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Auteur Micah O. MAZUREK |
Documents disponibles écrits par cet auteur (33)
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They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum / Micah O. MAZUREK in Research in Autism Spectrum Disorders, 89 (November 2021)
[article]
Titre : They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Micah O. MAZUREK, Auteur ; Eleonora SADIKOVA, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Amber HARDIN, Auteur ; Isabel HUERTA, Auteur ; Kristin SOHL, Auteur ; Beth A. MALOW, Auteur Article en page(s) : 101862 Langues : Anglais (eng) Mots-clés : Autism Adult Healthcare Primary care Mental health Access to care Index. décimale : PER Périodiques Résumé : Background Adults on the autism spectrum are at high risk for co-occurring conditions and poor health outcomes, yet they often experience significant unmet healthcare needs. A better understanding of potential gaps and barriers is essential for improving the healthcare system. This mixed-methods study was conducted to better understand the healthcare needs and experiences of adults on the autism spectrum from the perspective of parents and caregivers. Method Twenty-four caregivers of adults on the autism spectrum (21 mothers, 2 fathers, 1 non-parent caregiver) completed surveys and participated in one of seven focus group interviews to share their perspectives regarding healthcare needs, experiences, and suggestions for improvement. Results Survey responses indicated general satisfaction with primary care; however, in-depth qualitative data analyses revealed four primary themes and 10 subthemes. The first theme focused on barriers to healthcare access and included insurance coverage, geographic distance, waitlists, and provider shortages. Caregivers also expressed dissatisfaction with healthcare quality (Theme 2), particularly a lack of provider knowledge resulting in inadequate treatment. Participants also emphasized the need for comprehensive and coordinated healthcare services (Theme 3), and described pressure on parents to advocate and coordinate care. Finally, caregivers stressed the importance of person-centered care (Theme 4), particularly the need for accommodations and rapport for adults on the spectrum. Conclusions These results indicate that the nature and quality of current healthcare services may not be adequate to meet the needs of adults on the autism spectrum. The suggestions provided by caregivers should be used to inform strategies for healthcare improvement. En ligne : https://doi.org/10.1016/j.rasd.2021.101862 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101862[article] They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum [Texte imprimé et/ou numérique] / Micah O. MAZUREK, Auteur ; Eleonora SADIKOVA, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Amber HARDIN, Auteur ; Isabel HUERTA, Auteur ; Kristin SOHL, Auteur ; Beth A. MALOW, Auteur . - 101862.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101862
Mots-clés : Autism Adult Healthcare Primary care Mental health Access to care Index. décimale : PER Périodiques Résumé : Background Adults on the autism spectrum are at high risk for co-occurring conditions and poor health outcomes, yet they often experience significant unmet healthcare needs. A better understanding of potential gaps and barriers is essential for improving the healthcare system. This mixed-methods study was conducted to better understand the healthcare needs and experiences of adults on the autism spectrum from the perspective of parents and caregivers. Method Twenty-four caregivers of adults on the autism spectrum (21 mothers, 2 fathers, 1 non-parent caregiver) completed surveys and participated in one of seven focus group interviews to share their perspectives regarding healthcare needs, experiences, and suggestions for improvement. Results Survey responses indicated general satisfaction with primary care; however, in-depth qualitative data analyses revealed four primary themes and 10 subthemes. The first theme focused on barriers to healthcare access and included insurance coverage, geographic distance, waitlists, and provider shortages. Caregivers also expressed dissatisfaction with healthcare quality (Theme 2), particularly a lack of provider knowledge resulting in inadequate treatment. Participants also emphasized the need for comprehensive and coordinated healthcare services (Theme 3), and described pressure on parents to advocate and coordinate care. Finally, caregivers stressed the importance of person-centered care (Theme 4), particularly the need for accommodations and rapport for adults on the spectrum. Conclusions These results indicate that the nature and quality of current healthcare services may not be adequate to meet the needs of adults on the autism spectrum. The suggestions provided by caregivers should be used to inform strategies for healthcare improvement. En ligne : https://doi.org/10.1016/j.rasd.2021.101862 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 Treatment of anxiety in autistic adults: A systematic review / Michelle MENEZES in Research in Autism Spectrum Disorders, 99 (November)
[article]
Titre : Treatment of anxiety in autistic adults: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Michelle MENEZES, Auteur ; Christina HARKINS, Auteur ; Melissa F. ROBINSON, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Robert CROSS, Auteur ; Roma A. VASA, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : 102068 Langues : Anglais (eng) Mots-clés : Autism ASD Anxiety Mental health Treatment Index. décimale : PER Périodiques Résumé : Background Autistic adults are more likely than adults without autism spectrum disorder (ASD) to experience clinically significant anxiety. In addition, anxiety in autistic adults is associated with poorer quality of life and myriad negative outcomes (e.g., unemployment, suicidality). Therefore, this systematic review aimed to summarize and evaluate the literature on the psychotherapeutic and psychopharmacological treatment of anxiety in autistic adults to inform clinical decision-making. Method Several online databases were searched for peer-reviewed journal articles with any combination of the following terms in the abstract: (1) autism, autistic, Asperger, Asperger’s, or œpervasive developmental disorder (2) anxiety, anxious, phobia, mutism, panic, agoraphobia, or worry and (3) treatment, intervention, trial, therapy, psychotherapy, pharmacotherapy, medication, drug, antidepressant, sedative, or anti-anxiety. Data were extracted from articles meeting the inclusion criteria, and the strength of the evidence was assessed for treatments. Results Fifteen psychosocial treatment studies, one pharmacological treatment study, and one combined psychosocial and pharmacological treatment study met the inclusion criteria. The most investigated treatment for anxiety in adults with ASD was cognitive behavioral therapy (CBT). Conclusions Few studies have investigated the treatment of anxiety in autistic adults. Additionally, findings have been inconsistent across studies regarding the potential effectiveness of particular psychosocial and pharmacological treatments. More research is certainly needed before clinically useful conclusions can be made. En ligne : https://doi.org/10.1016/j.rasd.2022.102068 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Research in Autism Spectrum Disorders > 99 (November) . - 102068[article] Treatment of anxiety in autistic adults: A systematic review [Texte imprimé et/ou numérique] / Michelle MENEZES, Auteur ; Christina HARKINS, Auteur ; Melissa F. ROBINSON, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Robert CROSS, Auteur ; Roma A. VASA, Auteur ; Micah O. MAZUREK, Auteur . - 102068.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 99 (November) . - 102068
Mots-clés : Autism ASD Anxiety Mental health Treatment Index. décimale : PER Périodiques Résumé : Background Autistic adults are more likely than adults without autism spectrum disorder (ASD) to experience clinically significant anxiety. In addition, anxiety in autistic adults is associated with poorer quality of life and myriad negative outcomes (e.g., unemployment, suicidality). Therefore, this systematic review aimed to summarize and evaluate the literature on the psychotherapeutic and psychopharmacological treatment of anxiety in autistic adults to inform clinical decision-making. Method Several online databases were searched for peer-reviewed journal articles with any combination of the following terms in the abstract: (1) autism, autistic, Asperger, Asperger’s, or œpervasive developmental disorder (2) anxiety, anxious, phobia, mutism, panic, agoraphobia, or worry and (3) treatment, intervention, trial, therapy, psychotherapy, pharmacotherapy, medication, drug, antidepressant, sedative, or anti-anxiety. Data were extracted from articles meeting the inclusion criteria, and the strength of the evidence was assessed for treatments. Results Fifteen psychosocial treatment studies, one pharmacological treatment study, and one combined psychosocial and pharmacological treatment study met the inclusion criteria. The most investigated treatment for anxiety in adults with ASD was cognitive behavioral therapy (CBT). Conclusions Few studies have investigated the treatment of anxiety in autistic adults. Additionally, findings have been inconsistent across studies regarding the potential effectiveness of particular psychosocial and pharmacological treatments. More research is certainly needed before clinically useful conclusions can be made. En ligne : https://doi.org/10.1016/j.rasd.2022.102068 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 Treatment of Depression in Individuals with Autism Spectrum Disorder: A Systematic Review / Michelle MENEZES in Research in Autism Spectrum Disorders, 78 (October 2020)
[article]
Titre : Treatment of Depression in Individuals with Autism Spectrum Disorder: A Systematic Review Type de document : Texte imprimé et/ou numérique Auteurs : Michelle MENEZES, Auteur ; Christina HARKINS, Auteur ; Melissa F. ROBINSON, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : 101639 Langues : Anglais (eng) Mots-clés : autism spectrum disorder depression psychiatric comorbidity treatment ASD therapy Index. décimale : PER Périodiques Résumé : Background Given the prevalence of depression in persons with autism spectrum disorder (ASD), effective treatment is crucial; however, a systemic review on the topic has not been published in over a decade. This study aimed to systematically examine the efficacy of psychosocial and pharmacological treatments for depression in youth and adults with ASD to inform clinical practice. Method PsycINFO, PubMed, and CINAHL online databases were searched for peer-reviewed journal articles containing any combination of the following terms in the abstract: (1) autism, autistic, Asperger, or “pervasive developmental disorder,” (2) depression or depressive and (3) treatment, intervention, trial, therapy, medication, drug, or antidepressant. Evidence from studies meeting the predetermined criteria of inclusion was assessed for its strength to inform clinical decision-making. Results Twenty psychosocial treatment studies and five pharmacological treatment studies met the criteria of inclusion. Psychosocial interventions studied the effectiveness of cognitive remediation therapy, behavioral therapy, cognitive-behavioral therapy (CBT), combined psychosocial intervention, mindfulness-based therapy (MBT), and social, academic, and/or vocational skills training. Pharmacological interventions studied the effectiveness of anti-epileptic drug, norepinephrine reuptake inhibitor, stimulant, atypical antipsychotic, and NMDA receptor antagonist treatment. Conclusions Although much recent research has investigated potentially effective treatments for depression in individuals with ASD, the strength of the evidence remains generally poor. However, studies indicate preliminary efficacy for MBT. A number of investigations have examined the effect of CBT on depression in persons with ASD; however, the results are inconsistent. Further research is needed to advance clinical practice for individuals with ASD and comorbid depression. En ligne : https://doi.org/10.1016/j.rasd.2020.101639 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433
in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101639[article] Treatment of Depression in Individuals with Autism Spectrum Disorder: A Systematic Review [Texte imprimé et/ou numérique] / Michelle MENEZES, Auteur ; Christina HARKINS, Auteur ; Melissa F. ROBINSON, Auteur ; Micah O. MAZUREK, Auteur . - 101639.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101639
Mots-clés : autism spectrum disorder depression psychiatric comorbidity treatment ASD therapy Index. décimale : PER Périodiques Résumé : Background Given the prevalence of depression in persons with autism spectrum disorder (ASD), effective treatment is crucial; however, a systemic review on the topic has not been published in over a decade. This study aimed to systematically examine the efficacy of psychosocial and pharmacological treatments for depression in youth and adults with ASD to inform clinical practice. Method PsycINFO, PubMed, and CINAHL online databases were searched for peer-reviewed journal articles containing any combination of the following terms in the abstract: (1) autism, autistic, Asperger, or “pervasive developmental disorder,” (2) depression or depressive and (3) treatment, intervention, trial, therapy, medication, drug, or antidepressant. Evidence from studies meeting the predetermined criteria of inclusion was assessed for its strength to inform clinical decision-making. Results Twenty psychosocial treatment studies and five pharmacological treatment studies met the criteria of inclusion. Psychosocial interventions studied the effectiveness of cognitive remediation therapy, behavioral therapy, cognitive-behavioral therapy (CBT), combined psychosocial intervention, mindfulness-based therapy (MBT), and social, academic, and/or vocational skills training. Pharmacological interventions studied the effectiveness of anti-epileptic drug, norepinephrine reuptake inhibitor, stimulant, atypical antipsychotic, and NMDA receptor antagonist treatment. Conclusions Although much recent research has investigated potentially effective treatments for depression in individuals with ASD, the strength of the evidence remains generally poor. However, studies indicate preliminary efficacy for MBT. A number of investigations have examined the effect of CBT on depression in persons with ASD; however, the results are inconsistent. Further research is needed to advance clinical practice for individuals with ASD and comorbid depression. En ligne : https://doi.org/10.1016/j.rasd.2020.101639 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 Video game access, parental rules, and problem behavior: A study of boys with autism spectrum disorder / Christopher R. ENGELHARDT in Autism, 18-5 (July 2014)
[article]
Titre : Video game access, parental rules, and problem behavior: A study of boys with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Christopher R. ENGELHARDT, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : p.529-537 Langues : Anglais (eng) Mots-clés : autism in-room media oppositional behavior video game rules video games Index. décimale : PER Périodiques Résumé : Environmental correlates of problem behavior among individuals with autism spectrum disorder remain relatively understudied. The current study examined the contribution of in-room (i.e. bedroom) access to a video game console as one potential correlate of problem behavior among a sample of 169 boys with autism spectrum disorder (ranging from 8 to 18 years of age). Parents of these children reported on (1) whether they had specific rules regulating their child’s video game use, (2) whether their child had in-room access to a variety of screen-based media devices (television, computer, and video game console), and (3) their child’s oppositional behaviors. Multivariate regression models showed that in-room access to a video game console predicted oppositional behavior while controlling for in-room access to other media devices (computer and television) and relevant variables (e.g. average number of video game hours played per day). Additionally, the association between in-room access to a video game console and oppositional behavior was particularly large when parents reported no rules on their child’s video game use. The current findings indicate that both access and parental rules regarding video games warrant future experimental and longitudinal research as they relate to problem behavior in boys with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361313482053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233
in Autism > 18-5 (July 2014) . - p.529-537[article] Video game access, parental rules, and problem behavior: A study of boys with autism spectrum disorder [Texte imprimé et/ou numérique] / Christopher R. ENGELHARDT, Auteur ; Micah O. MAZUREK, Auteur . - p.529-537.
Langues : Anglais (eng)
in Autism > 18-5 (July 2014) . - p.529-537
Mots-clés : autism in-room media oppositional behavior video game rules video games Index. décimale : PER Périodiques Résumé : Environmental correlates of problem behavior among individuals with autism spectrum disorder remain relatively understudied. The current study examined the contribution of in-room (i.e. bedroom) access to a video game console as one potential correlate of problem behavior among a sample of 169 boys with autism spectrum disorder (ranging from 8 to 18 years of age). Parents of these children reported on (1) whether they had specific rules regulating their child’s video game use, (2) whether their child had in-room access to a variety of screen-based media devices (television, computer, and video game console), and (3) their child’s oppositional behaviors. Multivariate regression models showed that in-room access to a video game console predicted oppositional behavior while controlling for in-room access to other media devices (computer and television) and relevant variables (e.g. average number of video game hours played per day). Additionally, the association between in-room access to a video game console and oppositional behavior was particularly large when parents reported no rules on their child’s video game use. The current findings indicate that both access and parental rules regarding video games warrant future experimental and longitudinal research as they relate to problem behavior in boys with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361313482053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 Video game use and problem behaviors in boys with autism spectrum disorders / Micah O. MAZUREK in Research in Autism Spectrum Disorders, 7-2 (February 2013)
[article]
Titre : Video game use and problem behaviors in boys with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Micah O. MAZUREK, Auteur ; Christopher R. ENGELHARDT, Auteur Année de publication : 2013 Article en page(s) : p.316-324 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Video games Problem behaviors Oppositional behavior Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorders (ASD) have strong preferences for screen-based media, particularly video games. Although problematic video game use has been associated with behavior problems among typically developing children, the relationship between these variables has not been previously examined among children with ASD. The current study examined the relationships between aspects of video game use and problem behaviors among a sample of 169 boys (ages 8'18) with ASD. Parents reported on their children's behavioral functioning and video game habits and preferences, including the average number of hours spent playing video games per day, preferred game types (genres), and problematic (i.e., addictive) video game play patterns. The results revealed that problematic video game use was significantly correlated with inattention and oppositional behavior. Boys who played Role-Playing games had higher levels of both problematic game use and oppositional behavior. Finally, problematic game use and Role-Playing game genre were significant predictors of oppositional behavior, even when controlling for age and amount of time spent playing video games. The results highlight the clinical importance of examining video game use patterns among children with ASD, and indicate a need for future experimental and longitudinal research in this area. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.09.008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.316-324[article] Video game use and problem behaviors in boys with autism spectrum disorders [Texte imprimé et/ou numérique] / Micah O. MAZUREK, Auteur ; Christopher R. ENGELHARDT, Auteur . - 2013 . - p.316-324.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.316-324
Mots-clés : Autism spectrum disorder Video games Problem behaviors Oppositional behavior Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorders (ASD) have strong preferences for screen-based media, particularly video games. Although problematic video game use has been associated with behavior problems among typically developing children, the relationship between these variables has not been previously examined among children with ASD. The current study examined the relationships between aspects of video game use and problem behaviors among a sample of 169 boys (ages 8'18) with ASD. Parents reported on their children's behavioral functioning and video game habits and preferences, including the average number of hours spent playing video games per day, preferred game types (genres), and problematic (i.e., addictive) video game play patterns. The results revealed that problematic video game use was significantly correlated with inattention and oppositional behavior. Boys who played Role-Playing games had higher levels of both problematic game use and oppositional behavior. Finally, problematic game use and Role-Playing game genre were significant predictors of oppositional behavior, even when controlling for age and amount of time spent playing video games. The results highlight the clinical importance of examining video game use patterns among children with ASD, and indicate a need for future experimental and longitudinal research in this area. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.09.008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186