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Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 48-6 (June 2018)
[article]
Titre : Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur Article en page(s) : p.2174-2186 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186[article] Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur . - p.2174-2186.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186
Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362 Examining mental and physical health between autistic women and women with serious mental illness / M. DUBREUCQ in Research in Autism Spectrum Disorders, 104 (June 2023)
[article]
Titre : Examining mental and physical health between autistic women and women with serious mental illness Type de document : Texte imprimé et/ou numérique Auteurs : M. DUBREUCQ, Auteur ; B. YCART, Auteur ; J. DUBREUCQ, Auteur Article en page(s) : 102148 Langues : Anglais (eng) Mots-clés : Women's health Autism Serious mental illness Psychosocial function Mental and physical health Index. décimale : PER Périodiques Résumé : Background Compared with their male counterparts, autistic women and women with serious mental illness (SMI) usually report comparable or better objective outcomes (e.g. more socially valued roles) but also poorer subjective outcomes (e.g. depression). While a number of studies investigated gender differences in adult outcome in autism or in SMI, this study is to our knowledge one of the first to compare whether autistic women would differ from women with SMI in their profiles of co-occurring health conditions, psychosocial function and in variables related to socially valued roles. Methods To explore this issue, we recruited 112 women (57 autistic women and 55 women with SMI) from one center of the REHABase cohort. Evaluation included a medical interview (DSM-5), an interview by a trained midwife to investigate co-occurring health conditions and a standardized scale for psychosocial function (Global Assessment of Functioning scale; GAF). Results Compared with women with SMI, autistic women had better psychosocial function but had also a higher mean number of co-occurring mental and physical health conditions. Autistic women were more likely to report current depression (beta=2.25; p = 0.002), current anxiety (beta=2.67; p < 0.001) and a history of school bullying (beta=2.05; p = 0.013). Autistic women reported less desire to become mothers. Conclusions While autistic women and women with SMI report additional challenges resulting in poorer mental health compared with non-autistic women and their male counterparts, the present study suggests that autistic women may experience unique challenges and have unique treatment needs that should be taken into account when designing service provision. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102148 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504
in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102148[article] Examining mental and physical health between autistic women and women with serious mental illness [Texte imprimé et/ou numérique] / M. DUBREUCQ, Auteur ; B. YCART, Auteur ; J. DUBREUCQ, Auteur . - 102148.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102148
Mots-clés : Women's health Autism Serious mental illness Psychosocial function Mental and physical health Index. décimale : PER Périodiques Résumé : Background Compared with their male counterparts, autistic women and women with serious mental illness (SMI) usually report comparable or better objective outcomes (e.g. more socially valued roles) but also poorer subjective outcomes (e.g. depression). While a number of studies investigated gender differences in adult outcome in autism or in SMI, this study is to our knowledge one of the first to compare whether autistic women would differ from women with SMI in their profiles of co-occurring health conditions, psychosocial function and in variables related to socially valued roles. Methods To explore this issue, we recruited 112 women (57 autistic women and 55 women with SMI) from one center of the REHABase cohort. Evaluation included a medical interview (DSM-5), an interview by a trained midwife to investigate co-occurring health conditions and a standardized scale for psychosocial function (Global Assessment of Functioning scale; GAF). Results Compared with women with SMI, autistic women had better psychosocial function but had also a higher mean number of co-occurring mental and physical health conditions. Autistic women were more likely to report current depression (beta=2.25; p = 0.002), current anxiety (beta=2.67; p < 0.001) and a history of school bullying (beta=2.05; p = 0.013). Autistic women reported less desire to become mothers. Conclusions While autistic women and women with SMI report additional challenges resulting in poorer mental health compared with non-autistic women and their male counterparts, the present study suggests that autistic women may experience unique challenges and have unique treatment needs that should be taken into account when designing service provision. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102148 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation / R. STEWARD in Journal of Autism and Developmental Disorders, 48-12 (December 2018)
[article]
Titre : "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation Type de document : Texte imprimé et/ou numérique Auteurs : R. STEWARD, Auteur ; L. CRANE, Auteur ; E. MAIRI ROY, Auteur ; A. REMINGTON, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.4287-4292 Langues : Anglais (eng) Mots-clés : Autism Menarche Menstruation Self-regulation Sensory sensitivities Women's health Index. décimale : PER Périodiques Résumé : Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-018-3664-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371
in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4287-4292[article] "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation [Texte imprimé et/ou numérique] / R. STEWARD, Auteur ; L. CRANE, Auteur ; E. MAIRI ROY, Auteur ; A. REMINGTON, Auteur ; E. PELLICANO, Auteur . - p.4287-4292.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4287-4292
Mots-clés : Autism Menarche Menstruation Self-regulation Sensory sensitivities Women's health Index. décimale : PER Périodiques Résumé : Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-018-3664-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)
[article]
Titre : Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur Article en page(s) : p.935-949 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949[article] Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur . - p.935-949.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949
Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386