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Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 48-6 (June 2018)
[article]
Titre : Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur Article en page(s) : p.2174-2186 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186[article] Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur . - p.2174-2186.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186
Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362 Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)
[article]
Titre : Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur Article en page(s) : p.935-949 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949[article] Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur . - p.935-949.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949
Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image / S. HEALY in Autism, 25-7 (October 2021)
[article]
Titre : "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image Type de document : Texte imprimé et/ou numérique Auteurs : S. HEALY, Auteur ; Carly PACANOWSKI, Auteur ; L. KENNEDY, Auteur ; I. OBRUSNIKOVA, Auteur Article en page(s) : p.1985-1998 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Body Image Body Weight Humans Mental Health Overweight body dissatisfaction health promotion mental health obesity weight loss Index. décimale : PER Périodiques Résumé : Our beliefs and feelings about our bodies and our body weight influence our weight management behaviors, such as physical activity and eating behaviors. These beliefs and feelings are largely shaped by how we interact with, and compare ourselves to, people in our lives. Due to the social traits associated with autism, autistic adults may have different perceptions of body weight, body image, and weight management than neurotypical adults. To explore this, for the first time, we interviewed 11 autistic adults. The participants' perceptions can be summarized in four findings. First, the participants viewed overweight and obesity as just one part of their overall health. Participants described how their mental health and physical health, including overweight/obesity, were closely connected. Second, some traits related to autism made weight management difficult; for example, eating and physical activity were negatively impacted by social anxiety, sensory sensitivity, obsessiveness, and a strong desire for routine. Third, participants were generally dissatisfied with how they looked. This was primarily due to a disconnect between how they felt their body looked and how it actually looked in real life. Other people, including on social media, also negatively influenced how they perceived themselves. Fourth, and finally, participants described how they got most of their weight management-related information online. Medical professionals were frequently described as being unprepared to provide them assistance related to weight management. En ligne : http://dx.doi.org/10.1177/13623613211006989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-7 (October 2021) . - p.1985-1998[article] "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image [Texte imprimé et/ou numérique] / S. HEALY, Auteur ; Carly PACANOWSKI, Auteur ; L. KENNEDY, Auteur ; I. OBRUSNIKOVA, Auteur . - p.1985-1998.
Langues : Anglais (eng)
in Autism > 25-7 (October 2021) . - p.1985-1998
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Body Image Body Weight Humans Mental Health Overweight body dissatisfaction health promotion mental health obesity weight loss Index. décimale : PER Périodiques Résumé : Our beliefs and feelings about our bodies and our body weight influence our weight management behaviors, such as physical activity and eating behaviors. These beliefs and feelings are largely shaped by how we interact with, and compare ourselves to, people in our lives. Due to the social traits associated with autism, autistic adults may have different perceptions of body weight, body image, and weight management than neurotypical adults. To explore this, for the first time, we interviewed 11 autistic adults. The participants' perceptions can be summarized in four findings. First, the participants viewed overweight and obesity as just one part of their overall health. Participants described how their mental health and physical health, including overweight/obesity, were closely connected. Second, some traits related to autism made weight management difficult; for example, eating and physical activity were negatively impacted by social anxiety, sensory sensitivity, obsessiveness, and a strong desire for routine. Third, participants were generally dissatisfied with how they looked. This was primarily due to a disconnect between how they felt their body looked and how it actually looked in real life. Other people, including on social media, also negatively influenced how they perceived themselves. Fourth, and finally, participants described how they got most of their weight management-related information online. Medical professionals were frequently described as being unprepared to provide them assistance related to weight management. En ligne : http://dx.doi.org/10.1177/13623613211006989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image / Sean HEALY in Autism, 26-7 (October 2022)
[article]
Titre : "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image Type de document : Texte imprimé et/ou numérique Auteurs : Sean HEALY, Auteur ; Carly PACANOWSKI, Auteur ; Lauren KENNEDY, Auteur ; Iva OBRUSNIKOVA, Auteur Article en page(s) : p.1985-1998 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Body Image Body Weight Humans Mental Health Overweight autism spectrum disorder body dissatisfaction health promotion obesity weight loss Index. décimale : PER Périodiques Résumé : Our beliefs and feelings about our bodies and our body weight influence our weight management behaviors, such as physical activity and eating behaviors. These beliefs and feelings are largely shaped by how we interact with, and compare ourselves to, people in our lives. Due to the social traits associated with autism, autistic adults may have different perceptions of body weight, body image, and weight management than neurotypical adults. To explore this, for the first time, we interviewed 11 autistic adults. The participants' perceptions can be summarized in four findings. First, the participants viewed overweight and obesity as just one part of their overall health. Participants described how their mental health and physical health, including overweight/obesity, were closely connected. Second, some traits related to autism made weight management difficult; for example, eating and physical activity were negatively impacted by social anxiety, sensory sensitivity, obsessiveness, and a strong desire for routine. Third, participants were generally dissatisfied with how they looked. This was primarily due to a disconnect between how they felt their body looked and how it actually looked in real life. Other people, including on social media, also negatively influenced how they perceived themselves. Fourth, and finally, participants described how they got most of their weight management-related information online. Medical professionals were frequently described as being unprepared to provide them assistance related to weight management. En ligne : http://dx.doi.org/10.1177/13623613211006989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484
in Autism > 26-7 (October 2022) . - p.1985-1998[article] "This cage that I'm stuck inside": Autistic adults' perceptions of weight management, body weight, and body image [Texte imprimé et/ou numérique] / Sean HEALY, Auteur ; Carly PACANOWSKI, Auteur ; Lauren KENNEDY, Auteur ; Iva OBRUSNIKOVA, Auteur . - p.1985-1998.
Langues : Anglais (eng)
in Autism > 26-7 (October 2022) . - p.1985-1998
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Body Image Body Weight Humans Mental Health Overweight autism spectrum disorder body dissatisfaction health promotion obesity weight loss Index. décimale : PER Périodiques Résumé : Our beliefs and feelings about our bodies and our body weight influence our weight management behaviors, such as physical activity and eating behaviors. These beliefs and feelings are largely shaped by how we interact with, and compare ourselves to, people in our lives. Due to the social traits associated with autism, autistic adults may have different perceptions of body weight, body image, and weight management than neurotypical adults. To explore this, for the first time, we interviewed 11 autistic adults. The participants' perceptions can be summarized in four findings. First, the participants viewed overweight and obesity as just one part of their overall health. Participants described how their mental health and physical health, including overweight/obesity, were closely connected. Second, some traits related to autism made weight management difficult; for example, eating and physical activity were negatively impacted by social anxiety, sensory sensitivity, obsessiveness, and a strong desire for routine. Third, participants were generally dissatisfied with how they looked. This was primarily due to a disconnect between how they felt their body looked and how it actually looked in real life. Other people, including on social media, also negatively influenced how they perceived themselves. Fourth, and finally, participants described how they got most of their weight management-related information online. Medical professionals were frequently described as being unprepared to provide them assistance related to weight management. En ligne : http://dx.doi.org/10.1177/13623613211006989 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 Weighty Conversations: Caregivers', Children's, and Clinicians' Perspectives and Experiences of Discussing Weight-Related Topics in Healthcare Consultations / P. JACHYRA in Autism Research, 11-11 (November 2018)
[article]
Titre : Weighty Conversations: Caregivers', Children's, and Clinicians' Perspectives and Experiences of Discussing Weight-Related Topics in Healthcare Consultations Type de document : Texte imprimé et/ou numérique Auteurs : P. JACHYRA, Auteur ; Evdokia ANAGNOSTOU, Auteur ; T. J. KNIBBE, Auteur ; C. PETTA, Auteur ; S. COSGROVE, Auteur ; L. CHEN, Auteur ; L. CAPANO, Auteur ; L. MOLTISANTI, Auteur ; A. C. MCPHERSON, Auteur Article en page(s) : p.1500-1510 Langues : Anglais (eng) Mots-clés : autism spectrum disorder health communication health promotion obesity qualitative research Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at a higher risk of having obesity than their typically developing peers. Although it has been recommended that health care providers (HCPs) speak to caregivers and children about the risk of higher weights, no research has examined how HCPs communicate weight-related information. Furthermore, there is a dearth of evidence regarding how to approach and deliver optimal weight-related discussions among children with ASD and their caregivers. Given these knowledge gaps, 21 in-depth interviews were conducted with children with ASD, their caregivers, and HCPs. Using a qualitative analytic approach, data from interviews were analyzed thematically. Results suggest that HCPs at times projected weight stigma during clinical encounters, which did not motivate children and caregivers to work toward work loss or wellness. HCPs also described reticence in engaging families in weight-related conversations due to limited training, and lack of clinical tools to guide these conversations. All stakeholders identified a need to work together to establish a therapeutic partnership to discuss weight-related issues without blame or shame. The combination of strength-based communication approaches, establishing a strong therapeutic partnership, and development of clinical tools facilitating weight-related discussions for HCPs outlined in this article are potential vehicles to foster successful weight-related discussions while promoting lifelong wellness. Autism Research 2018, 11: 1500-1510. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Children with autism spectrum disorder (ASD) are at a higher risk of having obesity. Yet, it is unknown how healthcare providers (HCPs) should deliver weight-related information. Findings suggest children and caregivers experienced weight stigma and were uncomfortable discussing weight-related issues. HCPs identified that they did not have sufficient training, and did not feel confident identifying/addressing weight issues. Tools are needed to facilitate weight-related discussions among children, caregivers and HCPs. En ligne : http://dx.doi.org/10.1002/aur.2017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Autism Research > 11-11 (November 2018) . - p.1500-1510[article] Weighty Conversations: Caregivers', Children's, and Clinicians' Perspectives and Experiences of Discussing Weight-Related Topics in Healthcare Consultations [Texte imprimé et/ou numérique] / P. JACHYRA, Auteur ; Evdokia ANAGNOSTOU, Auteur ; T. J. KNIBBE, Auteur ; C. PETTA, Auteur ; S. COSGROVE, Auteur ; L. CHEN, Auteur ; L. CAPANO, Auteur ; L. MOLTISANTI, Auteur ; A. C. MCPHERSON, Auteur . - p.1500-1510.
Langues : Anglais (eng)
in Autism Research > 11-11 (November 2018) . - p.1500-1510
Mots-clés : autism spectrum disorder health communication health promotion obesity qualitative research Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at a higher risk of having obesity than their typically developing peers. Although it has been recommended that health care providers (HCPs) speak to caregivers and children about the risk of higher weights, no research has examined how HCPs communicate weight-related information. Furthermore, there is a dearth of evidence regarding how to approach and deliver optimal weight-related discussions among children with ASD and their caregivers. Given these knowledge gaps, 21 in-depth interviews were conducted with children with ASD, their caregivers, and HCPs. Using a qualitative analytic approach, data from interviews were analyzed thematically. Results suggest that HCPs at times projected weight stigma during clinical encounters, which did not motivate children and caregivers to work toward work loss or wellness. HCPs also described reticence in engaging families in weight-related conversations due to limited training, and lack of clinical tools to guide these conversations. All stakeholders identified a need to work together to establish a therapeutic partnership to discuss weight-related issues without blame or shame. The combination of strength-based communication approaches, establishing a strong therapeutic partnership, and development of clinical tools facilitating weight-related discussions for HCPs outlined in this article are potential vehicles to foster successful weight-related discussions while promoting lifelong wellness. Autism Research 2018, 11: 1500-1510. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Children with autism spectrum disorder (ASD) are at a higher risk of having obesity. Yet, it is unknown how healthcare providers (HCPs) should deliver weight-related information. Findings suggest children and caregivers experienced weight stigma and were uncomfortable discussing weight-related issues. HCPs identified that they did not have sufficient training, and did not feel confident identifying/addressing weight issues. Tools are needed to facilitate weight-related discussions among children, caregivers and HCPs. En ligne : http://dx.doi.org/10.1002/aur.2017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370