Child and caregiver predictors of primary caregiver participation in families of school-aged Autistic children / Josephine BARBARO ; Katy UNWIN ; Megan L. E. CLARK ; Rachel JELLETT ; Perrin DATE ; Melanie MUNIANDY ; Cheryl DISSANAYAKE in Autism Research, 17-7 (July 2024)  

Public ISBD [article]  inAutism Research > 17-7 (July 2024) . - p.1475-1486 Titre : Child and caregiver predictors of primary caregiver participation in families of school-aged Autistic children Type de document : texte imprimé Auteurs : Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan L. E. CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.1475-1486 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Engaging in meaningful activities (e.g., leisure, spiritual, fitness) significantly affects caregivers' quality of life (QoL), yet the determinants of participation in caregivers of Autistic children remain largely unknown. The current study examined child and caregiver correlates of primary caregiver participation in meaningful activities. One hundred and six primary caregivers of Autistic children (7-12 years) were recruited from three unique cohorts of Autistic children in this cross-sectional study. Primary caregivers completed online questionnaires measuring occupational gaps (i.e., desired activities caregivers are not participating in), QoL, parenting stress, perceived family outcomes, and social support. In addition to undertaking direct assessments of children's cognition and language, primary caregivers also reported on their child's adaptive behavior, social-emotional skills, and participation. Caregivers reporting fewer occupational gaps (i.e., 2 desired activities) were more likely to have Autistic children with no co-occurring conditions, who were older, and with better adaptive behaviors, social-emotional skills, and more frequent home and school participation, compared to caregivers reporting many gaps (i.e., 3 desired activities). Caregivers with fewer occupational gaps also reported improved QoL, parenting stress, social support, perceived community inclusiveness, and family outcomes. Logistic regression analysis identified child age, child adaptive behavior, social-emotional skills, home participation, and the caregivers' perceived family outcomes and QoL as important predictors of their occupational gaps. The findings demonstrate that caregiver participation in desired activities was associated with increased functional ability and independence of the child, as well as their perceived capacity to meet their child's needs. Supporting parents' sense of efficacy in meeting their children's needs and building their skills and knowledge will serve to improve both caregiver and child outcomes. En ligne : https://dx.doi.org/https://doi.org/10.1002/aur.3166 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533 [article] Child and caregiver predictors of primary caregiver participation in families of school-aged Autistic children [texte imprimé] / Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan L. E. CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.1475-1486. Langues : Anglais (eng) in Autism Research > 17-7 (July 2024) . - p.1475-1486 Index. décimale : PER Périodiques Résumé : Abstract Engaging in meaningful activities (e.g., leisure, spiritual, fitness) significantly affects caregivers' quality of life (QoL), yet the determinants of participation in caregivers of Autistic children remain largely unknown. The current study examined child and caregiver correlates of primary caregiver participation in meaningful activities. One hundred and six primary caregivers of Autistic children (7-12 years) were recruited from three unique cohorts of Autistic children in this cross-sectional study. Primary caregivers completed online questionnaires measuring occupational gaps (i.e., desired activities caregivers are not participating in), QoL, parenting stress, perceived family outcomes, and social support. In addition to undertaking direct assessments of children's cognition and language, primary caregivers also reported on their child's adaptive behavior, social-emotional skills, and participation. Caregivers reporting fewer occupational gaps (i.e., 2 desired activities) were more likely to have Autistic children with no co-occurring conditions, who were older, and with better adaptive behaviors, social-emotional skills, and more frequent home and school participation, compared to caregivers reporting many gaps (i.e., 3 desired activities). Caregivers with fewer occupational gaps also reported improved QoL, parenting stress, social support, perceived community inclusiveness, and family outcomes. Logistic regression analysis identified child age, child adaptive behavior, social-emotional skills, home participation, and the caregivers' perceived family outcomes and QoL as important predictors of their occupational gaps. The findings demonstrate that caregiver participation in desired activities was associated with increased functional ability and independence of the child, as well as their perceived capacity to meet their child's needs. Supporting parents' sense of efficacy in meeting their children's needs and building their skills and knowledge will serve to improve both caregiver and child outcomes. En ligne : https://dx.doi.org/https://doi.org/10.1002/aur.3166 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533

Continuity and Change in Cognition and Autism Severity from Toddlerhood to School Age / Megan L. E. CLARK in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.328-339 Titre : Continuity and Change in Cognition and Autism Severity from Toddlerhood to School Age Type de document : texte imprimé Auteurs : Megan L. E. CLARK, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.328-339 Langues : Anglais (eng) Mots-clés : Intellectual disability  Longitudinal  Cognition  Autism severity  Diagnostic stability Index. décimale : PER Périodiques Résumé : This paper charted the cognitive and behavioural profiles from toddlerhood to middle childhood in 48 children diagnosed with ASD at 24-months. The Mullen Scales of Early Learning (MSEL) was administered at 24- and 48-months and the Wechsler Abbreviated Scale of Intelligence (WASI) at school age. Autism severity was derived using The Autism Diagnostic Observation Schedule (ADOS) Results: Developmental Disability/Intellectual Disability (DD/ID; Developmental Quotient <70) reduced from 64% at 24-months to 8% at outcome. Seventy-three percent of children continued to meet ADOS cut-off at school age. Conclusion: Diagnoses at 24-months, appear to be reliable and stable. Further research is needed to investigate whether early identification, which provides more opportunity to access early intervention, may in turn facilitate cognitive development over time. En ligne : http://dx.doi.org/10.1007/s10803-016-2954-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 [article] Continuity and Change in Cognition and Autism Severity from Toddlerhood to School Age [texte imprimé] / Megan L. E. CLARK, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.328-339. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.328-339 Mots-clés : Intellectual disability  Longitudinal  Cognition  Autism severity  Diagnostic stability Index. décimale : PER Périodiques Résumé : This paper charted the cognitive and behavioural profiles from toddlerhood to middle childhood in 48 children diagnosed with ASD at 24-months. The Mullen Scales of Early Learning (MSEL) was administered at 24- and 48-months and the Wechsler Abbreviated Scale of Intelligence (WASI) at school age. Autism severity was derived using The Autism Diagnostic Observation Schedule (ADOS) Results: Developmental Disability/Intellectual Disability (DD/ID; Developmental Quotient <70) reduced from 64% at 24-months to 8% at outcome. Seventy-three percent of children continued to meet ADOS cut-off at school age. Conclusion: Diagnoses at 24-months, appear to be reliable and stable. Further research is needed to investigate whether early identification, which provides more opportunity to access early intervention, may in turn facilitate cognitive development over time. En ligne : http://dx.doi.org/10.1007/s10803-016-2954-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303

Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children / Gemma DAVY in Autism Research, 17-4 (April 2024)  

Public ISBD [article]  inAutism Research > 17-4 (April 2024) . - p.799-811 Titre : Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children Type de document : texte imprimé Auteurs : Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan L. E. CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.799-811 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 [article] Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children [texte imprimé] / Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan L. E. CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.799-811. Langues : Anglais (eng) in Autism Research > 17-4 (April 2024) . - p.799-811 Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526

Prediction of school-age outcomes for autistic children following receipt of group-early start denver model / Megan L. E. CLARK in Research in Autism Spectrum Disorders, 104 (June 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 104 (June 2023) . - 102164 Titre : Prediction of school-age outcomes for autistic children following receipt of group-early start denver model Type de document : texte imprimé Auteurs : Megan L. E. CLARK, Auteur ; Zoe VINEN, Auteur ; Giacomo VIVANTI, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : 102164 Langues : Anglais (eng) Mots-clés : Early Intervention  ESDM  Trajectories  Adaptive Behaviour  Cognition  School-age Index. décimale : PER Périodiques Résumé : Background Early predictors of developmental outcomes of school-age autistic children aged 6-9 years were examined in the current study. Method: Thirty-one autistic children that had received 12-months of Group-based Early Start Denver Model (G-ESDM) in a community childcare during their pre-school years were followed longitudinally. Cognition and autism behaviours were re-assessed at school-age. Results: Children s non-verbal and verbal cognition at baseline predicted within the same developmental domains at school age, with early verbal and non-verbal cognition also predicting adaptive behaviour at school age. Conclusions: This is the first study to document the relationship between early baseline characteristics at intake into EI and later school age outcomes following G-ESDM cessation. Importantly, the current findings reveal that developmental gains following receipt of a naturalistic developmental behavioural intervention within a community setting extend beyond the EI years and into the school years. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102164 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 [article] Prediction of school-age outcomes for autistic children following receipt of group-early start denver model [texte imprimé] / Megan L. E. CLARK, Auteur ; Zoe VINEN, Auteur ; Giacomo VIVANTI, Auteur ; Cheryl DISSANAYAKE, Auteur . - 102164. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102164 Mots-clés : Early Intervention  ESDM  Trajectories  Adaptive Behaviour  Cognition  School-age Index. décimale : PER Périodiques Résumé : Background Early predictors of developmental outcomes of school-age autistic children aged 6-9 years were examined in the current study. Method: Thirty-one autistic children that had received 12-months of Group-based Early Start Denver Model (G-ESDM) in a community childcare during their pre-school years were followed longitudinally. Cognition and autism behaviours were re-assessed at school-age. Results: Children s non-verbal and verbal cognition at baseline predicted within the same developmental domains at school age, with early verbal and non-verbal cognition also predicting adaptive behaviour at school age. Conclusions: This is the first study to document the relationship between early baseline characteristics at intake into EI and later school age outcomes following G-ESDM cessation. Importantly, the current findings reveal that developmental gains following receipt of a naturalistic developmental behavioural intervention within a community setting extend beyond the EI years and into the school years. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102164 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504

Professional and Parental Attitudes Toward iPad Application Use in Autism Spectrum Disorder / Megan L. E. CLARK in Focus on Autism and Other Developmental Disabilities, 30-3 (September 2015)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 30-3 (September 2015) . - p.174-181 Titre : Professional and Parental Attitudes Toward iPad Application Use in Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Megan L. E. CLARK, Auteur ; David W. AUSTIN, Auteur ; Melinda J. CRAIKE, Auteur Article en page(s) : p.174-181 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study explored the attitudes of parents and professionals who work with children with autism spectrum disorder (ASD) toward the utilization of iPads and use of iPad applications by children with ASD. A survey of parents (n = 90) and professionals (n = 31) assessed information and communication technology (ICT) anxiety and self-efficacy, attitude toward ICT and iPad applications, and iPad utilization. Both parents and professionals held positive attitudes toward ICT and iPad use for children with ASD. Parents reported high use of iPads by their children, and professionals reported some, albeit limited, utilization as part of their practice. These findings suggest that iPad applications are not being used by professionals to a degree that is consistent with their favorable attitudes toward them. iPad use has been enthusiastically adopted by many parents; however, there appears a need for training in their use and research to establish an evidence base. En ligne : http://dx.doi.org/10.1177/1088357614537353 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=266 [article] Professional and Parental Attitudes Toward iPad Application Use in Autism Spectrum Disorder [texte imprimé] / Megan L. E. CLARK, Auteur ; David W. AUSTIN, Auteur ; Melinda J. CRAIKE, Auteur . - p.174-181. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 30-3 (September 2015) . - p.174-181 Index. décimale : PER Périodiques Résumé : This study explored the attitudes of parents and professionals who work with children with autism spectrum disorder (ASD) toward the utilization of iPads and use of iPad applications by children with ASD. A survey of parents (n = 90) and professionals (n = 31) assessed information and communication technology (ICT) anxiety and self-efficacy, attitude toward ICT and iPad applications, and iPad utilization. Both parents and professionals held positive attitudes toward ICT and iPad use for children with ASD. Parents reported high use of iPads by their children, and professionals reported some, albeit limited, utilization as part of their practice. These findings suggest that iPad applications are not being used by professionals to a degree that is consistent with their favorable attitudes toward them. iPad use has been enthusiastically adopted by many parents; however, there appears a need for training in their use and research to establish an evidence base. En ligne : http://dx.doi.org/10.1177/1088357614537353 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=266

Research priorities of the autism community: A systematic review of key stakeholder perspectives / Laura ROCHE in Autism, 25-2 (February 2021)  

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School Age Outcomes of Children Diagnosed Early and Later with Autism Spectrum Disorder / Megan L. E. CLARK in Journal of Autism and Developmental Disorders, 48-1 (January 2018)  

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Social and Behavioural Outcomes of School Aged Autistic Children Who Received Community-Based Early Interventions / Zoe VINEN in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

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The Relationship Between Child Anxiety and the Quality of Life of Children, and Parents of Children, on the Autism Spectrum / Dawn ADAMS in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

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The self-identified positive attributes and favourite activities of children on the autism spectrum / Megan L. E. CLARK in Research in Autism Spectrum Disorders, 72 (April 2020)  

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