Autism Diagnosis Patterns in Bolivia / Michaela DUBAY in Research in Autism, 130 (February 2026)  

Public ISBD [article]  inResearch in Autism > 130 (February 2026) . - p.202763 Titre : Autism Diagnosis Patterns in Bolivia Type de document : texte imprimé Auteurs : Michaela DUBAY, Auteur ; Mya HOWARD, Auteur ; Gabriela CÁRDENAS, Auteur Article en page(s) : p.202763 Langues : Anglais (eng) Mots-clés : Diagnosis  Autism  Global context Index. décimale : PER Périodiques Résumé : Autism diagnoses can be made reliably in children as early as 14 months of age, but resource limited settings experience significant delays in this area. Access to timely and accurate autism diagnoses is critical for early intervention, yet little is known about diagnostic patterns in low- and middle-income countries. The aim of this study was to determine diagnostic timelines and professional involvements for autism diagnoses in Bolivia. Methods A cross-sectional survey of 372 caregivers of autistic children reported their experiences with symptom recognition, diagnosis timing, diagnostic providers, and settings. Results Findings revealed a wide range of diagnosis timelines across families, with an average age of first concerns at 30.7 months and diagnosis at 47.1 months, with a diagnostic delay of about 16 months. Most diagnoses were made by neuro-pediatricians or psychologists, typically in private clinics. Diagnosis timelines have reduced significantly for children born more recently. Earlier diagnosis was associated with greater language delays, behavioral severity, and autism symptom severity. Discussion Findings underscore both progress and continued challenges in early autism identification in Bolivia. Expanding access to multidisciplinary evaluations and increasing autism awareness among professionals and families may help reduce diagnostic delays and promote early intervention in low- and middle-income countries such as Bolivia. En ligne : https://doi.org/10.1016/j.reia.2025.202763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 [article] Autism Diagnosis Patterns in Bolivia [texte imprimé] / Michaela DUBAY, Auteur ; Mya HOWARD, Auteur ; Gabriela CÁRDENAS, Auteur . - p.202763. Langues : Anglais (eng) in Research in Autism > 130 (February 2026) . - p.202763 Mots-clés : Diagnosis  Autism  Global context Index. décimale : PER Périodiques Résumé : Autism diagnoses can be made reliably in children as early as 14 months of age, but resource limited settings experience significant delays in this area. Access to timely and accurate autism diagnoses is critical for early intervention, yet little is known about diagnostic patterns in low- and middle-income countries. The aim of this study was to determine diagnostic timelines and professional involvements for autism diagnoses in Bolivia. Methods A cross-sectional survey of 372 caregivers of autistic children reported their experiences with symptom recognition, diagnosis timing, diagnostic providers, and settings. Results Findings revealed a wide range of diagnosis timelines across families, with an average age of first concerns at 30.7 months and diagnosis at 47.1 months, with a diagnostic delay of about 16 months. Most diagnoses were made by neuro-pediatricians or psychologists, typically in private clinics. Diagnosis timelines have reduced significantly for children born more recently. Earlier diagnosis was associated with greater language delays, behavioral severity, and autism symptom severity. Discussion Findings underscore both progress and continued challenges in early autism identification in Bolivia. Expanding access to multidisciplinary evaluations and increasing autism awareness among professionals and families may help reduce diagnostic delays and promote early intervention in low- and middle-income countries such as Bolivia. En ligne : https://doi.org/10.1016/j.reia.2025.202763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579

Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder / Michaela DUBAY in Research in Autism Spectrum Disorders, 102 (April 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 102 (April 2023) . - p.102117 Titre : Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder Type de document : texte imprimé Auteurs : Michaela DUBAY, Auteur ; Helen LEE, Auteur ; Ruben PALOMO, Auteur Article en page(s) : p.102117 Langues : Anglais (eng) Mots-clés : ASD  Assessment  Translation  Cultural adaptation  Empirical testing Index. décimale : PER Périodiques Résumé : Background With increasing interests in identification and diagnosis of autism spectrum disorder (ASD) across the world, a number of screening and diagnostic tools have been developed and translated from one language to another in varying qualities. In particular, many tools have been made available in Spanish to meet the needs of the world?s large Spanish-speaking populations. Critical examination of such Spanish language tools, in the areas of development and translation as well as empirical testing, is necessary to determine the quality of these tools, including their validity and reliability in the target population. The aim of the present review is to provide a comprehensive evidence map of screening and diagnostic tools for ASD in Spanish, especially with regards to the aspects of development/translation and empirical testing. Method A total of 48 Spanish versions of 21 instruments met study criteria for analysis after conducting multiple searches through nine key databases, grey literature, and by contacting authors, translators, and publishers. Results Results showed that a significant number of translations lacked translational process details in published locations and a majority of the studies used a traditional forward-backward approach rather than cultural adaptation procedures. About half of the translations did not provide necessary empirical evidence to support clinical utility of their translated tool. Conclusions Future studies are recommended to take more rigorous, culturally adaptive translational approach and test instruments in local populations to ensure their psychometric validities. En ligne : https://doi.org/10.1016/j.rasd.2023.102117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder [texte imprimé] / Michaela DUBAY, Auteur ; Helen LEE, Auteur ; Ruben PALOMO, Auteur . - p.102117. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 102 (April 2023) . - p.102117 Mots-clés : ASD  Assessment  Translation  Cultural adaptation  Empirical testing Index. décimale : PER Périodiques Résumé : Background With increasing interests in identification and diagnosis of autism spectrum disorder (ASD) across the world, a number of screening and diagnostic tools have been developed and translated from one language to another in varying qualities. In particular, many tools have been made available in Spanish to meet the needs of the world?s large Spanish-speaking populations. Critical examination of such Spanish language tools, in the areas of development and translation as well as empirical testing, is necessary to determine the quality of these tools, including their validity and reliability in the target population. The aim of the present review is to provide a comprehensive evidence map of screening and diagnostic tools for ASD in Spanish, especially with regards to the aspects of development/translation and empirical testing. Method A total of 48 Spanish versions of 21 instruments met study criteria for analysis after conducting multiple searches through nine key databases, grey literature, and by contacting authors, translators, and publishers. Results Results showed that a significant number of translations lacked translational process details in published locations and a majority of the studies used a traditional forward-backward approach rather than cultural adaptation procedures. About half of the translations did not provide necessary empirical evidence to support clinical utility of their translated tool. Conclusions Future studies are recommended to take more rigorous, culturally adaptive translational approach and test instruments in local populations to ensure their psychometric validities. En ligne : https://doi.org/10.1016/j.rasd.2023.102117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

Evidence of cross-cultural differences across multiple translations of an autism screening tool / Michaela DUBAY in Research in Autism, 129 (January 2026)  

Public ISBD [article]  inResearch in Autism > 129 (January 2026) . - 202738 Titre : Evidence of cross-cultural differences across multiple translations of an autism screening tool Type de document : texte imprimé Auteurs : Michaela DUBAY, Auteur ; John SIDERIS, Auteur ; Erica ROUCH, Auteur ; Yun-Ju CHEN, Auteur ; Grace T. BARANEK, Auteur ; Linda R. WATSON, Auteur ; Elizabeth CRAIS, Auteur Année de publication : 2026 Article en page(s) : 202738 Langues : Anglais (eng) Mots-clés : Culture  Measurement Invariance  Screening  Translation Index. décimale : PER Périodiques Résumé : Background Examining the psychometric alignment of translations of autism assessments with original language versions allows for cross-cultural comparisons and data pooling. This study tested measurement invariance between three versions of a parent-report autism screening tool, the First Years Inventory v3.1(FYI): 1) the original English, 2) a traditional forward-backward (FB) Spanish translation, and 3) a culturally adapted Spanish translation (TCA). Methods Participants were caregivers of children 6-16 months of age in the United States. 5974 native English-speakers completed the English FYI. 506 native Spanish-speakers were randomized to complete one of two FYI Spanish translations, either the FB (N = 257) or the TCA (N = 249). Results We performed measurement invariance testing using multigroup confirmatory factor analysis to evaluate the psychometric equivalence of the Spanish versions to the English version across the three groups. Neither Spanish version was invariant with the English version, however partial models were identified. Analysis of mean differences in factor and item means did not indicate that one Spanish translation was more aligned with the English version than the other. Conclusions Datasets including multiple language versions of an instrument should undergo measurement invariance testing to ensure equivalence between language versions and avoid the risk of making unfounded conclusions. Further research should identify specific translation methods that are sufficient in generating instruments that are valid for both clinical and empirical purposes as neither translation methodology used here maintained psychometric equivalence to the original English version. More robust cultural adaptation procedures may be necessary. En ligne : https://doi.org/10.1016/j.reia.2025.202738 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=573 [article] Evidence of cross-cultural differences across multiple translations of an autism screening tool [texte imprimé] / Michaela DUBAY, Auteur ; John SIDERIS, Auteur ; Erica ROUCH, Auteur ; Yun-Ju CHEN, Auteur ; Grace T. BARANEK, Auteur ; Linda R. WATSON, Auteur ; Elizabeth CRAIS, Auteur . - 2026 . - 202738. Langues : Anglais (eng) in Research in Autism > 129 (January 2026) . - 202738 Mots-clés : Culture  Measurement Invariance  Screening  Translation Index. décimale : PER Périodiques Résumé : Background Examining the psychometric alignment of translations of autism assessments with original language versions allows for cross-cultural comparisons and data pooling. This study tested measurement invariance between three versions of a parent-report autism screening tool, the First Years Inventory v3.1(FYI): 1) the original English, 2) a traditional forward-backward (FB) Spanish translation, and 3) a culturally adapted Spanish translation (TCA). Methods Participants were caregivers of children 6-16 months of age in the United States. 5974 native English-speakers completed the English FYI. 506 native Spanish-speakers were randomized to complete one of two FYI Spanish translations, either the FB (N = 257) or the TCA (N = 249). Results We performed measurement invariance testing using multigroup confirmatory factor analysis to evaluate the psychometric equivalence of the Spanish versions to the English version across the three groups. Neither Spanish version was invariant with the English version, however partial models were identified. Analysis of mean differences in factor and item means did not indicate that one Spanish translation was more aligned with the English version than the other. Conclusions Datasets including multiple language versions of an instrument should undergo measurement invariance testing to ensure equivalence between language versions and avoid the risk of making unfounded conclusions. Further research should identify specific translation methods that are sufficient in generating instruments that are valid for both clinical and empirical purposes as neither translation methodology used here maintained psychometric equivalence to the original English version. More robust cultural adaptation procedures may be necessary. En ligne : https://doi.org/10.1016/j.reia.2025.202738 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=573

Focus on Families / Michaela DUBAY

Public ISBD in The SAGE Handbook of Autism and Education / Rita JORDAN Titre : Focus on Families Type de document : texte imprimé Auteurs : Michaela DUBAY, Auteur ; Sallie W. NOWELL, Auteur ; Linda R. WATSON, Auteur Année de publication : 2019 Importance : p.186-202 Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417 in The SAGE Handbook of Autism and Education / Rita JORDAN Focus on Families [texte imprimé] / Michaela DUBAY, Auteur ; Sallie W. NOWELL, Auteur ; Linda R. WATSON, Auteur . - 2019 . - p.186-202. Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417

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In Search of Culturally Appropriate Autism Interventions: Perspectives of Latino Caregivers / Michaela DUBAY in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1623-1639 Titre : In Search of Culturally Appropriate Autism Interventions: Perspectives of Latino Caregivers Type de document : texte imprimé Auteurs : Michaela DUBAY, Auteur ; Linda R. WATSON, Auteur ; Wenxin ZHANG, Auteur Article en page(s) : p.1623-1639 Langues : Anglais (eng) Mots-clés : Cultural adaptation  Evidence-based practices  Latino  Parent perspectives Index. décimale : PER Périodiques Résumé : Most evidence-based autism spectrum disorder (ASD) interventions are tested with primarily White, mid-upper class, English-speaking populations, despite the increase in Latino children with ASD in early intervention programs throughout the United States. Unfortunately, interventions that are incongruent with a target population's culture may be relatively ineffective. This mixed-methods study explored how culturally appropriate, feasible, and acceptable Latino caregivers perceived intervention models, strategies, and targets. Survey data were compared for 28 Latino and 27 non-Latino White parents of young children with ASD. Further, 20 Latino caregivers participated in focus groups to describe their challenges, perspectives and preferences for intervention strategies and models, and unmet needs from providers. These findings underscore the need for culturally modified interventions for Latino children and families. En ligne : http://dx.doi.org/10.1007/s10803-017-3394-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355 [article] In Search of Culturally Appropriate Autism Interventions: Perspectives of Latino Caregivers [texte imprimé] / Michaela DUBAY, Auteur ; Linda R. WATSON, Auteur ; Wenxin ZHANG, Auteur . - p.1623-1639. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1623-1639 Mots-clés : Cultural adaptation  Evidence-based practices  Latino  Parent perspectives Index. décimale : PER Périodiques Résumé : Most evidence-based autism spectrum disorder (ASD) interventions are tested with primarily White, mid-upper class, English-speaking populations, despite the increase in Latino children with ASD in early intervention programs throughout the United States. Unfortunately, interventions that are incongruent with a target population's culture may be relatively ineffective. This mixed-methods study explored how culturally appropriate, feasible, and acceptable Latino caregivers perceived intervention models, strategies, and targets. Survey data were compared for 28 Latino and 27 non-Latino White parents of young children with ASD. Further, 20 Latino caregivers participated in focus groups to describe their challenges, perspectives and preferences for intervention strategies and models, and unmet needs from providers. These findings underscore the need for culturally modified interventions for Latino children and families. En ligne : http://dx.doi.org/10.1007/s10803-017-3394-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355

Is traditional back translation enough? Comparison of translation methodology for an ASD screening tool / Michaela DUBAY in Autism Research, 15-10 (October 2022)  

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Rigorous Translation and Cultural Adaptation of an Autism Screening Tool: First Years Inventory as a Case Study / Michaela DUBAY in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

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Translation and cultural adaptation of parent-report developmental assessments: Improving rigor in methodology / Michaela DUBAY in Research in Autism Spectrum Disorders, 62 (June 2019)  

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