Assessment of Autism in Community Settings: Discrepancies in Classification / Marian E. WILLIAMS in Journal of Autism and Developmental Disorders, 39-4 (April 2009)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 39-4 (April 2009) . - p.660-669 Titre : Assessment of Autism in Community Settings: Discrepancies in Classification Type de document : texte imprimé Auteurs : Marian E. WILLIAMS, Auteur ; Monique ATKINS, Auteur ; Tamara SOLES, Auteur Année de publication : 2009 Article en page(s) : p.660-669 Langues : Anglais (eng) Mots-clés : Autism Assessment Early-childhood Latino Index. décimale : PER Périodiques Résumé : Review of 78 evaluations for 29 young children examined practices used in assessment of autism spectrum disorders in three settings: public schools, developmental disabilities eligibility determinations, and our hospital-based early childhood mental health program. While similar rates of classification of autism spectrum disorders were found across sites, the rate of agreement by different evaluators for individual children was only 45%. Further, most community evaluators did not follow best practice guidelines nor use autism diagnostic tools with established psychometric properties. In this sample of primarily Latino, Spanish-speaking children, most community evaluators did not document assessment of the child in their native language, nor address the impact of language in their assessments. En ligne : http://dx.doi.org/10.1007/s10803-008-0668-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=707 [article] Assessment of Autism in Community Settings: Discrepancies in Classification [texte imprimé] / Marian E. WILLIAMS, Auteur ; Monique ATKINS, Auteur ; Tamara SOLES, Auteur . - 2009 . - p.660-669. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 39-4 (April 2009) . - p.660-669 Mots-clés : Autism Assessment Early-childhood Latino Index. décimale : PER Périodiques Résumé : Review of 78 evaluations for 29 young children examined practices used in assessment of autism spectrum disorders in three settings: public schools, developmental disabilities eligibility determinations, and our hospital-based early childhood mental health program. While similar rates of classification of autism spectrum disorders were found across sites, the rate of agreement by different evaluators for individual children was only 45%. Further, most community evaluators did not follow best practice guidelines nor use autism diagnostic tools with established psychometric properties. In this sample of primarily Latino, Spanish-speaking children, most community evaluators did not document assessment of the child in their native language, nor address the impact of language in their assessments. En ligne : http://dx.doi.org/10.1007/s10803-008-0668-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=707

Brief Report: Caregiver Confidence in Reporting Anxiety Symptoms in Children with Autism Spectrum Disorder / Marian E. WILLIAMS in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3727-3733 Titre : Brief Report: Caregiver Confidence in Reporting Anxiety Symptoms in Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Marian E. WILLIAMS, Auteur ; Leah I. STEIN DUKER, Auteur ; Cheryl L.P. VIGEN, Auteur ; Chelsey WYLDE, Auteur ; Sharon A. CERMAK, Auteur Article en page(s) : p.3727-3733 Langues : Anglais (eng) Mots-clés : Adolescent  Anxiety/diagnosis  Anxiety Disorders  Autism Spectrum Disorder/diagnosis  Caregivers  Child  Humans  Parents  Anxiety  Assessment  Autism spectrum disorder  Caregiver report  Confidence  Parent report Index. décimale : PER Périodiques Résumé : Assessment of anxiety in children with autism spectrum disorder (ASD) most commonly includes parent questionnaires. However, due to the nature of the questions and verbal limitations often present in children with ASD, caregivers may have difficulty completing such measures. Caregivers of 144 children with ASD ages 6 to 12 completed the Child and Adolescent Symptom Inventory-4 ASD Anxiety Scale and rated their level of confidence in responding to each item. Results indicated that parents had a moderate to high level of confidence in rating their children's anxiety symptoms. Parent confidence was not influenced by their child's age, expressive language ability, or intellectual functioning, but was related to their child's anxiety symptom count and ASD severity. En ligne : http://dx.doi.org/10.1007/s10803-021-05210-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Brief Report: Caregiver Confidence in Reporting Anxiety Symptoms in Children with Autism Spectrum Disorder [texte imprimé] / Marian E. WILLIAMS, Auteur ; Leah I. STEIN DUKER, Auteur ; Cheryl L.P. VIGEN, Auteur ; Chelsey WYLDE, Auteur ; Sharon A. CERMAK, Auteur . - p.3727-3733. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3727-3733 Mots-clés : Adolescent  Anxiety/diagnosis  Anxiety Disorders  Autism Spectrum Disorder/diagnosis  Caregivers  Child  Humans  Parents  Anxiety  Assessment  Autism spectrum disorder  Caregiver report  Confidence  Parent report Index. décimale : PER Périodiques Résumé : Assessment of anxiety in children with autism spectrum disorder (ASD) most commonly includes parent questionnaires. However, due to the nature of the questions and verbal limitations often present in children with ASD, caregivers may have difficulty completing such measures. Caregivers of 144 children with ASD ages 6 to 12 completed the Child and Adolescent Symptom Inventory-4 ASD Anxiety Scale and rated their level of confidence in responding to each item. Results indicated that parents had a moderate to high level of confidence in rating their children's anxiety symptoms. Parent confidence was not influenced by their child's age, expressive language ability, or intellectual functioning, but was related to their child's anxiety symptom count and ASD severity. En ligne : http://dx.doi.org/10.1007/s10803-021-05210-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Brief Report: Recruitment and Retention of Minority Children for Autism Research / Irina ZAMORA in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Titre : Brief Report: Recruitment and Retention of Minority Children for Autism Research Type de document : texte imprimé Auteurs : Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur Année de publication : 2016 Article en page(s) : p.698-703 Langues : Anglais (eng) Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Brief Report: Recruitment and Retention of Minority Children for Autism Research [texte imprimé] / Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur . - 2016 . - p.698-703. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders / Helaine G. ST AMANT in Journal of Autism and Developmental Disorders, 48-2 (February 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.333-340 Titre : Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Helaine G. ST AMANT, Auteur ; Sheree M. SCHRAGER, Auteur ; C. PENA-RICARDO, Auteur ; Marian E. WILLIAMS, Auteur ; Douglas L. VANDERBILT, Auteur Article en page(s) : p.333-340 Langues : Anglais (eng) Mots-clés : Access to services  Autism spectrum disorder  Health care disparities  Individualized education plan  Language barriers Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English. Additionally, children of primary English speakers received significantly more hours of direct services from their state disability program. After controlling for demographic covariates, findings suggest that language barriers may negatively affect parents' abilities to access health care services for their child with ASD. Acculturation factors must therefore be considered when analyzing disparities in autism. En ligne : https://doi.org/10.1007/s10803-017-3330-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 [article] Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders [texte imprimé] / Helaine G. ST AMANT, Auteur ; Sheree M. SCHRAGER, Auteur ; C. PENA-RICARDO, Auteur ; Marian E. WILLIAMS, Auteur ; Douglas L. VANDERBILT, Auteur . - p.333-340. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.333-340 Mots-clés : Access to services  Autism spectrum disorder  Health care disparities  Individualized education plan  Language barriers Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English. Additionally, children of primary English speakers received significantly more hours of direct services from their state disability program. After controlling for demographic covariates, findings suggest that language barriers may negatively affect parents' abilities to access health care services for their child with ASD. Acculturation factors must therefore be considered when analyzing disparities in autism. En ligne : https://doi.org/10.1007/s10803-017-3330-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337

Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System / Marian E. WILLIAMS in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3423-3431 Titre : Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System Type de document : texte imprimé Auteurs : Marian E. WILLIAMS, Auteur ; Eliza K HARLEY, Auteur ; Irina QUEBLES, Auteur ; Marie Kanne POULSEN, Auteur Article en page(s) : p.3423-3431 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  California  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Policy  Autism spectrum disorder  Early identification  Early intervention Index. décimale : PER Périodiques Résumé : Autism spectrum disorder can be reliably diagnosed prior to age 2, and early, intensive intervention has been found to improve long-term outcomes. Nonetheless, most children with ASD do not receive a diagnosis until after age 3, with even later diagnoses for children from non-white ethnic groups. This study conducted telephone surveys with California Part C early intervention managers regarding policies and practices for early identification and intervention for ASD. Findings indicated that 85% of agencies conduct screening for ASD, but only 39% conduct ASD diagnostic assessments prior to age 3. Recommendations for policy changes to align Part C practices with best practice guidelines are provided. En ligne : http://dx.doi.org/10.1007/s10803-020-04807-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Policy and Practice Barriers to Early Identification of Autism Spectrum Disorder in the California Early Intervention System [texte imprimé] / Marian E. WILLIAMS, Auteur ; Eliza K HARLEY, Auteur ; Irina QUEBLES, Auteur ; Marie Kanne POULSEN, Auteur . - p.3423-3431. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3423-3431 Mots-clés : Autism Spectrum Disorder/diagnosis  California  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Policy  Autism spectrum disorder  Early identification  Early intervention Index. décimale : PER Périodiques Résumé : Autism spectrum disorder can be reliably diagnosed prior to age 2, and early, intensive intervention has been found to improve long-term outcomes. Nonetheless, most children with ASD do not receive a diagnosis until after age 3, with even later diagnoses for children from non-white ethnic groups. This study conducted telephone surveys with California Part C early intervention managers regarding policies and practices for early identification and intervention for ASD. Findings indicated that 85% of agencies conduct screening for ASD, but only 39% conduct ASD diagnostic assessments prior to age 3. Recommendations for policy changes to align Part C practices with best practice guidelines are provided. En ligne : http://dx.doi.org/10.1007/s10803-020-04807-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Sensory Adapted Dental Environments to Enhance Oral Care for Children with Autism Spectrum Disorders: A Randomized Controlled Pilot Study / Sharon A. CERMAK in Journal of Autism and Developmental Disorders, 45-9 (September 2015)  

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