Centre d'Information et de documentation du CRA Rhône-Alpes
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Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
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Implementation and Evolution of a Primary Care-Based Program for Adolescents and Young Adults on the Autism Spectrum / Laura C. HART in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Implementation and Evolution of a Primary Care-Based Program for Adolescents and Young Adults on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Laura C. HART, Auteur ; Heather SAHA, Auteur ; Stephanie LAWRENCE, Auteur ; Susan FRIEDMAN, Auteur ; Polly IRWIN, Auteur ; Christopher HANKS, Auteur Article en page(s) : p.2924-2933 Langues : Anglais (eng) Mots-clés : Adolescent Autism Spectrum Disorder/therapy Autistic Disorder Child Child Development Disorders, Pervasive Humans Parents Patient-Centered Care Young Adult Autism Primary care Transition to adult care Index. décimale : PER Périodiques Résumé : Current primary care models are inadequate for adults on the autism spectrum. The Center for Autism Services and Transition (CAST) clinic was developed in 2014 using feedback from parents of adults on the autism spectrum and patient-centered medical home principles. We evaluated the reach of CAST's services. As of January 2021, 858 patients were seen in CAST. Many continue to receive primary care from the CAST clinic. The program has undergone staffing changes but continues to accept new patients. We have added services such as "happy visits," pre-procedure videos, and telehealth visits. CAST provides one example of how to improve primary care for adults on the autism spectrum. More research is needed to assess the effectiveness of the CAST model. En ligne : http://dx.doi.org/10.1007/s10803-021-05171-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2924-2933[article] Implementation and Evolution of a Primary Care-Based Program for Adolescents and Young Adults on the Autism Spectrum [Texte imprimé et/ou numérique] / Laura C. HART, Auteur ; Heather SAHA, Auteur ; Stephanie LAWRENCE, Auteur ; Susan FRIEDMAN, Auteur ; Polly IRWIN, Auteur ; Christopher HANKS, Auteur . - p.2924-2933.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2924-2933
Mots-clés : Adolescent Autism Spectrum Disorder/therapy Autistic Disorder Child Child Development Disorders, Pervasive Humans Parents Patient-Centered Care Young Adult Autism Primary care Transition to adult care Index. décimale : PER Périodiques Résumé : Current primary care models are inadequate for adults on the autism spectrum. The Center for Autism Services and Transition (CAST) clinic was developed in 2014 using feedback from parents of adults on the autism spectrum and patient-centered medical home principles. We evaluated the reach of CAST's services. As of January 2021, 858 patients were seen in CAST. Many continue to receive primary care from the CAST clinic. The program has undergone staffing changes but continues to accept new patients. We have added services such as "happy visits," pre-procedure videos, and telehealth visits. CAST provides one example of how to improve primary care for adults on the autism spectrum. More research is needed to assess the effectiveness of the CAST model. En ligne : http://dx.doi.org/10.1007/s10803-021-05171-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version / Nancy C. CHEAK-ZAMORA in Journal of Autism and Developmental Disorders, 51-6 (June 2021)
[article]
Titre : Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version Type de document : Texte imprimé et/ou numérique Auteurs : Nancy C. CHEAK-ZAMORA, Auteur ; G. PETROSKI, Auteur ; A. LA MANNA, Auteur ; David Q. BEVERSDORF, Auteur ; J. FARMER, Auteur Article en page(s) : p.2036-2046 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/psychology Caregivers Delivery of Health Care Factor Analysis, Statistical Humans Male Psychometrics/methods Transition to Adult Care Young Adult Autism spectrum disorders (ASD) Health care transition Independence Measurement Young adults Index. décimale : PER Périodiques Résumé : Little is known about Young adults with Autism Spectrum Disorder (YA-ASD) health, healthcare and safety needs. This study describes the validation of a health care transition measure for YA-ASD, the Health-Related Independence (HRI). We collected data from caregivers (n?=?490) at five Autism Treatment Network sites and compared the psychometric properties of HRI to the gold standard (STAR(x)) and other validated measures. A Confirmatory Factor Analysis and item culling resulted in 30 items addressing six subscales. Content, criterion, and construct validity and internal consistency indicated high validity and reliability for the scale and subscales. HRI is a validated caregiver-report measure of YA-ASD's self-management, safety, and transition skills. This novel measure will be a useful tool in clinics, intervention development, and research. En ligne : http://dx.doi.org/10.1007/s10803-020-04690-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.2036-2046[article] Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version [Texte imprimé et/ou numérique] / Nancy C. CHEAK-ZAMORA, Auteur ; G. PETROSKI, Auteur ; A. LA MANNA, Auteur ; David Q. BEVERSDORF, Auteur ; J. FARMER, Auteur . - p.2036-2046.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.2036-2046
Mots-clés : Autism Spectrum Disorder/psychology Caregivers Delivery of Health Care Factor Analysis, Statistical Humans Male Psychometrics/methods Transition to Adult Care Young Adult Autism spectrum disorders (ASD) Health care transition Independence Measurement Young adults Index. décimale : PER Périodiques Résumé : Little is known about Young adults with Autism Spectrum Disorder (YA-ASD) health, healthcare and safety needs. This study describes the validation of a health care transition measure for YA-ASD, the Health-Related Independence (HRI). We collected data from caregivers (n?=?490) at five Autism Treatment Network sites and compared the psychometric properties of HRI to the gold standard (STAR(x)) and other validated measures. A Confirmatory Factor Analysis and item culling resulted in 30 items addressing six subscales. Content, criterion, and construct validity and internal consistency indicated high validity and reliability for the scale and subscales. HRI is a validated caregiver-report measure of YA-ASD's self-management, safety, and transition skills. This novel measure will be a useful tool in clinics, intervention development, and research. En ligne : http://dx.doi.org/10.1007/s10803-020-04690-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452