Autism in Australia: Community Knowledge and Autistic People's Experiences / Sandra C. JONES in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3677-3689 Titre : Autism in Australia: Community Knowledge and Autistic People's Experiences Type de document : texte imprimé Auteurs : Sandra C. JONES, Auteur ; Muhammad AKRAM, Auteur ; Chloe S. GORDON, Auteur ; Nada MURPHY, Auteur ; Fiona SHARKIE, Auteur Article en page(s) : p.3677-3689 Langues : Anglais (eng) Mots-clés : Attitude  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Parents  Surveys and Questionnaires  Attitudes  Autism  Community perceptions  Knowledge  Understanding Index. décimale : PER Périodiques Résumé : This paper presents two studies that explored community attitudes to autism in Australia; and autistic people and their families' perspectives of community attitudes. In Study One 2424 (primarily non-autistic) people completed a survey on autism-related knowledge and attitudes; identifying a number of misperceptions and knowledge gaps in the general community. In Study Two 1353 people (primarily parents and carers of autistic people) completed a survey on autism-related experiences; identifying that the community's awareness of autism does not appear to extend to understanding how to support autistic people. There is a need for more research which integrates the perspectives of both autistic people and the broader community; and the development of communication and education interventions, with rather than about autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04819-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Autism in Australia: Community Knowledge and Autistic People's Experiences [texte imprimé] / Sandra C. JONES, Auteur ; Muhammad AKRAM, Auteur ; Chloe S. GORDON, Auteur ; Nada MURPHY, Auteur ; Fiona SHARKIE, Auteur . - p.3677-3689. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3677-3689 Mots-clés : Attitude  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Parents  Surveys and Questionnaires  Attitudes  Autism  Community perceptions  Knowledge  Understanding Index. décimale : PER Périodiques Résumé : This paper presents two studies that explored community attitudes to autism in Australia; and autistic people and their families' perspectives of community attitudes. In Study One 2424 (primarily non-autistic) people completed a survey on autism-related knowledge and attitudes; identifying a number of misperceptions and knowledge gaps in the general community. In Study Two 1353 people (primarily parents and carers of autistic people) completed a survey on autism-related experiences; identifying that the community's awareness of autism does not appear to extend to understanding how to support autistic people. There is a need for more research which integrates the perspectives of both autistic people and the broader community; and the development of communication and education interventions, with rather than about autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04819-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit / Imogen MELGAARD ; Chloe S. GORDON in Journal of Autism and Developmental Disorders, 55-7 (July 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-7 (July 2025) . - p.2539-2549 Titre : Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit Type de document : texte imprimé Auteurs : Imogen MELGAARD, Auteur ; Chloe S. GORDON, Auteur Article en page(s) : p.2539-2549 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic mothers remain under-represented in parental and autism research despite the associated physical and psychosocial challenges that accompany the transition to motherhood. Extant literature suggests autistic mothers experience sensory difficulties, communication challenges, stigma, and comorbidities as difficulties, but these studies have focused on autistic women in the perinatal period. The aim of this study was to examine reflections on motherhood from a Reddit community for autistic parents. Identified themes were Autistic Mothering is Different, Autistic Mothers Need Autistic Mothers, Autistic Mothers Experience Stigma, and Learnings from Lockdown. Findings extend existing research by offering insight into the ways autism impacts mothers beyond the perinatal period and have important implications for the future design and delivery of support services for autistic mothers. En ligne : https://doi.org/10.1007/s10803-024-06312-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=559 [article] Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit [texte imprimé] / Imogen MELGAARD, Auteur ; Chloe S. GORDON, Auteur . - p.2539-2549. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-7 (July 2025) . - p.2539-2549 Index. décimale : PER Périodiques Résumé : Autistic mothers remain under-represented in parental and autism research despite the associated physical and psychosocial challenges that accompany the transition to motherhood. Extant literature suggests autistic mothers experience sensory difficulties, communication challenges, stigma, and comorbidities as difficulties, but these studies have focused on autistic women in the perinatal period. The aim of this study was to examine reflections on motherhood from a Reddit community for autistic parents. Identified themes were Autistic Mothering is Different, Autistic Mothers Need Autistic Mothers, Autistic Mothers Experience Stigma, and Learnings from Lockdown. Findings extend existing research by offering insight into the ways autism impacts mothers beyond the perinatal period and have important implications for the future design and delivery of support services for autistic mothers. En ligne : https://doi.org/10.1007/s10803-024-06312-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=559

Correction: Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit / Imogen MELGAARD ; Chloe S. GORDON in Journal of Autism and Developmental Disorders, 54-9 (September 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-9 (September 2024) . - p.3573-3573 Titre : Correction: Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit Type de document : texte imprimé Auteurs : Imogen MELGAARD, Auteur ; Chloe S. GORDON, Auteur Article en page(s) : p.3573-3573 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06457-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] Correction: Autistic Women?s Experience of Motherhood: A Qualitative Analysis of Reddit [texte imprimé] / Imogen MELGAARD, Auteur ; Chloe S. GORDON, Auteur . - p.3573-3573. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-9 (September 2024) . - p.3573-3573 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06457-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

'I shouldn?t have to educate their school about what autism is': Community attitudes and parent reports of autistic primary and secondary school experiences in Australia / Chloe S. GORDON ; Simone MIZZI in Autism, 29-10 (October 2025)  

Public ISBD [article]  inAutism > 29-10 (October 2025) . - p.2451-2462 Titre : 'I shouldn?t have to educate their school about what autism is': Community attitudes and parent reports of autistic primary and secondary school experiences in Australia Type de document : texte imprimé Auteurs : Chloe S. GORDON, Auteur ; Simone MIZZI, Auteur Article en page(s) : p.2451-2462 Langues : Anglais (eng) Mots-clés : autism  education services  inclusion  reasonable adjustments  school-age children Index. décimale : PER Périodiques Résumé : This study aims to understand experiences of inclusion for autistic school students. The study reports on findings from three surveys, one conducted in 2021 with the general population (N = 1983) and two conducted with parents/carers of autistic school students, one in 2020 (N = 2212) and one in 2021 (N = 528). The general population had a favourable attitude towards autistic students receiving supports in school. However, the lived experience of autistic students, as reported on by their parents, highlighted significant gaps in the provision of support. Qualitative data from the 2021 survey with parents of autistic students found that system-level challenges were pervasive, and a lack of inclusion and support caused significant harm to autistic students. Although the perspective is that of the parent rather than the student, this study may provide insight into the experiences of autistic students who otherwise may not engage with traditional research methods. Future research should seek to hear directly from autistic students themselves and to explore case study examples of schools that are excelling in the area of supporting autistic students. These exemplars could be used to advocate for the provision of support in schools and referred to in professional development for school leaders and teachers.Lay abstract This study explored the experiences of inclusion for autistic students in Australian schools. Our survey in 2021 with the general public (N = 1983) found that people agree that autistic students should receive support in schools. Our surveys with parents of autistic students, one in 2020 (N = 2212) and another in 2021 (N = 528), found many barriers within the school system that make it hard for autistic children to feel included and supported. This lack of support negatively impacts the well-being of autistic children. It is important to note that this study focused on the perspectives of parents, not the students themselves. Future research should identify and learn from schools that are doing a great job supporting autistic students. These examples could be used to advocate for better support for all autistic students and to help train educators to be more effective in meeting the needs of these students. En ligne : https://dx.doi.org/10.1177/13623613251338908 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] 'I shouldn?t have to educate their school about what autism is': Community attitudes and parent reports of autistic primary and secondary school experiences in Australia [texte imprimé] / Chloe S. GORDON, Auteur ; Simone MIZZI, Auteur . - p.2451-2462. Langues : Anglais (eng) in Autism > 29-10 (October 2025) . - p.2451-2462 Mots-clés : autism  education services  inclusion  reasonable adjustments  school-age children Index. décimale : PER Périodiques Résumé : This study aims to understand experiences of inclusion for autistic school students. The study reports on findings from three surveys, one conducted in 2021 with the general population (N = 1983) and two conducted with parents/carers of autistic school students, one in 2020 (N = 2212) and one in 2021 (N = 528). The general population had a favourable attitude towards autistic students receiving supports in school. However, the lived experience of autistic students, as reported on by their parents, highlighted significant gaps in the provision of support. Qualitative data from the 2021 survey with parents of autistic students found that system-level challenges were pervasive, and a lack of inclusion and support caused significant harm to autistic students. Although the perspective is that of the parent rather than the student, this study may provide insight into the experiences of autistic students who otherwise may not engage with traditional research methods. Future research should seek to hear directly from autistic students themselves and to explore case study examples of schools that are excelling in the area of supporting autistic students. These exemplars could be used to advocate for the provision of support in schools and referred to in professional development for school leaders and teachers.Lay abstract This study explored the experiences of inclusion for autistic students in Australian schools. Our survey in 2021 with the general public (N = 1983) found that people agree that autistic students should receive support in schools. Our surveys with parents of autistic students, one in 2020 (N = 2212) and another in 2021 (N = 528), found many barriers within the school system that make it hard for autistic children to feel included and supported. This lack of support negatively impacts the well-being of autistic children. It is important to note that this study focused on the perspectives of parents, not the students themselves. Future research should identify and learn from schools that are doing a great job supporting autistic students. These examples could be used to advocate for better support for all autistic students and to help train educators to be more effective in meeting the needs of these students. En ligne : https://dx.doi.org/10.1177/13623613251338908 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences / Sandra C. JONES in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1131-1142 Titre : Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences Type de document : texte imprimé Auteurs : Sandra C. JONES, Auteur ; Chloe S. GORDON, Auteur ; Muhammad AKRAM, Auteur ; Nada MURPHY, Auteur ; Fiona SHARKIE, Auteur Article en page(s) : p.1131-1142 Langues : Anglais (eng) Mots-clés : Adult  Attitude  Australia  Autism Spectrum Disorder  Autistic Disorder  Humans  Parents  Education  Employment  Isolation  Lived experience Index. décimale : PER Périodiques Résumé : There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n = 2,383), and Study Two with primarily parents and carers of autistic people (n = 1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages. En ligne : http://dx.doi.org/10.1007/s10803-021-04998-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences [texte imprimé] / Sandra C. JONES, Auteur ; Chloe S. GORDON, Auteur ; Muhammad AKRAM, Auteur ; Nada MURPHY, Auteur ; Fiona SHARKIE, Auteur . - p.1131-1142. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1131-1142 Mots-clés : Adult  Attitude  Australia  Autism Spectrum Disorder  Autistic Disorder  Humans  Parents  Education  Employment  Isolation  Lived experience Index. décimale : PER Périodiques Résumé : There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n = 2,383), and Study Two with primarily parents and carers of autistic people (n = 1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages. En ligne : http://dx.doi.org/10.1007/s10803-021-04998-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Representation of autism in fictional media: A systematic review of media content and its impact on viewer knowledge and understanding of autism / Sandra C. JONES in Autism, 27-8 (November 2023)  

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