“Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa / Roy Richard GRINKER in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.201-210 Titre : “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa Type de document : texte imprimé Auteurs : Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur Année de publication : 2012 Article en page(s) : p.201-210 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa [texte imprimé] / Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur . - 2012 . - p.201-210. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.201-210 Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder / Roy Richard GRINKER in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2329-2336 Titre : Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Roy Richard GRINKER, Auteur ; Christina D. KANG-YI, Auteur ; Chloe AHMANN, Auteur ; Rinad S. BEIDAS, Auteur ; Adrienne E. LAGMAN, Auteur ; David S. MANDELL, Auteur Année de publication : 2015 Article en page(s) : p.2329-2336 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Outreach materials  Cultural aspects of ASD  Korean-Americans  Ethnic disparities  Translation Index. décimale : PER Périodiques Résumé : In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition. En ligne : http://dx.doi.org/10.1007/s10803-015-2397-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder [texte imprimé] / Roy Richard GRINKER, Auteur ; Christina D. KANG-YI, Auteur ; Chloe AHMANN, Auteur ; Rinad S. BEIDAS, Auteur ; Adrienne E. LAGMAN, Auteur ; David S. MANDELL, Auteur . - 2015 . - p.2329-2336. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2329-2336 Mots-clés : Autism spectrum disorder  Outreach materials  Cultural aspects of ASD  Korean-Americans  Ethnic disparities  Translation Index. décimale : PER Périodiques Résumé : In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition. En ligne : http://dx.doi.org/10.1007/s10803-015-2397-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Cultural Issues in Education for those with Autism / Jorge BENAVIDES-RAWSON

Public ISBD in The SAGE Handbook of Autism and Education / Rita JORDAN Titre : Cultural Issues in Education for those with Autism Type de document : texte imprimé Auteurs : Jorge BENAVIDES-RAWSON, Auteur ; Roy Richard GRINKER, Auteur Année de publication : 2019 Importance : p.517-522 Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417 in The SAGE Handbook of Autism and Education / Rita JORDAN Cultural Issues in Education for those with Autism [texte imprimé] / Jorge BENAVIDES-RAWSON, Auteur ; Roy Richard GRINKER, Auteur . - 2019 . - p.517-522. Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417

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Culture and Autism Spectrum Disorders: The Impact on Prevalence and Recognition / Roy Richard GRINKER

Public ISBD in Autism Spectrum Disorders / David G. AMARAL Titre : Culture and Autism Spectrum Disorders: The Impact on Prevalence and Recognition Type de document : texte imprimé Auteurs : Roy Richard GRINKER, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Coleen BOYLE, Auteur Année de publication : 2011 Importance : p.112-136 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=139 in Autism Spectrum Disorders / David G. AMARAL Culture and Autism Spectrum Disorders: The Impact on Prevalence and Recognition [texte imprimé] / Roy Richard GRINKER, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Coleen BOYLE, Auteur . - 2011 . - p.112-136. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=139

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Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa / Nola J. CHAMBERS in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.518-526 Titre : Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa Type de document : texte imprimé Auteurs : Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Roy Richard GRINKER, Auteur Article en page(s) : p.518-526 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa [texte imprimé] / Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Roy Richard GRINKER, Auteur . - p.518-526. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.518-526 Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Korean Culture and Autism Spectrum Disorders / Christina D. KANG-YI in Journal of Autism and Developmental Disorders, 43-3 (March 2013)  

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Notes on a puzzle piece / Roy Richard GRINKER in Autism, 19-6 (August 2015)  

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Offit Paul: Autism’s False Prophets: Bad Science, Risky Medicine, and the Search for a Cure - Columbia University Press, New York, 2008, 298 pp., ISBN: 978-0-231-14636-4 / Roy Richard GRINKER in Journal of Autism and Developmental Disorders, 39-3 (March 2009)  

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