ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O MAZUREK in Autism, 24-3 (April 2020)  

Public ISBD [article]  inAutism > 24-3 (April 2020) . - p.633-644 Titre : ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.633-644 Langues : Anglais (eng) Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur . - p.633-644. Langues : Anglais (eng) in Autism > 24-3 (April 2020) . - p.633-644 Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

Investigating health-related knowledge and independence for physical and mental health conditions in young adults with autism spectrum disorder / Nancy C. CHEAK-ZAMORA in Research in Autism Spectrum Disorders, 85 (July 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 85 (July 2021) . - 101801 Titre : Investigating health-related knowledge and independence for physical and mental health conditions in young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Nancy C. CHEAK-ZAMORA, Auteur ; Kerri P. NOWELL, Auteur ; Emily HELTERBRAND, Auteur ; Andrew TAIT, Auteur Article en page(s) : 101801 Langues : Anglais (eng) Mots-clés : Young adults  Autism  Physical health  Mental health  Transition  Independence Index. décimale : PER Périodiques Résumé : Background Young adults with autism spectrum disorder’s (YA-ASD) ability to manage their healthcare needs is imperative as they transition to adult care. Method This study evaluated YA-ASD’s knowledge and care-seeking behavior for Physical and Mental Health (PH/MH) conditions. Caregivers (n?=?501), of YA-ASD 16–25 years completed surveys. This study examined the extent to which YA-ASD could describe and seek care for their physical and mental health conditions (i.e. describing and care-seeking behaviors). Multivariate analyses further evaluated YA-ASD’s ability to and predictors of describing and care-seeking behaviors. Results En ligne : https://doi.org/10.1016/j.rasd.2021.101801 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Investigating health-related knowledge and independence for physical and mental health conditions in young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Nancy C. CHEAK-ZAMORA, Auteur ; Kerri P. NOWELL, Auteur ; Emily HELTERBRAND, Auteur ; Andrew TAIT, Auteur . - 101801. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 85 (July 2021) . - 101801 Mots-clés : Young adults  Autism  Physical health  Mental health  Transition  Independence Index. décimale : PER Périodiques Résumé : Background Young adults with autism spectrum disorder’s (YA-ASD) ability to manage their healthcare needs is imperative as they transition to adult care. Method This study evaluated YA-ASD’s knowledge and care-seeking behavior for Physical and Mental Health (PH/MH) conditions. Caregivers (n?=?501), of YA-ASD 16–25 years completed surveys. This study examined the extent to which YA-ASD could describe and seek care for their physical and mental health conditions (i.e. describing and care-seeking behaviors). Multivariate analyses further evaluated YA-ASD’s ability to and predictors of describing and care-seeking behaviors. Results En ligne : https://doi.org/10.1016/j.rasd.2021.101801 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Self-determination in young adults with autism spectrum disorder / Nancy C. CHEAK-ZAMORA in Autism, 24-3 (April 2020)  

Public ISBD [article]  inAutism > 24-3 (April 2020) . - p.605-616 Titre : Self-determination in young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Nancy C. CHEAK-ZAMORA, Auteur ; Anna MAURER-BATJER, Auteur ; Beth A. MALOW, Auteur ; Ann COLEMAN, Auteur Article en page(s) : p.605-616 Langues : Anglais (eng) Mots-clés : autism  independence  self-determination  transition  young adults Index. décimale : PER Périodiques Résumé : This study examined rates of and contributing factors to self-determination among young adults with autism spectrum disorder. Caregivers of young adults with autism spectrum disorder, 16-25 years, from five Autism Treatment Network sites completed surveys about their young adults' transition experiences including the American Institutes for Research Self-Determination measure. Data were analyzed using univariate and multivariate analysis. Caregivers (n = 479) reported their young adults with autism spectrum disorder as having moderate overall self-determination (x = 38; standard deviation = 9.04) with low capacity (x = 15.3; standard deviation = 5.67) and high opportunities at home (x = 23.1; standard deviation = 4.59). Young adults with autism spectrum disorder with intellectual disability or severe autism spectrum disorder symptomology experience significant disparities in overall self-determination compared to those without intellectual disability and less frequent symptom expression and severity. Barring severity indicators, there were few significant predictors of self-determination. Findings show a breakdown in self-determination skill-building. Young adults with autism spectrum disorder with intellectual disability or severe symptomology experienced significant disparities in self-determination. These findings show that current promotion of self-determination is not meeting the needs of young adults with autism spectrum disorder. Future interventions must identify what supports young adults with autism spectrum disorder need to capitalize on these opportunities to be independent and exert autonomy in their daily lives. En ligne : http://dx.doi.org/10.1177/1362361319877329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] Self-determination in young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Nancy C. CHEAK-ZAMORA, Auteur ; Anna MAURER-BATJER, Auteur ; Beth A. MALOW, Auteur ; Ann COLEMAN, Auteur . - p.605-616. Langues : Anglais (eng) in Autism > 24-3 (April 2020) . - p.605-616 Mots-clés : autism  independence  self-determination  transition  young adults Index. décimale : PER Périodiques Résumé : This study examined rates of and contributing factors to self-determination among young adults with autism spectrum disorder. Caregivers of young adults with autism spectrum disorder, 16-25 years, from five Autism Treatment Network sites completed surveys about their young adults' transition experiences including the American Institutes for Research Self-Determination measure. Data were analyzed using univariate and multivariate analysis. Caregivers (n = 479) reported their young adults with autism spectrum disorder as having moderate overall self-determination (x = 38; standard deviation = 9.04) with low capacity (x = 15.3; standard deviation = 5.67) and high opportunities at home (x = 23.1; standard deviation = 4.59). Young adults with autism spectrum disorder with intellectual disability or severe autism spectrum disorder symptomology experience significant disparities in overall self-determination compared to those without intellectual disability and less frequent symptom expression and severity. Barring severity indicators, there were few significant predictors of self-determination. Findings show a breakdown in self-determination skill-building. Young adults with autism spectrum disorder with intellectual disability or severe symptomology experienced significant disparities in self-determination. These findings show that current promotion of self-determination is not meeting the needs of young adults with autism spectrum disorder. Future interventions must identify what supports young adults with autism spectrum disorder need to capitalize on these opportunities to be independent and exert autonomy in their daily lives. En ligne : http://dx.doi.org/10.1177/1362361319877329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

Systematic review of disparities in health care for individuals with autism spectrum disorders in the United States / Megan K. TREGNAGO in Research in Autism Spectrum Disorders, 6-3 (July-September 2012)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 6-3 (July-September 2012) . - p.1023-1031 Titre : Systematic review of disparities in health care for individuals with autism spectrum disorders in the United States Type de document : Texte imprimé et/ou numérique Auteurs : Megan K. TREGNAGO, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur Année de publication : 2012 Article en page(s) : p.1023-1031 Langues : Anglais (eng) Mots-clés : Autism  Health care costs  Accessibility  Disparities  Medical home  Health care utilization Index. décimale : PER Périodiques Résumé : Authors conducted a systematic review of the literature to determine whether differences exist for children with ASD versus children without ASD in the utilization, accessibility, and cost of their health care services. Population and outcome variables of interest were used to search for articles in Medline and PsycInfo databases. Thirteen studies comparing ASD and other groups of children without ASD were reviewed. A review of these publications revealed that children with ASD have higher health care utilization and costs, and worse access to care and medical homes. These results have implications for autism research and insurance policy to reduce health care utilization and costs, and ensure proper insurance coverage. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153 [article] Systematic review of disparities in health care for individuals with autism spectrum disorders in the United States [Texte imprimé et/ou numérique] / Megan K. TREGNAGO, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur . - 2012 . - p.1023-1031. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 6-3 (July-September 2012) . - p.1023-1031 Mots-clés : Autism  Health care costs  Accessibility  Disparities  Medical home  Health care utilization Index. décimale : PER Périodiques Résumé : Authors conducted a systematic review of the literature to determine whether differences exist for children with ASD versus children without ASD in the utilization, accessibility, and cost of their health care services. Population and outcome variables of interest were used to search for articles in Medline and PsycInfo databases. Thirteen studies comparing ASD and other groups of children without ASD were reviewed. A review of these publications revealed that children with ASD have higher health care utilization and costs, and worse access to care and medical homes. These results have implications for autism research and insurance policy to reduce health care utilization and costs, and ensure proper insurance coverage. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153

The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders / Nancy C. CHEAK-ZAMORA in Journal of Autism and Developmental Disorders, 45-3 (March 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-3 (March 2015) . - p.636-644 Titre : The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Nancy C. CHEAK-ZAMORA, Auteur ; Janet E. FARMER, Auteur Article en page(s) : p.636-644 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Delivery of health care  Unmet needs  Medical home Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorders (ASD) experience difficulty accessing health care services. Using parent-reported data from the 2009–2010 National Survey of Children with Special Health Care Needs, we examined whether having a medical home reduces unmet need for specialty care services for children with ASD (n = 3,055). Descriptive statistics and Chi square tests identified sample characteristics and examined the relationship between unmet needs and a standardized measure of medical home. Logistic regression models explored the individual impact of demographic, condition-specific and medical home variables on unmet need. Parents reported that nearly all children had a need for specialty services, 36 % had an unmet need, and 23.9 % had a medical home. Children who had fewer unmet needs were more likely to have received family-centered and coordinated care through a medical home, and this relationship remained significant even when demographic and condition-specific variables were taken into account. These findings suggest ways to improve access to care for children with ASD through enhanced family-centered and coordinated care within the medical home. En ligne : http://dx.doi.org/10.1007/s10803-014-2218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258 [article] The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Nancy C. CHEAK-ZAMORA, Auteur ; Janet E. FARMER, Auteur . - p.636-644. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-3 (March 2015) . - p.636-644 Mots-clés : Autism spectrum disorder  Delivery of health care  Unmet needs  Medical home Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorders (ASD) experience difficulty accessing health care services. Using parent-reported data from the 2009–2010 National Survey of Children with Special Health Care Needs, we examined whether having a medical home reduces unmet need for specialty care services for children with ASD (n = 3,055). Descriptive statistics and Chi square tests identified sample characteristics and examined the relationship between unmet needs and a standardized measure of medical home. Logistic regression models explored the individual impact of demographic, condition-specific and medical home variables on unmet need. Parents reported that nearly all children had a need for specialty services, 36 % had an unmet need, and 23.9 % had a medical home. Children who had fewer unmet needs were more likely to have received family-centered and coordinated care through a medical home, and this relationship remained significant even when demographic and condition-specific variables were taken into account. These findings suggest ways to improve access to care for children with ASD through enhanced family-centered and coordinated care within the medical home. En ligne : http://dx.doi.org/10.1007/s10803-014-2218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258

They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum / Micah O. MAZUREK in Research in Autism Spectrum Disorders, 89 (November 2021)  

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Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version / Nancy C. CHEAK-ZAMORA in Journal of Autism and Developmental Disorders, 51-6 (June 2021)  

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“You think it’s hard now … It gets much harder for our children”: Youth with autism and their caregiver’s perspectives of health care transition services / Nancy C. CHEAK-ZAMORA in Autism, 19-8 (November 2015)  

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