Adapting and validating the Autism Diagnostic Interview - Revised for use with deaf children and young people / B. WRIGHT in Autism, 26-2 (February 2022)  

Public ISBD [article]  inAutism > 26-2 (February 2022) . - p.446-459 Titre : Adapting and validating the Autism Diagnostic Interview - Revised for use with deaf children and young people Type de document : Texte imprimé et/ou numérique Auteurs : B. WRIGHT, Auteur ; H. PHILLIPS, Auteur ; Victoria ALLGAR, Auteur ; J. SWEETMAN, Auteur ; R. HODKINSON, Auteur ; E. HAYWARD, Auteur ; A. RALPH-LEWIS, Auteur ; C. TEIGE, Auteur ; M. BLAND, Auteur ; A. LE COUTEUR, Auteur Article en page(s) : p.446-459 Langues : Anglais (eng) Mots-clés : Autism Diagnostic Interview–Revised  Autism Diagnostic Interview–Revised Deaf Adaptation  British Sign Language  Delphi consensus methodology  autism spectrum disorder  children  deaf  deaf culture  gesture  language  modified Index. décimale : PER Périodiques Résumé : Autism assessment processes need to improve for deaf children as they are currently being diagnosed later than their hearing counterparts and misdiagnosis can occur. We took one of the most commonly used parent developmental interviews for autism spectrum disorder the Autism Diagnostic Interview-Revised and adapted it using international expert advice. Modifications were proposed and agreed by the expert panel for 45% of items; the remaining 55% of items were unchanged. We then tested the revised version, adapted for deaf children (Autism Diagnostic Interview-Revised Deaf Adaptation), in a UK sample of 78 parents/carers of deaf children with autism spectrum disorder and 126 parents/carers with deaf children without autism spectrum disorder. When compared to National Institute for Health and Care Excellence guideline standard clinical assessments, the Autism Diagnostic Interview-Revised Deaf Adaptation diagnostic algorithm threshold scores could identify those deaf children with a definite diagnosis (true autism spectrum disorder positives) well (sensitivity of 89% (79%-96%)) and those deaf children who did not have autism spectrum disorder (true autism spectrum disorder negatives) well (specificity of 81% (70%-89%)). Our findings indicate that the Autism Diagnostic Interview-Revised Deaf Adaptation is likely to prove a useful measure for the assessment of deaf children with suspected autism spectrum disorder and that further research would be helpful. En ligne : http://dx.doi.org/10.1177/13623613211029116 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Adapting and validating the Autism Diagnostic Interview - Revised for use with deaf children and young people [Texte imprimé et/ou numérique] / B. WRIGHT, Auteur ; H. PHILLIPS, Auteur ; Victoria ALLGAR, Auteur ; J. SWEETMAN, Auteur ; R. HODKINSON, Auteur ; E. HAYWARD, Auteur ; A. RALPH-LEWIS, Auteur ; C. TEIGE, Auteur ; M. BLAND, Auteur ; A. LE COUTEUR, Auteur . - p.446-459. Langues : Anglais (eng) in Autism > 26-2 (February 2022) . - p.446-459 Mots-clés : Autism Diagnostic Interview–Revised  Autism Diagnostic Interview–Revised Deaf Adaptation  British Sign Language  Delphi consensus methodology  autism spectrum disorder  children  deaf  deaf culture  gesture  language  modified Index. décimale : PER Périodiques Résumé : Autism assessment processes need to improve for deaf children as they are currently being diagnosed later than their hearing counterparts and misdiagnosis can occur. We took one of the most commonly used parent developmental interviews for autism spectrum disorder the Autism Diagnostic Interview-Revised and adapted it using international expert advice. Modifications were proposed and agreed by the expert panel for 45% of items; the remaining 55% of items were unchanged. We then tested the revised version, adapted for deaf children (Autism Diagnostic Interview-Revised Deaf Adaptation), in a UK sample of 78 parents/carers of deaf children with autism spectrum disorder and 126 parents/carers with deaf children without autism spectrum disorder. When compared to National Institute for Health and Care Excellence guideline standard clinical assessments, the Autism Diagnostic Interview-Revised Deaf Adaptation diagnostic algorithm threshold scores could identify those deaf children with a definite diagnosis (true autism spectrum disorder positives) well (sensitivity of 89% (79%-96%)) and those deaf children who did not have autism spectrum disorder (true autism spectrum disorder negatives) well (specificity of 81% (70%-89%)). Our findings indicate that the Autism Diagnostic Interview-Revised Deaf Adaptation is likely to prove a useful measure for the assessment of deaf children with suspected autism spectrum disorder and that further research would be helpful. En ligne : http://dx.doi.org/10.1177/13623613211029116 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people / H. PHILLIPS in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.553-568 Titre : Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people Type de document : Texte imprimé et/ou numérique Auteurs : H. PHILLIPS, Auteur ; B. WRIGHT, Auteur ; Victoria ALLGAR, Auteur ; H. MCCONACHIE, Auteur ; J. SWEETMAN, Auteur ; R. HARGATE, Auteur ; R. HODKINSON, Auteur ; M. BLAND, Auteur ; H. GEORGE, Auteur ; A. HUGHES, Auteur ; E. HAYWARD, Auteur ; V. F. G. DE LAS HERAS, Auteur ; A. LE COUTEUR, Auteur Article en page(s) : p.553-568 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Humans  Sensitivity and Specificity  Specialization  Assessment  Autism Spectrum Disorder  Autism diagnostic observation schedule  Deaf  Delphi consensus  Diagnosis  Sign language  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule - 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2-18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1-3 (combined as in previous studies) sensitivity 79% (95% CI 65-89%); specificity 79% (95% CI 66-89%) suggesting this instrument will be a helpful addition for use with deaf children and young people. En ligne : http://dx.doi.org/10.1007/s10803-021-04931-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people [Texte imprimé et/ou numérique] / H. PHILLIPS, Auteur ; B. WRIGHT, Auteur ; Victoria ALLGAR, Auteur ; H. MCCONACHIE, Auteur ; J. SWEETMAN, Auteur ; R. HARGATE, Auteur ; R. HODKINSON, Auteur ; M. BLAND, Auteur ; H. GEORGE, Auteur ; A. HUGHES, Auteur ; E. HAYWARD, Auteur ; V. F. G. DE LAS HERAS, Auteur ; A. LE COUTEUR, Auteur . - p.553-568. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.553-568 Mots-clés : Adolescent  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Humans  Sensitivity and Specificity  Specialization  Assessment  Autism Spectrum Disorder  Autism diagnostic observation schedule  Deaf  Delphi consensus  Diagnosis  Sign language  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule - 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2-18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1-3 (combined as in previous studies) sensitivity 79% (95% CI 65-89%); specificity 79% (95% CI 66-89%) suggesting this instrument will be a helpful addition for use with deaf children and young people. En ligne : http://dx.doi.org/10.1007/s10803-021-04931-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Corrigendum to “DSM-5 Autism Spectrum Disorder: In search of essential behaviours for diagnosis” [Res. Autism Spectr. Disord. 8 (2014) (6) 701–715] / Sarah J. CARRINGTON in Research in Autism Spectrum Disorders, 78 (October 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 78 (October 2020) . - 101649 Titre : Corrigendum to “DSM-5 Autism Spectrum Disorder: In search of essential behaviours for diagnosis” [Res. Autism Spectr. Disord. 8 (2014) (6) 701–715] Type de document : Texte imprimé et/ou numérique Auteurs : Sarah J. CARRINGTON, Auteur ; R. G. KENT, Auteur ; J. MALJAARS, Auteur ; A. LE COUTEUR, Auteur ; J. GOULD, Auteur ; L. WING, Auteur ; I. NOENS, Auteur ; I. VAN BERCKELAR-ONNES, Auteur ; S. R. LEEKAM, Auteur Article en page(s) : 101649 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.rasd.2020.101649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Corrigendum to “DSM-5 Autism Spectrum Disorder: In search of essential behaviours for diagnosis” [Res. Autism Spectr. Disord. 8 (2014) (6) 701–715] [Texte imprimé et/ou numérique] / Sarah J. CARRINGTON, Auteur ; R. G. KENT, Auteur ; J. MALJAARS, Auteur ; A. LE COUTEUR, Auteur ; J. GOULD, Auteur ; L. WING, Auteur ; I. NOENS, Auteur ; I. VAN BERCKELAR-ONNES, Auteur ; S. R. LEEKAM, Auteur . - 101649. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101649 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.rasd.2020.101649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder / H. MCCONACHIE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1041-1051 Titre : Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : H. MCCONACHIE, Auteur ; N. LIVINGSTONE, Auteur ; C. MORRIS, Auteur ; Bryony BERESFORD, Auteur ; A. LE COUTEUR, Auteur ; P. GRINGRAS, Auteur ; D. GARLAND, Auteur ; G. JONES, Auteur ; G. MACDONALD, Auteur ; K. WILLIAMS, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1041-1051 Langues : Anglais (eng) Mots-clés : Consultation  Measurement  Outcomes  Parents  Young children Index. décimale : PER Périodiques Résumé : Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research. En ligne : http://dx.doi.org/10.1007/s10803-017-3282-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / H. MCCONACHIE, Auteur ; N. LIVINGSTONE, Auteur ; C. MORRIS, Auteur ; Bryony BERESFORD, Auteur ; A. LE COUTEUR, Auteur ; P. GRINGRAS, Auteur ; D. GARLAND, Auteur ; G. JONES, Auteur ; G. MACDONALD, Auteur ; K. WILLIAMS, Auteur ; Jeremy R. PARR, Auteur . - p.1041-1051. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1041-1051 Mots-clés : Consultation  Measurement  Outcomes  Parents  Young children Index. décimale : PER Périodiques Résumé : Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research. En ligne : http://dx.doi.org/10.1007/s10803-017-3282-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

Psychometric properties of questionnaires and diagnostic measures for autism spectrum disorders in adults: A systematic review / S. WIGHAM in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.287-305 Titre : Psychometric properties of questionnaires and diagnostic measures for autism spectrum disorders in adults: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : S. WIGHAM, Auteur ; J. RODGERS, Auteur ; Tom BERNEY, Auteur ; A. LE COUTEUR, Auteur ; B. INGHAM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.287-305 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  review  screening Index. décimale : PER Périodiques Résumé : Accurately diagnosing autism spectrum disorders in adulthood can be challenging. Structured questionnaires and diagnostic measures are frequently used to assist case recognition and diagnosis. This study reviewed research evidence on structured questionnaires and diagnostic measures published since the National Institute for Health and Care Excellence evidence update. The Cochrane library, Medline, Embase and PsycINFO were searched. In all, 20 studies met inclusion criteria. Sensitivity and specificity of structured questionnaires were best for individuals with previously confirmed autism spectrum disorder diagnoses and reduced in participants referred for diagnostic assessments, with discrimination of autism spectrum disorder from mental health conditions especially limited. For adults with intellectual disability, diagnostic accuracy increased when a combination of structured questionnaires were used. Evidence suggests some utility of diagnostic measures in identifying autism spectrum disorder among clinic referrals, although specificity for diagnosis was relatively low. In mental health settings, the use of a single structured questionnaire is unlikely to accurately identify adults without autism spectrum disorder or differentiate autism spectrum disorder from mental health conditions. This is important as adults seeking an autism spectrum disorder diagnostic assessment are likely to have co-existing mental health conditions. Robust autism spectrum disorder assessment tools specifically for use in adult diagnostic health services in the presence of co-occurring mental health and neurodevelopmental disorders are a research priority. En ligne : http://dx.doi.org/10.1177/1362361317748245 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Psychometric properties of questionnaires and diagnostic measures for autism spectrum disorders in adults: A systematic review [Texte imprimé et/ou numérique] / S. WIGHAM, Auteur ; J. RODGERS, Auteur ; Tom BERNEY, Auteur ; A. LE COUTEUR, Auteur ; B. INGHAM, Auteur ; Jeremy R. PARR, Auteur . - p.287-305. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.287-305 Mots-clés : autism spectrum disorders  diagnosis  review  screening Index. décimale : PER Périodiques Résumé : Accurately diagnosing autism spectrum disorders in adulthood can be challenging. Structured questionnaires and diagnostic measures are frequently used to assist case recognition and diagnosis. This study reviewed research evidence on structured questionnaires and diagnostic measures published since the National Institute for Health and Care Excellence evidence update. The Cochrane library, Medline, Embase and PsycINFO were searched. In all, 20 studies met inclusion criteria. Sensitivity and specificity of structured questionnaires were best for individuals with previously confirmed autism spectrum disorder diagnoses and reduced in participants referred for diagnostic assessments, with discrimination of autism spectrum disorder from mental health conditions especially limited. For adults with intellectual disability, diagnostic accuracy increased when a combination of structured questionnaires were used. Evidence suggests some utility of diagnostic measures in identifying autism spectrum disorder among clinic referrals, although specificity for diagnosis was relatively low. In mental health settings, the use of a single structured questionnaire is unlikely to accurately identify adults without autism spectrum disorder or differentiate autism spectrum disorder from mental health conditions. This is important as adults seeking an autism spectrum disorder diagnostic assessment are likely to have co-existing mental health conditions. Robust autism spectrum disorder assessment tools specifically for use in adult diagnostic health services in the presence of co-occurring mental health and neurodevelopmental disorders are a research priority. En ligne : http://dx.doi.org/10.1177/1362361317748245 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

The Association Between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood / E. SALOMONE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

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The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention / K. LEADBITTER in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

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Which Factors Influence Teacher Report of Adaptive Functioning in Autistic Children? / H. L. MOORE in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

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