Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school / Janina BREDE in Autism & Developmental Language Impairments, 2 (January-December 2017)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 2 (January-December 2017) Titre : Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school Type de document : Texte imprimé et/ou numérique Auteurs : Janina BREDE, Auteur ; Anna REMINGTON, Auteur ; Lorcan KENNY, Auteur ; Katy WARREN, Auteur ; Elizabeth PELLICANO, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background and aimsAll children have the right to receive an education and to be included in school. Yet young people on the autism spectrum, who are already vulnerable to poor health and social outcomes, are at increased risk of school exclusion. The current study sought to understand the key factors surrounding the school exclusion experiences of a group of autistic students with particularly complex needs, and their subsequent re-integration into education.MethodWe interviewed nine intellectually able students (eight male, one female; M age=13.3 years), all with a diagnosis of autism and the majority with a history of demand avoidant behaviour. We also interviewed their parents and teaching staff about the students? past and current school experiences. All students were currently being educated within an ?Inclusive Learning Hub?, specially designed to re-integrate excluded, autistic students back into school, which was situated within a larger autism special school.ResultsYoung people and their parents gave overwhelmingly negative accounts of the students? previous school experiences. Children?s perceived unmet needs, as well as inappropriate approaches by previous school staff in dealing with children?s difficulties, were felt to cause decline in children?s mental health and behaviour and, ultimately, led to their exclusion from school. Four key factors for successful reintegration into school were identified, including (i) making substantial adjustments to the physical environment, (ii) promoting strong staff?student relationships, (iii) understanding students? specific needs, and (iv) targeted efforts towards improving students? wellbeing.ConclusionThe culmination ? and escalation ? of challenges students experienced in the students? previous placements could suggest that the educational journey to exclusion from school is an inevitable consequence for at least some autistic children, including those with particularly complex behaviour, as sampled here. Yet, our study encouragingly showed that this was not necessarily the case. All the young people we spoke to reported being happy, safe and secure in their current placement, and re-engaged with school life. Outstanding issues remain, however, with regard to children?s reportedly slow academic progress and difficulties generalising the positive behaviour shown in school across home and community contexts.ImplicationsMore remains to be done to ensure that autistic children and young people?s progress at school is also mirrored in other settings. Future research also needs to develop more preventative approaches to avoid exclusion from school, including efforts towards improving education professionals? knowledge and awareness of autism, and effective ways of responding to these students? needs. En ligne : https://doi.org/10.1177/2396941517737511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 [article] Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school [Texte imprimé et/ou numérique] / Janina BREDE, Auteur ; Anna REMINGTON, Auteur ; Lorcan KENNY, Auteur ; Katy WARREN, Auteur ; Elizabeth PELLICANO, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 2 (January-December 2017) Index. décimale : PER Périodiques Résumé : Background and aimsAll children have the right to receive an education and to be included in school. Yet young people on the autism spectrum, who are already vulnerable to poor health and social outcomes, are at increased risk of school exclusion. The current study sought to understand the key factors surrounding the school exclusion experiences of a group of autistic students with particularly complex needs, and their subsequent re-integration into education.MethodWe interviewed nine intellectually able students (eight male, one female; M age=13.3 years), all with a diagnosis of autism and the majority with a history of demand avoidant behaviour. We also interviewed their parents and teaching staff about the students? past and current school experiences. All students were currently being educated within an ?Inclusive Learning Hub?, specially designed to re-integrate excluded, autistic students back into school, which was situated within a larger autism special school.ResultsYoung people and their parents gave overwhelmingly negative accounts of the students? previous school experiences. Children?s perceived unmet needs, as well as inappropriate approaches by previous school staff in dealing with children?s difficulties, were felt to cause decline in children?s mental health and behaviour and, ultimately, led to their exclusion from school. Four key factors for successful reintegration into school were identified, including (i) making substantial adjustments to the physical environment, (ii) promoting strong staff?student relationships, (iii) understanding students? specific needs, and (iv) targeted efforts towards improving students? wellbeing.ConclusionThe culmination ? and escalation ? of challenges students experienced in the students? previous placements could suggest that the educational journey to exclusion from school is an inevitable consequence for at least some autistic children, including those with particularly complex behaviour, as sampled here. Yet, our study encouragingly showed that this was not necessarily the case. All the young people we spoke to reported being happy, safe and secure in their current placement, and re-engaged with school life. Outstanding issues remain, however, with regard to children?s reportedly slow academic progress and difficulties generalising the positive behaviour shown in school across home and community contexts.ImplicationsMore remains to be done to ensure that autistic children and young people?s progress at school is also mirrored in other settings. Future research also needs to develop more preventative approaches to avoid exclusion from school, including efforts towards improving education professionals? knowledge and awareness of autism, and effective ways of responding to these students? needs. En ligne : https://doi.org/10.1177/2396941517737511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386

"For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women / Janina BREDE in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Titre : "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women Type de document : Texte imprimé et/ou numérique Auteurs : Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; Will MANDY, Auteur Article en page(s) : p.4280-4296 Langues : Anglais (eng) Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women [Texte imprimé et/ou numérique] / Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; Will MANDY, Auteur . - p.4280-4296. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [Texte imprimé et/ou numérique] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [Texte imprimé et/ou numérique] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

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