Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities / R. TESFAYE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1882-1896 Titre : Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities Type de document : Texte imprimé et/ou numérique Auteurs : R. TESFAYE, Auteur ; V. COURCHESNE, Auteur ; A. YUSUF, Auteur ; T. SAVION-LEMIEUX, Auteur ; I. SINGH, Auteur ; K. SHIKAKO-THOMAS, Auteur ; P. MIRENDA, Auteur ; C. WADDELL, Auteur ; I. M. SMITH, Auteur ; David B NICHOLAS, Auteur ; P. SZATMARI, Auteur ; Teresa BENNETT, Auteur ; E. DUKU, Auteur ; S. GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; T. VAILLANCOURT, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABBAGH, Auteur Article en page(s) : p.1882-1896 Langues : Anglais (eng) Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities [Texte imprimé et/ou numérique] / R. TESFAYE, Auteur ; V. COURCHESNE, Auteur ; A. YUSUF, Auteur ; T. SAVION-LEMIEUX, Auteur ; I. SINGH, Auteur ; K. SHIKAKO-THOMAS, Auteur ; P. MIRENDA, Auteur ; C. WADDELL, Auteur ; I. M. SMITH, Auteur ; David B NICHOLAS, Auteur ; P. SZATMARI, Auteur ; Teresa BENNETT, Auteur ; E. DUKU, Auteur ; S. GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; T. VAILLANCOURT, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABBAGH, Auteur . - p.1882-1896. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1882-1896 Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

"Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / K. T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4560-4574 Titre : "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time Type de document : Texte imprimé et/ou numérique Auteurs : K. T. COST, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; E. DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; I. M. SMITH, Auteur ; W. J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; P. SZATMARI, Auteur ; S. GEORGIADES, Auteur ; C. WADDELL, Auteur ; M. ELSABBAGH, Auteur ; T. VAILLANCOURT, Auteur Article en page(s) : p.4560-4574 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Checklist  Child  Child, Preschool  Humans  Parents  Autism spectrum disorder  Character traits  Children  Positive psychology  Strengths Index. décimale : PER Périodiques Résumé : This study examined parental perceptions of the character traits of children with autism from early childhood to age 11. Parents (n?=?153) provided descriptions of the "best things" about their children on the Child Behavior Checklist (CBCL) at ages 3-4, 7-8, and 10-11 years. Descriptions were coded using the framework of the Values in Action Classification of Strengths, with additional traits added as needed. Parent-endorsed traits included love, kindness, happiness, and humor in children across all ages and traits such as perseverance as children entered school. Higher CBCL scores were associated with a lower likelihood of endorsement for Humanity traits. Results are congruent with a contemporary neurodiversity perspective that emphasizes strengths and resilience. En ligne : http://dx.doi.org/10.1007/s10803-021-04890-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time [Texte imprimé et/ou numérique] / K. T. COST, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; E. DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; I. M. SMITH, Auteur ; W. J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; P. SZATMARI, Auteur ; S. GEORGIADES, Auteur ; C. WADDELL, Auteur ; M. ELSABBAGH, Auteur ; T. VAILLANCOURT, Auteur . - p.4560-4574. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4560-4574 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Checklist  Child  Child, Preschool  Humans  Parents  Autism spectrum disorder  Character traits  Children  Positive psychology  Strengths Index. décimale : PER Périodiques Résumé : This study examined parental perceptions of the character traits of children with autism from early childhood to age 11. Parents (n?=?153) provided descriptions of the "best things" about their children on the Child Behavior Checklist (CBCL) at ages 3-4, 7-8, and 10-11 years. Descriptions were coded using the framework of the Values in Action Classification of Strengths, with additional traits added as needed. Parent-endorsed traits included love, kindness, happiness, and humor in children across all ages and traits such as perseverance as children entered school. Higher CBCL scores were associated with a lower likelihood of endorsement for Humanity traits. Results are congruent with a contemporary neurodiversity perspective that emphasizes strengths and resilience. En ligne : http://dx.doi.org/10.1007/s10803-021-04890-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Correction to: "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / K. T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4575-4576 Titre : Correction to: "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time Type de document : Texte imprimé et/ou numérique Auteurs : K. T. COST, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; E. DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; I. M. SMITH, Auteur ; W. J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; P. SZATMARI, Auteur ; S. GEORGIADES, Auteur ; C. WADDELL, Auteur ; M. ELSABBAGH, Auteur ; T. VAILLANCOURT, Auteur Article en page(s) : p.4575-4576 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05144-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Correction to: "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time [Texte imprimé et/ou numérique] / K. T. COST, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; E. DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; I. M. SMITH, Auteur ; W. J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; P. SZATMARI, Auteur ; S. GEORGIADES, Auteur ; C. WADDELL, Auteur ; M. ELSABBAGH, Auteur ; T. VAILLANCOURT, Auteur . - p.4575-4576. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4575-4576 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05144-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Correction to: Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes / A. ZAIDMAN-ZAIT in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2077 Titre : Correction to: Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes Type de document : Texte imprimé et/ou numérique Auteurs : A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; P. SZATMARI, Auteur ; E. DUKU, Auteur ; I. M. SMITH, Auteur ; T. VAILLANCOURT, Auteur ; J. VOLDEN, Auteur ; C. WADDELL, Auteur ; Teresa BENNETT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABAGGH, Auteur ; S. GEORGIADES, Auteur ; W. J. UNGAR, Auteur Article en page(s) : p.2077 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake. En ligne : http://dx.doi.org/10.1007/s10803-018-3498-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361 [article] Correction to: Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes [Texte imprimé et/ou numérique] / A. ZAIDMAN-ZAIT, Auteur ; P. MIRENDA, Auteur ; P. SZATMARI, Auteur ; E. DUKU, Auteur ; I. M. SMITH, Auteur ; T. VAILLANCOURT, Auteur ; J. VOLDEN, Auteur ; C. WADDELL, Auteur ; Teresa BENNETT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABAGGH, Auteur ; S. GEORGIADES, Auteur ; W. J. UNGAR, Auteur . - p.2077. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2077 Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake. En ligne : http://dx.doi.org/10.1007/s10803-018-3498-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361

Disentangling global and domain-level adaptive behavior trajectories among children with autism spectrum disorder / Cristan FARMER in Journal of Child Psychology and Psychiatry, 64-6 (June 2023)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 64-6 (June 2023) . - p.868-875 Titre : Disentangling global and domain-level adaptive behavior trajectories among children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Cristan FARMER, Auteur ; Audrey THURM, Auteur ; Emma CONDY, Auteur ; Eric DUKU, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Mayada ELSABBAGH, Auteur ; Connor M. KERNS, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Stelios GEORGIADES, Auteur Article en page(s) : p.868-875 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Heterogeneity in adaptive behavior abilities among people with autism spectrum disorder (ASD) is expressed not only as uneven levels of impairment across domains, but also in the developmental trajectories of adaptive skills. We studied the question of whether, after accounting for global adaptive behavior development, we find evidence of heterogeneity in the trajectories of specific domains of adaptive behavior. Methods A sample of 504 children with ASD was obtained by combining data from two independent natural history studies conducted in North America. We used a factor of curves model to explain growth between 36 and 138?months in Vineland Adaptive Behavior Scales, Second Edition (VABS) age equivalents as a function of domain-specific and global growth processes. Results The domain-specific trajectories in all three domains (Communication, Daily Living Skills, and Socialization) reflected impairment relative to age expectations as well as slower-than-expected growth with age, and the parameters of these trajectories were moderately-to-strongly correlated across domains. The global adaptive behavior trajectory had an initial (36-41?months of age) developmental level of about 22 age-equivalent months, and eventually slowed after initially increasing by about 6 months each year. The global trajectory accounted for the majority of variance in the domain-level processes; however, additional variance remained (14%-38%) in the domain-level intercepts, slopes, and quadratic processes. Conclusions These results extend existing theoretical and empirical support for the hierarchical structure of adaptive behavior to include its development over time in clinical samples of children with ASD. A latent global trajectory may be sufficient to describe the growth of adaptive behavior in children with ASD; however, the remaining domain-specific variability after accounting for global adaptive behavior development allows for the possibility that differential effects of intervention on specific domains may be possible and detectable. En ligne : http://dx.doi.org/https://doi.org/10.1111/jcpp.13741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 [article] Disentangling global and domain-level adaptive behavior trajectories among children with autism spectrum disorder [Texte imprimé et/ou numérique] / Cristan FARMER, Auteur ; Audrey THURM, Auteur ; Emma CONDY, Auteur ; Eric DUKU, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Mayada ELSABBAGH, Auteur ; Connor M. KERNS, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Stelios GEORGIADES, Auteur . - p.868-875. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 64-6 (June 2023) . - p.868-875 Index. décimale : PER Périodiques Résumé : Background Heterogeneity in adaptive behavior abilities among people with autism spectrum disorder (ASD) is expressed not only as uneven levels of impairment across domains, but also in the developmental trajectories of adaptive skills. We studied the question of whether, after accounting for global adaptive behavior development, we find evidence of heterogeneity in the trajectories of specific domains of adaptive behavior. Methods A sample of 504 children with ASD was obtained by combining data from two independent natural history studies conducted in North America. We used a factor of curves model to explain growth between 36 and 138?months in Vineland Adaptive Behavior Scales, Second Edition (VABS) age equivalents as a function of domain-specific and global growth processes. Results The domain-specific trajectories in all three domains (Communication, Daily Living Skills, and Socialization) reflected impairment relative to age expectations as well as slower-than-expected growth with age, and the parameters of these trajectories were moderately-to-strongly correlated across domains. The global adaptive behavior trajectory had an initial (36-41?months of age) developmental level of about 22 age-equivalent months, and eventually slowed after initially increasing by about 6 months each year. The global trajectory accounted for the majority of variance in the domain-level processes; however, additional variance remained (14%-38%) in the domain-level intercepts, slopes, and quadratic processes. Conclusions These results extend existing theoretical and empirical support for the hierarchical structure of adaptive behavior to include its development over time in clinical samples of children with ASD. A latent global trajectory may be sufficient to describe the growth of adaptive behavior in children with ASD; however, the remaining domain-specific variability after accounting for global adaptive behavior development allows for the possibility that differential effects of intervention on specific domains may be possible and detectable. En ligne : http://dx.doi.org/https://doi.org/10.1111/jcpp.13741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504

Do reciprocal associations exist between social and language pathways in preschoolers with autism spectrum disorders? / Teresa BENNETT in Journal of Child Psychology and Psychiatry, 56-8 (August 2015)  

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Educators Describe the "Best Things" About Students with Autism at School / Anat ZAIDMAN-ZAIT ; Katherine Tombeau COST ; Isabel M. SMITH ; Lonnie ZWAIGENBAUM ; Eric DUKU ; Connor KERNS ; Stelios GEORGIADES ; Tracy VAILLANCOURT ; Mayada ELSABBAGH ; Teresa BENNETT ; Peter SZATMARI in Journal of Autism and Developmental Disorders, 54-1 (January 2024)  

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Examining clinical characteristics of autism and links with parent perceptions of sibling relationship quality / Alana J. MCVEY in Autism, 27-2 (February 2023)  

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Examining Trajectories of Daily Living Skills over the Preschool Years for Children with Autism Spectrum Disorder / B. DI REZZE in Journal of Autism and Developmental Disorders, 49-11 (November 2019)  

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Gender Differences in Pragmatic Communication in School-Aged Children with Autism Spectrum Disorder (ASD) / O. CONLON in Journal of Autism and Developmental Disorders, 49-5 (May 2019)  

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Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder / Anat ZAIDMAN-ZAIT in Autism, 21-2 (February 2017)  

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Influence of reporting effects on the association between maternal depression and child autism spectrum disorder behaviors / Teresa BENNETT in Journal of Child Psychology and Psychiatry, 53-1 (January 2012)  

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Investigating phenotypic heterogeneity in children with autism spectrum disorder: a factor mixture modeling approach / Stelios GEORGIADES in Journal of Child Psychology and Psychiatry, 54-2 (February 2013)  

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Investigating the Measurement Properties of the Social Responsiveness Scale in Preschool Children with Autism Spectrum Disorders / Eric DUKU in Journal of Autism and Developmental Disorders, 43-4 (April 2013)  

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Joint trajectories of internalizing and externalizing problems in preschool children with autism spectrum disorder / Tracy VAILLANCOURT in Development and Psychopathology, 29-1 (February 2017)  

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