p.710-716 Titre : Expanding Research on Contextual Factors in Autism Research: What Took Us So Long? Type de document : texte imprimé Auteurs : Teresa BENNETT, Auteur ; Leann S. DAWALT, Auteur ; Maureen S. DURKIN, Auteur ; Gordon FORBES, Auteur ; Patricia HOWLIN, Auteur ; Catherine LORD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Vanessa H. BAL, Auteur ; Somer L. BISHOP, Auteur ; Chung-Hsin CHIANG, Auteur ; Adriana DIMARTINO, Auteur ; Christine M. FREITAG, Auteur ; Stelios GEORGIADES, Auteur ; Matthew HOLLOCKS, Auteur ; Meng-Chuan LAI, Auteur ; Matthew J. MAENNER, Auteur ; Patrick S. POWELL, Auteur ; Julie Lounds TAYLOR, Auteur ; Alycia HALLADAY, Auteur Article en page(s) : p.710-716 Langues : Anglais (eng) Mots-clés : autism  behavior  contextual  longitudinal  outcomes  research Index. décimale : PER Périodiques Résumé : ABSTRACT Although autism is a childhood-onset neurodevelopmental disorder, its features change across the life course due to a combination of individual and contextual influences. However, the influence of contextual factors on development during childhood and beyond is less frequently studied than individual factors such as genetic variants that increase autism risk, IQ, language, and autistic features. Potentially important contexts include the family environment and socioeconomic status, social networks, school, work, services, neighborhood characteristics, environmental events, and sociocultural factors. Here, we articulate the benefit of studying contextual factors, and we offer selected examples of published longitudinal autism studies that have focused on how individuals develop within context. Expanding the autism research agenda to include the broader context in which autism emerges and changes across the life course can enhance understanding of how contexts influence the heterogeneity of autism, support strengths and resilience, or amplify disabilities. We describe challenges and opportunities for future research on contextual influences and provide a list of digital resources that can be integrated into autism data sets. It is important to conceptualize contextual influences on autism development as main exposures, not only as descriptive variables or factors needing statistical control. En ligne : https://doi.org/10.1002/aur.3312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554 [article] Expanding Research on Contextual Factors in Autism Research: What Took Us So Long? [texte imprimé] / Teresa BENNETT, Auteur ; Leann S. DAWALT, Auteur ; Maureen S. DURKIN, Auteur ; Gordon FORBES, Auteur ; Patricia HOWLIN, Auteur ; Catherine LORD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Vanessa H. BAL, Auteur ; Somer L. BISHOP, Auteur ; Chung-Hsin CHIANG, Auteur ; Adriana DIMARTINO, Auteur ; Christine M. FREITAG, Auteur ; Stelios GEORGIADES, Auteur ; Matthew HOLLOCKS, Auteur ; Meng-Chuan LAI, Auteur ; Matthew J. MAENNER, Auteur ; Patrick S. POWELL, Auteur ; Julie Lounds TAYLOR, Auteur ; Alycia HALLADAY, Auteur . - p.710-716. Langues : Anglais (eng) in Autism Research > 18-4 (April 2025) . - p.710-716 Mots-clés : autism  behavior  contextual  longitudinal  outcomes  research Index. décimale : PER Périodiques Résumé : ABSTRACT Although autism is a childhood-onset neurodevelopmental disorder, its features change across the life course due to a combination of individual and contextual influences. However, the influence of contextual factors on development during childhood and beyond is less frequently studied than individual factors such as genetic variants that increase autism risk, IQ, language, and autistic features. Potentially important contexts include the family environment and socioeconomic status, social networks, school, work, services, neighborhood characteristics, environmental events, and sociocultural factors. Here, we articulate the benefit of studying contextual factors, and we offer selected examples of published longitudinal autism studies that have focused on how individuals develop within context. Expanding the autism research agenda to include the broader context in which autism emerges and changes across the life course can enhance understanding of how contexts influence the heterogeneity of autism, support strengths and resilience, or amplify disabilities. We describe challenges and opportunities for future research on contextual influences and provide a list of digital resources that can be integrated into autism data sets. It is important to conceptualize contextual influences on autism development as main exposures, not only as descriptive variables or factors needing statistical control. En ligne : https://doi.org/10.1002/aur.3312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554

A full semantic toolbox is essential for autism research and practice to thrive / Alison SINGER in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.497-501 Titre : A full semantic toolbox is essential for autism research and practice to thrive Type de document : texte imprimé Auteurs : Alison SINGER, Auteur ; Amy LUTZ, Auteur ; Jill ESCHER, Auteur ; Alycia HALLADAY, Auteur Article en page(s) : p.497-501 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution. En ligne : https://doi.org/10.1002/aur.2876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] A full semantic toolbox is essential for autism research and practice to thrive [texte imprimé] / Alison SINGER, Auteur ; Amy LUTZ, Auteur ; Jill ESCHER, Auteur ; Alycia HALLADAY, Auteur . - p.497-501. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.497-501 Index. décimale : PER Périodiques Résumé : Abstract Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution. En ligne : https://doi.org/10.1002/aur.2876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

Methodological challenges and opportunities when studying the course of autism / Peter SZATMARI ; Stelios GEORGIADES ; Stephen J GENTLES ; Jessica GIRAULT ; Patricia HOWLIN ; Meng-Chuan LAI ; Virginia CARTER LENO ; Catherine LORD ; Katie MADGETT ; Stephen J SHEINKOPF ; Emily SIMONOFF ; Zachary J WILLIAMS ; Lonnie ZWAIGENBAUM ; Alycia HALLADAY in Autism, 29-10 (October 2025)  

Public ISBD [article]  inAutism > 29-10 (October 2025) . - p.2618-2631 Titre : Methodological challenges and opportunities when studying the course of autism Type de document : texte imprimé Auteurs : Peter SZATMARI, Auteur ; Stelios GEORGIADES, Auteur ; Stephen J GENTLES, Auteur ; Jessica GIRAULT, Auteur ; Patricia HOWLIN, Auteur ; Meng-Chuan LAI, Auteur ; Virginia CARTER LENO, Auteur ; Catherine LORD, Auteur ; Katie MADGETT, Auteur ; Stephen J SHEINKOPF, Auteur ; Emily SIMONOFF, Auteur ; Zachary J WILLIAMS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Alycia HALLADAY, Auteur Article en page(s) : p.2618-2631 Langues : Anglais (eng) Mots-clés : commentary  design  longitudinal  methodology Index. décimale : PER Périodiques Résumé : Longitudinal research in autism has contributed a wealth of knowledge about etiological factors, development from childhood through adulthood, life course changes and needs, as well as longer-term adult outcomes for individuals on the spectrum and their family members. This research is essential to better understand the needs of individuals as they age. However, along with the as yet unrealized opportunities to understand an individual in more nuanced ways across time, there are challenges to utilizing this research design that should be considered. These include sample and measurement diversity, retention, outcome measures, analysis, and funding considerations. This article outlines some of the most pressing challenges together with potential solutions to maximize the value of longitudinal research designs that can help address questions that are of high priority to the autism community.Lay Abstract Longitudinal research has been critical to understand the life course of people with autism, including factors which increase the probability of an autism diagnosis, the emergence of early markers, co-occurring psychiatric conditions, predication of future educational and support needs across childhood and adulthood, and understanding what makes each person unique and contributes to the well-being of autistic people and their families. However, these studies take time, patience, investment of families and individuals, scientists and are challenging to all involved. This article will outline some of the issues that have occurred in the past and provide potential solutions to improve the quality of these studies to both the scientific and autistic communities. They include sample and measurement diversity, retention, outcome measures, analysis, and funding considerations. This understanding of the field is important for both scientific research and community engagement in the studies that include the autistic community. En ligne : https://dx.doi.org/10.1177/13623613251341012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] Methodological challenges and opportunities when studying the course of autism [texte imprimé] / Peter SZATMARI, Auteur ; Stelios GEORGIADES, Auteur ; Stephen J GENTLES, Auteur ; Jessica GIRAULT, Auteur ; Patricia HOWLIN, Auteur ; Meng-Chuan LAI, Auteur ; Virginia CARTER LENO, Auteur ; Catherine LORD, Auteur ; Katie MADGETT, Auteur ; Stephen J SHEINKOPF, Auteur ; Emily SIMONOFF, Auteur ; Zachary J WILLIAMS, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Alycia HALLADAY, Auteur . - p.2618-2631. Langues : Anglais (eng) in Autism > 29-10 (October 2025) . - p.2618-2631 Mots-clés : commentary  design  longitudinal  methodology Index. décimale : PER Périodiques Résumé : Longitudinal research in autism has contributed a wealth of knowledge about etiological factors, development from childhood through adulthood, life course changes and needs, as well as longer-term adult outcomes for individuals on the spectrum and their family members. This research is essential to better understand the needs of individuals as they age. However, along with the as yet unrealized opportunities to understand an individual in more nuanced ways across time, there are challenges to utilizing this research design that should be considered. These include sample and measurement diversity, retention, outcome measures, analysis, and funding considerations. This article outlines some of the most pressing challenges together with potential solutions to maximize the value of longitudinal research designs that can help address questions that are of high priority to the autism community.Lay Abstract Longitudinal research has been critical to understand the life course of people with autism, including factors which increase the probability of an autism diagnosis, the emergence of early markers, co-occurring psychiatric conditions, predication of future educational and support needs across childhood and adulthood, and understanding what makes each person unique and contributes to the well-being of autistic people and their families. However, these studies take time, patience, investment of families and individuals, scientists and are challenging to all involved. This article will outline some of the issues that have occurred in the past and provide potential solutions to improve the quality of these studies to both the scientific and autistic communities. They include sample and measurement diversity, retention, outcome measures, analysis, and funding considerations. This understanding of the field is important for both scientific research and community engagement in the studies that include the autistic community. En ligne : https://dx.doi.org/10.1177/13623613251341012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

Response to letter from Ryan Collis / Amy LUTZ in Autism Research, 16-4 (April 2023)  

Public ISBD [article]  inAutism Research > 16-4 (April 2023) . - p.681-681 Titre : Response to letter from Ryan Collis Type de document : texte imprimé Auteurs : Amy LUTZ, Auteur ; Alison SINGER, Auteur ; Jill ESCHER, Auteur ; Alycia HALLADAY, Auteur Article en page(s) : p.681-681 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2903 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Response to letter from Ryan Collis [texte imprimé] / Amy LUTZ, Auteur ; Alison SINGER, Auteur ; Jill ESCHER, Auteur ; Alycia HALLADAY, Auteur . - p.681-681. Langues : Anglais (eng) in Autism Research > 16-4 (April 2023) . - p.681-681 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2903 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Response to Natri / Alison SINGER in Autism Research, 16-4 (April 2023)  

Public ISBD [article]  inAutism Research > 16-4 (April 2023) . - p.677-677 Titre : Response to Natri Type de document : texte imprimé Auteurs : Alison SINGER, Auteur ; Jill ESCHER, Auteur ; Amy LUTZ, Auteur ; Alycia HALLADAY, Auteur Article en page(s) : p.677-677 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2925 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Response to Natri [texte imprimé] / Alison SINGER, Auteur ; Jill ESCHER, Auteur ; Amy LUTZ, Auteur ; Alycia HALLADAY, Auteur . - p.677-677. Langues : Anglais (eng) in Autism Research > 16-4 (April 2023) . - p.677-677 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2925 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

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