Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder / Lucy FELL in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5243-5252 Titre : Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lucy FELL, Auteur ; Brett GOSHE, Auteur ; Lara TRAEGER, Auteur ; Giselle PEREZ, Auteur ; Dorothea IANNUZZI, Auteur ; Elyse PARK, Auteur ; Karen A. KUHLTHAU, Auteur ; Christina LUBERTO, Auteur Année de publication : 2022 Article en page(s) : p.5243-5252 Langues : Anglais (eng) Mots-clés : Child  Humans  Adolescent  Autism Spectrum Disorder/therapy/psychology  Siblings/psychology  Adaptation, Psychological  Peer Group  Asd  Acceptability  Intervention  Sibling  Teenager  Telehealth Index. décimale : PER Périodiques Résumé : Teenage siblings of children with autism spectrum disorder (ASD) are at risk of worse mental health outcomes than their peers, yet there have been few interventions focused on improving their psychosocial wellbeing. This study explored the acceptability of an 8-session virtual group mind-body resiliency intervention for teen siblings of children with ASD. We used mixed methods to assess quantitative and qualitative survey results. Participants reported that the intervention had the right amount of sessions (88%), structure (74%), and duration (89%). Most participants felt comfortable during sessions (74%), found it helpful to learn mind-body exercises (74%), and that the intervention helped in coping with stress (71%). Though participants were satisfied with the opportunity to meet peers, they desired more social connection. En ligne : http://dx.doi.org/10.1007/s10803-022-05500-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Lucy FELL, Auteur ; Brett GOSHE, Auteur ; Lara TRAEGER, Auteur ; Giselle PEREZ, Auteur ; Dorothea IANNUZZI, Auteur ; Elyse PARK, Auteur ; Karen A. KUHLTHAU, Auteur ; Christina LUBERTO, Auteur . - 2022 . - p.5243-5252. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5243-5252 Mots-clés : Child  Humans  Adolescent  Autism Spectrum Disorder/therapy/psychology  Siblings/psychology  Adaptation, Psychological  Peer Group  Asd  Acceptability  Intervention  Sibling  Teenager  Telehealth Index. décimale : PER Périodiques Résumé : Teenage siblings of children with autism spectrum disorder (ASD) are at risk of worse mental health outcomes than their peers, yet there have been few interventions focused on improving their psychosocial wellbeing. This study explored the acceptability of an 8-session virtual group mind-body resiliency intervention for teen siblings of children with ASD. We used mixed methods to assess quantitative and qualitative survey results. Participants reported that the intervention had the right amount of sessions (88%), structure (74%), and duration (89%). Most participants felt comfortable during sessions (74%), found it helpful to learn mind-body exercises (74%), and that the intervention helped in coping with stress (71%). Though participants were satisfied with the opportunity to meet peers, they desired more social connection. En ligne : http://dx.doi.org/10.1007/s10803-022-05500-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder / Rachel M. FENNING in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3739-3747 Titre : Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric BUTTER, Auteur ; James CHAN, Auteur ; Kelly MCKINNON-BERMINGHAM, Auteur ; Kimberly J. HAMMERSMITH, Auteur ; Jacquelyn MOFFITT, Auteur ; Amy M. SHUI, Auteur ; Robert A. PARKER, Auteur ; Daniel L. COURY, Auteur ; Paul P. WANG, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3739-3747 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Dental care  Intellectual functioning  Preventive care Index. décimale : PER Périodiques Résumé : Dental care received by children in the Autism Speaks Autism Treatment Network (ATN) was compared to National Survey of Children's Health (NSCH) data for children without special healthcare needs and children with parent-reported ASD. Correlates of obtained preventive dental services were examined within the ATN sample. Participants included 375 families of children ages 4 to 17 enrolled in the ATN. ATN families reported levels of preventive dental care that were similar to, or exceeded, NSCH-reported care. However, disparities in obtained preventive dental services emerged within the ATN sample. Lower intellectual functioning was the most consistent correlate of reduced access to and completion of preventive dental care. Implications for developing system-wide supports and targeted interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04420-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric BUTTER, Auteur ; James CHAN, Auteur ; Kelly MCKINNON-BERMINGHAM, Auteur ; Kimberly J. HAMMERSMITH, Auteur ; Jacquelyn MOFFITT, Auteur ; Amy M. SHUI, Auteur ; Robert A. PARKER, Auteur ; Daniel L. COURY, Auteur ; Paul P. WANG, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3739-3747. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3739-3747 Mots-clés : Autism spectrum disorder (ASD)  Dental care  Intellectual functioning  Preventive care Index. décimale : PER Périodiques Résumé : Dental care received by children in the Autism Speaks Autism Treatment Network (ATN) was compared to National Survey of Children's Health (NSCH) data for children without special healthcare needs and children with parent-reported ASD. Correlates of obtained preventive dental services were examined within the ATN sample. Participants included 375 families of children ages 4 to 17 enrolled in the ATN. ATN families reported levels of preventive dental care that were similar to, or exceeded, NSCH-reported care. However, disparities in obtained preventive dental services emerged within the ATN sample. Lower intellectual functioning was the most consistent correlate of reduced access to and completion of preventive dental care. Implications for developing system-wide supports and targeted interventions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04420-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Associations of quality of life with health-related characteristics among children with autism / Karen A. KUHLTHAU in Autism, 22-7 (October 2018)  

Public ISBD [article]  inAutism > 22-7 (October 2018) . - p.804-813 Titre : Associations of quality of life with health-related characteristics among children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; D. L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur Article en page(s) : p.804-813 Langues : Anglais (eng) Mots-clés : Pediatric Quality of Life Inventory 4.0  autism  health  health-related quality of life  longitudinal  pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Associations of quality of life with health-related characteristics among children with autism [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; D. L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur . - p.804-813. Langues : Anglais (eng) in Autism > 22-7 (October 2018) . - p.804-813 Mots-clés : Pediatric Quality of Life Inventory 4.0  autism  health  health-related quality of life  longitudinal  pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol / Renske HOEFMAN in Journal of Autism and Developmental Disorders, 44-8 (August 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Titre : Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol Type de document : Texte imprimé et/ou numérique Auteurs : Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey PYNE, Auteur ; J. Mick TILFORD, Auteur Article en page(s) : p.1933-1945 Langues : Anglais (eng) Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236 [article] Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol [Texte imprimé et/ou numérique] / Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey PYNE, Auteur ; J. Mick TILFORD, Auteur . - p.1933-1945. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236

Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD / Dorothea IANNUZZI in Journal of Autism and Developmental Disorders, 52-6 (June 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2430-2437 Titre : Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Dorothea IANNUZZI, Auteur ; Lucy FELL, Auteur ; Christina LUBERTO, Auteur ; Brett M. GOSHE, Auteur ; Giselle PEREZ, Auteur ; Elyse PARK, Auteur ; Sydney CRUTE, Auteur ; Karen A. KUHLTHAU, Auteur ; Lara TRAEGER, Auteur Article en page(s) : p.2430-2437 Langues : Anglais (eng) Mots-clés : Asd  Lived experience  Resiliency  Sibling  Stress coping  Stressors Index. décimale : PER Périodiques Résumé : Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13-24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings' lived experience. En ligne : http://dx.doi.org/10.1007/s10803-021-05135-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD [Texte imprimé et/ou numérique] / Dorothea IANNUZZI, Auteur ; Lucy FELL, Auteur ; Christina LUBERTO, Auteur ; Brett M. GOSHE, Auteur ; Giselle PEREZ, Auteur ; Elyse PARK, Auteur ; Sydney CRUTE, Auteur ; Karen A. KUHLTHAU, Auteur ; Lara TRAEGER, Auteur . - p.2430-2437. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2430-2437 Mots-clés : Asd  Lived experience  Resiliency  Sibling  Stress coping  Stressors Index. décimale : PER Périodiques Résumé : Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13-24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings' lived experience. En ligne : http://dx.doi.org/10.1007/s10803-021-05135-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic / Elizabeth M. KRYSZAK in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

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ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O MAZUREK in Autism, 24-3 (April 2020)  

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Emergency Department Utilization of Adolescents and Young Adults with Autism Spectrum Disorder / D. IANNUZZI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

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Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder / J. VAN CLEAVE in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

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Health-related quality of life for children with ASD: Associations with behavioral characteristics / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 7-9 (September 2013)  

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Health-Related Quality of Life in Children with Autism Spectrum Disorders: Results from the Autism Treatment Network / Karen A. KUHLTHAU in Journal of Autism and Developmental Disorders, 40-6 (June 2010)  

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Healthcare access and services use among US children with autism spectrum disorder / O. J. LINDLY in Autism, 23-6 (August 2019)  

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"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

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Impact of employee benefits on families with children with autism spectrum disorders / Sangeeth GNANASEKARAN in Autism, 20-5 (July 2016)  

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Optimizing Parent Training to Improve Oral Health Behavior and Outcomes in Underserved Children with Autism Spectrum Disorder / Rachel M. FENNING in Journal of Autism and Developmental Disorders, 53-9 (September 2023)  

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