Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 / Maarten VAN 'T HOF in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.862-873 Titre : Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 Type de document : Texte imprimé et/ou numérique Auteurs : Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur Article en page(s) : p.862-873 Langues : Anglais (eng) Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 [Texte imprimé et/ou numérique] / Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur . - p.862-873. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.862-873 Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders / Amy M. DANIELS in Journal of Autism and Developmental Disorders, 47-8 (August 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2314-2325 Titre : Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Amy M. DANIELS, Auteur ; Ariel COMO, Auteur ; Sabri HERGUNER, Auteur ; Krasimira KOSTADINOVA, Auteur ; Jasmina STOSIC, Auteur ; Andy SHIH, Auteur Article en page(s) : p.2314-2325 Langues : Anglais (eng) Mots-clés : Southeast  Europe  Caregivers  Diagnosis  Services  Stigma Index. décimale : PER Périodiques Résumé : The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs. En ligne : https://doi.org/10.1007/s10803-017-3145-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314 [article] Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Amy M. DANIELS, Auteur ; Ariel COMO, Auteur ; Sabri HERGUNER, Auteur ; Krasimira KOSTADINOVA, Auteur ; Jasmina STOSIC, Auteur ; Andy SHIH, Auteur . - p.2314-2325. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2314-2325 Mots-clés : Southeast  Europe  Caregivers  Diagnosis  Services  Stigma Index. décimale : PER Périodiques Résumé : The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs. En ligne : https://doi.org/10.1007/s10803-017-3145-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314

Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort / L. C. WHITE in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Titre : Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort Type de document : Texte imprimé et/ou numérique Auteurs : L. C. WHITE, Auteur ; J. K. LAW, Auteur ; Amy M. DANIELS, Auteur ; J. TORONEY, Auteur ; B. VERNOIA, Auteur ; S. XIAO, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur Article en page(s) : p.3766-3773 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort [Texte imprimé et/ou numérique] / L. C. WHITE, Auteur ; J. K. LAW, Auteur ; Amy M. DANIELS, Auteur ; J. TORONEY, Auteur ; B. VERNOIA, Auteur ; S. XIAO, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur . - p.3766-3773. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3766-3773 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  SARS-CoV-2  United States  Autism spectrum disorder  Services  Stress  Telehealth Index. décimale : PER Périodiques Résumé : The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. En ligne : http://dx.doi.org/10.1007/s10803-020-04816-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Children’s Compliance with American Academy of Pediatrics’ Well-Child Care Visit Guidelines and the Early Detection of Autism / Amy M. DANIELS in Journal of Autism and Developmental Disorders, 43-12 (December 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-12 (December 2013) . - p.2844-2854 Titre : Children’s Compliance with American Academy of Pediatrics’ Well-Child Care Visit Guidelines and the Early Detection of Autism Type de document : Texte imprimé et/ou numérique Auteurs : Amy M. DANIELS, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.2844-2854 Langues : Anglais (eng) Mots-clés : Compliance  Well-child care  Autism  Diagnosis  Medicaid Index. décimale : PER Périodiques Résumé : This study estimated compliance with American Academy of Pediatrics (AAP) guidelines for well-child care and the association between compliance and age at diagnosis in a national sample of Medicaid-enrolled children with autism (N = 1,475). Mixed effects linear regression was used to assess the relationship between compliance and age at diagnosis. Mean age at diagnosis was 37.4 (SD 8.4) months, and mean compliance was 55 % (SD 33 %). Children whose care was compliant with AAP guidelines were diagnosed 1.6 months earlier than children who received no well-child care. Findings support that the timely receipt of well-child care may contribute to earlier detection. Additional research on the contribution of compliance, well-child visit components and provider characteristics on the timely diagnosis of autism is needed. En ligne : http://dx.doi.org/10.1007/s10803-013-1831-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218 [article] Children’s Compliance with American Academy of Pediatrics’ Well-Child Care Visit Guidelines and the Early Detection of Autism [Texte imprimé et/ou numérique] / Amy M. DANIELS, Auteur ; David S. MANDELL, Auteur . - p.2844-2854. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-12 (December 2013) . - p.2844-2854 Mots-clés : Compliance  Well-child care  Autism  Diagnosis  Medicaid Index. décimale : PER Périodiques Résumé : This study estimated compliance with American Academy of Pediatrics (AAP) guidelines for well-child care and the association between compliance and age at diagnosis in a national sample of Medicaid-enrolled children with autism (N = 1,475). Mixed effects linear regression was used to assess the relationship between compliance and age at diagnosis. Mean age at diagnosis was 37.4 (SD 8.4) months, and mean compliance was 55 % (SD 33 %). Children whose care was compliant with AAP guidelines were diagnosed 1.6 months earlier than children who received no well-child care. Findings support that the timely receipt of well-child care may contribute to earlier detection. Additional research on the contribution of compliance, well-child visit components and provider characteristics on the timely diagnosis of autism is needed. En ligne : http://dx.doi.org/10.1007/s10803-013-1831-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218

Explaining differences in age at autism spectrum disorder diagnosis: A critical review / Amy M. DANIELS in Autism, 18-5 (July 2014)  

Public ISBD [article]  inAutism > 18-5 (July 2014) . - p.583-597 Titre : Explaining differences in age at autism spectrum disorder diagnosis: A critical review Type de document : Texte imprimé et/ou numérique Auteurs : Amy M. DANIELS, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.583-597 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  delayed diagnosis  early diagnosis Index. décimale : PER Périodiques Résumé : The diagnosis of autism is often delayed, which translates into a missed opportunity to provide treatment during a critical developmental period. This study reviews studies that assessed factors associated with age at autism spectrum disorder diagnosis and provides recommendations on future research, programs, and policies to improve early detection. A search for all peer-reviewed articles containing the words autism, age, and diagnosis in either the title or abstract was performed. A total of 42 studies published from January 1990 through March 2012 were identified. Mean age at diagnosis for all autism spectrum disorders ranged from 38 to 120 months and has decreased over time. Factors associated with earlier diagnosis included greater symptom severity, high socioeconomic status, and greater parental concern about initial symptoms. Family interactions with the health and education systems prior to diagnosis also influenced age at diagnosis. Geographic variation in age at autism spectrum disorder diagnosis was identified in a number of studies, suggesting that community resources and state policies play a role in early identification. Early detection efforts should include enhanced parental and provider education on the early recognition of developmental problems, interventions aimed at streamlining the process from first concern to eventual diagnosis, and strategies that target underserved populations. En ligne : http://dx.doi.org/10.1177/1362361313480277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Explaining differences in age at autism spectrum disorder diagnosis: A critical review [Texte imprimé et/ou numérique] / Amy M. DANIELS, Auteur ; David S. MANDELL, Auteur . - p.583-597. Langues : Anglais (eng) in Autism > 18-5 (July 2014) . - p.583-597 Mots-clés : autism spectrum disorders  delayed diagnosis  early diagnosis Index. décimale : PER Périodiques Résumé : The diagnosis of autism is often delayed, which translates into a missed opportunity to provide treatment during a critical developmental period. This study reviews studies that assessed factors associated with age at autism spectrum disorder diagnosis and provides recommendations on future research, programs, and policies to improve early detection. A search for all peer-reviewed articles containing the words autism, age, and diagnosis in either the title or abstract was performed. A total of 42 studies published from January 1990 through March 2012 were identified. Mean age at diagnosis for all autism spectrum disorders ranged from 38 to 120 months and has decreased over time. Factors associated with earlier diagnosis included greater symptom severity, high socioeconomic status, and greater parental concern about initial symptoms. Family interactions with the health and education systems prior to diagnosis also influenced age at diagnosis. Geographic variation in age at autism spectrum disorder diagnosis was identified in a number of studies, suggesting that community resources and state policies play a role in early identification. Early detection efforts should include enhanced parental and provider education on the early recognition of developmental problems, interventions aimed at streamlining the process from first concern to eventual diagnosis, and strategies that target underserved populations. En ligne : http://dx.doi.org/10.1177/1362361313480277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

Psychiatric and Medical Profiles of Autistic Adults in the SPARK Cohort / Eric FOMBONNE in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

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Sex and gender differences in autism spectrum disorder: summarizing evidence gaps and identifying emerging areas of priority / Alycia K. HALLADAY in Molecular Autism, (June 2015)  

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Stability of Initial Autism Spectrum Disorder Diagnoses in Community Settings / Amy M. DANIELS in Journal of Autism and Developmental Disorders, 41-1 (January 2011)  

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Treated prevalence of and mental health services received by children and adolescents in 42 low-and-middle-income countries / Jodi MORRIS in Journal of Child Psychology and Psychiatry, 52-12 (December 2011)  

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Trends in Autism Spectrum Disorder Diagnoses: 1994–2007 / Rebecca E. ROSENBERG in Journal of Autism and Developmental Disorders, 39-8 (August 2009)  

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Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry / Amy M. DANIELS in Journal of Autism and Developmental Disorders, 42-2 (February 2012)  

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