Longitudinal Examination of Wandering in Children and Adolescents With Autism / Lisa D. WIGGINS in Autism, 30-8 (August 2026)  

Public ISBD [article]  inAutism > 30-8 (August 2026) . - p.2107-2116 Titre : Longitudinal Examination of Wandering in Children and Adolescents With Autism Type de document : texte imprimé Auteurs : Lisa D. WIGGINS, Auteur ; Carolyn DIGUISEPPI, Auteur ; Katherine OVERWYK, Auteur ; Patrick POWELL, Auteur ; Angela THOMPSON-PAUL, Auteur ; Eric MOODY, Auteur ; Cy NADLER, Auteur ; Nuri REYES, Auteur ; Sarah TINKER, Auteur Article en page(s) : p.2107-2116 Langues : Anglais (eng) Mots-clés : autism  prevention  safety  wandering Index. décimale : PER Périodiques Résumé : Wandering – or leaving a supervised space and/or care of a responsible person – disproportionately affects children with autism and can lead to serious injury. We describe parent-reported wandering in children with autism in early childhood and adolescence and characterize wandering in adolescence. Of 258 teens with autism enrolled in the Study to Explore Early Development, caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Childhood externalizing behavior problems were positively associated with wandering only in early childhood and at least once in adolescence compared to never wandered (both p < .01). Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In conclusion, wandering is less common among adolescents than young children with autism but still presents opportunities for intervention. These findings can help partners communicate that childhood externalizing behavior problems are associated with wandering regardless of age and promote awareness of and access to interventions that can improve health and safety.Lay Abstract Wandering occurs when a child leaves a safe space. Children with autism wander more than other children. This can lead to serious injury. We describe wandering in children and adolescents with autism. In total, 258 teens with autism were included in the analysis. Caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Children with behaviors like hyperactivity were more likely to wander in both early childhood and adolescence. Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In sum, wandering is less common among adolescents than young children with autism. However, we can still help families with adolescents with autism who wander. One way to help these families is to educate people that behavior problems like hyperactivity are associated with wandering regardless of age. Another way to help these families is to increase ways to address wandering away from the home to keep adolescents with autism safe. En ligne : https://dx.doi.org/10.1177/13623613261459642 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] Longitudinal Examination of Wandering in Children and Adolescents With Autism [texte imprimé] / Lisa D. WIGGINS, Auteur ; Carolyn DIGUISEPPI, Auteur ; Katherine OVERWYK, Auteur ; Patrick POWELL, Auteur ; Angela THOMPSON-PAUL, Auteur ; Eric MOODY, Auteur ; Cy NADLER, Auteur ; Nuri REYES, Auteur ; Sarah TINKER, Auteur . - p.2107-2116. Langues : Anglais (eng) in Autism > 30-8 (August 2026) . - p.2107-2116 Mots-clés : autism  prevention  safety  wandering Index. décimale : PER Périodiques Résumé : Wandering – or leaving a supervised space and/or care of a responsible person – disproportionately affects children with autism and can lead to serious injury. We describe parent-reported wandering in children with autism in early childhood and adolescence and characterize wandering in adolescence. Of 258 teens with autism enrolled in the Study to Explore Early Development, caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Childhood externalizing behavior problems were positively associated with wandering only in early childhood and at least once in adolescence compared to never wandered (both p < .01). Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In conclusion, wandering is less common among adolescents than young children with autism but still presents opportunities for intervention. These findings can help partners communicate that childhood externalizing behavior problems are associated with wandering regardless of age and promote awareness of and access to interventions that can improve health and safety.Lay Abstract Wandering occurs when a child leaves a safe space. Children with autism wander more than other children. This can lead to serious injury. We describe wandering in children and adolescents with autism. In total, 258 teens with autism were included in the analysis. Caregivers reported that 45% never wandered, 41% wandered only in early childhood, and 14% wandered at least once in adolescence (including 9% that wandered at both time points). Children with behaviors like hyperactivity were more likely to wander in both early childhood and adolescence. Adolescents who wandered most often left public places (58.3%). To address wandering, caregivers most often added home locks/alarms (30.6%) and least often placed a tracking device (8.3%) on the adolescent. In sum, wandering is less common among adolescents than young children with autism. However, we can still help families with adolescents with autism who wander. One way to help these families is to educate people that behavior problems like hyperactivity are associated with wandering regardless of age. Another way to help these families is to increase ways to address wandering away from the home to keep adolescents with autism safe. En ligne : https://dx.doi.org/10.1177/13623613261459642 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

“Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 / A. ROESTORF in Research in Autism Spectrum Disorders, 63 (July 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 63 (July 2019) . - p.3-12 Titre : “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 Type de document : texte imprimé Auteurs : A. ROESTORF, Auteur ; Dermot M. BOWLER, Auteur ; Marie K. DESERNO, Auteur ; Patricia HOWLIN, Auteur ; Laura G. KLINGER, Auteur ; Helen MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; Patrick POWELL, Auteur ; Barbara F.C. VAN HEIJST, Auteur ; Hilde M. GEURTS, Auteur Article en page(s) : p.3-12 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Aging  Measurement  Diagnosis  Quality of life Index. décimale : PER Périodiques Résumé : A special interest group (SIG) entitled "Older Adults with ASD: The Consequences of Aging" was held at the International Society for Autism Research (INSAR) annual meetings in 2016 and 2017. The SIG and subsequent meetings brought together, for the first time, international delegates who were members of the autistic community, researchers, practitioners and service providers. Based on aging autism research that is already underway in UK, Europe, Australia and North America, discussions focussed on conceptualising the parameters of aging when referring to autism, and the measures that are appropriate to use with older adults when considering diagnostic assessment, cognitive factors and quality of life in older age. Thus, the aim of this SIG was to progress the research agenda on current and future directions for autism research in the context of aging. A global issue on how to define 'aging' when referring to ASD was at the forefront of discussions. The ‘aging’ concept can in principle refer to all developmental transitions. However, in this paper we focus on the cognitive and physical changes that take place from mid-life onwards. Accordingly, it was agreed that aging and ASD research should focus on adults over the age of 50 years, given the high rates of co-occurring physical and mental health concerns and increased risk of premature death in some individuals. Moreover, very little is known about the cognitive change, care needs and outcomes of autistic adults beyond this age. Discussions on the topics of diagnostic and cognitive assessments, and of quality of life and well-being were explored through shared knowledge about which measures are currently being used and which background questions should be asked to obtain comprehensive and informative developmental and medical histories. Accordingly, a survey was completed by SIG delegates who were representatives of international research groups across four continents, and who are currently conducting studies with older autistic adults. Considerable overlap was identified across different research groups in measures of both autism and quality of life, which pointed to combining data and shared learnings as the logical next step. Regarding the background questions that were asked, the different research groups covered similar topics but the groups differed in the way these questions were formulated when working with autistic adults across a range of cognitive abilities. It became clear that continued input from individuals on the autism spectrum is important to ensure that questionnaires used in ongoing and future are accessible and understandable for people across the whole autistic spectrum, including those with limited verbal abilities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394 [article] “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 [texte imprimé] / A. ROESTORF, Auteur ; Dermot M. BOWLER, Auteur ; Marie K. DESERNO, Auteur ; Patricia HOWLIN, Auteur ; Laura G. KLINGER, Auteur ; Helen MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; Patrick POWELL, Auteur ; Barbara F.C. VAN HEIJST, Auteur ; Hilde M. GEURTS, Auteur . - p.3-12. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 63 (July 2019) . - p.3-12 Mots-clés : Autism spectrum disorder  Aging  Measurement  Diagnosis  Quality of life Index. décimale : PER Périodiques Résumé : A special interest group (SIG) entitled "Older Adults with ASD: The Consequences of Aging" was held at the International Society for Autism Research (INSAR) annual meetings in 2016 and 2017. The SIG and subsequent meetings brought together, for the first time, international delegates who were members of the autistic community, researchers, practitioners and service providers. Based on aging autism research that is already underway in UK, Europe, Australia and North America, discussions focussed on conceptualising the parameters of aging when referring to autism, and the measures that are appropriate to use with older adults when considering diagnostic assessment, cognitive factors and quality of life in older age. Thus, the aim of this SIG was to progress the research agenda on current and future directions for autism research in the context of aging. A global issue on how to define 'aging' when referring to ASD was at the forefront of discussions. The ‘aging’ concept can in principle refer to all developmental transitions. However, in this paper we focus on the cognitive and physical changes that take place from mid-life onwards. Accordingly, it was agreed that aging and ASD research should focus on adults over the age of 50 years, given the high rates of co-occurring physical and mental health concerns and increased risk of premature death in some individuals. Moreover, very little is known about the cognitive change, care needs and outcomes of autistic adults beyond this age. Discussions on the topics of diagnostic and cognitive assessments, and of quality of life and well-being were explored through shared knowledge about which measures are currently being used and which background questions should be asked to obtain comprehensive and informative developmental and medical histories. Accordingly, a survey was completed by SIG delegates who were representatives of international research groups across four continents, and who are currently conducting studies with older autistic adults. Considerable overlap was identified across different research groups in measures of both autism and quality of life, which pointed to combining data and shared learnings as the logical next step. Regarding the background questions that were asked, the different research groups covered similar topics but the groups differed in the way these questions were formulated when working with autistic adults across a range of cognitive abilities. It became clear that continued input from individuals on the autism spectrum is important to ensure that questionnaires used in ongoing and future are accessible and understandable for people across the whole autistic spectrum, including those with limited verbal abilities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394

The Association Between Motor and Social Skills in Young Autistic Children Enrolled in the Study to Explore Early Development / Olivia M. POKOSKI in Autism, 30-8 (August 2026)  

Public ISBD [article]  inAutism > 30-8 (August 2026) . - p.1971-1985 Titre : The Association Between Motor and Social Skills in Young Autistic Children Enrolled in the Study to Explore Early Development Type de document : texte imprimé Auteurs : Olivia M. POKOSKI, Auteur ; Hideko ENGEL, Auteur ; Sarah M. FURNIER, Auteur ; Ronald GANGNON, Auteur ; Patrick POWELL, Auteur ; Nuri REYES, Auteur ; Brittany G. TRAVERS, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur Article en page(s) : p.1971-1985 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  child  epidemiology  motor skills  preschool  social behavior Index. décimale : PER Périodiques Résumé : Motor difficulties are common in autistic individuals and may contribute to challenges in social development. Understanding the association between motor and social skills could inform interventions to improve developmental outcomes. Using data from the Study to Explore Early Development—a large, diverse sample of rigorously characterized preschool-aged autistic children in the United States—we aimed to (a) describe the frequency of motor challenges using multiple standardized instruments; and (b) evaluate associations between motor and social skills. Children were identified from health and education organizations and birth records. Caregivers completed standardized interviews and questionnaires, and children completed comprehensive developmental evaluations to determine autism status. Among 2,039 children meeting the study autism criteria, 67.3% exhibited motor scores ⩾2 standard deviations below the mean on at least one measure. Motor difficulties were more prevalent in the fine motor (up to 63.4%) than gross motor (14.2%) domain and among children with significant visual reception delays (up to 92.8%) than those without these delays (up to 32.0%). After adjusting for covariates, fine motor skills were significantly associated with social challenges in both functional and autism-specific domains. These findings highlight the importance of motor development in early autism evaluations.Lay abstract Many autistic children have challenges with movement skills, such as crawling, walking, or using their hands for tasks like drawing or eating. These motor difficulties can also affect how children learn, play, and interact with others. Understanding how motor and social skills are connected may help improve early support for autistic children. This study used data from the Study to Explore Early Development, a large research project that included preschool-aged autistic children from diverse communities across the United States. Parents completed interviews and surveys about their child’s development, and each child was evaluated by trained professionals to better understand their strengths and needs. We looked at over 2,000 autistic children and found that about 67% (two out of three) had motor skill scores that were well below what’s typical for their age. Motor difficulties were more common when children used small muscles in the hands and fingers, like when drawing or eating, than when they used large muscles, like when crawling or walking. We also found that children with stronger motor skills tended to have fewer social challenges. These results show that motor delays are not only common in young autistic children but may also be linked to how they develop social skills. Spotting motor difficulties early could help families and professionals better support each child’s development. Supporting motor skills in early childhood, along with communication and behavior, might help autistic children build stronger social connections. By raising awareness about the role of motor skills in autism, we could help make interventions more effective and equitable, leading to autistic children learning, playing, and connecting with others more easily. En ligne : https://dx.doi.org/10.1177/13623613261447759 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] The Association Between Motor and Social Skills in Young Autistic Children Enrolled in the Study to Explore Early Development [texte imprimé] / Olivia M. POKOSKI, Auteur ; Hideko ENGEL, Auteur ; Sarah M. FURNIER, Auteur ; Ronald GANGNON, Auteur ; Patrick POWELL, Auteur ; Nuri REYES, Auteur ; Brittany G. TRAVERS, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur . - p.1971-1985. Langues : Anglais (eng) in Autism > 30-8 (August 2026) . - p.1971-1985 Mots-clés : autism spectrum disorder  child  epidemiology  motor skills  preschool  social behavior Index. décimale : PER Périodiques Résumé : Motor difficulties are common in autistic individuals and may contribute to challenges in social development. Understanding the association between motor and social skills could inform interventions to improve developmental outcomes. Using data from the Study to Explore Early Development—a large, diverse sample of rigorously characterized preschool-aged autistic children in the United States—we aimed to (a) describe the frequency of motor challenges using multiple standardized instruments; and (b) evaluate associations between motor and social skills. Children were identified from health and education organizations and birth records. Caregivers completed standardized interviews and questionnaires, and children completed comprehensive developmental evaluations to determine autism status. Among 2,039 children meeting the study autism criteria, 67.3% exhibited motor scores ⩾2 standard deviations below the mean on at least one measure. Motor difficulties were more prevalent in the fine motor (up to 63.4%) than gross motor (14.2%) domain and among children with significant visual reception delays (up to 92.8%) than those without these delays (up to 32.0%). After adjusting for covariates, fine motor skills were significantly associated with social challenges in both functional and autism-specific domains. These findings highlight the importance of motor development in early autism evaluations.Lay abstract Many autistic children have challenges with movement skills, such as crawling, walking, or using their hands for tasks like drawing or eating. These motor difficulties can also affect how children learn, play, and interact with others. Understanding how motor and social skills are connected may help improve early support for autistic children. This study used data from the Study to Explore Early Development, a large research project that included preschool-aged autistic children from diverse communities across the United States. Parents completed interviews and surveys about their child’s development, and each child was evaluated by trained professionals to better understand their strengths and needs. We looked at over 2,000 autistic children and found that about 67% (two out of three) had motor skill scores that were well below what’s typical for their age. Motor difficulties were more common when children used small muscles in the hands and fingers, like when drawing or eating, than when they used large muscles, like when crawling or walking. We also found that children with stronger motor skills tended to have fewer social challenges. These results show that motor delays are not only common in young autistic children but may also be linked to how they develop social skills. Spotting motor difficulties early could help families and professionals better support each child’s development. Supporting motor skills in early childhood, along with communication and behavior, might help autistic children build stronger social connections. By raising awareness about the role of motor skills in autism, we could help make interventions more effective and equitable, leading to autistic children learning, playing, and connecting with others more easily. En ligne : https://dx.doi.org/10.1177/13623613261447759 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation / Katerina DUDLEY in Journal of Autism and Developmental Disorders, 49-2 (February 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.556-568 Titre : Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation Type de document : texte imprimé Auteurs : Katerina DUDLEY, Auteur ; Mark R. KLINGER, Auteur ; Alexandria MEYER, Auteur ; Patrick POWELL, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.556-568 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Living situation  Middle adulthood  Service needs  Service obstacles  Service usage Index. décimale : PER Périodiques Résumé : With the increasing prevalence of adults with autism spectrum disorder (ASD), research examining the service experiences of this population is greatly needed. The current study investigated service use, unmet needs, and obstacles to service access for a large sample of adults with ASD. After accounting for various demographic factors known to impact service usage and needs, living situation was a significant predictor of service use, needs, and obstacles to services. Adults with ASD living with family reported less service use, higher unmet need, and more obstacles to accessing services. With more than half of this adult sample living with family, results have clear public policy implications to support the increasing population of adults with ASD living with aging caregivers. En ligne : http://dx.doi.org/10.1007/s10803-018-3729-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382 [article] Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation [texte imprimé] / Katerina DUDLEY, Auteur ; Mark R. KLINGER, Auteur ; Alexandria MEYER, Auteur ; Patrick POWELL, Auteur ; Laura G. KLINGER, Auteur . - p.556-568. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.556-568 Mots-clés : Autism spectrum disorder  Living situation  Middle adulthood  Service needs  Service obstacles  Service usage Index. décimale : PER Périodiques Résumé : With the increasing prevalence of adults with autism spectrum disorder (ASD), research examining the service experiences of this population is greatly needed. The current study investigated service use, unmet needs, and obstacles to service access for a large sample of adults with ASD. After accounting for various demographic factors known to impact service usage and needs, living situation was a significant predictor of service use, needs, and obstacles to services. Adults with ASD living with family reported less service use, higher unmet need, and more obstacles to accessing services. With more than half of this adult sample living with family, results have clear public policy implications to support the increasing population of adults with ASD living with aging caregivers. En ligne : http://dx.doi.org/10.1007/s10803-018-3729-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382

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