Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers / Gazi F. AZAD in Journal of Autism and Developmental Disorders, 49-8 (August 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3060-3072 Titre : Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers Type de document : Texte imprimé et/ou numérique Auteurs : Gazi F. AZAD, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; M. PINKETT-DAVIS, Auteur ; R. LANDA, Auteur Article en page(s) : p.3060-3072 Langues : Anglais (eng) Mots-clés : Appointment attendance  Autism spectrum disorder  Diagnostic alignment  Specialty care Index. décimale : PER Périodiques Résumé : We examined factors contributing to initial appointment attendance, alignment between parents' pre-visit and clinicians' diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services. En ligne : http://dx.doi.org/10.1007/s10803-019-04027-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers [Texte imprimé et/ou numérique] / Gazi F. AZAD, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; M. PINKETT-DAVIS, Auteur ; R. LANDA, Auteur . - p.3060-3072. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3060-3072 Mots-clés : Appointment attendance  Autism spectrum disorder  Diagnostic alignment  Specialty care Index. décimale : PER Périodiques Résumé : We examined factors contributing to initial appointment attendance, alignment between parents' pre-visit and clinicians' diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services. En ligne : http://dx.doi.org/10.1007/s10803-019-04027-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders / L. KALB in Journal of Autism and Developmental Disorders, 49-11 (November 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4707 Titre : Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; M. PINKETT-DAVIS, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur Article en page(s) : p.4707 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript. En ligne : http://dx.doi.org/10.1007/s10803-019-04197-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 [article] Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders [Texte imprimé et/ou numérique] / L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; M. PINKETT-DAVIS, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur . - p.4707. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4707 Index. décimale : PER Périodiques Résumé : During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript. En ligne : http://dx.doi.org/10.1007/s10803-019-04197-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408

Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders / L. KALB in Journal of Autism and Developmental Disorders, 49-9 (September 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3786-3797 Titre : Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur Article en page(s) : p.3786-3797 Langues : Anglais (eng) Mots-clés : Adhd  Autism  Consent  Neurodevelopmental disorders  Registry Index. décimale : PER Périodiques Résumé : The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline. En ligne : http://dx.doi.org/10.1007/s10803-019-04088-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405 [article] Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders [Texte imprimé et/ou numérique] / L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur . - p.3786-3797. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3786-3797 Mots-clés : Adhd  Autism  Consent  Neurodevelopmental disorders  Registry Index. décimale : PER Périodiques Résumé : The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline. En ligne : http://dx.doi.org/10.1007/s10803-019-04088-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405

Methodological considerations when assessing restricted and repetitive behaviors and aggression / A. J. KEEFER in Research in Autism Spectrum Disorders, 8-11 (November 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-11 (November 2014) . - p.1527-1534 Titre : Methodological considerations when assessing restricted and repetitive behaviors and aggression Type de document : Texte imprimé et/ou numérique Auteurs : A. J. KEEFER, Auteur ; L. KALB, Auteur ; M. O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; B. FREEDMAN, Auteur ; R. A. VASA, Auteur Article en page(s) : p.1527-1534 Langues : Anglais (eng) Mots-clés : Aggression  Repetitive behavior  Methodology Index. décimale : PER Périodiques Résumé : Methodological issues impacting the relationship between aggression and restricted, repetitive, and stereotyped behaviors and interests (RRSBI) were examined in 2648 children and adolescents with autism spectrum disorders (ASD) using a multi-method, multi-informant analysis model to assess the effects of informant, assessment method, and aggression phenotype. Overall, a significant, but small relationship was found between RRSBI and aggression (p lt; .05). There was significant heterogeneity of estimates with large effect sizes observed when utilizing teacher report and a broad phenotype of aggression. Variance in estimates was attributed to differences in informant and assessment method with two times greater effect attributed to informant. Results suggest strategies to optimize future investigations of the relationship between RRSBI and aggression. Findings also provide the opportunity for the development of targeted interventions for aggression in youth with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.019 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] Methodological considerations when assessing restricted and repetitive behaviors and aggression [Texte imprimé et/ou numérique] / A. J. KEEFER, Auteur ; L. KALB, Auteur ; M. O. MAZUREK, Auteur ; Stephen M. KANNE, Auteur ; B. FREEDMAN, Auteur ; R. A. VASA, Auteur . - p.1527-1534. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-11 (November 2014) . - p.1527-1534 Mots-clés : Aggression  Repetitive behavior  Methodology Index. décimale : PER Périodiques Résumé : Methodological issues impacting the relationship between aggression and restricted, repetitive, and stereotyped behaviors and interests (RRSBI) were examined in 2648 children and adolescents with autism spectrum disorders (ASD) using a multi-method, multi-informant analysis model to assess the effects of informant, assessment method, and aggression phenotype. Overall, a significant, but small relationship was found between RRSBI and aggression (p lt; .05). There was significant heterogeneity of estimates with large effect sizes observed when utilizing teacher report and a broad phenotype of aggression. Variance in estimates was attributed to differences in informant and assessment method with two times greater effect attributed to informant. Results suggest strategies to optimize future investigations of the relationship between RRSBI and aggression. Findings also provide the opportunity for the development of targeted interventions for aggression in youth with ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.019 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

Replication study of ADOS-2 Toddler Module cut-off scores for autism spectrum disorder classification / J. S. HONG in Autism Research, 14-6 (June 2021)  

Public ISBD [article]  inAutism Research > 14-6 (June 2021) . - p.1284-1295 Titre : Replication study of ADOS-2 Toddler Module cut-off scores for autism spectrum disorder classification Type de document : Texte imprimé et/ou numérique Auteurs : J. S. HONG, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; A. ASHKAR, Auteur ; R. LANDA, Auteur Article en page(s) : p.1284-1295 Langues : Anglais (eng) Mots-clés : Algorithms  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child, Preschool  Humans  Infant  ROC Curve  Sensitivity and Specificity  autism spectrum disorder  classification  diagnosis  validity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) has been regarded as the gold standard assessment of autism spectrum disorder (ASD). While clinical validity of ADOS-2 Modules 1-4 have been extensively studied, there has been very limited research examining the clinical validity of ADOS-2 Toddler Module. The goal of this study was to examine alignment of the ADOS-2 Toddler Module classification with clinicians' determination of ASD, with assessing cut-off scores for diagnosing ASD in toddlers. A total of 412 toddlers ages 12-30?months who received ADOS-2 Toddler Module as well as a best estimate clinical (BEC) diagnosis, were included in this study. ADOS-2 Toddler Module cut-off scores were determined using the appropriate algorithms (Algorithm 1 for toddlers aged 12-20?months and those aged 21-30?months with <5 words, Algorithm 2 for toddlers aged 21-30?months with 5 words or more). Receiver operating characteristic (ROC) curves were used to assess cut-off scores that optimized sensitivity and specificity when compared against BEC diagnosis. The selected cut-off scores were examined using frequency tables to compare ADOS-2 classification against BEC diagnosis. For Algorithm 1, classification statistics were optimized at the cut-off score of 12 with an area under the curve (AUC) of 0.92. For Algorithm 2, classification statistics were optimized at the cut-off score of 10 with an AUC of 0.96. The ADOS-2 Toddler Module classification is strongly aligned with BEC diagnosis. The optimal cut-off scores identified in the current study reflect the same results configured by the prior study. LAY SUMMARY: ADOS-2 Toddler Module has been widely used for the ASD assessment, but there have been limited research on its clinical validity. This study is the first replication of the ADOS-2 Toddler Module with a large independent sample. We examined alignment of the ADOS-2 Toddler Module classification with clinicians' determination of ASD, with assessing cut-off scores, and confirmed the clinical validity of ADOS-2 Toddler Module. Cut-off scores of ADOS-2 Toddler Module cited in the manual yielded best clinical utility for diagnosing ASD in toddlers. En ligne : http://dx.doi.org/10.1002/aur.2496 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Replication study of ADOS-2 Toddler Module cut-off scores for autism spectrum disorder classification [Texte imprimé et/ou numérique] / J. S. HONG, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; A. ASHKAR, Auteur ; R. LANDA, Auteur . - p.1284-1295. Langues : Anglais (eng) in Autism Research > 14-6 (June 2021) . - p.1284-1295 Mots-clés : Algorithms  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child, Preschool  Humans  Infant  ROC Curve  Sensitivity and Specificity  autism spectrum disorder  classification  diagnosis  validity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) has been regarded as the gold standard assessment of autism spectrum disorder (ASD). While clinical validity of ADOS-2 Modules 1-4 have been extensively studied, there has been very limited research examining the clinical validity of ADOS-2 Toddler Module. The goal of this study was to examine alignment of the ADOS-2 Toddler Module classification with clinicians' determination of ASD, with assessing cut-off scores for diagnosing ASD in toddlers. A total of 412 toddlers ages 12-30?months who received ADOS-2 Toddler Module as well as a best estimate clinical (BEC) diagnosis, were included in this study. ADOS-2 Toddler Module cut-off scores were determined using the appropriate algorithms (Algorithm 1 for toddlers aged 12-20?months and those aged 21-30?months with <5 words, Algorithm 2 for toddlers aged 21-30?months with 5 words or more). Receiver operating characteristic (ROC) curves were used to assess cut-off scores that optimized sensitivity and specificity when compared against BEC diagnosis. The selected cut-off scores were examined using frequency tables to compare ADOS-2 classification against BEC diagnosis. For Algorithm 1, classification statistics were optimized at the cut-off score of 12 with an area under the curve (AUC) of 0.92. For Algorithm 2, classification statistics were optimized at the cut-off score of 10 with an AUC of 0.96. The ADOS-2 Toddler Module classification is strongly aligned with BEC diagnosis. The optimal cut-off scores identified in the current study reflect the same results configured by the prior study. LAY SUMMARY: ADOS-2 Toddler Module has been widely used for the ASD assessment, but there have been limited research on its clinical validity. This study is the first replication of the ADOS-2 Toddler Module with a large independent sample. We examined alignment of the ADOS-2 Toddler Module classification with clinicians' determination of ASD, with assessing cut-off scores, and confirmed the clinical validity of ADOS-2 Toddler Module. Cut-off scores of ADOS-2 Toddler Module cited in the manual yielded best clinical utility for diagnosing ASD in toddlers. En ligne : http://dx.doi.org/10.1002/aur.2496 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

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