Anxiety in adults with autism: Perspectives from practitioners / Kirsty AINSWORTH in Research in Autism Spectrum Disorders, 69 (January 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 69 (January 2020) . - p.101457 Titre : Anxiety in adults with autism: Perspectives from practitioners Type de document : Texte imprimé et/ou numérique Auteurs : Kirsty AINSWORTH, Auteur ; Ashley E. ROBERTSON, Auteur ; Heather WELSH, Auteur ; Matthew DAY, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Andrew STANFIELD, Auteur ; Craig MELVILLE, Auteur Article en page(s) : p.101457 Langues : Anglais (eng) Mots-clés : Autism  Adults  Anxiety  Thematic analysis  Practitioners Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental condition, characterized by differences in social communication and social interaction as well as restricted interests and repetitive behaviours (American Psychiatric Association, 2013). Research has suggested that 50% of adults with autism meet criteria for an anxiety disorder diagnosis (Russell et al., 2013). Despite a call for multidisciplinary insights (White et al., 2018), few studies have included perspectives of practitioners in this field. Method We conducted interviews with eight practitioners (6 Clinical Psychologists, 1 Consultant Clinical Psychologist and 1 Nurse Practitioner) who work with adults with autism and anxiety on a regular basis. Results Via thematic analysis, four key themes were identified: 1. Modifications to psychological therapy 2. Thinking outside the box 3. Continued support 4. Issues with anxiety measures. Conclusion Modification of standard anxiety interventions are common in practice but the course and nature of these modifications are inconsistent and may depend on practitioner experience. Practitioners may consistently have to think inventively in order to best serve adults with autism and anxiety. Current anxiety measures could be improved in order to accurately gauge anxiety, specific to adults with autism. These findings are discussed in relation to practice and future research. En ligne : https://doi.org/10.1016/j.rasd.2019.101457 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412 [article] Anxiety in adults with autism: Perspectives from practitioners [Texte imprimé et/ou numérique] / Kirsty AINSWORTH, Auteur ; Ashley E. ROBERTSON, Auteur ; Heather WELSH, Auteur ; Matthew DAY, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Andrew STANFIELD, Auteur ; Craig MELVILLE, Auteur . - p.101457. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 69 (January 2020) . - p.101457 Mots-clés : Autism  Adults  Anxiety  Thematic analysis  Practitioners Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental condition, characterized by differences in social communication and social interaction as well as restricted interests and repetitive behaviours (American Psychiatric Association, 2013). Research has suggested that 50% of adults with autism meet criteria for an anxiety disorder diagnosis (Russell et al., 2013). Despite a call for multidisciplinary insights (White et al., 2018), few studies have included perspectives of practitioners in this field. Method We conducted interviews with eight practitioners (6 Clinical Psychologists, 1 Consultant Clinical Psychologist and 1 Nurse Practitioner) who work with adults with autism and anxiety on a regular basis. Results Via thematic analysis, four key themes were identified: 1. Modifications to psychological therapy 2. Thinking outside the box 3. Continued support 4. Issues with anxiety measures. Conclusion Modification of standard anxiety interventions are common in practice but the course and nature of these modifications are inconsistent and may depend on practitioner experience. Practitioners may consistently have to think inventively in order to best serve adults with autism and anxiety. Current anxiety measures could be improved in order to accurately gauge anxiety, specific to adults with autism. These findings are discussed in relation to practice and future research. En ligne : https://doi.org/10.1016/j.rasd.2019.101457 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412

Mortality in 787,666 school pupils with and without autism: A cohort study / Gillian S. SMITH in Autism, 25-1 (January 2021)  

Public ISBD [article]  inAutism > 25-1 (January 2021) . - p.300-304 Titre : Mortality in 787,666 school pupils with and without autism: A cohort study Type de document : Texte imprimé et/ou numérique Auteurs : Gillian S. SMITH, Auteur ; Michael FLEMING, Auteur ; Deborah KINNEAR, Auteur ; Angela HENDERSON, Auteur ; Jill P PELL, Auteur ; Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur Article en page(s) : p.300-304 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorders  death  mortality  prevalence  risk factor epidemiology  school-age children Index. décimale : PER Périodiques Résumé : There are few studies on the deaths of children and young people with autism; some studies on children and adults combined suggest that those with autism may have higher death rates than other people. More children are diagnosed with autism than in the past, suggesting that there are now more children with milder autism who have the diagnosis than in the past, so studies in the past might not apply to the current generation of children and young people diagnosed with autism. We examined the rates of death in children and young people in Scotland using recorded information in Scotland's annual pupil census, linked to the National Records of Scotland deaths register, between 2008 and 2015. In total, 9754 (1.2%) out of 787,666 pupils had autism. Six pupils with autism died in the study period, compared with 458 other pupils. This was equivalent to 16 per 100,000 for pupils with autism and 13 per 100,000 pupils without autism; hence, the rate of death was very similar. In the pupils with autism, the most common causes of death were diseases of the nervous system, whereas they were from external causes in the comparison pupils. The autism group had some deaths due to epilepsy which might have been prevented by good quality care. We cautiously conclude that the death rate in the current generation of children and young adults with autism is no higher than for other children, but that even in this high-income country, some deaths could be prevented by high quality care. En ligne : http://dx.doi.org/10.1177/1362361320944037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 [article] Mortality in 787,666 school pupils with and without autism: A cohort study [Texte imprimé et/ou numérique] / Gillian S. SMITH, Auteur ; Michael FLEMING, Auteur ; Deborah KINNEAR, Auteur ; Angela HENDERSON, Auteur ; Jill P PELL, Auteur ; Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur . - p.300-304. Langues : Anglais (eng) in Autism > 25-1 (January 2021) . - p.300-304 Mots-clés : adolescents  autism spectrum disorders  death  mortality  prevalence  risk factor epidemiology  school-age children Index. décimale : PER Périodiques Résumé : There are few studies on the deaths of children and young people with autism; some studies on children and adults combined suggest that those with autism may have higher death rates than other people. More children are diagnosed with autism than in the past, suggesting that there are now more children with milder autism who have the diagnosis than in the past, so studies in the past might not apply to the current generation of children and young people diagnosed with autism. We examined the rates of death in children and young people in Scotland using recorded information in Scotland's annual pupil census, linked to the National Records of Scotland deaths register, between 2008 and 2015. In total, 9754 (1.2%) out of 787,666 pupils had autism. Six pupils with autism died in the study period, compared with 458 other pupils. This was equivalent to 16 per 100,000 for pupils with autism and 13 per 100,000 pupils without autism; hence, the rate of death was very similar. In the pupils with autism, the most common causes of death were diseases of the nervous system, whereas they were from external causes in the comparison pupils. The autism group had some deaths due to epilepsy which might have been prevented by good quality care. We cautiously conclude that the death rate in the current generation of children and young adults with autism is no higher than for other children, but that even in this high-income country, some deaths could be prevented by high quality care. En ligne : http://dx.doi.org/10.1177/1362361320944037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437

Systematic review of the effectiveness and cultural adaptation of social skills interventions for adolescents with autism spectrum disorders in Asia / Nadlada TAWANKANJANACHOT in Research in Autism Spectrum Disorders, 104 (June 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 104 (June 2023) . - 102163 Titre : Systematic review of the effectiveness and cultural adaptation of social skills interventions for adolescents with autism spectrum disorders in Asia Type de document : Texte imprimé et/ou numérique Auteurs : Nadlada TAWANKANJANACHOT, Auteur ; Craig MELVILLE, Auteur ; Abdullah HABIB, Auteur ; Maria TRUESDALE, Auteur ; Lisa KIDD, Auteur Article en page(s) : 102163 Langues : Anglais (eng) Mots-clés : Social skills intervention  Autism  Cultural adaptation  Adolescents  Meta-analysis  Asia Index. décimale : PER Périodiques Résumé : Background Social skills interventions have been shown to improve social skills in adolescents with autism spectrum disorders (ASD). Because the majority of social skills interventions have been trialled in Western countries, they may not be generalisable to Asian countries with a different cultural background. The purpose of this review was to determine the efficacy and cultural adaptability of social skills interventions for adolescents with ASD (aged 10-19 years) in Asian countries. Method This review incorporated quantitative and mixed methods published, peer-reviewed research. Five electronic databases were searched. This review followed the PRISMA guidelines. A meta-analysis was conducted by using Revman 5.4 for 3 studies. Results In total, 15 studies were included in the review (n = 332), conducted across 7 Asian countries. Seven studies had undergone cultural adaptation in 3 countries (e.g., Hong Kong, South Korea, and Israel). Meta-analysis results for three comparable studies showed that the cultural adaptation of social skills interventions improved social skills knowledge of adolescents with ASD. Conclusion The review identified that social skills interventions for adolescents with ASD in Asian countries, particularly those which have been adapted to adolescents' cultural needs and preferences, are potentially effective for improving social skills. However, due to the study's limitations and the heterogeneity of included studies, further research is needed to provide strong evidence. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102163 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504 [article] Systematic review of the effectiveness and cultural adaptation of social skills interventions for adolescents with autism spectrum disorders in Asia [Texte imprimé et/ou numérique] / Nadlada TAWANKANJANACHOT, Auteur ; Craig MELVILLE, Auteur ; Abdullah HABIB, Auteur ; Maria TRUESDALE, Auteur ; Lisa KIDD, Auteur . - 102163. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 104 (June 2023) . - 102163 Mots-clés : Social skills intervention  Autism  Cultural adaptation  Adolescents  Meta-analysis  Asia Index. décimale : PER Périodiques Résumé : Background Social skills interventions have been shown to improve social skills in adolescents with autism spectrum disorders (ASD). Because the majority of social skills interventions have been trialled in Western countries, they may not be generalisable to Asian countries with a different cultural background. The purpose of this review was to determine the efficacy and cultural adaptability of social skills interventions for adolescents with ASD (aged 10-19 years) in Asian countries. Method This review incorporated quantitative and mixed methods published, peer-reviewed research. Five electronic databases were searched. This review followed the PRISMA guidelines. A meta-analysis was conducted by using Revman 5.4 for 3 studies. Results In total, 15 studies were included in the review (n = 332), conducted across 7 Asian countries. Seven studies had undergone cultural adaptation in 3 countries (e.g., Hong Kong, South Korea, and Israel). Meta-analysis results for three comparable studies showed that the cultural adaptation of social skills interventions improved social skills knowledge of adolescents with ASD. Conclusion The review identified that social skills interventions for adolescents with ASD in Asian countries, particularly those which have been adapted to adolescents' cultural needs and preferences, are potentially effective for improving social skills. However, due to the study's limitations and the heterogeneity of included studies, further research is needed to provide strong evidence. En ligne : http://dx.doi.org/https://doi.org/10.1016/j.rasd.2023.102163 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=504

The experience and impact of anxiety in autistic adults: A thematic analysis / Ashley E. ROBERTSON in Research in Autism Spectrum Disorders, 46 (February 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 46 (February 2018) . - p.8-18 Titre : The experience and impact of anxiety in autistic adults: A thematic analysis Type de document : Texte imprimé et/ou numérique Auteurs : Ashley E. ROBERTSON, Auteur ; Andrew C. STANFIELD, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Matthew DAY, Auteur ; Magnus CORMACK, Auteur ; Craig MELVILLE, Auteur Article en page(s) : p.8-18 Langues : Anglais (eng) Mots-clés : Anxiety  Thematic analysis  Qualitative  Autism spectrum disorders  Mental ill health Index. décimale : PER Périodiques Résumé : AbstractBackground A high proportion of individuals with Autism Spectrum Disorder (ASD) also meet criteria for anxiety disorders. Few studies have explored the experience and impact of anxiety in autistic adults using qualitative methods. Methods Seventeen semi-structured interviews with either autistic adults (n = 10) or the supporters of adults with a diagnosis of ASD (n = 7) were conducted. The data were analysed using thematic analysis. Results Three main themes were identified: ‘contributing and mitigating factors to anxiety’, ‘consequences of anxiety’, and ‘management of anxiety’. Discussion Findings highlighted the role that uncertainty plays in anxiety in autism, supporting existing theoretical accounts. Implications for clinical practice were discussed. These included ensuring that communication differences are minimised, and highlighting the importance of meaningfully including autistic people throughout the development and evaluation process of interventions for mental health. En ligne : https://doi.org/10.1016/j.rasd.2017.11.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327 [article] The experience and impact of anxiety in autistic adults: A thematic analysis [Texte imprimé et/ou numérique] / Ashley E. ROBERTSON, Auteur ; Andrew C. STANFIELD, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Matthew DAY, Auteur ; Magnus CORMACK, Auteur ; Craig MELVILLE, Auteur . - p.8-18. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 46 (February 2018) . - p.8-18 Mots-clés : Anxiety  Thematic analysis  Qualitative  Autism spectrum disorders  Mental ill health Index. décimale : PER Périodiques Résumé : AbstractBackground A high proportion of individuals with Autism Spectrum Disorder (ASD) also meet criteria for anxiety disorders. Few studies have explored the experience and impact of anxiety in autistic adults using qualitative methods. Methods Seventeen semi-structured interviews with either autistic adults (n = 10) or the supporters of adults with a diagnosis of ASD (n = 7) were conducted. The data were analysed using thematic analysis. Results Three main themes were identified: ‘contributing and mitigating factors to anxiety’, ‘consequences of anxiety’, and ‘management of anxiety’. Discussion Findings highlighted the role that uncertainty plays in anxiety in autism, supporting existing theoretical accounts. Implications for clinical practice were discussed. These included ensuring that communication differences are minimised, and highlighting the importance of meaningfully including autistic people throughout the development and evaluation process of interventions for mental health. En ligne : https://doi.org/10.1016/j.rasd.2017.11.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327

The Prevalence and Incidence of Mental Ill-Health in Adults with Autism and Intellectual Disabilities / Craig MELVILLE in Journal of Autism and Developmental Disorders, 38-9 (October 2008)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 38-9 (October 2008) . - p.1676-1688 Titre : The Prevalence and Incidence of Mental Ill-Health in Adults with Autism and Intellectual Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur ; Jill MORRISON, Auteur ; Elita SMILEY, Auteur ; Linda ALLAN, Auteur ; Alison JACKSON, Auteur ; Janet FINLAYSON, Auteur ; Dipali MANTRY, Auteur Année de publication : 2008 Article en page(s) : p.1676-1688 Langues : Anglais (eng) Mots-clés : Intellectual-disabilities Autism Mental-ill-health Psychiatry Epidemiology Psychiatric-classification Index. décimale : PER Périodiques Résumé : The prevalence, and incidence, of mental ill-health in adults with intellectual disabilities and autism were compared with the whole population with intellectual disabilities, and with controls, matched individually for age, gender, ability-level, and Down syndrome. Although the adults with autism had a higher point prevalence of problem behaviours compared with the whole adult population with intellectual disabilities, compared with individually matched controls there was no difference in prevalence, or incidence of either problem behaviours or other mental ill-health. Adults with autism who had problem behaviours were less likely to recover over a two-year period than were their matched controls. Apparent differences in rates of mental ill-health are accounted for by factors other than autism, including Down syndrome and ability level. En ligne : http://dx.doi.org/10.1007/s10803-008-0549-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=604 [article] The Prevalence and Incidence of Mental Ill-Health in Adults with Autism and Intellectual Disabilities [Texte imprimé et/ou numérique] / Craig MELVILLE, Auteur ; Sally-Ann COOPER, Auteur ; Jill MORRISON, Auteur ; Elita SMILEY, Auteur ; Linda ALLAN, Auteur ; Alison JACKSON, Auteur ; Janet FINLAYSON, Auteur ; Dipali MANTRY, Auteur . - 2008 . - p.1676-1688. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 38-9 (October 2008) . - p.1676-1688 Mots-clés : Intellectual-disabilities Autism Mental-ill-health Psychiatry Epidemiology Psychiatric-classification Index. décimale : PER Périodiques Résumé : The prevalence, and incidence, of mental ill-health in adults with intellectual disabilities and autism were compared with the whole population with intellectual disabilities, and with controls, matched individually for age, gender, ability-level, and Down syndrome. Although the adults with autism had a higher point prevalence of problem behaviours compared with the whole adult population with intellectual disabilities, compared with individually matched controls there was no difference in prevalence, or incidence of either problem behaviours or other mental ill-health. Adults with autism who had problem behaviours were less likely to recover over a two-year period than were their matched controls. Apparent differences in rates of mental ill-health are accounted for by factors other than autism, including Down syndrome and ability level. En ligne : http://dx.doi.org/10.1007/s10803-008-0549-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=604

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