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African American Families on Autism Diagnosis and Treatment: The Influence of Culture / Karen BURKETT in Journal of Autism and Developmental Disorders, 45-10 (October 2015)
[article]
Titre : African American Families on Autism Diagnosis and Treatment: The Influence of Culture Type de document : Texte imprimé et/ou numérique Auteurs : Karen BURKETT, Auteur ; Edith MORRIS, Auteur ; Patricia MANNING-COURTNEY, Auteur ; Jean ANTHONY, Auteur ; Donna SHAMBLEY-EBRON, Auteur Article en page(s) : p.3244-3254 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Health care disparities African American families Cultural factors ASD diagnosis Index. décimale : PER Périodiques Résumé : Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-015-2482-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3244-3254[article] African American Families on Autism Diagnosis and Treatment: The Influence of Culture [Texte imprimé et/ou numérique] / Karen BURKETT, Auteur ; Edith MORRIS, Auteur ; Patricia MANNING-COURTNEY, Auteur ; Jean ANTHONY, Auteur ; Donna SHAMBLEY-EBRON, Auteur . - p.3244-3254.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3244-3254
Mots-clés : Autism spectrum disorder Health care disparities African American families Cultural factors ASD diagnosis Index. décimale : PER Périodiques Résumé : Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-015-2482-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 Are Urinary Porphyrins a Valid Diagnostic Biomarker of Autism Spectrum Disorder? / Kerrie SHANDLEY in Autism Research, 7-5 (October 2014)
[article]
Titre : Are Urinary Porphyrins a Valid Diagnostic Biomarker of Autism Spectrum Disorder? Type de document : Texte imprimé et/ou numérique Auteurs : Kerrie SHANDLEY, Auteur ; David W. AUSTIN, Auteur ; Jahar L. BHOWMIK, Auteur Article en page(s) : p.535-542 Langues : Anglais (eng) Mots-clés : porphyrins biomarker ASD diagnosis ASD severity heavy metals mercury Index. décimale : PER Périodiques Résumé : A fundamental challenge to the timely diagnosis of Autism Spectrum Disorder (ASD) is the reliance on the observation of a set of aberrant behavior. Consequently, the diagnostic process requires that the child reach an age where the behaviors would typically be exhibited. The identification of a reliable biological marker (biomarker) could be of considerable benefit to the diagnostic process. As a diagnostic biomarker, porphyrins present an attractive prospect as previous studies have reported consistent findings of children with ASD showing significant elevations in porphyrin levels in contrast to controls. Furthermore, there is some evidence that ASD severity may be associated with porphyrins, which would be a valuable characteristic of any ASD biomarker. Importantly, for practical use, porphyrins can be tested non-invasively via a sample of urine. The present study sought to investigate whether porphyrin profiles can reliably be used to (a) differentiate ASD cases from healthy controls; and (b) predict ASD severity. The study compared the porphyrin levels of three groups of children aged 2–6 years: Group 1—children diagnosed with ASD (n?=?70); Group 2—healthy, normally developing siblings of children diagnosed with ASD (n?=?36); and Group 3—healthy, normally developing children with no known blood relative diagnosed with ASD (n?=?54). The results of logistic regression analyses failed to find support for the hypotheses that porphyrin levels could be used as a valid tool to detect ASD cases or predict severity. Autism Res 2014, 7: 535–542. © 2014 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1385 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Autism Research > 7-5 (October 2014) . - p.535-542[article] Are Urinary Porphyrins a Valid Diagnostic Biomarker of Autism Spectrum Disorder? [Texte imprimé et/ou numérique] / Kerrie SHANDLEY, Auteur ; David W. AUSTIN, Auteur ; Jahar L. BHOWMIK, Auteur . - p.535-542.
Langues : Anglais (eng)
in Autism Research > 7-5 (October 2014) . - p.535-542
Mots-clés : porphyrins biomarker ASD diagnosis ASD severity heavy metals mercury Index. décimale : PER Périodiques Résumé : A fundamental challenge to the timely diagnosis of Autism Spectrum Disorder (ASD) is the reliance on the observation of a set of aberrant behavior. Consequently, the diagnostic process requires that the child reach an age where the behaviors would typically be exhibited. The identification of a reliable biological marker (biomarker) could be of considerable benefit to the diagnostic process. As a diagnostic biomarker, porphyrins present an attractive prospect as previous studies have reported consistent findings of children with ASD showing significant elevations in porphyrin levels in contrast to controls. Furthermore, there is some evidence that ASD severity may be associated with porphyrins, which would be a valuable characteristic of any ASD biomarker. Importantly, for practical use, porphyrins can be tested non-invasively via a sample of urine. The present study sought to investigate whether porphyrin profiles can reliably be used to (a) differentiate ASD cases from healthy controls; and (b) predict ASD severity. The study compared the porphyrin levels of three groups of children aged 2–6 years: Group 1—children diagnosed with ASD (n?=?70); Group 2—healthy, normally developing siblings of children diagnosed with ASD (n?=?36); and Group 3—healthy, normally developing children with no known blood relative diagnosed with ASD (n?=?54). The results of logistic regression analyses failed to find support for the hypotheses that porphyrin levels could be used as a valid tool to detect ASD cases or predict severity. Autism Res 2014, 7: 535–542. © 2014 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1385 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 Autism Detection in Children by Combined Use of Gaze Preference and the M-CHAT-R in a Resource-Scarce Setting / Kelly JENSEN in Journal of Autism and Developmental Disorders, 51-3 (March 2021)
[article]
Titre : Autism Detection in Children by Combined Use of Gaze Preference and the M-CHAT-R in a Resource-Scarce Setting Type de document : Texte imprimé et/ou numérique Auteurs : Kelly JENSEN, Auteur ; Sassan NOAZIN, Auteur ; Leandra BITTERFELD, Auteur ; Andrea CARCELEN, Auteur ; Natalia I. VARGAS-CUENTAS, Auteur ; Daniela HIDALGO, Auteur ; Alejandra VALENZUELA, Auteur ; Avid ROMAN-GONZALEZ, Auteur ; Casey KREBS, Auteur ; Vincent CLEMENT, Auteur ; Cody NOLAN, Auteur ; Franklin BARRIENTOS, Auteur ; Ardi KNOBEL MENDOZA, Auteur ; Paola NORIEGA-DONIS, Auteur ; Claudia PALACIOS, Auteur ; Andrea RAMIREZ, Auteur ; Macarena VITTET, Auteur ; Emil HAFEEZ, Auteur ; Mariana TORRES-VISO, Auteur ; Myriam VELARDE, Auteur ; Lawrence H. MOULTON, Auteur ; Michael D. POWERS, Auteur ; Robert H. GILMAN, Auteur ; Mirko ZIMIC, Auteur Article en page(s) : p.994-1006 Langues : Anglais (eng) Mots-clés : ASD diagnosis Autism spectrum disorder Developmental disorder Eye tracking Gaze preference Index. décimale : PER Périodiques Résumé : Most children with autism spectrum disorder (ASD), in resource-limited settings (RLS), are diagnosed after the age of four. Our work confirmed and extended results of Pierce that eye tracking could discriminate between typically developing (TD) children and those with ASD. We demonstrated the initial 15 s was at least as discriminating as the entire video. We evaluated the GP-MCHAT-R, which combines the first 15 s of manually-coded gaze preference (GP) video with M-CHAT-R results on 73 TD children and 28 children with ASD, 36-99 months of age. The GP-MCHAT-R (AUC?=?0.89 (95%CI: 0.82-0.95)), performed significantly better than the MCHAT-R (AUC?=?0.78 (95%CI: 0.71-0.85)) and gaze preference (AUC?=?0.76 (95%CI: 0.64-0.88)) alone. This tool may enable early screening for ASD in RLS. En ligne : http://dx.doi.org/10.1007/s10803-021-04878-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.994-1006[article] Autism Detection in Children by Combined Use of Gaze Preference and the M-CHAT-R in a Resource-Scarce Setting [Texte imprimé et/ou numérique] / Kelly JENSEN, Auteur ; Sassan NOAZIN, Auteur ; Leandra BITTERFELD, Auteur ; Andrea CARCELEN, Auteur ; Natalia I. VARGAS-CUENTAS, Auteur ; Daniela HIDALGO, Auteur ; Alejandra VALENZUELA, Auteur ; Avid ROMAN-GONZALEZ, Auteur ; Casey KREBS, Auteur ; Vincent CLEMENT, Auteur ; Cody NOLAN, Auteur ; Franklin BARRIENTOS, Auteur ; Ardi KNOBEL MENDOZA, Auteur ; Paola NORIEGA-DONIS, Auteur ; Claudia PALACIOS, Auteur ; Andrea RAMIREZ, Auteur ; Macarena VITTET, Auteur ; Emil HAFEEZ, Auteur ; Mariana TORRES-VISO, Auteur ; Myriam VELARDE, Auteur ; Lawrence H. MOULTON, Auteur ; Michael D. POWERS, Auteur ; Robert H. GILMAN, Auteur ; Mirko ZIMIC, Auteur . - p.994-1006.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.994-1006
Mots-clés : ASD diagnosis Autism spectrum disorder Developmental disorder Eye tracking Gaze preference Index. décimale : PER Périodiques Résumé : Most children with autism spectrum disorder (ASD), in resource-limited settings (RLS), are diagnosed after the age of four. Our work confirmed and extended results of Pierce that eye tracking could discriminate between typically developing (TD) children and those with ASD. We demonstrated the initial 15 s was at least as discriminating as the entire video. We evaluated the GP-MCHAT-R, which combines the first 15 s of manually-coded gaze preference (GP) video with M-CHAT-R results on 73 TD children and 28 children with ASD, 36-99 months of age. The GP-MCHAT-R (AUC?=?0.89 (95%CI: 0.82-0.95)), performed significantly better than the MCHAT-R (AUC?=?0.78 (95%CI: 0.71-0.85)) and gaze preference (AUC?=?0.76 (95%CI: 0.64-0.88)) alone. This tool may enable early screening for ASD in RLS. En ligne : http://dx.doi.org/10.1007/s10803-021-04878-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443 "I don't feel different. But then again, I wouldn't know what it feels like to be normal": Perspectives of Adolescents with Autism Spectrum Disorder / Lauren D. BERKOVITS in Journal of Autism and Developmental Disorders, 50-3 (March 2020)
[article]
Titre : "I don't feel different. But then again, I wouldn't know what it feels like to be normal": Perspectives of Adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lauren D. BERKOVITS, Auteur ; Christine T. MOODY, Auteur ; Jan BLACHER, Auteur Article en page(s) : p.831-843 Langues : Anglais (eng) Mots-clés : ASD diagnosis Adolescence Self-perceptions Well-being Index. décimale : PER Périodiques Résumé : There is minimal research regarding the personal experiences and perceptions of youth with autism spectrum disorder (ASD). Yet, the positive and negative perceptions that youth internalize about their diagnoses are crucial, as they may have a strong impact on individuals' self-concept and well-being. This paper utilizes mixed methods to describe the perceptions of 38 adolescents with ASD about their diagnoses, as elicited via semi-structured interviews. Quantitative analyses explore links between youths' perceptions and other aspects of their social-emotional well-being. Implications are highlighted regarding the importance of shifting the narrative that individuals with ASD develop about themselves and their diagnoses. En ligne : http://dx.doi.org/10.1007/s10803-019-04309-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419
in Journal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.831-843[article] "I don't feel different. But then again, I wouldn't know what it feels like to be normal": Perspectives of Adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Lauren D. BERKOVITS, Auteur ; Christine T. MOODY, Auteur ; Jan BLACHER, Auteur . - p.831-843.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.831-843
Mots-clés : ASD diagnosis Adolescence Self-perceptions Well-being Index. décimale : PER Périodiques Résumé : There is minimal research regarding the personal experiences and perceptions of youth with autism spectrum disorder (ASD). Yet, the positive and negative perceptions that youth internalize about their diagnoses are crucial, as they may have a strong impact on individuals' self-concept and well-being. This paper utilizes mixed methods to describe the perceptions of 38 adolescents with ASD about their diagnoses, as elicited via semi-structured interviews. Quantitative analyses explore links between youths' perceptions and other aspects of their social-emotional well-being. Implications are highlighted regarding the importance of shifting the narrative that individuals with ASD develop about themselves and their diagnoses. En ligne : http://dx.doi.org/10.1007/s10803-019-04309-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419